The 20 Best PHACE Syndrome Doctors Near Me in Philadelphia, PA

Find the Top PHACE Syndrome Experts and Specialists

The 20 Best PHACE Syndrome Doctors near Philadelphia, PA

Last Updated: 02/22/2026

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MediFind found 12 doctor with experience in PHACE Syndrome near Philadelphia, PA. Of these, 8 are Experienced, 3 are Advanced and 1 are Distinguished.

Location
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12 providers found
    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Office

    3500 Civic Center Blvd, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    James R Treat is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. R Treat is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cutis Marmorata Telangiectatica Congenita, PHACE Syndrome, Pityriasis Lichenoides Et Varioliformis Acuta, and Livedo Reticularis.

    Lori A. Sheehan
    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Vickie & Jack Farber Institute For Neuroscience - Honickman Center

    1101 Chestnut Street, Floor 10, 
    Philadelphia, PA 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lori Sheehan is a Neurologist in Philadelphia, Pennsylvania. Dr. Sheehan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Migraine, Cerebellar Degeneration, Migraine with Brainstem Aura, and Congenital Cardiovascular Shunt. Dr. Sheehan is currently accepting new patients.

    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Leslie Castelo is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Castelo is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Autosomal Recessive Hypotrichosis, Alopecia Areata, Lamellar Ichthyosis, and Nonbullous Congenital Ichthyosiform Erythroderma.

    Learn about our expert tiers
    Advanced in PHACE Syndrome
    Pediatric Neurology
    Advanced in PHACE Syndrome
    Pediatric Neurology
    3401 Civic Center Blvd, 9nw63, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Ana Cristancho is a Pediatric Neurologist in Philadelphia, Pennsylvania. Dr. Cristancho is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cerebral Hypoxia, Focal or Multifocal Malformations in Neuronal Migration, PHACE Syndrome, and Corpus Callosum Agenesis.

    Experienced in PHACE Syndrome
    Neurosurgery
    Experienced in PHACE Syndrome
    Neurosurgery

    Penn Neurosurgery Pennsylvania Hospital

    801 Spruce Street, Spruce Building, 3rd Floor, 
    Philadelphia, PA 
     (0.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Shin is a Neurosurgery provider in Philadelphia, Pennsylvania. Dr. Shin is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Scoliosis, Kyphosis, Spinal Stenosis, Laminectomy, and Microdiscectomy. Dr. Shin is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Children's Hospital Of Philadelphia

    3401 Civic Center Blvd, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Cathryn Sibbald is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Sibbald is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Localized Scleroderma, Alopecia Areata, Autosomal Recessive Hypotrichosis, and Pityriasis Lichenoides.

    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
     (1.6 miles away)
    Languages Spoken:
    English

    Daniel Licht is a Neurologist in Philadelphia, Pennsylvania. Dr. Licht is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Periventricular Leukomalacia, Cerebral Hypoxia, Agyria Pachygyria Polymicrogyria, PHACE Syndrome, and Thrombectomy.

    Michelle J. Smith
    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    830 Old Lancaster Road, Suite 209, 
    Bryn Mawr, PA 
     (9.5 miles away)
    Languages Spoken:
    English, French
    Accepting New Patients

    Michelle Smith is a Neurosurgery provider in Bryn Mawr, Pennsylvania. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Stroke, Brain Aneurysm, Apoplexy, Stent Placement, and Transmyocardial Revascularization. Dr. Smith is currently accepting new patients.

    Sharon A. Lewis
    Experienced in PHACE Syndrome
    Neurology | Neuromusculoskeletal Medicine
    Experienced in PHACE Syndrome
    Neurology | Neuromusculoskeletal Medicine

    Cooper And Inspira Neurosciences At Deptford

    1450 Almonesson Road, 
    Deptford, NJ 
     (8.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Offers Telehealth

    Sharon Lewis is a Neuromusculoskeletal Medicine specialist and a Neurologist in Deptford, New Jersey. Dr. Lewis has been practicing medicine for over 21 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Migraine, Peripheral Neuropathy, Syringobulbia, and Chiari Malformation Type 2.

    Osman Kozak
    Experienced in PHACE Syndrome
    Neurology
    Experienced in PHACE Syndrome
    Neurology

    Neurovascular Associates Of Abington – Abington

    Jefferson Abington Hospital - 1 Widener, 1200 Old York Road, 
    Abington, PA 
     (12.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Osman Kozak is a Neurologist in Abington, Pennsylvania. Dr. Kozak is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Cerebral Arteriovenous Malformation, Brain Aneurysm, Thrombectomy, and Stent Placement. Dr. Kozak is currently accepting new patients.

    Douglas W. Laske
    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Asplundh Cancer Pavilion

    3941 Commerce Avenue, 
    Willow Grove, PA 
     (14.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Douglas Laske is a Neurosurgery provider in Willow Grove, Pennsylvania. Dr. Laske is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Subdural Hematoma, Gamma Knife Radiosurgery, and Awake Craniotomy. Dr. Laske is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Penn Neuroscience Center Radnor - Neurosurgery

    145 King Of Prussia Road, Floor 3, Suite 304, 
    Radnor, PA 
     (11.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jan-karl Burkhardt is a Neurosurgery provider in Radnor, Pennsylvania. Dr. Burkhardt is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Chronic Subdural Hematoma, Subdural Hematoma, Extracranial-Intracranial Bypass Surgery, and Cerebral Artery Bypass Surgery. Dr. Burkhardt is currently accepting new patients.

    Showing 1-12 of 12

    Last Updated: 02/22/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor near Philadelphia, PA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor near Philadelphia, PA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank PHACE Syndrome doctors near Philadelphia, PA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors near Philadelphia, PA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor near Philadelphia, PA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor near Philadelphia, PA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors near Philadelphia, PA?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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