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    Last Updated: 10/30/2025

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    MediFind found 77 doctor with experience in Rett Syndrome near Michigan, US. Of these, 72 are Experienced and 5 are Advanced.

    Location
    LocationClose
    77 providers found
      Experienced in Rett Syndrome
      Family Medicine
      Experienced in Rett Syndrome
      Family Medicine

      Henry Ford Health System

      40000 8 Mile Rd, 
      Northville, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Margaret Swenor is a primary care provider, practicing in Family Medicine in Northville, Michigan. Dr. Swenor is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Parkinson's Disease, Irritable Bowel Syndrome (IBS), Colonic Malakoplakia, and Tenesmus. Dr. Swenor is currently accepting new patients.

      Edward R. Dabrowski
      Advanced in Rett Syndrome
      Advanced in Rett Syndrome

      Michigan Institute For Neurological Disorders (MIND)

      25100 Kelly Road, 
      Roseville, MI 
      Experience:
      45+ years
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Edward Dabrowski is a Physiatrist in Roseville, Michigan. Dr. Dabrowski has been practicing medicine for over 45 years and is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Danielle A. Nolan
      Advanced in Rett Syndrome
      Pediatrics | Pediatric Neurology
      Advanced in Rett Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      14+ years
      Languages Spoken:
      English
      Accepting New Patients

      Danielle Nolan is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Nolan has been practicing medicine for over 14 years and is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Seizures, and West Syndrome. Dr. Nolan is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Rett Syndrome
      Family Medicine
      Advanced in Rett Syndrome
      Family Medicine

      Eaton Rapids Medical Center

      1500 S Main St, 
      Eaton Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Jonathan Cooper is a primary care provider, practicing in Family Medicine in Eaton Rapids, Michigan. Dr. Cooper is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Rett Syndrome, Type 2 Diabetes (T2D), Chronic Cough, and Maturity Onset Diabetes of the Young. Dr. Cooper is currently accepting new patients.

      Advanced in Rett Syndrome
      Advanced in Rett Syndrome

      Regents Of The University Of Michigan

      7500 Challis Rd, 
      Brighton, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Hornyak is a Physiatrist in Brighton, Michigan. Dr. Hornyak is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Cerebral Palsy, and Spasticity. Dr. Hornyak is currently accepting new patients.

      Advanced in Rett Syndrome
      Medical Genetics | Pediatrics
      Advanced in Rett Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Advanced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.

      David S. Moon
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      12+ years
      Languages Spoken:
      English
      Accepting New Patients

      David Moon is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Moon has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Tourette Syndrome, Transient Tic Disorder, Cerebral Palsy, and Focal Dystonia. Dr. Moon is currently accepting new patients.

      Alexandra Shaw
      Experienced in Rett Syndrome
      Neurology | Pediatric Neurology
      Experienced in Rett Syndrome
      Neurology | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      16+ years
      Languages Spoken:
      English, French
      Accepting New Patients

      Alexandra Shaw is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Shaw has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Shaw is currently accepting new patients.

      Seth P. Devries
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      17+ years
      Languages Spoken:
      English

      Seth Devries is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Devries has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children.

      Daniel H. Arndt
      Experienced in Rett Syndrome
      Neurology | Pediatric Neurology
      Experienced in Rett Syndrome
      Neurology | Pediatric Neurology

      Specialists In Pediatric Neurology PLLC

      7001 Orchard Lake Road, Suite 320C, 
      West Bloomfield, MI 
      Experience:
      22+ years
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Arndt is a Neurologist and a Pediatric Neurologist in West Bloomfield, Michigan. Dr. Arndt has been practicing medicine for over 22 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Epilepsy in Children. Dr. Arndt is currently accepting new patients.

      Rawad Obeid
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      19+ years
      Languages Spoken:
      English, Arabic, French, Spanish
      Accepting New Patients

      Rawad Obeid is a Pediatric Neurologist in Royal Oak, Michigan. Dr. Obeid has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Intraventricular Hemorrhage of the Newborn, GAPO Syndrome, Delayed Growth, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Obeid is currently accepting new patients.

      Susan L. Youngs
      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Oakwood Family Center

      18501 Rotunda Drive, Suite 200, 
      Dearborn, MI 
      Experience:
      32+ years
      Languages Spoken:
      English
      Accepting New Patients

      Susan Youngs is a Pediatrics provider in Dearborn, Michigan. Dr. Youngs has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Cerebral Palsy, Rasmussen Encephalitis, Encephalitis, and Autism Spectrum Disorder. Dr. Youngs is currently accepting new patients.

      Anastasia Luniova
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      25+ years
      Languages Spoken:
      English
      Accepting New Patients

      Anastasia Luniova is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Luniova has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Absence Seizure, and West Syndrome. Dr. Luniova is currently accepting new patients.

      Nancy A. Mcnamara
      Experienced in Rett Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      15+ years
      Languages Spoken:
      English
      Accepting New Patients

      Nancy Mcnamara is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Mcnamara has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), and Generalized Tonic-Clonic Seizure. Dr. Mcnamara is currently accepting new patients.

      Elizabeth A. Leleszi
      Experienced in Rett Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      23+ years
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Leleszi is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Leleszi has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Migraine with Brainstem Aura, Migraine, Spasmus Nutans, and Stereotypic Movement Disorder. Dr. Leleszi is currently accepting new patients.

      Amy M. Kodrik
      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Michigan Institute For Neurological Disorders (MIND)

      25150 Ford Road, Suite 100, 
      Dearborn Heights, MI 
      Experience:
      24+ years
      Languages Spoken:
      English, French
      Accepting New Patients

      Amy Kodrik is a Neurologist in Dearborn Heights, Michigan. Dr. Kodrik has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Migraine, Memory Loss, Neuralgia, and Seizures. Dr. Kodrik is currently accepting new patients.

      Robin J. Cook
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      11+ years
      Languages Spoken:
      English

      Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Absence Seizure, Seizures, Partial Seizure, and Epilepsy Juvenile Absence.

      Jason T. Umfleet
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      25+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jason Umfleet is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Umfleet has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Seizures. Dr. Umfleet is currently accepting new patients.

      Bradley J. Aymen
      Experienced in Rett Syndrome
      Experienced in Rett Syndrome

      Michigan Institute For Neurological Disorders (MIND)

      28595 Orchard Lake Road, Suite 200, 
      Farmington Hills, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bradley Aymen is a Neurologist in Farmington Hills, Michigan. Dr. Aymen is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. His top areas of expertise are Increased Intracranial Pressure, Pseudotumor Cerebri Syndrome, Tension Headache, and Stroke. Dr. Aymen is currently accepting new patients.

      Jena M. Krueger
      Experienced in Rett Syndrome
      Pediatric Neurology
      Experienced in Rett Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      15+ years
      Languages Spoken:
      English

      Jena Krueger is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Krueger has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Rett Syndrome. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2.

      Showing 1-20 of 77

      Last Updated: 10/30/2025

      What is the definition of Rett Syndrome?

      Rett syndrome (RTT) is a disorder of the nervous system. This condition leads to developmental problems in children. It mostly affects language skills and hand use.

      When should I see a Rett Syndrome doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Rett Syndrome doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Rett Syndrome doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Rett Syndrome doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Rett Syndrome doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Rett Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Rett Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Rett Syndrome doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Rett Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Rett Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Rett Syndrome doctors in Michigan, US?

      Look for the filter feature on the left side of the Rett Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Rett Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Rett Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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