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    Last Updated: 01/09/2026

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    MediFind found 110 doctor with experience in RASopathies near Netherlands. Of these, 89 are Experienced, 12 are Advanced, 7 are Distinguished and 2 are Elite.

    Location
    LocationClose
    110 providers found
      Elite in RASopathies
      Elite in RASopathies
      Nijmegen, GE, NL 

      Ineke Van Der Burgt practices in Nijmegen, Netherlands. Ms. Van Der Burgt is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Coffin-Siris Syndrome, and Angelman Syndrome.

      Elite in RASopathies
      Elite in RASopathies
      Nijmegen, GE, NL 

      Erika Leenders practices in Nijmegen, Netherlands. Ms. Leenders is rated as an Elite expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Floating-Harbor Syndrome, and Cardiomyopathic Lentiginosis.

      Jos T. Draaisma
      Distinguished in RASopathies
      Distinguished in RASopathies
      Nijmegen, GE, NL 

      Jos Draaisma practices in Nijmegen, Netherlands. Mr. Draaisma is rated as a Distinguished expert by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, RASopathies, Cardiomyopathic Lentiginosis, and Rigid Spine Syndrome.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Distinguished in RASopathies
      Distinguished in RASopathies

      Radboud UMC

      Nijmegen, GE, NL 

      Tuula Rinne practices in Nijmegen, Netherlands. Ms. Rinne is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Xanthoma, Cerebrotendinous Xanthomatosis, and Deep Brain Stimulation.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Nijmegen, GE, NL 

      Ellen Croonen practices in Nijmegen, Netherlands. Ms. Croonen is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome and RASopathies.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Nijmegen, GE, NL 

      Helger Yntema practices in Nijmegen, Netherlands. Yntema is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Noonan Syndrome, Hearing Loss, RASopathies, and Short Philtrum.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Nijmegen, GE, NL 

      Ellen Wingbermuhle practices in Nijmegen, Netherlands. Ms. Wingbermuhle is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Cardiomyopathic Lentiginosis, and KBG Syndrome.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Venray, LI, NL 

      Renee Roelofs practices in Venray, Netherlands. Ms. Roelofs is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Cardiomyopathic Lentiginosis, and Melasma.

      Distinguished in RASopathies
      Distinguished in RASopathies
      Nijmegen, GE, NL 

      Lotte Kleimeier practices in Nijmegen, Netherlands. Ms. Kleimeier is rated as a Distinguished expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Noonan Syndrome, RASopathies, Cardiofaciocutaneous Syndrome, and Costello Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Nijmegen, GE, NL 

      Willy Nillesen practices in Nijmegen, Netherlands. Mr. Nillesen is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Noonan Syndrome, RASopathies, Corpus Callosum Agenesis, and Hypotonia.

      Advanced in RASopathies
      Advanced in RASopathies

      Erasmus MC

      Rotterdam, ZH, NL 

      Ype Elgersma practices in Rotterdam, Netherlands. Elgersma is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Angelman Syndrome, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, and Legius Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Nijmegen, GE, NL 

      Willemijn Klein practices in Nijmegen, Netherlands. Klein is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Noonan Syndrome, RASopathies, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, VACTERL Association, and Gastrostomy.

      Advanced in RASopathies
      Advanced in RASopathies
      Leiden, ZH, NL 

      Arie Van Haeringen practices in Leiden, Netherlands. Van Haeringen is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Coffin-Siris Syndrome, Increased Head Circumference, Macrodactyly of the Foot, and Marshall-Smith Syndrome.

      Advanced in RASopathies
      Advanced in RASopathies
      Oostrum, FR, NL 

      Jos Egger practices in Oostrum, Netherlands. Mr. Egger is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Cardiomyopathic Lentiginosis, Noonan Syndrome, RASopathies, and Autism Spectrum Disorder.

      Advanced in RASopathies
      Advanced in RASopathies
      Utrecht, UT, NL 

      Marjolijn Jongmans practices in Utrecht, Netherlands. Jongmans is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Familial Wilms Tumor 2, Congenital Radioulnar Synostosis, Turcot Syndrome, and Wilms Tumor.

      Advanced in RASopathies
      Advanced in RASopathies
      Venray, LI, NL 

      Roy Kessels practices in Venray, Netherlands. Mr. Kessels is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Memory Loss, Developmental Dysphasia Familial, Dementia, Noonan Syndrome, and Deep Brain Stimulation.

      Advanced in RASopathies
      Advanced in RASopathies
      Nijmegen, GE, NL 

      Cees Noordam practices in Nijmegen, Netherlands. Noordam is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Noonan Syndrome, RASopathies, Prader-Willi Syndrome, Hypogonadism, and Hormone Replacement Therapy (HRT).

      Advanced in RASopathies
      Advanced in RASopathies
      Nijmegen, GE, NL 

      Nens Van Alfen practices in Nijmegen, Netherlands. Van Alfen is rated as an Advanced expert by MediFind in the treatment of RASopathies. Their top areas of expertise are Hereditary Neuralgic Amyotrophy, Brachial Plexopathy, Cramp-Fasciculation Syndrome, Facioscapulohumeral Muscular Dystrophy (FSHD), and Osteotomy.

      Advanced in RASopathies
      Advanced in RASopathies
      Nijmegen, GE, NL 

      Corrie Erasmus practices in Nijmegen, Netherlands. Ms. Erasmus is rated as an Advanced expert by MediFind in the treatment of RASopathies. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Rigid Spine Syndrome, Dysarthria, and Cerebral Palsy.

      Advanced in RASopathies
      Advanced in RASopathies
      Leiden, ZH, NL 

      Jeroen Den Hertog practices in Leiden, Netherlands. Mr. Den Hertog is rated as an Advanced expert by MediFind in the treatment of RASopathies. His top areas of expertise are Cardiomyopathic Lentiginosis, Metachondromatosis, RASopathies, and Melasma.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 110

      Last Updated: 01/09/2026

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors in Netherlands?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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