Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Osteotomy, and Rhizotomy.

Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as an Elite provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Neurofibromatosis Type 2 (NF2).

Dr. Laura M. Fayad serves as the Chief of Musculoskeletal Imaging. She is a Professor in the Johns Hopkins University Department of Radiology and Radiological Science, Department of Oncology, and Department of Orthopaedic Surgery. Dr. Fayad is also the Director of the Translational Research Program in the Department of Radiology. Dr. Fayad earned a Bachelor of Science at the Massachusetts Institute of Technology, a Master of Science at Stanford University, and M.D. C.M. degrees at the McGill University Faculty of Medicine. She completed residency training at Columbia University and MRI Fellowship at Thomas Jefferson University. She specializes in diagnostic and interventional musculoskeletal radiology. In addition to routine sports medicine and spine applications, Dr. Fayad protocols and interprets specialized examinations in the areas of peripheral nerve imaging, tumor imaging, and rheumatology. Her primary area of research focuses on novel imaging techniques for musculoskeletal tumors, with her work including well over 100 publications that have been cited more than 1,500 times. Dr. Fayad is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Schwannomatosis, Neurofibromatosis, Liposarcoma, and Neurofibromatosis Type 2 (NF2).

Dr. Ahmet Hoke is Professor of Neurology and Neuroscience, W. W. Smith Charitable Trust Professor of Neuroimmunology at Johns Hopkins School of Medicine, Director of the Daniel B. Drachman Division of Neuromuscular Diseases and Director of the Merkin Peripheral Neuropathy and Nerve Regeneration Center at Johns Hopkins University School of Medicine. He completed his medical training at Hacettepe University School of Medicine in Ankara, Turkey followed by his PhD studies in developmental neuroscience at Case Western Reserve University in Cleveland, Ohio, and neurology residency at Johns Hopkins Hospital. After completing his neuromuscular training at University of Calgary, Canada, he returned to Johns Hopkins University as faculty and rose through the ranks. He is the recipient of several awards including Derek Denny Brown Young Neurological Scholar Award (2005) and Wolfe Neuropathy Research prize (2018) given by the American Neurological Association, Myung Memorial Lecture Award (2017) by the Korean Neurological Association, Nejat Eczacibasi Medical Scientist Award (2019) by the Eczacibasi Foundation, Turkey, and Alan J. Gebhart Prize in Excellence in Neuropathy Research (2022) by the Peripheral Nerve Society. He is an Ex-Officio member of the Board of Directors of the American Neurological Association, and Vice-President of the Toxic Neuropathy Consortium. He serves on several editorial boards and is the Editor-in-Chief of Annals of Clinical and Translational Neurology. Dr. Hoke is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Wallerian Degeneration, Peripheral Neuropathy, Tomaculous Neuropathy, Spinal Muscular Atrophy with Arthrogryposis, and Prostatectomy.

Karisa Schreck is co-director of the BRAF Brain Tumor Center at Johns Hopkins. Her research focuses on the development of small-molecule targeted therapies for patients with primary brain tumors. Dr. Schreck has specific expertise in the treatment of BRAF gene mutations. As such, she works with Christine Pratilas’ laboratory to investigate resistance mechanisms to BRAF-targeted therapy. Dr. Schreck also writes and runs clinical trials for novel targeted agents through the Comprehensive Brain Tumor Center and the Alliance for Clinical Trials in Oncology. Dr. Schreck is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Glioma, Brain Tumor, Astrocytoma, and Glioblastoma.

Dr. Kristin Redmond specializes in the treatment of brain tumors and leads the spinal radiosurgery program. She received her undergraduate degree from Princeton University where she graduated magna cum laude with a focus in neuro-psychology. She attended medical school and obtained a Masters in Public Health in health systems management at Tulane University where she was elected to the Alpha Omega Alpha Honor Medical Society as well as the Gold Humanism in Medicine Honor Society. Dr. Redmonds research interest focuses on the development of novel radiation techniques and therapeutic agents to treat brain and spine tumors in order to increase tumor control and overall survival. In addition, she is working to develop innovative approaches to try to limit long term toxicities and minimize neuro-cognitive dysfunction following treatment for tumors of the central nervous system. Dr. Redmond believes in a holistic approach to medicine and feels that the social and psychological components of patient care are equally important to traditional therapies. She works closely with a team of specialists to support patients and families during their cancer journey. Make A Gift. Dr. Redmond is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Chordoma, Brain Tumor, Astrocytoma, and Metastatic Brain Tumor.

Daniel Lubelski is a fellowship-trained neurosurgeon with expertise in complex spine surgery and peripheral nerve surgery. He treats patients with spinal diseases and deformities, spine and nerve tumors, and brachial plexus injuries and other peripheral nerve injuries. Dr. Lubelski’s training in complex and robotic spine surgery, spinal oncology and peripheral nerve injuries allows him to comprehensively evaluate patients and develop custom treatment plans to address symptoms and improve patients’ quality of life. He prioritizes patient-centered care, effective communication and working in multidisciplinary collaboration to identify the best treatment. After obtaining his undergraduate degree at the City University of New York, Dr. Lubelski spent a year doing predoctoral research at the National Institutes of Health. He then obtained his medical degree from the Cleveland Clinic Lerner College of Medicine, and he performed stem cell tumor research as a Howard Hughes Medical Institute fellow. Dr. Lubelski went on to the Johns Hopkins University School of Medicine for a neurosurgery residency and an enfolded fellowship in peripheral nerve surgery. His postdoctoral training also included a fellowship in complex spine surgery and spinal oncology at Johns Hopkins, as well as a traveling fellowship with advanced training at the Memorial Sloan Kettering Cancer Center and MD Anderson Cancer Center. Dr. Lubelski is a prolific researcher who focuses on patient quality of life and on using big data to develop individualized prediction models to determine optimal treatments tailored to each person. He has authored more than 200 peer-reviewed papers and numerous textbook chapters, has lectured nationally and internationally, and serves as a reviewer for the top neurosurgical journals. Dr. Lubelski is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Spinal Tumor, Chordoma, Spinal Stenosis, Spinal Fusion, and Laminectomy.

Alan R. Cohen is the director of pediatric neurosurgery at Johns Hopkins Children’s Center in Baltimore, Maryland, and one of the top pediatric neurosurgeons in the country. His area of specialty is treating infants and children diagnosed with brain tumors. Dr. Cohen’s goal is to get his patients back to being a kid again. He has a patient-centered approach to caring for each of his patients, working closely with the child’s family at every stage of the decision-making process. Dr. Cohen sees patients in the neurosciences clinic located in the Levi Watkins, Jr., M.D., Outpatient Center. As the Carson-Spiro Professor of Pediatric Neurosurgery, Dr. Cohen is a leader in developing minimally invasive techniques to enhance the safety and efficacy of selected pediatric neurosurgical procedures. He serves as director of the Minimally Invasive Neurosurgery Laboratory at Johns Hopkins and directs the Minimally Invasive Neurosurgery Fellowship Program. His lab focuses on developing novel instruments and surgical approaches. He has authored more than 200 peer-reviewed journal articles and book chapters, and published two textbooks. He has given approximately 330 national and international presentations, and has been an invited visiting professor at 50 medical centers. He is past president of the Society of Neurological Surgeons, the American Society of Pediatric Neurosurgeons and the AANS/CNS Section on Pediatric Neurological Surgery. He is past vice president of the American Academy of Neurological Surgery, a past director of the American Board of Neurological Surgery and current director of the American Board of Pediatric Neurological Surgery. Patient Reviews Hear what patients have to say about Dr. Cohen’s care: • Healthgrades Patient Reviews • Vitals Patient Reviews. Dr. Cohen is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Arachnoid Cysts, Meningocele, Hydrocephalus, Endoscopy, and Cerebral Artery Bypass Surgery.

Jesse McDermeit, M.D. is an internal medicine physician with Johns Hopkins Community Physicians. Dr. McDermeit received his medical degree from New York University School of Medicine in 2016. Following graduation, he returned to Johns Hopkins University where he previously completed his undergraduate training in public health and completed his internal medicine residency at the School of Medicine with a focus in Urban Primary Care. Dr. Mcdermeit is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Schwannomatosis, Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, and Hypertension.

Dr. Haris Sair is Professor in the Johns Hopkins Medicine Department of Radiology and Radiological Science, and the Director of the Division of Neuroradiology. His areas of clinical expertise include functional Magnetic Resonance Imaging (fMRI) of the brain. He also has a faculty appointment in the Malone Center for Engineering in Healthcare at The Whiting School of Engineering, Johns Hopkins University, investigating the use of machine learning and artificial intelligence in imaging. He is a founding director of the Radiology Artificial Intelligence Lab (RAIL). He previously served as the President of the American Society of Functional Neuroradiology. Dr. Sair earned his M.D. from Duke University School of Medicine. He completed his Radiology residency at Temple University Medical Center, and fellowship in Neuroradiology at Massachusetts General Hospital in Boston, MA. Dr. Sair is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Traumatic Brain Injury, Cerebrospinal Fluid Leak, and Microvascular Decompression.

Carlos Romo, M.D., is a neuro-oncologist in Baltimore, Maryland. Dr. Romo specializes in the diagnosis and treatment of brain tumors, including glioblastoma, astrocytomas, oligodendrogliomas, neurofibromas, and schwannomas among others. Dr. Romo earned his medical degree from the School of Medicine and Health Sciences at Tecnológico de Monterrey in Mexico and completed his Neurology residency at the University of Arkansas for Medical Sciences, where he served as chief resident. He then completed a Neuro-oncology clinical and research fellowship in a joint program between The Johns Hopkins University and the National Institutes of Health. Dr. Romo additionally trained as a clinical pharmacology fellow at The Johns Hopkins University and completed training on clinical cancer research at the University of Texas MD Anderson Cancer Center. In his research, Dr. Romo studies drug pharmacokinetics and the blood-brain barrier, and investigates better ways to reach tumors in the central nervous system. Dr. Romo also studies treatments for patient with neurofibromatosis. In addition to patient care and research, Dr. Romo teaches and mentors medical and undergraduate students to help develop a future generation of neurologists. Dr. Romo is rated as a Distinguished provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Schwannomatosis, and Astrocytoma.

Christian Okoye is a Radiation Oncologist in Baltimore, Maryland. Dr. Okoye is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Pleuropulmonary Blastoma, Laryngeal Cancer, Breast Cancer, and Angiosarcoma. Dr. Okoye is currently accepting new patients.

Chetan Bettegowda is the director of the Johns Hopkins Department of Neurosurgery. He offers comprehensive treatments for adult patients with benign and malignant brain tumors, specializing in the treatment of patients with primary brain tumors such as gliomas, meningiomas and pituitary tumors. He performs both open surgery and stereotactic radiosurgery for patients with metastatic tumors to the brain, and also provides stereotactic radiosurgery for other neurological disorders, including spinal tumors, trigeminal neuralgia and skull-base tumors. Dr. Bettegowda is rated as an Advanced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Trigeminal Neuralgia, Astrocytoma, Glioblastoma, Rhizotomy, and Microvascular Decompression.

Roberto Rey Dios is a Neurosurgery provider in Baltimore, Maryland. Dr. Rey Dios is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. His top areas of expertise are Pituitary Tumor, Subdural Hematoma, Primitive Neuroectodermal Tumor (PNET), Balloon Sinuplasty, and Awake Craniotomy.

Indrayani Karkhanis is a primary care provider, practicing in Family Medicine in Ellicott City, Maryland. Dr. Karkhanis is rated as an Experienced provider by MediFind in the treatment of Schwannomatosis. Her top areas of expertise are Transcobalamin Deficiency, Vitamin B12 Deficiency, Cerebellar Degeneration, and Subacute Combined Degeneration. Dr. Karkhanis is currently accepting new patients.