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    Last Updated: 10/30/2025

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    MediFind found 371 doctor with experience in RASopathies near Boston, MA. Of these, 330 are Experienced, 38 are Advanced and 3 are Distinguished.

    Location
    LocationClose
    371 providers found
      Experienced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Farias is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Farias is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Patent Ductus Arteriosus, Hypoplastic Left Heart Syndrome (HLHS), Pulmonary Artery Agenesis, Osteotomy, and Spinal Fusion. Dr. Farias is currently accepting new patients.

      Distinguished in RASopathies
      Distinguished in RASopathies

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Justin Jordan is a Neurologist in Boston, Massachusetts. Dr. Jordan is rated as a Distinguished provider by MediFind in the treatment of RASopathies. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in RASopathies
      Distinguished in RASopathies

      Mass General Brigham Cancer Institute: Neuro-Oncology

      55 Fruit Street, Yawkey Center For Outpatient Care, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Plotkin is a Neurologist in Boston, Massachusetts. Dr. Plotkin is rated as a Distinguished provider by MediFind in the treatment of RASopathies. His top areas of expertise are Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis, and Acoustic Neuroma. Dr. Plotkin is currently accepting new patients.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Distinguished in RASopathies
      Internal Medicine
      Distinguished in RASopathies
      Internal Medicine
      77 Avenue Louis Pasteur, Nrb Room 1030, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English

      Benjamin Neel is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Neel is rated as a Distinguished provider by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, RASopathies, Cardiomyopathic Lentiginosis, and Cerebral Hypoxia.

      Advanced in RASopathies
      Neurosurgery
      Advanced in RASopathies
      Neurosurgery

      New England Medical Center Group Practice Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Carl Heilman is a Neurosurgery provider in Boston, Massachusetts. Dr. Heilman is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Meningioma, Hydrocephalus, Acoustic Neuroma, Endoscopic Transnasal Transsphenoidal Surgery, and Mastoidectomy. Dr. Heilman is currently accepting new patients.

      Advanced in RASopathies
      Advanced in RASopathies

      Pratt Neurology Associates Inc

      800 Washington St, Box 1013, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Suriya Jeyapalan is a Neurologist in Boston, Massachusetts. Dr. Jeyapalan is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Glioma, Glioblastoma, Astrocytoma, Gastrostomy, and Stent Placement.

      Advanced in RASopathies
      Medical Genetics | Pediatrics
      Advanced in RASopathies
      Medical Genetics | Pediatrics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Angela Lin is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Lin is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Myhre Syndrome, Turner Syndrome, Intersex, Undescended Testicle, and Hormone Replacement Therapy (HRT). Dr. Lin is currently accepting new patients.

      Advanced in RASopathies
      Nurse Practitioner
      Advanced in RASopathies
      Nurse Practitioner

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Christina Orr is a Nurse Practitioner in Boston, Massachusetts. Ms. Orr is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and RASopathies.

      Advanced in RASopathies
      Nurse Practitioner
      Advanced in RASopathies
      Nurse Practitioner
      55 Fruit St, Yawkey 9e, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Amanda Gordon is a Nurse Practitioner in Boston, Massachusetts. Ms. Gordon is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Neurofibromatosis, RASopathies, Pediatric Low-Grade Glioma (pLGG), and Neurofibromatosis Type 1 (NF1).

      Advanced in RASopathies
      Advanced in RASopathies

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Kevin Raskin is an Orthopedics provider in Boston, Massachusetts. Dr. Raskin is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Adult Soft Tissue Sarcoma, Bone Tumor, Osteosarcoma, Bone Graft, and Hip Replacement. Dr. Raskin is currently accepting new patients.

      Advanced in RASopathies
      Advanced in RASopathies
      Massachusetts General Hospital, 55 Fruit Street, 
      Boston, MA 
       (0.8 miles away)
      Languages Spoken:
      English

      Saumya Jamuar is a Neurologist in Boston, Massachusetts. Dr. Jamuar is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Agyria Pachygyria Polymicrogyria, Cardiofaciocutaneous Syndrome, RASopathies, Cortical Dysplasia, and Gastrostomy.

      Advanced in RASopathies
      Ophthalmology | Neurology
      Advanced in RASopathies
      Ophthalmology | Neurology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Joseph Rizzo is an Ophthalmologist and a Neurologist in Boston, Massachusetts. Dr. Rizzo is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Optic Neuritis, Temporal Arteritis, Increased Intracranial Pressure, and Papilledema.

      Advanced in RASopathies
      Ophthalmology
      Advanced in RASopathies
      Ophthalmology
      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English

      Ryan Gise is an Ophthalmologist in Boston, Massachusetts. Dr. Gise is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Papilledema, Increased Intracranial Pressure, Strabismus, and Amblyopia.

      Advanced in RASopathies
      Otolaryngology
      Advanced in RASopathies
      Otolaryngology

      Massachusetts Eye And Ear Associates, Inc

      243 Charles St, 
      Boston, MA 
       (0.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Duane Welling is an Otolaryngologist in Boston, Massachusetts. Dr. Welling is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Neurofibromatosis Type 2 (NF2), and Ruptured Eardrum. Dr. Welling is currently accepting new patients.

      Minh T. Truong
      Experienced in RASopathies
      Radiation Oncology
      Experienced in RASopathies
      Radiation Oncology

      Boston University Radiation Oncology Inc

      830 Harrison Ave, Ll100, 
      Boston, MA 
       (1.7 miles away)
      Languages Spoken:
      English

      Minh Truong is a Radiation Oncologist in Boston, Massachusetts. Dr. Truong is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Laryngeal Cancer, Throat Cancer, Tongue Cancer, Pituitary Tumor, and Glossectomy.

      Advanced in RASopathies
      Medical Genetics
      Advanced in RASopathies
      Medical Genetics
      65 Landsdowne St, 
      Cambridge, MA 
       (2.3 miles away)
      Languages Spoken:
      English

      Matthew Lebo is a Medical Genetics provider in Cambridge, Massachusetts. Dr. Lebo is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, RASopathies, Biotinidase Deficiency, and Legius Syndrome.

      Advanced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Safwat Aly is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Aly is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Ebstein's Anomaly, Coarctation of the Aorta, Anomalous Left Coronary Artery from the Pulmonary Artery, and Patent Ductus Arteriosus. Dr. Aly is currently accepting new patients.

      Advanced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Christina Ronai is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Ronai has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Pulmonary Valve Stenosis, Pulmonary Atresia, Congenital Heart Disease (CHD), and Hypoplastic Left Heart Syndrome (HLHS).

      Advanced in RASopathies
      Pediatric Cardiology | Cardiology
      Advanced in RASopathies
      Pediatric Cardiology | Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kristin Bonello is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Bonello has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Arachnodactyly, Marfan Syndrome, Congenital Contractural Arachnodactyly, and Retinopathy Pigmentary Mental Retardation. Dr. Bonello is currently accepting new patients.

      Advanced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics
      Advanced in RASopathies
      Pediatric Cardiology | Cardiology | Pediatrics

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jami Levine is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Levine is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Marfan Syndrome, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Congenital Heart Disease (CHD). Dr. Levine is currently accepting new patients.

      Showing 1-20 of 371

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors near Boston, MA?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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