The 20 Best PHACE Syndrome Doctors in Maryland, US

Dr. Tamargo specializes in the treatment of aneurysms, arteriovenous malformations (AVMs), arteriovenous fistulas (AVFs), and cavernous malformations of the brain and spinal cord in both adults and children. Dr. Tamargo specializes in revascularization procedures for moyamoya disease. For this condition, Dr. Tamargo performs either a microsurgical encephaloduroarteriomyosynangiosis (EDAMS) or a microsurgical extracranial-to-intracranial artery bypass. Dr. Tamargo also specializes in the treatment of acoustic neuromas (vestibular schwannomas). A recipient of numerous honors and awards, some of Dr. Tamargo's most recent accolades include the Neurosurgery Faculty Teaching Award and the Hopkins Richard S. Ross Clinician Scientist Award. Dr. Tamargo is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Acoustic Neuroma, and Schwannoma.

Dr. Joy Wan is an Assistant Professor of Dermatology at the Johns Hopkins University School of Medicine. Her areas of clinical expertise include pediatric dermatology and atopic dermatitis. Dr. Wan received her undergraduate degree in biochemical sciences from Harvard University and her M.D. from the University of Pennsylvania. She completed dermatology residency training at the University of Pennsylvania and pediatric dermatology fellowship at the Children’s Hospital of Philadelphia. She also pursued postdoctoral research training in clinical epidemiology at the University of Pennsylvania. Dr. Wan joined the Johns Hopkins faculty in 2021. In addition to her clinical practice, Dr. Wan leads an active research program focused on epidemiologic and patient-oriented investigations of pediatric skin diseases including eczema. Dr. Wan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Atopic Dermatitis, Infantile Digital Fibromatosis, PHACE Syndrome, and Psoriasis.

Dr. Caplan specializes in the treatment of cerebrovascular disorders of the brain, head, neck and spine, such as aneurysms, arteriovenous malformations, arteriovenous fistulas, moyamoya disease, carotid artery stenosis and stroke. He is dual fellowship trained in both open cerebrovascular neurosurgery and endovascular neurosurgery, allowing him to offer patients the full spectrum of the latest surgical and endovascular techniques in treating these diseases. Dr. Caplan also focuses on treating acoustic neuromas and other tumors of the skull base, including meningiomas. Dr. Caplan graduated with honors from the Johns Hopkins University with a degree in neuroscience, where he spent time in the Hunterian Neurological Surgery Research Laboratory. He then earned his medical degree from Harvard Medical School. He completed his neurosurgery residency at Johns Hopkins, along with fellowships in cerebrovascular neurosurgery and endovascular neurosurgery, also at Johns Hopkins. He then completed an additional fellowship in endovascular neurosurgery at the University of Miami before returning to join the Johns Hopkins faculty. Dr. Caplan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Thrombectomy, and Carotid Artery Surgery.

Mari Groves is a Johns Hopkins pediatric neurosurgeon who cares for children with brain and spinal cord tumors (benign and cancerous), skeletal dysplasia, and spinal deformities such as neuromuscular and early scoliosis. She also sees patients diagnosed with Chiari malformations, spasticity and epilepsy. She specializes in treating patients with all types of spina bifida, including myelomeningocele. As part of the Johns Hopkins Center for Fetal Therapy, she is an expert in prenatal closure techniques such as minimally invasive fetoscopic repair of myelomeningocele (when the spina bifida defect is repaired before birth). Offering a transitional practice model of care, she follows patients diagnosed with spina bifida from birth to adulthood. Dr. Groves chose to pursue neurosurgery because it allows her to treat patients with complex conditions and help improve the quality of children’s lives. Her research interests focus on pediatric spinal disease and how surgical intervention can impact growth and neurological function during a child’s life. She is committed to building programs that support patients with congenital disorders as they age. Pediatric patients often age out of existing programs and have difficulty locating physicians and treating teams that understand their conditions. At Johns Hopkins, we have a unique ability to provide this type of comprehensive care. Dr. Groves earned her medical degree from the Vanderbilt University School of Medicine in 2007. She completed residency training in 2014 at The Johns Hopkins Hospital, where she remained for a neurosurgery fellowship, which she finished in 2015. She also completed a spinal deformity fellowship at Shriners Hospitals for Children in Philadelphia. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Spinal Tumor, Myelomeningocele, Tethered Cord Syndrome, Osteotomy, and Laminectomy.

Dr. Pardo's interest in transverse myelitis centers on management of acute myelitis, biomarkers of the disease in cerebrospinal fluid (CSF) and blood, and the role of neuroimmune factors in the pathogenesis of myelopathies. Along with others neurologists and health care providers in the Johns Hopkins Transverse Myelitis Center, Dr. Pardo focuses on a comprehensive approach in the diagnosis and management of myelopathies, myelitis, neuroimmunological and neuroinfectious disorders. Dr. Pardo is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Acute Flaccid Myelitis (AFM), Neurosarcoidosis, Transverse Myelitis, Zika Virus Disease, and Gastrostomy.

Sonia Krish is a Neurologist in Columbia, Maryland. Dr. Krish has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Invertebral Disc Disease, and Spinal Tumor.

Jonathan Johnson is a Neurologist in Columbia, Maryland. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Spinal Tumor, and Subependymoma.

Emily Dunn is a Pediatric Radiologist in Baltimore, Maryland. Dr. Dunn is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Exstrophy of the Bladder, Rhabdoid Tumor, PHACE Syndrome, Learman Syndrome, and Bladder Reconstruction.

Wendell Bobb is a Neurologist in Columbia, Maryland. Dr. Bobb has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cervical Myelopathy, Tarlov Cysts, Hemangioblastoma, and Dysembryoplastic Neuroepithelial Tumors (DNET).

Jennifer Chu is a Neurologist in Columbia, Maryland. Dr. Chu has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cervical Myelopathy, Spinal Tumor, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Deep Brain Stimulation.

Colleen Cotton is a Pediatrics provider in Silver Spring, Maryland. Dr. Cotton is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Hidradenitis Suppurativa, Molluscum Contagiosum, Vascular Birthmark, and Warts.

Bassel Shneker is a Neurologist in Columbia, Maryland. Dr. Shneker is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Brain Stem Cancer.

Paul Singh is a Neurologist in Baltimore, Maryland. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Brain Aneurysm, Subarachnoid Hemorrhage, Stent Placement, and Transmyocardial Revascularization.

Charles Sansur is a Neurosurgery provider in Baltimore, Maryland. Dr. Sansur is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Scoliosis, Kyphosis, Spinal Stenosis, Laminectomy, and Osteotomy.

Frederick Nahm is a Neurologist in Columbia, Maryland. Dr. Nahm is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cervical Myelopathy, Dysembryoplastic Neuroepithelial Tumors (DNET), Brain Stem Cancer, and Invertebral Disc Disease.