The 20 Best RASopathies Doctors Near Me in Illinois, US

Find the Top RASopathies Experts and Specialists

The 20 Best RASopathies Doctors in Illinois, US

Last Updated: 02/22/2026

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MediFind found 247 doctor with experience in RASopathies near Illinois, US. Of these, 230 are Experienced, 15 are Advanced, 1 are Distinguished and 1 are Elite.

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247 providers found
    Elite in RASopathies
    Medical Genetics | Pediatrics
    Elite in RASopathies
    Medical Genetics | Pediatrics
    225 E Chicago Ave # 59, 
    Chicago, IL 
    Languages Spoken:
    English

    Carlos Prada is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Prada is rated as an Elite provider by MediFind in the treatment of RASopathies. His top areas of expertise are RASopathies, Smith-Kingsmore Syndrome, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

    Russell Reid
    Advanced in RASopathies
    Plastic Surgery
    Advanced in RASopathies
    Plastic Surgery

    UChicago Medicine

    5841 South Maryland Ave, Mc 6035, 
    Chicago, IL 
    Languages Spoken:
    English

    Russell Reid is a Plastic Surgeon in Chicago, Illinois. Dr. Reid is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Craniosynostosis, Micrognathia, Metopic Ridge, Osteotomy, and Bone Graft.

    Arkadiy Konyukhov
    Advanced in RASopathies
    Advanced in RASopathies

    Endeavor Health Medical Group

    1200 S. York St., Suite 3160, 
    Elmhurst, IL 
    Languages Spoken:
    English, Russian
    Offers Telehealth

    Arkadiy Konyukhov, MD, a neurologist at Endeavor Health, cares for patients with a wide range of neurological conditions. He brings experience as both a nurse and physician, approaching care with a strong emphasis on listening, individualizing treatment, and supporting patients through long-term management. His clinical interests include migraine and complex neurological disorders. Dr. Konyukhov is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Epilepsy, Memory Loss, Transient Ischemic Attack (TIA), and Legius Syndrome.

    Are you looking for a specific type of RASopathies?

    Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

    Learn about our expert tiers
    Distinguished in RASopathies
    Distinguished in RASopathies

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    James Tonsgard is a Pediatrics provider in Chicago, Illinois. Dr. Tonsgard is rated as a Distinguished provider by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

    Advanced in RASopathies
    Pediatric Cardiology
    Advanced in RASopathies
    Pediatric Cardiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Michael Carr is a Pediatric Cardiologist in Chicago, Illinois. Dr. Carr is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Double Aortic Arch, Vascular Ring, Cardiac Diverticulum, and Congenital Heart Disease (CHD).

    Advanced in RASopathies
    Neuroradiology
    Advanced in RASopathies
    Neuroradiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Maura Ryan is a Neuroradiologist in Chicago, Illinois. Dr. Ryan is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Chiari Malformation, Cortical Dysplasia, Choroid Plexus Cyst, and Familial Porencephaly.

    Advanced in RASopathies
    Neuroradiology
    Advanced in RASopathies
    Neuroradiology

    Office

    225 E Chicago Ave # 9, 
    Chicago, IL 
    Languages Spoken:
    English

    Corey Bregman is a Neuroradiologist in Chicago, Illinois. Dr. Bregman is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Optic Glioma, Familial Porencephaly, Choroid Plexus Cyst, and Arachnoid Cysts.

    Advanced in RASopathies
    Pediatric Radiology
    Advanced in RASopathies
    Pediatric Radiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Schwartz is a Pediatric Radiologist in Chicago, Illinois. Dr. Schwartz is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Horseshoe Kidney, Tracheobronchopathia Osteoplastica, Pectus Excavatum, and Ureterocele.

    Advanced in RASopathies
    Pediatric Radiology
    Advanced in RASopathies
    Pediatric Radiology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Jackson Norman is a Pediatric Radiologist in Chicago, Illinois. Dr. Norman is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Caffey Disease, Scoliosis, Tracheobronchopathia Osteoplastica, and Ureterocele.

    Richard M. Wiet
    Experienced in RASopathies
    Otolaryngology
    Experienced in RASopathies
    Otolaryngology
    25 N Winfield Rd Ste 424, 
    Winfield, IL 
    Experience:
    25+ years
    Languages Spoken:
    English
    Offers Telehealth

    Richard Wiet is an Otolaryngologist in Winfield, Illinois. Dr. Wiet has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Nonsyndromic Hearing Loss, Myringotomy, and Tissue Biopsy.

    George Bobustuc
    Experienced in RASopathies
    Experienced in RASopathies

    Endeavor Health Medical Group

    880 W. Central Rd., Suite 7200, 
    Arlington Heights, IL 
    Languages Spoken:
    English

    George Bobustuc is a Neurologist in Arlington Heights, Illinois. Dr. Bobustuc is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Tumor, Astrocytoma, Glioblastoma, Glioma, and Awake Craniotomy.

    Karan S. Dixit
    Experienced in RASopathies
    Hematology Oncology | Neurology | Hematology
    Experienced in RASopathies
    Hematology Oncology | Neurology | Hematology
    675 N St Clair St Ste 20-100, Galter Pavilion, 
    Chicago, IL 
    Experience:
    15+ years
    Languages Spoken:
    English
    Offers Telehealth

    Karan Dixit is a Hematologist Oncology specialist and a Neurologist in Chicago, Illinois. Dr. Dixit has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Astrocytoma, Glioma, Brain Tumor, Glioblastoma, and Gastrostomy.

    Michal Szczodry
    Experienced in RASopathies
    Experienced in RASopathies

    Midwest Orthopaedic Consultants, SC

    10719 160th St, 
    Orland Park, IL 
    Languages Spoken:
    English, Polish

    Michal Szczodry is an Orthopedics provider in Orland Park, Illinois. Dr. Szczodry is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Scoliosis, Sciatica, Distal 18q Deletion Syndrome, Microdiscectomy, and Herniated Disc Surgery.

    Jason H. Ko
    Experienced in RASopathies
    Plastic Surgery
    Experienced in RASopathies
    Plastic Surgery
    259 E Erie St Ste 2060, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jason Ko is a Plastic Surgeon in Chicago, Illinois. Dr. Ko has been practicing medicine for over 8 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Phantom Limb Pain, Legius Syndrome, Erb's Palsy, Leg or Foot Amputation, and Bone Graft.

    Afif Hentati
    Experienced in RASopathies
    Neurology | Community Health Worker
    Experienced in RASopathies
    Neurology | Community Health Worker

    Endeavor Health Medical Group

    1000 Central St., Suite 880, 
    Evanston, IL 
    Languages Spoken:
    English, Arabic, French
    Offers Telehealth

    Afif Hentati, MD, a neurologist at Endeavor Health, specializes in diagnosing and managing complex neurological conditions, with a focus on multiple sclerosis. He blends deep clinical experience with ongoing research to improve patient outcomes and expand treatment options. Dr. Hentati values careful listening, clear communication and personalized care, helping patients feel confident and supported throughout their journey. Dr. Hentati is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Migraine, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

    Robin A. Buerki
    Experienced in RASopathies
    Experienced in RASopathies
    15300 West Ave Ste 100, 
    Orland Hills, Illinois, IL 
    Experience:
    13+ years
    Languages Spoken:
    English
    Offers Telehealth

    Robin Buerki is a Neurologist in Orland Hills, Illinois, Illinois. Dr. Buerki has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, and Brain Tumor.

    Charles Wang
    Experienced in RASopathies
    Neurology | Community Health Worker | Neuroradiology
    Experienced in RASopathies
    Neurology | Community Health Worker | Neuroradiology

    Endeavor Health Medical Group

    9650 Gross Point Rd., Suite 3900, 
    Skokie, IL 
    Languages Spoken:
    English

    Charles Wang, MD, a neurologist and electrodiagnostic medicine specialist at Endeavor Health, provides diagnostic-focused care for patients with neurologic conditions. Fluent in Mandarin, he supports language accessibility for Chinese-speaking patients, helping ensure clear, compassionate communication. Dr. Wang is especially interested in how artificial intelligence can enhance diagnostic accuracy and support, not replace, human-centered care. Dr. Wang is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Peripheral Neuropathy, and Memory Loss.

    Roger A. Defreitas
    Experienced in RASopathies
    Pediatric Cardiology
    Experienced in RASopathies
    Pediatric Cardiology
    675 N St Clair St Ste 19-100, Galter Pavilion, 
    Chicago, IL 
    Experience:
    36+ years
    Languages Spoken:
    English
    Offers Telehealth

    Roger Defreitas is a Pediatric Cardiologist in Chicago, Illinois. Dr. Defreitas has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Ebstein's Anomaly, Tricuspid Atresia, Transposition of the Great Arteries, and Congenital Heart Disease (CHD).

    David Dobkin
    Experienced in RASopathies
    Pediatrics
    Experienced in RASopathies
    Pediatrics

    North Arlington Pediatrics

    1430 N. Arlington Heights Rd., Suite 210, 
    Arlington Heights, IL 
    Languages Spoken:
    English

    David Dobkin is a Pediatrics provider in Arlington Heights, Illinois. Dr. Dobkin is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Delayed Growth, Developmental Dysphasia Familial, Idiopathic Short Stature (ISS), and Familial Short Stature (FSS).

    Aleksandrs Kalnins
    Experienced in RASopathies
    Neuroradiology | Radiology
    Experienced in RASopathies
    Neuroradiology | Radiology

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
    Experience:
    17+ years
    Languages Spoken:
    English

    Aleksandrs U. Kalnins, MD, a neuroradiologist at Endeavor Health, specializes in the imaging and diagnosis of conditions affecting the brain, spine and nervous system. He interprets advanced imaging studies such as MRI and CT scans to support the diagnosis and treatment planning for neurological disorders. Dr. Kalnins works in collaboration with neurologists, neurosurgeons and other specialists to deliver accurate, timely insights that guide patient care. Dr. Kalnins is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Stroke, Invertebral Disc Disease, Hepatocerebral Degeneration, and Cerebellar Degeneration.

    Showing 1-20 of 247

    Last Updated: 02/22/2026

    What is the definition of RASopathies?

    RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

    When should I see a RASopathies doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a RASopathies doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank RASopathies doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by RASopathies doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a RASopathies doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

    Why is it important to get a second opinion from a different RASopathies doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a RASopathies doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my RASopathies doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female RASopathies doctors in Illinois, US?

    Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a RASopathies doctor that offers video calls?

    Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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