The 20 Best PHACE Syndrome Doctors Near Me in Maryland, US

Find the Top PHACE Syndrome Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 12 doctor with experience in PHACE Syndrome near Maryland, US. Of these, 11 are Experienced and 1 are Advanced.

Location
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12 providers found
    Advanced in PHACE Syndrome
    Advanced in PHACE Syndrome
    Referral may be required

    Johns Hopkins Outpatient Center

    Baltimore, MD 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Rafael Tamargo is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Tamargo is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Subarachnoid Hemorrhage, Acoustic Neuroma, and Schwannoma. Dr. Tamargo is board certified in American Board Of Neurological Surgery. Dr. Tamargo is currently accepting new patients.

    Experienced in PHACE Syndrome
    Neurology | Psychiatry
    Experienced in PHACE Syndrome
    Neurology | Psychiatry
    Referral may be required

    NuVasive Clinical Services Monitoring

    10275 Little Patuxent Pkwy, Ste 300, 
    Columbia, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Bassel Shneker is a Neurologist and a Psychiatrist practicing medicine in Columbia, Maryland. Dr. Shneker is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 49 other conditions, according to our data. His clinical expertise encompasses Cervical Myelopathy, Hemangioblastoma, Dysembryoplastic Neuroepithelial Tumors (DNET), and Brain Stem Cancer. Dr. Shneker is board certified in Clinical Neurophysiology, American Board Of Psychiatry And Neurology , American Board Of Internal Medicine - Psychiatry & Neurology, Neurology - 2027, Epilepsy, American Board Of Psychiatry And Neurology , American Board Of Psychiatry And Neurology Neurology, and American Board Of Internal Medicine - Neurology - 2027. Dr. Shneker is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Caplan is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Caplan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Thrombectomy, and Carotid Artery Surgery. Dr. Caplan is board certified in American Board Of Neurological Surgery. Dr. Caplan is currently accepting new patients.

    Learn about our expert tiers
    Experienced in PHACE Syndrome
    Neurosurgery | General Surgery
    Experienced in PHACE Syndrome
    Neurosurgery | General Surgery
    Referral may be required

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, 
    Baltimore, MD 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mari Groves is a Neurosurgery specialist and a General Surgeon practicing medicine in Baltimore, Maryland. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Spinal Tumor, Myelomeningocele, Tethered Cord Syndrome, Osteotomy, and Laminectomy. Dr. Groves is board certified in American Board Of Neurological Surgery and American Board Of Pediatric Neurological Surgery. Dr. Groves is currently accepting new patients.

    Experienced in PHACE Syndrome
    Neurology | Neuroradiology
    Experienced in PHACE Syndrome
    Neurology | Neuroradiology
    Referral may be required

    NuVasive Clinical Services Monitoring Inc

    10275 Little Patuxent Pkwy, Ste 300, 
    Columbia, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Frederick Nahm is a Neurologist and a Neuroradiologist practicing medicine in Columbia, Maryland. Dr. Nahm is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Cervical Myelopathy, Dysembryoplastic Neuroepithelial Tumors (DNET), Brain Stem Cancer, and Invertebral Disc Disease. Dr. Nahm is board certified in American Board Of Electrodiagnostic Medicine, American Board Of Psychiatry And Neurology Neurology , American Board Of Electrodiagnostic Medicine , American Board Of Psychiatry And Neurology, Neurology, and American Board Of Psychiatry & Neurology, Neurology . Dr. Nahm is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    Johns Hopkins Outpatient Center

    Baltimore, MD 
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Carlos Pardo-Villamizar is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Pardo-Villamizar is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Acute Flaccid Myelitis (AFM), Neurosarcoidosis, Transverse Myelitis, Zika Virus Disease, and Gastrostomy. Dr. Pardo-Villamizar is board certified in American Board Of Psychiatry And Neurology. Dr. Pardo-Villamizar is currently accepting new patients.

    Experienced in PHACE Syndrome
    Nurse Practitioner | Radiology | Anesthesiology
    Experienced in PHACE Syndrome
    Nurse Practitioner | Radiology | Anesthesiology
    Referral may be required

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
    Languages Spoken:
    English

    Elizabeth Hendricks is a Nurse Practitioner specialist and a Radiologist practicing medicine in Baltimore, Maryland. Hendricks, NP is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Meningocele, PHACE Syndrome, Cerebrospinal Fluid Leak, and Brain Aneurysm. Hendricks, NP is board certified in American Nurses Credentialing Center.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    Neuromonitoring Physicians LLC

    1905 Gold Mine Rd, 
    Brookeville, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Minahan is a Neurologist practicing medicine in Brookeville, Maryland. Dr. Minahan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Cervical Myelopathy, Spinal Tumor, Fractured Spine, and Invertebral Disc Disease. Dr. Minahan is board certified in American Board Of Psychiatry And Neurology, The American Board Of Psychiatry And Neurology - Neurology, and The American Board Of Psychiatry And Neurology - Clinical Neurophysiology. Dr. Minahan is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    NuVasive Clinical Services Monitoring

    10275 Little Patuxent Pkwy, Ste 300, 
    Columbia, MD 
    Languages Spoken:
    English
    Accepting New Patients

    Jonathan Johnson is a Neurologist practicing medicine in Columbia, Maryland. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Cervical Myelopathy, Hemangioblastoma, Spinal Tumor, and Subependymoma. Dr. Johnson is board certified in American Board Of Psychiatry & Neurology - Neurology - 2027 and American Board Of Psychiatry & Neurology - Clinical Neurophysiology - 2027. Dr. Johnson is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    9000 Franklin Square Dr. 2nd Floor

    9000 Franklin Square Dr # 2, 
    Baltimore, MD 
    Languages Spoken:
    English
    Offers Telehealth

    Paul Singh is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Stroke, Brain Aneurysm, Subarachnoid Hemorrhage, Stent Placement, and Transmyocardial Revascularization.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    NuVasive Clinical Services Monitoring

    10275 Little Patuxent Pkwy, Ste 300, 
    Columbia, MD 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Wendell Bobb is a Neurologist practicing medicine in Columbia, Maryland. He has been practicing medicine for over 17 years. Dr. Bobb is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Cervical Myelopathy, Tarlov Cysts, Hemangioblastoma, and Dysembryoplastic Neuroepithelial Tumors (DNET). Dr. Bobb is currently accepting new patients.

    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    Referral may be required

    UMM Neurosurgery UM Medical Center

    22 South Greene Street, Suite S-12-D, 
    Baltimore, MD 
    Languages Spoken:
    English, French
    Accepting New Patients
    Offers Telehealth

    Charles Sansur is a Neurosurgery provider practicing medicine in Baltimore, Maryland. Dr. Sansur is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Spinal Stenosis, Laminectomy, and Microdiscectomy. Dr. Sansur is board certified in American Board Of Neurological Surgery - Neurological Surgery, 2013. Dr. Sansur is currently accepting new patients.

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    Last Updated: 09/19/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor in Maryland, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor in Maryland, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank PHACE Syndrome doctors in Maryland, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors in Maryland, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor in Maryland, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor in Maryland, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors in Maryland, US?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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