The 20 Best Rett Syndrome Doctors in Germany

Find the Top Rett Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 95 doctor with experience in Rett Syndrome near Germany. Of these, 80 are Experienced and 15 are Advanced.

Location
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95 providers found
    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Berlin, BE, DE 

    Christian Rosenmund practices practicing medicine in Berlin, Germany. Mr. Rosenmund is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, Autosomal Recessive Primary Microcephaly, Memory Loss, and Secondary Parkinsonism.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Munich, BY, DE 

    Florian Pokorny practices practicing medicine in Munich, Germany. Mr. Pokorny is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, Fragile X Syndrome, Autism Spectrum Disorder, and Hemiplegia.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Darmstadt, HE, DE 

    Maria Cardoso practices practicing medicine in Darmstadt, Germany. Ms. Cardoso is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome and Aicardi-Goutieres Syndrome.

    Learn about our expert tiers
    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Munich, BY, DE 

    Holger Prokisch practices practicing medicine in Munich, Germany. Mr. Prokisch is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Mitochondrial Complex 1 Deficiency, Lactic Acidosis, Leigh Syndrome, Deep Brain Stimulation, and Liver Transplant.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Goettingen, NI, DE 

    Saju Balakrishnan practices practicing medicine in Goettingen, Germany. Balakrishnan is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Rett Syndrome, Respiratory Alkalosis, and Hyperventilation.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Kassel, HE, DE 

    Bernd Wilken practices practicing medicine in Kassel, Germany. Mr. Wilken is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Supernumerary Nipples, Tuberous Sclerosis Complex, and Tuberous Sclerosis.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Neuherberg, BY, DE 

    Dmitrii Smirnov practices practicing medicine in Neuherberg, Germany. Smirnov is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses Pyruvate Decarboxylase Deficiency, Rett Syndrome, Pyruvate Dehydrogenase Deficiency, and Lethal Congenital Contracture Syndrome.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Rudolf Bultmann Str. 8, 
    Marburg An Der Lahn, HE, DE 

    Adam Strzelczyk practices practicing medicine in Marburg An Der Lahn, Germany. Mr. Strzelczyk is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Status Epilepticus, Myoclonic Epilepsy, Seizures, Epilepsy, and Thrombectomy.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Von Siebold Str. 5, 
    Goettingen, NI, DE 

    Luise Poustka practices practicing medicine in Goettingen, Germany. Ms. Poustka is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Asperger's Syndrome, Attention Deficit Hyperactivity Disorder (ADHD), and Anorexia.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Jena, TH, DE 

    Peter Huppke practices practicing medicine in Jena, Germany. Mr. Huppke is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Erythromelalgia, Tyrosinemia Type 2, and Rett Syndrome.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Goettingen, NI, DE 

    Sebastian Kugler practices practicing medicine in Goettingen, Germany. Mr. Kugler is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Parkinson's Disease, Movement Disorders, Rett Syndrome, and Dementia.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Munich, BY, DE 

    Robert Kopajtich practices practicing medicine in Munich, Germany. Mr. Kopajtich is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Lactic Acidosis, Leigh Syndrome, Optic Nerve Atrophy, Rett Syndrome, and Liver Transplant.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Goettingen, NI, DE 

    Swen Hulsmann practices practicing medicine in Goettingen, Germany. Mr. Hulsmann is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Hereditary Hyperekplexia, Rett Syndrome, Pulmonary Edema, and Cerebral Hypoxia.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Giessen, HE, DE 

    Marcus Niebert practices practicing medicine in Giessen, Germany. Mr. Niebert is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome and Hereditary Hyperekplexia.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Freiburg, BW, DE 

    Tanja Vogel practices practicing medicine in Freiburg, Germany. Ms. Vogel is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses FOXG1 Syndrome, Rett Syndrome, Microcephaly, and Achalasia Microcephaly Syndrome.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Ulm, BW, DE 

    Frank Kirchhoff practices practicing medicine in Ulm, Germany. Mr. Kirchhoff is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses HIV/AIDS, Severe Acute Respiratory Syndrome (SARS), Rett Syndrome, Primary Lateral Sclerosis, and Laminectomy.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Knut Brockmann practices practicing medicine in Goettingen, Germany. Mr. Brockmann is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Oculomotor Apraxia Cogan Type, Distal Arthrogryposis Type 6, Distal Arthrogryposis, and Hypotonia.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Goettingen, NI, DE 

    Sergej Mironov practices practicing medicine in Goettingen, Germany. Mironov is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. Their clinical expertise encompasses Rett Syndrome, Respiratory Alkalosis, and Hyperventilation.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Darmstadt, HE, DE 

    Anne Lehmkuhl practices practicing medicine in Darmstadt, Germany. Ms. Lehmkuhl is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. Her clinical expertise encompasses Rett Syndrome.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    Großhaderner Str. 2, 
    Planegg, BY, DE 

    Heinrich Leonhardt practices practicing medicine in Planegg, Germany. Mr. Leonhardt is rated as an Experienced expert by MediFind in the treatment of Rett Syndrome. His clinical expertise encompasses Rett Syndrome, Acute Myeloid Leukemia (AML), Laron Syndrome, and Follicular Lymphoma.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 95

    Last Updated: 11/08/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Rett Syndrome doctor in Germany?

    You can find a Rett Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Rett Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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