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    Last Updated: 01/09/2026

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    MediFind found 39 doctor with experience in RASopathies near North Rhine-Westphalia, DE. Of these, 35 are Experienced, 3 are Advanced and 1 are Distinguished.

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    39 providers found
      Distinguished in RASopathies
      Distinguished in RASopathies
      Essen, NW, DE 

      Alma Kuechler practices in Essen, Germany. Kuechler is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Their top areas of expertise are RASopathies, Early Infantile Epileptic Encephalopathy, Achalasia Microcephaly Syndrome, and Microcephaly.

      Advanced in RASopathies
      Advanced in RASopathies
      Duesseldorf, NW, DE 

      Mohammad Ahmadian practices in Duesseldorf, Germany. Mr. Ahmadian is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Noonan Syndrome, Cardiofaciocutaneous Syndrome, and Costello Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Duesseldorf, NW, DE 

      Dagmar Wieczorek practices in Duesseldorf, Germany. Ms. Wieczorek is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Micrognathia, Coffin-Siris Syndrome, Microcephaly, Achalasia Microcephaly Syndrome, and Gastrostomy.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Advanced in RASopathies
      Advanced in RASopathies
      Duesseldorf, NW, DE 

      Saeideh Rad-Nakhaei practices in Duesseldorf, Germany. Rad-Nakhaei is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are RASopathies, Noonan Syndrome, Hypertrophic Cardiomyopathy (HCM), and Cardiomyopathy.

      Steffi Silling
      Experienced in RASopathies
      Experienced in RASopathies
      Fürst Pückler Str. 56, 
      Koeln, NW, DE 

      Steffi Silling practices in Koeln, Germany. Ms. Silling is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Genital Warts, Warts, Merkel Cell Carcinoma, and Human Papillomavirus Infection.

      Experienced in RASopathies
      Experienced in RASopathies
      Ludwig Erhard Allee 2, 
      Bonn, NW, DE 

      Dan Ehninger practices in Bonn, Germany. Mr. Ehninger is rated as an Experienced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, Alzheimer's Disease, Dementia, and Tuberous Sclerosis Complex.

      Experienced in RASopathies
      Experienced in RASopathies
      Essen, NW, DE 

      Beate Albrecht practices in Essen, Germany. Ms. Albrecht is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Miller Syndrome, Nicolaides-Baraitser Syndrome, Coffin-Siris Syndrome, and Acheiropody.

      Experienced in RASopathies
      Experienced in RASopathies
      Bonn, NW, DE 

      Tzung-chien Hsieh practices in Bonn, Germany. Hsieh is rated as an Experienced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are KBG Syndrome, Micrognathia, Miller Syndrome, and Coffin-Siris Syndrome.

      Experienced in RASopathies
      Experienced in RASopathies
      Bonn, NW, DE 

      Peter Krawitz practices in Bonn, Germany. Mr. Krawitz is rated as an Experienced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Glucose Phosphate Isomerase Deficiency, Fryns Syndrome, Crouzon Syndrome, and KBG Syndrome.

      Experienced in RASopathies
      Experienced in RASopathies
      Muenster, NW, DE 

      Nuria Bramswig practices in Muenster, Germany. Ms. Bramswig is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Coffin-Siris Syndrome, Miller Syndrome, Micrognathia, and Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius.

      Experienced in RASopathies
      Experienced in RASopathies
      Duesseldorf, NW, DE 

      Radovan Dvorsky practices in Duesseldorf, Germany. Dvorsky is rated as an Experienced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Clouston Syndrome, Ectodermal Dysplasias, Aplasia Cutis Congenita, and RASopathies.

      Experienced in RASopathies
      Experienced in RASopathies
      Duesseldorf, NW, DE 

      Ariane Schmetz practices in Duesseldorf, Germany. Ms. Schmetz is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Micrognathia, Miller Syndrome, Coffin-Siris Syndrome, and Costello Syndrome.

      Experienced in RASopathies
      Experienced in RASopathies
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Claus Pieper practices in Bonn, Germany. Mr. Pieper is rated as an Experienced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Chylous Ascites, Ascites, Myocarditis, Cirrhosis, and Thalamotomy.

      Experienced in RASopathies
      Experienced in RASopathies
      Kerpener Str. 34, 
      Koeln, NW, DE 

      Janine Altmuller practices in Koeln, Germany. Ms. Altmuller is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and Oculomotor Apraxia Cogan Type.

      Experienced in RASopathies
      Experienced in RASopathies
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Julian Luetkens practices in Bonn, Germany. Mr. Luetkens is rated as an Experienced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Myocarditis, Cardiomyopathy, Chylous Ascites, Transcatheter Aortic Valve Replacement (TAVR), and Thrombectomy.

      Experienced in RASopathies
      Experienced in RASopathies
      Helios St. Elisabeth Klinik Oberhausen, 
      Oberhausen, NW, DE 

      Alexander Kreuter practices in Oberhausen, Germany. Mr. Kreuter is rated as an Experienced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Scleroderma, Anal Cancer, Genital Warts, Reconstructive Urology Surgery, and Bone Marrow Transplant.

      Experienced in RASopathies
      Experienced in RASopathies
      Essen, NW, DE 

      Sheila Geiger practices in Essen, Germany. Ms. Geiger is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, and Obesity.

      Experienced in RASopathies
      Experienced in RASopathies
      Essen, NW, DE 

      Ulrike Schmidt-Schara practices in Essen, Germany. Ms. Schmidt-Schara is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, and Cramp-Fasciculation Syndrome.

      Experienced in RASopathies
      Experienced in RASopathies
      Otto Hahn Str. 6b, 
      Dortmund, NW, DE 

      Andreas Hentschel practices in Dortmund, Germany. Mr. Hentschel is rated as an Experienced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Primary Lateral Sclerosis, Supernumerary Nipples, Infantile Axonal Neuropathy, and Lactate Dehydrogenase Deficiency.

      Experienced in RASopathies
      Experienced in RASopathies
      Essen, NW, DE 

      Hannah Voss practices in Essen, Germany. Ms. Voss is rated as an Experienced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Costello Syndrome, Brain Tumor, RASopathies, and Gliomatosis Cerebri.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 39

      Last Updated: 01/09/2026

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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