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    Last Updated: 01/09/2026

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    MediFind found 179 doctor with experience in RASopathies near Germany. Of these, 157 are Experienced, 15 are Advanced, 5 are Distinguished and 2 are Elite.

    Location
    LocationClose
    179 providers found
      Elite in RASopathies
      Elite in RASopathies
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Martin Zenker practices in Magdeburg, Germany. Mr. Zenker is rated as an Elite expert by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Noonan Syndrome, Syndactyly, and Acromicric Dysplasia.

      Elite in RASopathies
      Elite in RASopathies
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Christina Lissewski practices in Magdeburg, Germany. Ms. Lissewski is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Noonan Syndrome, Cardiofaciocutaneous Syndrome, and Costello Syndrome.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Magdeburg, ST, DE 

      Julia Brinkmann practices in Magdeburg, Germany. Ms. Brinkmann is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Legius Syndrome, and Autosomal Recessive Hypotrichosis.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Distinguished in RASopathies
      Distinguished in RASopathies
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Denny Schanze practices in Magdeburg, Germany. Mr. Schanze is rated as a Distinguished expert by MediFind in the treatment of RASopathies. His top areas of expertise are Fraser Syndrome, Noonan Syndrome, RASopathies, and Marshall-Smith Syndrome.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Essen, NW, DE 

      Alma Kuechler practices in Essen, Germany. Kuechler is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Their top areas of expertise are RASopathies, Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, and Microcephaly.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Bernhard Nocht Str. 74, 
      Hamburg, HH, DE 

      Andreas Hahn practices in Hamburg, Germany. Mr. Hahn is rated as a Distinguished expert by MediFind in the treatment of RASopathies. His top areas of expertise are Pompe Disease, Noonan Syndrome, Sandhoff Disease, Gastrostomy, and Heart Transplant.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Lukas Cyganek practices in Goettingen, Germany. Mr. Cyganek is rated as a Distinguished expert by MediFind in the treatment of RASopathies. His top areas of expertise are Short QT Syndrome, Brugada Syndrome, Noonan Syndrome, and RASopathies.

      Advanced in RASopathies
      Advanced in RASopathies
      Duesseldorf, NW, DE 

      Mohammad Ahmadian practices in Duesseldorf, Germany. Mr. Ahmadian is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Noonan Syndrome, Cardiofaciocutaneous Syndrome, and Costello Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Ulm, BW, DE 

      Ion Cirstea practices in Ulm, Germany. Mr. Cirstea is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Costello Syndrome, RASopathies, Cardiofaciocutaneous Syndrome, and Ectodermal Dysplasias.

      Advanced in RASopathies
      Advanced in RASopathies
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Christian Kratz practices in Hannover, Germany. Mr. Kratz is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Li-Fraumeni Syndrome, Macroglossia, Turcot Syndrome, Beckwith-Wiedemann Syndrome, and Bone Marrow Transplant.

      Advanced in RASopathies
      Advanced in RASopathies
      Hamburg, HH, DE 

      Kerstin Kutsche practices in Hamburg, Germany. Ms. Kutsche is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Pyle Disease, Microphthalmia with Linear Skin Defects Syndrome, Gingival Fibromatosis with Hypertrichosis, and Hirsutism in Women.

      Advanced in RASopathies
      Advanced in RASopathies
      Duesseldorf, NW, DE 

      Dagmar Wieczorek practices in Duesseldorf, Germany. Ms. Wieczorek is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

      Advanced in RASopathies
      Advanced in RASopathies
      Giessen, HE, DE 

      Anne Schanzer practices in Giessen, Germany. Ms. Schanzer is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Pompe Disease, RASopathies, Myositis, Noonan Syndrome, and Heart Transplant.

      Advanced in RASopathies
      Advanced in RASopathies
      Wuerzburg, BY, DE 

      Clarisse Baumann practices in Wuerzburg, Germany. Ms. Baumann is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Keratosis Pilaris, Kabuki Syndrome, RASopathies, and Noonan Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Robert Koch Str. 42a, 
      Goettingen, NI, DE 

      Bernd Wollnik practices in Goettingen, Germany. Mr. Wollnik is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Bosma Arhinia Microphthalmia Syndrome, and Choanal Atresia.

      Advanced in RASopathies
      Advanced in RASopathies
      Hamburg, HH, DE 

      Georg Rosenberger practices in Hamburg, Germany. Mr. Rosenberger is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Costello Syndrome, RASopathies, Congenital Contractural Arachnodactyly, and MASS Phenotype.

      Advanced in RASopathies
      Advanced in RASopathies
      Munich, BY, DE 

      Heide Seidel practices in Munich, Germany. Ms. Seidel is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Noonan Syndrome, Fountain Syndrome, and Marfan Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Duesseldorf, NW, DE 

      Saeideh Rad-Nakhaei practices in Duesseldorf, Germany. Rad-Nakhaei is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are RASopathies, Noonan Syndrome, Hypertrophic Cardiomyopathy (HCM), and Cardiomyopathy.

      Advanced in RASopathies
      Advanced in RASopathies
      Freiburg, BW, DE 

      Rudolf Happle practices in Freiburg, Germany. Mr. Happle is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Cutis Marmorata Telangiectatica Congenita, Mosaicism, Focal Dermal Hypoplasia, and Punctate Porokeratosis.

      Advanced in RASopathies
      Advanced in RASopathies
      Hamburg, HH, DE 

      Reinhard Friedrich practices in Hamburg, Germany. Mr. Friedrich is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, and Osteotomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 179

      Last Updated: 01/09/2026

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors in Germany?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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