The 20 Best Rett Syndrome Doctors in The United Kingdom

Find the Top Rett Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 108 doctor with experience in Rett Syndrome near The United Kingdom. Of these, 80 are Experienced, 22 are Advanced, 5 are Distinguished and 1 are Elite.

Location
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108 providers found
    Elite in Rett Syndrome
    Elite in Rett Syndrome
    Referral may be required
    Edinburgh, SCT, GB 

    Stuart Cobb practices practicing medicine in Edinburgh, United Kingdom. Mr. Cobb is rated as an Elite expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, Fragile X Syndrome, Increased Head Circumference, and Autism Spectrum Disorder.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required
    Max Born Crescent, 
    Edinburgh, SCT, GB 

    Adrian Bird practices practicing medicine in Edinburgh, United Kingdom. Mr. Bird is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, CDKL5 Deficiency Disorder, and Duane-Radial Ray Syndrome.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required
    Edinburgh, SCT, GB 

    Jim Selfridge practices practicing medicine in Edinburgh, United Kingdom. Mr. Selfridge is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, Fragile X Syndrome, Increased Head Circumference, and Lymphoid Hyperplasia.

    Learn about our expert tiers
    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required
    Denmark Hill, 
    London, ENG, GB 

    Paramala Santosh practices practicing medicine in London, United Kingdom. Santosh is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Rett Syndrome, Attention Deficit Hyperactivity Disorder (ADHD), Autism Spectrum Disorder, and Stereotypic Movement Disorder.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required
    Heath Park, 
    Cardiff, WLS, GB 

    Angus Clarke practices practicing medicine in Cardiff, United Kingdom. Mr. Clarke is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Hypohidrotic Ectodermal Dysplasia, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

    Distinguished in Rett Syndrome
    Distinguished in Rett Syndrome
    Referral may be required
    Max Born Crescent, 
    Edinburgh, SCT, GB 

    Jacky Guy practices practicing medicine in Edinburgh, United Kingdom. Guy is rated as a Distinguished expert by MediFind in the treatment of Rett Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Rett Syndrome and Pulmonary Edema.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Edinburgh, SCT, GB 

    Ralph Hector practices practicing medicine in Edinburgh, United Kingdom. Mr. Hector is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, Fragile X Syndrome, and Spasmus Nutans.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Southampton, ENG, GB 

    Rina Cianfaglione practices practicing medicine in Southampton, United Kingdom. Ms. Cianfaglione is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome, Hypothermia, Cerebral Palsy, and Spastic Diplegia Infantile Type.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Upper Maudlin Street, 
    Bristol, ENG, GB 

    Sam Amin practices practicing medicine in Bristol, United Kingdom. Mr. Amin is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Rhizotomy.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    University Walk, 
    Bristol, ENG, GB 

    Ana Abdala practices practicing medicine in Bristol, United Kingdom. Ms. Abdala is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome, Serotonin Syndrome, Long QT Syndrome, and Hypertension.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Guy's And St Thomas' NHS Foundation Trust, 
    London, ENG, GB 

    Daniel Lumsden practices practicing medicine in London, United Kingdom. Mr. Lumsden is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Drug Induced Dyskinesia, Focal Dystonia, Spasticity, Deep Brain Stimulation, and Rhizotomy.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Edinburgh, SCT, GB 

    Kamal Gadalla practices practicing medicine in Edinburgh, United Kingdom. Mr. Gadalla is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, Increased Head Circumference, Lymphoid Hyperplasia, and CDKL5 Deficiency Disorder.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required

    Guy's And St. Thomas' NHS Trust

    London, ENG, GB 

    Francesco Bedogni practices practicing medicine in London, United Kingdom. Mr. Bedogni is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Aortic Valve Stenosis, Mitral Valve Regurgitation, Aortic Regurgitation, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Hugh Robson Building, George Square, 
    Edinburgh, SCT, GB 

    Matthew Lyst practices practicing medicine in Edinburgh, United Kingdom. Mr. Lyst is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Edinburgh, SCT, GB 

    Justyna Waclaw-Cholewa practices practicing medicine in Edinburgh, United Kingdom. Ms. Waclaw-Cholewa is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    London, ENG, GB 

    Sila Ultanir practices practicing medicine in London, United Kingdom. Ms. Ultanir is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Rett Syndrome, and Spasmus Nutans.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    University Walk, 
    Bristol, ENG, GB 

    Hongwei Cheng practices practicing medicine in Bristol, United Kingdom. Cheng is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Rett Syndrome and Long QT Syndrome.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    Woodstock Road, 
    Oxford, ENG, GB 

    Corneliu Bolbocean practices practicing medicine in Oxford, United Kingdom. Bolbocean is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Small for Gestational Age, Rett Syndrome, Premature Infant, and Autism Spectrum Disorder.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    London, ENG, GB 

    Suzanne Claxton practices practicing medicine in London, United Kingdom. Ms. Claxton is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, Rett Syndrome, Spasmus Nutans, and West Syndrome.

    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    London, ENG, GB 

    Ana Gomes practices practicing medicine in London, United Kingdom. Ms. Gomes is rated as an Advanced expert by MediFind in the treatment of Rett Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Rett Syndrome, Malaria, Breast Cancer, and Zika Virus Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 108

    Last Updated: 11/08/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Rett Syndrome doctor in The United Kingdom?

    You can find a Rett Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Rett Syndrome doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors in The United Kingdom?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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