The 20 Best Rett Syndrome Doctors Near Me in Illinois, US

Find the Top Rett Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 39 doctor with experience in Rett Syndrome near Illinois, US. Of these, 35 are Experienced, 2 are Distinguished, 1 are Advanced and 1 are Elite.

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39 providers found
    Elite in Rett Syndrome
    Pediatric Neurology
    Elite in Rett Syndrome
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Peter Heydemann is a Pediatric Neurologist in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy.

    Alexis P. Dunne
    Experienced in Rett Syndrome
    Internal Medicine
    Experienced in Rett Syndrome
    Internal Medicine

    Advocate Medical Group Internal Medicine

    80 Templeton Dr, 
    Oswego, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Alexis Dunne is a primary care provider, practicing in Internal Medicine in Oswego, Illinois. Dr. Dunne is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Hypothyroidism, and Obesity in Children.

    Christopher Mcgraw
    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    12+ years
    Languages Spoken:
    English
    Offers Telehealth

    Christopher Mcgraw is a Neurologist in Chicago, Illinois. Dr. Mcgraw has been practicing medicine for over 12 years and is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Seizures, Epilepsy, and Generalized Tonic-Clonic Seizure.

    Learn about our expert tiers
    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Colleen Buhrfiend is a Pediatric Neurologist in Chicago, Illinois. Dr. Buhrfiend is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Rett Syndrome, Aphantasia, Seizures, and Autism Spectrum Disorder.

    Distinguished in Rett Syndrome
    Pediatric Neurology
    Distinguished in Rett Syndrome
    Pediatric Neurology

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Berry is a Pediatric Neurologist in Chicago, Illinois. Dr. Berry is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome.

    Mohamed A. Katerji
    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Katerji Pediatric Neurology & Associates, SC

    1220 Iroquois Ave, 
    Naperville, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Mohamed Katerji is a Neurologist in Naperville, Illinois. Dr. Katerji is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Athetosis, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Paul L. Grindstaff
    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Northwestern Medical Group

    360 E Station Dr Ste 300, Suite 300, 
    Crystal Lake, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Paul Grindstaff is a Neurologist in Crystal Lake, Illinois. Dr. Grindstaff is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Peripheral Neuropathy, Vitamin B12 Deficiency Anemia, and Memory Loss. Dr. Grindstaff is currently accepting new patients.

    Stephen A. Vanhaerents
    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Stephen Vanhaerents is a Neurologist in Chicago, Illinois. Dr. Vanhaerents has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Encephalitis, Seizures, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

    Experienced in Rett Syndrome
    Neurology
    Experienced in Rett Syndrome
    Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Ewen is a Neurologist in Chicago, Illinois. Dr. Ewen is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Sturge-Weber Syndrome, Smith-Lemli-Opitz Syndrome, Epilepsy in Children, and Parkes Weber Syndrome.

    Experienced in Rett Syndrome
    Pediatric Neurology
    Experienced in Rett Syndrome
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Lubov Romantseva is a Pediatric Neurologist in Chicago, Illinois. Dr. Romantseva is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, CLN3 Disease, CLN5 Disease, and Batten Disease.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Sunita Misra is a Neurologist in Chicago, Illinois. Dr. Misra is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Absence Seizure.

    Experienced in Rett Syndrome
    Medical Genetics
    Experienced in Rett Syndrome
    Medical Genetics
    25 N Winfield Rd Ste 419, 
    Winfield, IL 
    Experience:
    35+ years
    Languages Spoken:
    English
    Offers Telehealth

    Carolyn Jones is a Medical Genetics provider in Winfield, Illinois. Dr. Jones has been practicing medicine for over 35 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Danon Disease.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Joshua Goldstein is a Neurologist in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Status Epilepticus, Seizures, Epilepsy, and Landau-Kleffner Syndrome.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Northwestern Medicine Central Dupage Hospital

    25 N Winfield Rd, 
    Winfield, IL 
    Languages Spoken:
    English

    Diana Sieciechowicz is a Neurologist in Winfield, Illinois. Dr. Sieciechowicz is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Seizure, and Absence Seizure.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    David Bieber is a Neurologist in Chicago, Illinois. Dr. Bieber is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Memory Loss, Partial Seizure, Athetosis, and Seizures.

    Experienced in Rett Syndrome
    Neurology
    Experienced in Rett Syndrome
    Neurology

    Office

    251 E Huron St Fl 13, 
    Chicago, IL 
    Languages Spoken:
    English

    Sheng Tang is a Neurologist in Chicago, Illinois. Dr. Tang is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are West Syndrome, Spasmus Nutans, Rett Syndrome, and Absence Seizure.

    Experienced in Rett Syndrome
    Pediatric Neurology
    Experienced in Rett Syndrome
    Pediatric Neurology

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Tracy Gertler is a Pediatric Neurologist in Chicago, Illinois. Dr. Gertler is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Athetosis, Myoclonic Epilepsy, and Epilepsy in Children.

    Experienced in Rett Syndrome
    Family Medicine
    Experienced in Rett Syndrome
    Family Medicine

    Cass County Home Health Agency

    331 S Main St, 
    Virginia, IL 
    Languages Spoken:
    English

    Dirck Curry is a primary care provider, practicing in Family Medicine in Virginia, Illinois. Dr. Curry is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Type 2 Diabetes (T2D), Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Shriners Hospitals For Children-Chicago

    2211 N Oak Park Ave, 
    Chicago, IL 
    Languages Spoken:
    English

    Maria Martinez is a Pediatrics provider in Chicago, Illinois. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Alternating Hemiplegia of Childhood, Cerebral Palsy, Spastic Diplegia Infantile Type, and Moebius Syndrome.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome

    Office

    1241 W Jackson Blvd Unit 213, 
    Chicago, IL 
    Languages Spoken:
    English

    Divya Nagabushana is a Neurologist in Chicago, Illinois. Dr. Nagabushana is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, Seizures, West Syndrome, and Rett Syndrome.

    Showing 1-20 of 39

    Last Updated: 04/28/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor in Illinois, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor in Illinois, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Rett Syndrome doctors in Illinois, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors in Illinois, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor in Illinois, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor in Illinois, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors in Illinois, US?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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