The 20 Best Rett Syndrome Doctors Near Me in chicago, IL

Find the Top Rett Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 19 doctor with experience in Rett Syndrome near chicago, IL. Of these, 15 are Experienced, 2 are Distinguished, 1 are Advanced and 1 are Elite.

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19 providers found
    Elite in Rett Syndrome

    Dr. Peter T. Heydemann
    Pediatric Neurology
    Elite in Rett Syndrome

    Dr. Peter T. Heydemann
    Pediatric Neurology
    Referral may be required

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
     (2.9 miles away)
    312-942-4036
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Peter Heydemann is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Heydemann is rated as an Elite provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Congenital Toxoplasmosis, Duchenne Muscular Dystrophy, and Seizures. Dr. Heydemann is currently accepting new patients in some locations.

    Distinguished in Rett Syndrome

    Dr. Colleen M. Buhrfiend
    Pediatric Neurology
    Distinguished in Rett Syndrome

    Dr. Colleen M. Buhrfiend
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1653 W Congress Pkwy, 
    Chicago, IL 
     (2.0 miles away)
    888-352-7874
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Colleen Buhrfiend is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Buhrfiend is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Aphantasia, Seizures, and Autism Spectrum Disorder. Dr. Buhrfiend is currently accepting new patients.

    Distinguished in Rett Syndrome

    Dr. Elizabeth M. Berry-Kravis
    Pediatric Neurology
    Distinguished in Rett Syndrome

    Dr. Elizabeth M. Berry-Kravis
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago, IL 
     (2.9 miles away)
    312-942-4036
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Elizabeth Berry-Kravis is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Berry-Kravis is rated as a Distinguished provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Fragile X Syndrome, Autism Spectrum Disorder, Rett Syndrome, and Angelman Syndrome. Dr. Berry-Kravis is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Rett Syndrome
    Advanced in Rett Syndrome
    Referral may be required
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    312-695-7950
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Christopher Mcgraw is a Neurologist practicing medicine in Chicago, Illinois. Dr. Mcgraw is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Seizures, Epilepsy, and Generalized Tonic-Clonic Seizure. Dr. Mcgraw is board certified in American Board Of Psychiatry And Neurology - Epilepsy (Certified). Dr. Mcgraw is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required
    259 E Erie St Ste 1900, Lavin Family Pavilion, 
    Chicago, IL 
     (1.3 miles away)
    312-695-7950
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Stephen Vanhaerents is a Neurologist practicing medicine in Chicago, Illinois. Dr. Vanhaerents is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Encephalitis, Seizures, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis. Dr. Vanhaerents is board certified in American Board Of Psychiatry And Neurology - Clinical Neurophysiology (Certified). Dr. Vanhaerents is currently accepting new patients.

    Experienced in Rett Syndrome

    Dr. Tracy S. Gertler
    Pediatric Neurology
    Experienced in Rett Syndrome

    Dr. Tracy S. Gertler
    Pediatric Neurology
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    312-227-3550
    Languages Spoken:
    English
    See accepted insurances

    Tracy Gertler is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Gertler is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Seizures, Myoclonic Epilepsy, Epilepsy in Children, and Status Epilepticus.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    800-543-7362
    Languages Spoken:
    English
    Accepting New Patients

    Sunita Misra is a Neurologist practicing medicine in Chicago, Illinois. Dr. Misra is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Absence Seizure. Dr. Misra is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    312-227-3550
    Languages Spoken:
    English
    See accepted insurances

    Divya Desai is a Neurologist practicing medicine in Chicago, Illinois. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Athetosis, Photosensitive Epilepsy, Landau-Kleffner Syndrome, and Partial Seizure.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    312-227-3550
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    David Bieber is a Neurologist practicing medicine in Chicago, Illinois. Dr. Bieber is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 54 other conditions, according to our data. His clinical expertise encompasses Seizures, Memory Loss, Partial Seizure, and Athetosis. Dr. Bieber is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Office

    1241 W Jackson Blvd Unit 213, 
    Chicago, IL 
     (1.1 miles away)
    224-516-7025
    Languages Spoken:
    English

    Divya Nagabushana is a Neurologist practicing medicine in Chicago, Illinois. Dr. Nagabushana is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her clinical expertise encompasses Early Infantile Epileptic Encephalopathy, West Syndrome, Rett Syndrome, and Epilepsy.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Office

    251 E Huron St Fl 13, 
    Chicago, IL 
     (1.3 miles away)
    312-926-2000
    Languages Spoken:
    English

    Sheng Tang is a Neurologist practicing medicine in Chicago, Illinois. Dr. Tang is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses West Syndrome, Spasmus Nutans, Rett Syndrome, and Epilepsy.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Office

    600 S Paulina St, 
    Chicago, IL 
     (2.0 miles away)
    312-942-7100
    Languages Spoken:
    English

    James Cross is a Neurologist practicing medicine in Chicago, Illinois. Dr. Cross is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Absence Seizure, Generalized Tonic-Clonic Seizure, and Seizures.

    Experienced in Rett Syndrome

    Dr. Eileen V. Alonto
    Internal Medicine
    Experienced in Rett Syndrome

    Dr. Eileen V. Alonto
    Internal Medicine

    Jesse Brown VA Medical Center

    820 S Damen Ave, 
    Chicago, IL 
     (2.4 miles away)
    312-569-6043
    Languages Spoken:
    English
    See accepted insurances

    Eileen Alonto is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Alonto is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her clinical expertise encompasses Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Type 2 Diabetes (T2D).

    Experienced in Rett Syndrome

    Dr. Lubov F. Romantseva
    Pediatric Neurology
    Experienced in Rett Syndrome

    Dr. Lubov F. Romantseva
    Pediatric Neurology
    Referral may be required

    Rush University Medical Center

    1725 W Harrison St Ste 710, 
    Chicago,, IL 
     (2.9 miles away)
    312-942-4036
    Languages Spoken:
    English, Russian
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Lubov Romantseva is a Pediatric Neurologist practicing medicine in Chicago,, Illinois. Dr. Romantseva is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Seizures, CLN4 Disease, CLN3 Disease, and CLN1 Disease. Dr. Romantseva is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Childrens Memorial Hospital

    2300 N Childrens Plz, 
    Chicago,, IL 
     (3.0 miles away)
    773-883-6159
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Linda Laux is a Neurologist practicing medicine in Chicago,, Illinois. Dr. Laux is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Seizures. Dr. Laux is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Office

    2515 N Clark St, 
    Chicago,, IL 
     (3.1 miles away)
    312-227-3550
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Joshua Goldstein is a Neurologist practicing medicine in Chicago,, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Status Epilepticus, Seizures, Epilepsy, and Landau-Kleffner Syndrome. Dr. Goldstein is currently accepting new patients.

    Experienced in Rett Syndrome

    Dr. Kamala G. Cotts
    Internal Medicine
    Experienced in Rett Syndrome

    Dr. Kamala G. Cotts
    Internal Medicine

    UChicago Medicine Duchossois Center For Advanced Medicine - Hyde Park

    5758 S. Maryland Ave., 
    Chicago, IL 
     (6.6 miles away)
    888-385-6976
    Languages Spoken:
    English, Telugu
    See accepted insurances
    Offers Telehealth

    Kamala Cotts is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Cotts is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Emphysema, Osteoarthritis, Enlarged Liver, and Memory Loss. Dr. Cotts is board certified in 1994, Internal Medicine, and Practicing Since.

    Experienced in Rett Syndrome

    Dr. Karen L. Kaul
    Medical Genetics
    Experienced in Rett Syndrome

    Dr. Karen L. Kaul
    Medical Genetics
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Pathology, 
    Evanston, IL 
     (12.9 miles away)
    847-570-2052
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Karen Kaul is a Medical Genetics provider practicing medicine in Evanston, Illinois. Dr. Kaul is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. She is also highly rated in 64 other conditions, according to our data. Her clinical expertise encompasses Vitamin D Deficiency, Menopause, Heart Failure with Preserved Ejection Fraction (HFpEF), and Febrile Neutropenia. Dr. Kaul is board certified in American Board Of Pathology. Dr. Kaul is currently accepting new patients.

    Experienced in Rett Syndrome
    Experienced in Rett Syndrome
    Referral may be required

    Loyola University Medical Center

    2160 S 1st Ave, 
    Maywood, IL 
     (10.5 miles away)
    708-216-9000
    Languages Spoken:
    English, Polish, Spanish
    See accepted insurances
    Accepting New Patients
    Offers Telehealth

    Haidar Kabbani is a Neurologist practicing medicine in Maywood, Illinois. Dr. Kabbani is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Epilepsy. Dr. Kabbani is currently accepting new patients.

    Showing 1-19 of 19

    Last Updated: 09/26/2026

    What is the definition of Rett Syndrome?

    Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

    When should I see a Rett Syndrome doctor near chicago, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Rett Syndrome doctor near chicago, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Rett Syndrome doctor near chicago, IL?

    You can find a Rett Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Rett Syndrome doctors near chicago, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Rett Syndrome doctors near chicago, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Rett Syndrome doctor near chicago, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Rett Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Rett Syndrome doctor near chicago, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Rett Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Rett Syndrome doctors near chicago, IL?

    Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Rett Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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