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    Last Updated: 01/09/2026

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    MediFind found 12 doctor with experience in PHACE Syndrome near Maryland, US. Of these, 11 are Experienced and 1 are Advanced.

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    LocationClose
    12 providers found
      Rafael J. Tamargo
      Advanced in PHACE Syndrome
      Advanced in PHACE Syndrome

      Johns Hopkins Outpatient Center

      Baltimore, MD 
      Languages Spoken:
      English, Spanish

      Dr. Tamargo specializes in the treatment of aneurysms, arteriovenous malformations (AVMs), arteriovenous fistulas (AVFs), and cavernous malformations of the brain and spinal cord in both adults and children. Dr. Tamargo specializes in revascularization procedures for moyamoya disease. For this condition, Dr. Tamargo performs either a microsurgical encephaloduroarteriomyosynangiosis (EDAMS) or a microsurgical extracranial-to-intracranial artery bypass. Dr. Tamargo also specializes in the treatment of acoustic neuromas (vestibular schwannomas). A recipient of numerous honors and awards, some of Dr. Tamargo's most recent accolades include the Neurosurgery Faculty Teaching Award and the Hopkins Richard S. Ross Clinician Scientist Award. Dr. Tamargo is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Acoustic Neuroma, and Schwannoma.

      Joy Wan
      Experienced in PHACE Syndrome
      Pediatrics
      Experienced in PHACE Syndrome
      Pediatrics

      Rubenstein Child Health Building

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Joy Wan is an Assistant Professor of Dermatology at the Johns Hopkins University School of Medicine. Her areas of clinical expertise include pediatric dermatology and atopic dermatitis. Dr. Wan received her undergraduate degree in biochemical sciences from Harvard University and her M.D. from the University of Pennsylvania. She completed dermatology residency training at the University of Pennsylvania and pediatric dermatology fellowship at the Children’s Hospital of Philadelphia. She also pursued postdoctoral research training in clinical epidemiology at the University of Pennsylvania. Dr. Wan joined the Johns Hopkins faculty in 2021. In addition to her clinical practice, Dr. Wan leads an active research program focused on epidemiologic and patient-oriented investigations of pediatric skin diseases including eczema. Dr. Wan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Atopic Dermatitis, Infantile Digital Fibromatosis, PHACE Syndrome, and Psoriasis.

      Jennifer Chu
      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Nuvasive Cliical Services Monitoring, Inc./Assoc. PLLC

      10275 Little Patuxent Parkway, Suite 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Jennifer Chu is a Neurologist in Columbia, Maryland. Dr. Chu is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cervical Myelopathy, Spinal Tumor, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Deep Brain Stimulation.

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      Justin Caplan
      Experienced in PHACE Syndrome
      Neurosurgery
      Experienced in PHACE Syndrome
      Neurosurgery

      Johns Hopkins Outpatient Center

      601 North Caroline Street, Floor 5, Floor 5, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Dr. Caplan specializes in the treatment of cerebrovascular disorders of the brain, head, neck and spine, such as aneurysms, arteriovenous malformations, arteriovenous fistulas, moyamoya disease, carotid artery stenosis and stroke. He is dual fellowship trained in both open cerebrovascular neurosurgery and endovascular neurosurgery, allowing him to offer patients the full spectrum of the latest surgical and endovascular techniques in treating these diseases. Dr. Caplan also focuses on treating acoustic neuromas and other tumors of the skull base, including meningiomas. Dr. Caplan graduated with honors from the Johns Hopkins University with a degree in neuroscience, where he spent time in the Hunterian Neurological Surgery Research Laboratory. He then earned his medical degree from Harvard Medical School. He completed his neurosurgery residency at Johns Hopkins, along with fellowships in cerebrovascular neurosurgery and endovascular neurosurgery, also at Johns Hopkins. He then completed an additional fellowship in endovascular neurosurgery at the University of Miami before returning to join the Johns Hopkins faculty. Dr. Caplan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Brain Aneurysm, Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Thrombectomy, and Carotid Artery Surgery.

      Mari L. Groves
      Experienced in PHACE Syndrome
      Neurosurgery | General Surgery
      Experienced in PHACE Syndrome
      Neurosurgery | General Surgery

      Gynecology And Obstetrics - Nelson/Harvey Building

      600 North Wolfe Street, Nelson 228, Nelson 228, 
      Baltimore, MD 
      Languages Spoken:
      English
      Offers Telehealth

      Mari Groves is a Johns Hopkins pediatric neurosurgeon who cares for children with brain and spinal cord tumors (benign and cancerous), skeletal dysplasia, and spinal deformities such as neuromuscular and early scoliosis. She also sees patients diagnosed with Chiari malformations, spasticity and epilepsy. She specializes in treating patients with all types of spina bifida, including myelomeningocele. As part of the Johns Hopkins Center for Fetal Therapy, she is an expert in prenatal closure techniques such as minimally invasive fetoscopic repair of myelomeningocele (when the spina bifida defect is repaired before birth). Offering a transitional practice model of care, she follows patients diagnosed with spina bifida from birth to adulthood. Dr. Groves chose to pursue neurosurgery because it allows her to treat patients with complex conditions and help improve the quality of children’s lives. Her research interests focus on pediatric spinal disease and how surgical intervention can impact growth and neurological function during a child’s life. She is committed to building programs that support patients with congenital disorders as they age. Pediatric patients often age out of existing programs and have difficulty locating physicians and treating teams that understand their conditions. At Johns Hopkins, we have a unique ability to provide this type of comprehensive care. Dr. Groves earned her medical degree from the Vanderbilt University School of Medicine in 2007. She completed residency training in 2014 at The Johns Hopkins Hospital, where she remained for a neurosurgery fellowship, which she finished in 2015. She also completed a spinal deformity fellowship at Shriners Hospitals for Children in Philadelphia. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Spinal Tumor, Myelomeningocele, Tethered Cord Syndrome, Osteotomy, and Laminectomy.

      Carlos A. Pardo
      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Johns Hopkins Outpatient Center

      Baltimore, MD 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Dr. Pardo's interest in transverse myelitis centers on management of acute myelitis, biomarkers of the disease in cerebrospinal fluid (CSF) and blood, and the role of neuroimmune factors in the pathogenesis of myelopathies. Along with others neurologists and health care providers in the Johns Hopkins Transverse Myelitis Center, Dr. Pardo focuses on a comprehensive approach in the diagnosis and management of myelopathies, myelitis, neuroimmunological and neuroinfectious disorders. Dr. Pardo is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Acute Flaccid Myelitis (AFM), Neurosarcoidosis, Transverse Myelitis, Zika Virus Disease, and Gastrostomy.

      Experienced in PHACE Syndrome
      Neurology
      Experienced in PHACE Syndrome
      Neurology

      NuVasive Clinical Services

      10275 Little Patuxent Pkwy Ste 300, 
      Columbia, MD 
      Experience:
      17+ years
      Languages Spoken:
      English

      Sonia Krish is a Neurologist in Columbia, Maryland. Dr. Krish has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Invertebral Disc Disease, and Spinal Tumor.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      Nuvasive Clinical Services

      10275 Little Patuxent Parkway, Suite 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Jonathan Johnson is a Neurologist in Columbia, Maryland. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cervical Myelopathy, Hemangioblastoma, Spinal Tumor, and Subependymoma.

      Experienced in PHACE Syndrome
      Neurology
      Experienced in PHACE Syndrome
      Neurology

      Pacific Neuromonitoring Associates Inc

      10275 Little Patuxent Pkwy Ste 300, 
      Columbia, MD 
      Languages Spoken:
      English

      Reza Kanani is a Neurologist in Columbia, Maryland. Dr. Kanani is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Cervical Myelopathy, Spinal Tumor, Brain Stem Cancer, and Dysembryoplastic Neuroepithelial Tumors (DNET).

      Experienced in PHACE Syndrome
      Pediatric Radiology | Radiology
      Experienced in PHACE Syndrome
      Pediatric Radiology | Radiology

      Johns Hopkins University

      5759 Cedar Ln, 
      Columbia, MD 
      Languages Spoken:
      English

      Emily Dunn is a Pediatric Radiologist and a Radiologist in Columbia, Maryland. Dr. Dunn is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. Her top areas of expertise are Exstrophy of the Bladder, Rhabdoid Tumor, PHACE Syndrome, Femur Fibula Ulna Syndrome, and Bladder Reconstruction.

      Experienced in PHACE Syndrome
      Neurology | Neurosurgery
      Experienced in PHACE Syndrome
      Neurology | Neurosurgery

      Medstar Medical Group Ii LLC

      9000 Franklin Square Dr, 
      Baltimore, MD 
      Languages Spoken:
      English

      Inder Singh is a Neurologist and a Neurosurgery provider in Baltimore, Maryland. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Stroke, Brain Aneurysm, Subarachnoid Hemorrhage, Stent Placement, and Transmyocardial Revascularization.

      Experienced in PHACE Syndrome
      Experienced in PHACE Syndrome

      University Of Maryland Neurosurgery Associates P A

      22 S Green St, 
      Baltimore, MD 
      Languages Spoken:
      English, French
      Accepting New Patients
      Offers Telehealth

      Charles Sansur is a Neurosurgery provider in Baltimore, Maryland. Dr. Sansur is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. His top areas of expertise are Scoliosis, Kyphosis, Spinal Stenosis, Laminectomy, and Osteotomy. Dr. Sansur is currently accepting new patients.

      Showing 1-12 of 12

      Last Updated: 01/09/2026

      What is the definition of PHACE Syndrome?

      PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

      When should I see a PHACE Syndrome doctor in Maryland, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a PHACE Syndrome doctor in Maryland, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank PHACE Syndrome doctors in Maryland, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by PHACE Syndrome doctors in Maryland, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a PHACE Syndrome doctor in Maryland, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different PHACE Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a PHACE Syndrome doctor in Maryland, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my PHACE Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female PHACE Syndrome doctors in Maryland, US?

      Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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