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    Last Updated: 01/09/2026

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    MediFind found 107 doctor with experience in Rett Syndrome near The United Kingdom. Of these, 79 are Experienced, 23 are Advanced, 4 are Distinguished and 1 are Elite.

    Location
    LocationClose
    107 providers found
      Elite in Rett Syndrome
      Elite in Rett Syndrome
      Edinburgh, SCT, GB 

      Stuart Cobb practices in Edinburgh, United Kingdom. Mr. Cobb is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Congenital Myasthenic Syndrome, Autism Spectrum Disorder, and CDKL5 Deficiency Disorder.

      Adrian P. Bird
      Distinguished in Rett Syndrome
      Distinguished in Rett Syndrome
      Max Born Crescent, 
      Edinburgh, SCT, GB 

      Adrian Bird practices in Edinburgh, United Kingdom. Mr. Bird is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, CDKL5 Deficiency Disorder, West Syndrome, and Isolated Duane Retraction Syndrome.

      Distinguished in Rett Syndrome
      Distinguished in Rett Syndrome
      Edinburgh, SCT, GB 

      Jim Selfridge practices in Edinburgh, United Kingdom. Mr. Selfridge is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. His top area of expertise is Rett Syndrome.

      Learn about our expert tiers
      Distinguished in Rett Syndrome
      Distinguished in Rett Syndrome
      Denmark Hill, 
      London, ENG, GB 

      Paramala Santosh practices in London, United Kingdom. Santosh is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. Their top areas of expertise are Rett Syndrome, Attention Deficit Hyperactivity Disorder (ADHD), Autism Spectrum Disorder, and Stereotypic Movement Disorder.

      Distinguished in Rett Syndrome
      Distinguished in Rett Syndrome
      Edinburgh, SCT, GB 

      Jacky Guy practices in Edinburgh, United Kingdom. Guy is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. Their top area of expertise is Rett Syndrome.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Edinburgh, SCT, GB 

      Ralph Hector practices in Edinburgh, United Kingdom. Mr. Hector is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and Epilepsy in Children.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Cardiff, WLS, GB 

      Angus Clarke practices in Cardiff, United Kingdom. Mr. Clarke is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Hypohidrotic Ectodermal Dysplasia, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Southampton, ENG, GB 

      Rina Cianfaglione practices in Southampton, United Kingdom. Ms. Cianfaglione is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Hypothermia, Cerebral Palsy, and Spastic Diplegia Infantile Type.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Upper Maudlin Street, 
      Bristol, ENG, GB 

      Sam Amin practices in Bristol, United Kingdom. Mr. Amin is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are CDKL5 Deficiency Disorder, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Cortical Dysplasia.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      University Walk, 
      Bristol, ENG, GB 

      Ana Abdala practices in Bristol, United Kingdom. Ms. Abdala is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Serotonin Syndrome, Long QT Syndrome, and Hypertension.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Edinburgh, SCT, GB 

      Kamal Gadalla practices in Edinburgh, United Kingdom. Mr. Gadalla is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome and CDKL5 Deficiency Disorder.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Max Born Crescent, 
      Edinburgh, SCT, GB 

      Matthew Lyst practices in Edinburgh, United Kingdom. Mr. Lyst is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top area of expertise is Rett Syndrome.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome

      Guys And St Thomas NHS Trust

      London, ENG, GB 

      Francesco Bedogni practices in London, United Kingdom. Mr. Bedogni is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Mitral Valve Regurgitation, Aortic Valve Stenosis, Aortic Regurgitation, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Edinburgh, SCT, GB 

      Justyna Waclaw-Cholewa practices in Edinburgh, United Kingdom. Ms. Waclaw-Cholewa is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Her top area of expertise is Rett Syndrome.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      London, ENG, GB 

      Sila Ultanir practices in London, United Kingdom. Ms. Ultanir is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Rett Syndrome, and Spasmus Nutans.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Birmingham, ENG, GB 

      Mark Bailey practices in Birmingham, United Kingdom. Mr. Bailey is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Leishmaniasis, Ebola Virus Disease, Chemical Pneumonitis, and Creeping Eruption.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Science Park, 
      Cambridge, ENG, GB 

      Chris Evelo practices in Cambridge, United Kingdom. Mr. Evelo is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Folate Deficiency, Rett Syndrome, Angelman Syndrome, and Pigment-Dispersion Syndrome.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      Birmingham, ENG, GB 

      Chris Oliver practices in Birmingham, United Kingdom. Mr. Oliver is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Cornelia De Lange Syndrome, Angelman Syndrome, Smith-Magenis Syndrome, and Rubinstein-Taybi Syndrome.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      London, ENG, GB 

      Hayley Leonard practices in London, United Kingdom. Ms. Leonard is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Autism Spectrum Disorder, Rett Syndrome, Williams Syndrome, Bone Marrow Transplant, and Gastrostomy.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome
      University Walk, 
      Bristol, ENG, GB 

      Hongwei Cheng practices in Bristol, United Kingdom. Cheng is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. Their top areas of expertise are Rett Syndrome and Long QT Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 107

      Last Updated: 01/09/2026

      What is the definition of Rett Syndrome?

      Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

      When should I see a Rett Syndrome doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Rett Syndrome doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Rett Syndrome doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Rett Syndrome doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Rett Syndrome doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Rett Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Rett Syndrome doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Rett Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Rett Syndrome doctors in The United Kingdom?

      Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Rett Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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