The 20 Best PHACE Syndrome Doctors in Germany

Find the Top PHACE Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 11 doctor with experience in PHACE Syndrome near Germany. Of these, 8 are Experienced and 3 are Advanced.

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11 providers found
    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome
    Referral may be required
    University Children's Hospital Regensburg Hospital St. Hedwig Of The Order Of St. John, Linik St. Hedwig, Steinmetzstraße 1-3, 
    Regensburg, BY, DE 

    Sigrid Disse practices practicing medicine in Regensburg, Germany. Ms. Disse is rated as an Advanced expert by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses PHACE Syndrome, Parkes Weber Syndrome, Sturge-Weber Syndrome, and Clouston Syndrome.

    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome
    Referral may be required
    Freiburg, BW, DE 

    Friedrich Kapp practices practicing medicine in Freiburg, Germany. Mr. Kapp is rated as an Advanced expert by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Hemangioma Thrombocytopenia Syndrome, PHACE Syndrome, Hemangioma, Hemangioendothelioma, and Liver Embolization.

    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome
    Referral may be required
    Janusz Korczak Allee 12, 
    Hannover, NI, DE 

    Hagen Ott practices practicing medicine in Hannover, Germany. Mr. Ott is rated as an Advanced expert by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Nonbullous Congenital Ichthyosiform Erythroderma, Epidermolysis Bullosa, Lichen Sclerosus, and PHACE Syndrome.

    Learn about our expert tiers
    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Knut Brockmann practices practicing medicine in Goettingen, Germany. Mr. Brockmann is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Hypotonia.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Alfried Krupp Str. 21, 
    Essen, NW, DE 

    Jeffrie Hadisurya practices practicing medicine in Essen, Germany. Hadisurya is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses PHACE Syndrome, Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and Thrombectomy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Lichtscheider Str. 89, 
    Wuppertal, NW, DE 

    Dagmar Wieczorek practices practicing medicine in Wuppertal, Germany. Ms. Wieczorek is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Simone Schroder practices practicing medicine in Goettingen, Germany. Ms. Schroder is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Oculomotor Apraxia Cogan Type, FOXG1 Syndrome, Apraxia, and PHACE Syndrome.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Alfried Krupp Str. 21, 
    Essen, NW, DE 

    Markus Kraemer practices practicing medicine in Essen, Germany. Mr. Kraemer is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Moyamoya Disease, Adenosine Deaminase 2 Deficiency, Susac Syndrome, Extracranial-Intracranial Bypass Surgery, and Tissue Biopsy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Munich, BY, DE 

    Katrin Karl practices practicing medicine in Munich, Germany. Ms. Karl is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Corpus Callosum Agenesis, PHACE Syndrome, Ectodermal Dysplasias, and Clouston Syndrome.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Kirrberger Str. 100, 
    Homburg, SL, DE 

    Michael Zemlin practices practicing medicine in Homburg, Germany. Mr. Zemlin is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Premature Infant, Bronchopulmonary Dysplasia, Neonatal Sepsis, and Necrotizing Enterocolitis.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required
    Alfried Krupp Str. 21, 
    Essen, NW, DE 

    Jan Schwitalla practices practicing medicine in Essen, Germany. Schwitalla is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Moyamoya Disease, PHACE Syndrome, Epilepsy Juvenile Absence, Corpus Callosum Agenesis, and Extracranial-Intracranial Bypass Surgery.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 11/08/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best PHACE Syndrome doctor in Germany?

    You can find a PHACE Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank PHACE Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors in Germany?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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