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    Last Updated: 10/30/2025

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    MediFind found 24 doctor with experience in PHACE Syndrome near Boston, MA. Of these, 15 are Experienced, 8 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    24 providers found
      Distinguished in PHACE Syndrome
      Dermatology | Pediatrics
      Distinguished in PHACE Syndrome
      Dermatology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Marilyn Liang is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Liang is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Hemangioma, Kaposiform Hemangioendothelioma, Hemangioendothelioma, and PHACE Syndrome. Dr. Liang is currently accepting new patients.

      Advanced in PHACE Syndrome
      Neurosurgery
      Advanced in PHACE Syndrome
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Adel Malek is a Neurosurgery provider in Boston, Massachusetts. Dr. Malek is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Stroke, Stent Placement, and Transmyocardial Revascularization. Dr. Malek is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      New England Medical Center Group Practice Inc

      800 Washington St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      James Kryzanski is a Neurosurgery provider in Boston, Massachusetts. Dr. Kryzanski is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Spinal Stenosis, Cervical Myelopathy, Spondylolisthesis, Laminectomy, and Spinal Fusion.

      Learn about our expert tiers
      Advanced in PHACE Syndrome
      Neuroradiology | Radiology
      Advanced in PHACE Syndrome
      Neuroradiology | Radiology

      Massachusetts General Physicians Organization Inc

      243 Charles St, Suite 1107, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      James Rabinov is a Neuroradiologist and a Radiologist in Boston, Massachusetts. Dr. Rabinov is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Stroke, Subarachnoid Hemorrhage, Thrombectomy, and Stent Placement.

      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Harvard Medical Faculty Phys At Beth Israel Deaconess Med Ctr Inc

      330 Brookline Ave, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Gerilyn Olsen is a Dermatologist in Boston, Massachusetts. Dr. Olsen is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Clouston Syndrome.

      Advanced in PHACE Syndrome
      Neuroradiology | Radiology
      Advanced in PHACE Syndrome
      Neuroradiology | Radiology
      300 Longwood Ave, Children's Hospital Boston - Neuroradiology, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Darren Orbach is a Neuroradiologist and a Radiologist in Boston, Massachusetts. Dr. Orbach is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Vein of Galen Aneurysm, Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Thrombectomy, and Liver Embolization.

      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mohammad Aziz-Sultan is a Neurosurgery provider in Boston, Massachusetts. Dr. Aziz-Sultan is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Arteriovenous Malformation, Thrombectomy, and Stent Placement. Dr. Aziz-Sultan is currently accepting new patients.

      Advanced in PHACE Syndrome
      Neurosurgery
      Advanced in PHACE Syndrome
      Neurosurgery

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rose Du is a Neurosurgery provider in Boston, Massachusetts. Dr. Du is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Subarachnoid Hemorrhage, Brain Aneurysm, Arteriovenous Malformation, Cerebral Artery Bypass Surgery, and Extracranial-Intracranial Bypass Surgery. Dr. Du is currently accepting new patients.

      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery

      Boston University Neurosurgical Associates Inc

      1 Boston Medical Ctr Pl, 
      Boston, MA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Pratik Rohatgi is a Neurosurgery provider in Boston, Massachusetts. Dr. Rohatgi is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Subdural Hematoma, Essential Tremor, and Deep Brain Stimulation. Dr. Rohatgi is currently accepting new patients.

      Experienced in PHACE Syndrome
      Radiology | Interventional Radiology
      Experienced in PHACE Syndrome
      Radiology | Interventional Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Ahmad Alomari is a Radiologist and an Interventional Radiologist in Boston, Massachusetts. Dr. Alomari is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Arteriovenous Malformation, Marshall-Smith Syndrome, Perlman Syndrome, and Simpson-Golabi-Behmel Syndrome.

      Experienced in PHACE Syndrome
      Radiology
      Experienced in PHACE Syndrome
      Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Edward Yang is a Radiologist in Boston, Massachusetts. Dr. Yang is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cortical Dysplasia, Polymicrogyria, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

      Experienced in PHACE Syndrome
      Interventional Radiology | Radiology
      Experienced in PHACE Syndrome
      Interventional Radiology | Radiology

      Children's Hospital Radiology Foundation, Inc.

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      41+ years
      Languages Spoken:
      English

      Josee Dubois is an Interventional Radiologist and a Radiologist in Boston, Massachusetts. Dr. Dubois has been practicing medicine for over 41 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Vascular Birthmark, Arteriovenous Malformation, Osteopenia, and Lymphangiomatosis.

      Experienced in PHACE Syndrome
      Dermatology | Pediatrics
      Experienced in PHACE Syndrome
      Dermatology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sophia Delano is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Delano is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Incontinentia Pigmenti, Urticaria Pigmentosa, Trichothiodystrophy, and Atopic Dermatitis. Dr. Delano is currently accepting new patients.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Chantal Cotter is a Dermatologist in Boston, Massachusetts. Dr. Cotter is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Clouston Syndrome, and Ectodermal Dysplasias.

      Experienced in PHACE Syndrome
      Pediatric Neurology | Neurology
      Experienced in PHACE Syndrome
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Michael Rivkin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Rivkin is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Hemiplegia, Cavernous Sinus Thrombosis, Lissencephaly 1, and Craniectomy. Dr. Rivkin is currently accepting new patients.

      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery
      300 Longwood Ave, Bader 3, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Edward Smith is a Neurosurgery provider in Boston, Massachusetts. Dr. Smith is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Moyamoya Disease, Wyburn-Mason Syndrome, Vein of Galen Aneurysm, and Arteriovenous Malformation.

      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nirav Patel is a Neurosurgery provider in Boston, Massachusetts. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Primitive Neuroectodermal Tumor (PNET), Posterior Fossa Tumor, Brain Aneurysm, Stent Placement, and Transmyocardial Revascularization. Dr. Patel is currently accepting new patients.

      Experienced in PHACE Syndrome
      Neurosurgery | Interventional Radiology
      Experienced in PHACE Syndrome
      Neurosurgery | Interventional Radiology

      Massachusetts General Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Aman Patel is a Neurosurgery specialist and an Interventional Radiologist in Boston, Massachusetts. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Cerebral Arteriovenous Malformation, Gastrostomy, and Extracranial-Intracranial Bypass Surgery. Dr. Patel is currently accepting new patients.

      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Chi is a Neurosurgery provider in Boston, Massachusetts. Dr. Chi is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Spondylolisthesis, Spinal Stenosis, Invertebral Disc Disease, Laminectomy, and Cervical Disc Surgery. Dr. Chi is currently accepting new patients.

      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kai Frerichs is a Neurosurgery provider in Boston, Massachusetts. Dr. Frerichs is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, Brain Aneurysm, Arteriovenous Malformation, Thrombectomy, and Liver Embolization. Dr. Frerichs is currently accepting new patients.

      Showing 1-20 of 24

      Last Updated: 10/30/2025

      What is the definition of PHACE Syndrome?

      PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

      When should I see a PHACE Syndrome doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a PHACE Syndrome doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank PHACE Syndrome doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by PHACE Syndrome doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a PHACE Syndrome doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different PHACE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a PHACE Syndrome doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my PHACE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female PHACE Syndrome doctors near Boston, MA?

      Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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