The 20 Best PHACE Syndrome Doctors Near Me in Illinois, US

Find the Top PHACE Syndrome Experts and Specialists

The 20 Best PHACE Syndrome Doctors in Illinois, US

Last Updated: 02/22/2026

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MediFind found 24 doctor with experience in PHACE Syndrome near Illinois, US. Of these, 18 are Experienced, 3 are Advanced and 3 are Distinguished.

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24 providers found
    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Anthony Mancini is a Pediatrics provider in Chicago, Illinois. Dr. Mancini is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Vascular Birthmark, Hemangioma, Aplasia Cutis Congenita, and PHACE Syndrome.

    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Sarah Chamlin is a Pediatrics provider in Chicago, Illinois. Dr. Chamlin is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Hemangioma, Vascular Birthmark, Aplasia Cutis Congenita, and Stork Bite.

    William Ares
    Advanced in PHACE Syndrome
    Neurosurgery | Community Health Worker | Counselor
    Advanced in PHACE Syndrome
    Neurosurgery | Community Health Worker | Counselor

    Endeavor Health Medical Group

    9600 Gross Point Rd., Suite 1200, 
    Skokie, IL 
    Languages Spoken:
    English

    William Joseph Ares, MD, a neurosurgeon at Endeavor Health, specializes in treating complex neurological conditions involving the brain, spine and cerebrovascular system. He provides care for conditions such as brain tumors, cerebral aneurysms, chiari malformation, spinal stenosis and trigeminal neuralgia. He performs a wide range of procedures including aneurysm coiling, endovascular stroke treatment, microvascular decompression and minimally invasive spine surgery. Dr. Ares combines advanced surgical techniques with a comprehensive understanding of neurological disorders. Dr. Ares is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Subdural Hematoma, Stroke, Subarachnoid Hemorrhage, Thrombectomy, and Carotid Artery Surgery.

    Learn about our expert tiers
    Distinguished in PHACE Syndrome
    Distinguished in PHACE Syndrome

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Shakeel Chowdhry is a Neurosurgery provider in Evanston, Illinois. Dr. Chowdhry is rated as a Distinguished provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Hydrocephalus, Normal Pressure Hydrocephalus, Thrombectomy, and Stent Placement.

    Ricky Wong
    Experienced in PHACE Syndrome
    Neurosurgery | Physiatry | Community Health Worker
    Experienced in PHACE Syndrome
    Neurosurgery | Physiatry | Community Health Worker

    Endeavor Health Medical Group

    2180 Pfingsten Rd., Suite 2000, 
    Glenview, IL 
    Languages Spoken:
    English, Mandarin

    Ricky Wong, MD, a neurosurgeon at Endeavor Health, specializes in treating complex brain and spine tumors using both open and minimally invasive techniques. He emphasizes the importance of counseling and guiding patients through life-changing diagnoses with empathy and clarity. Dr. Wong is committed to continuous learning and integrating the latest technology—such as robotics, endoscopes and functional mapping—to deliver precise, patient-centered care. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Meningioma, Trigeminal Neuralgia, Pituitary Tumor, Awake Craniotomy, and Microvascular Decompression.

    Matthew Walker
    Experienced in PHACE Syndrome
    Neuroradiology | Radiology
    Experienced in PHACE Syndrome
    Neuroradiology | Radiology

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
    Languages Spoken:
    English

    Matthew T. Walker, MD, a neuroradiologist at Endeavor Health, specializes in interpreting advanced imaging of the brain, spine and nervous system. Dr. Walker collaborates with referring clinicians to support timely diagnosis and guide treatment planning through accurate radiologic assessment. Dr. Walker is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Meningioma, Stroke, Cerebral Arteriovenous Malformation, Subarachnoid Hemorrhage, and Hormone Replacement Therapy (HRT).

    Sebouh Gueyikian
    Experienced in PHACE Syndrome
    Interventional Radiology
    Experienced in PHACE Syndrome
    Interventional Radiology

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
    Languages Spoken:
    English

    Sebouh Gueyikian, MD, Chief of Interventional Radiology at Endeavor Health, has more than 25 years of experience using advanced imaging and minimally invasive techniques to diagnose and treat complex conditions. Working with a highly trained team, he manages even the most challenging cases with precision and care. Dr. Gueyikian combines innovation with compassion, specializing in procedures such as embolization therapies and modern interventional oncology to improve outcomes, enhance comfort and help patients fully understand their treatment options. Dr. Gueyikian is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Ascites, Visceromegaly, Alcoholic Cirrhosis, Liver Embolization, and Bone Graft.

    Andrew Johnson
    Experienced in PHACE Syndrome
    Neurosurgery
    Experienced in PHACE Syndrome
    Neurosurgery

    Endeavor Health Medical Group

    5115 N. Francisco Ave., Neurosciences Institute, 
    Chicago, IL 
    Languages Spoken:
    English

    Andrew Kelly Johnson, MD, a neurosurgeon at Endeavor Health, specializes in the treatment of brain and spine tumors, head and neck cancers, and traumatic injuries to the brain and spine. He also manages headache and myofascial pain syndromes and offers minimally invasive spine surgery when appropriate. Dr. Johnson prioritizes the least invasive, most effective treatment options, often nonsurgical, and tailors each plan to maximize patient outcomes and recovery. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Subdural Hematoma, Spondylolisthesis, Stroke, Thrombectomy, and Awake Craniotomy.

    Matthew B. Potts
    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    259 E Erie St Ste 1950, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    19+ years
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Potts is a Neurosurgery provider in Chicago, Illinois. Dr. Potts has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Brain Aneurysm, Stent Placement, and Thrombectomy.

    Aleksandrs Kalnins
    Experienced in PHACE Syndrome
    Neuroradiology | Radiology
    Experienced in PHACE Syndrome
    Neuroradiology | Radiology

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
    Experience:
    17+ years
    Languages Spoken:
    English

    Aleksandrs U. Kalnins, MD, a neuroradiologist at Endeavor Health, specializes in the imaging and diagnosis of conditions affecting the brain, spine and nervous system. He interprets advanced imaging studies such as MRI and CT scans to support the diagnosis and treatment planning for neurological disorders. Dr. Kalnins works in collaboration with neurologists, neurosurgeons and other specialists to deliver accurate, timely insights that guide patient care. Dr. Kalnins is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Invertebral Disc Disease, Hepatocerebral Degeneration, and Cerebellar Degeneration.

    Experienced in PHACE Syndrome
    Neurology
    Experienced in PHACE Syndrome
    Neurology
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Minjee Kim is a Neurologist in Chicago, Illinois. Dr. Kim is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Restless Legs Syndrome, Glioblastoma, Liver Failure, Thrombectomy, and Gastrostomy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Northshore Integrated Pain Center-Glenview

    2180 Pfingsten Rd Ste 2000, 
    Glenview, IL 
    Languages Spoken:
    English

    Irene Semenov is a Neurologist in Glenview, Illinois. Dr. Semenov is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Migraine, Vertigo, Headache, and Peripheral Neuropathy.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Annette Wagner is a Pediatrics provider in Chicago, Illinois. Dr. Wagner is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Aplasia Cutis Congenita, Linear Hamartoma Syndrome, Stork Bite, and Vascular Birthmark.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Elysa Widjaja is a Radiologist in Chicago, Illinois. Dr. Widjaja is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cortical Dysplasia, Polymicrogyria, PHACE Syndrome, Increased Head Circumference, and Deep Brain Stimulation.

    Experienced in PHACE Syndrome
    Pediatrics
    Experienced in PHACE Syndrome
    Pediatrics

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Lacey Kruse is a Pediatrics provider in Chicago, Illinois. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Aplasia Cutis Congenita, and Vascular Birthmark.

    Experienced in PHACE Syndrome
    Pediatric Radiology
    Experienced in PHACE Syndrome
    Pediatric Radiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Martha Saker is a Pediatric Radiologist in Chicago, Illinois. Dr. Saker is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Ureterocele, Scoliosis, Congenital Giant Megaureter, and PIK3CA-Related Overgrowth Spectrum.

    Experienced in PHACE Syndrome
    Pediatric Radiology
    Experienced in PHACE Syndrome
    Pediatric Radiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Francis Prendergast is a Pediatric Radiologist in Chicago, Illinois. Dr. Prendergast is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Ureterocele, Scoliosis, Congenital Giant Megaureter, and Caffey Disease.

    Experienced in PHACE Syndrome
    Pediatric Radiology
    Experienced in PHACE Syndrome
    Pediatric Radiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Cynthia Rigsby is a Pediatric Radiologist in Chicago, Illinois. Dr. Rigsby is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Vascular Ring, Double Aortic Arch, Congenital Cardiovascular Shunt, and Pulmonary Vein Stenosis.

    Experienced in PHACE Syndrome
    Neuroradiology
    Experienced in PHACE Syndrome
    Neuroradiology

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Michael Hurley is a Neuroradiologist in Chicago, Illinois. Dr. Hurley is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Stroke, Normal Pressure Hydrocephalus, Stent Placement, and Transmyocardial Revascularization.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Judith Gadde is a Radiologist in Chicago, Illinois. Dr. Gadde is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Choroid Plexus Cyst, Familial Porencephaly, Arachnoid Cysts, and Optic Glioma.

    Showing 1-20 of 24

    Last Updated: 02/22/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank PHACE Syndrome doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors in Illinois, US?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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