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    Last Updated: 01/09/2026

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    MediFind found 10 doctor with experience in PHACE Syndrome near Netherlands. Of these, 10 are Experienced.

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    10 providers found
      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Sylke Steggerda practices in Leiden, Netherlands. Steggerda is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Their top areas of expertise are Newborn Polycythemia, Premature Infant, Twin-To-Twin Transfusion Syndrome, and Hemimegalencephaly.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Madelien Regeer practices in Leiden, Netherlands. Regeer is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Their top areas of expertise are Aortic Regurgitation, Bicuspid Aortic Valve, Aortic Valve Stenosis, Heart Valve Repair, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Inge Lakeman practices in Leiden, Netherlands. Ms. Lakeman is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Epicanthal Folds, Breast Cancer, PHACE Syndrome, and Double Aortic Arch.

      Learn about our expert tiers
      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Jessica Stoger practices in Leiden, Netherlands. Ms. Stoger is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Tricuspid Atresia, Double Aortic Arch, Vascular Ring, and Cardiac Diverticulum.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Anastasia Egorova practices in Leiden, Netherlands. Ms. Egorova is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Congenital Coronary Artery Malformation, Transposition of the Great Arteries, Double Aortic Arch, and Vascular Ring.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Lumc

      Leiden, ZH, NL 

      Mark Hazekamp practices in Leiden, Netherlands. Mr. Hazekamp is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Tetralogy of Fallot, Ventricular Septal Defects, Transposition of the Great Arteries, Angioplasty, and Aortic Valve Replacement.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Judith Verhagen practices in Rotterdam, Netherlands. Ms. Verhagen is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, L1 Syndrome, and Familial Dilated Cardiomyopathy.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Monique Jongbloed practices in Leiden, Netherlands. Ms. Jongbloed is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Tetralogy of Fallot, Transposition of the Great Arteries, Ventricular Septal Defects, Cardiac Ablation, and Heart Transplant.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Regina Bokenkamp practices in Leiden, Netherlands. Ms. Bokenkamp is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Right Ventricle Hypoplasia, Pulmonary Valve Stenosis, Ventricular Septal Defects, Heart Transplant, and Angioplasty.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome
      Leiden, ZH, NL 

      Ratna Tan practices in Leiden, Netherlands. Tan is rated as an Experienced expert by MediFind in the treatment of PHACE Syndrome. Their top areas of expertise are Twin-To-Twin Transfusion Syndrome, Fetal and Neonatal Alloimmune Thrombocytopenia, Premature Infant, and Anemia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-10 of 10

      Last Updated: 01/09/2026

      What is the definition of PHACE Syndrome?

      PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

      When should I see a PHACE Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a PHACE Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank PHACE Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by PHACE Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a PHACE Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different PHACE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a PHACE Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my PHACE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female PHACE Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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