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    Last Updated: 01/09/2026

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    MediFind found 58 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Minnesota, US. Of these, 51 are Experienced and 7 are Advanced.

    Location
    LocationClose
    58 providers found
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      William Young is an Endocrinologist in Rochester, Minnesota. Dr. Young is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Pheochromocytoma, Neuroendocrine Tumor, Multiple Endocrine Neoplasia Type 1, Adrenal Cancer, and Parathyroidectomy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Irina Bancos is an Endocrinologist in Rochester, Minnesota. Dr. Bancos is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Adrenal Gland Adenoma, Adrenal Cancer, Cushing's syndrome, Hormone Replacement Therapy (HRT), and Endoscopy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Hirokazu Takami is a Neurosurgery provider in Rochester, Minnesota. Dr. Takami is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Brain Tumor, Hemangioblastoma, Ependymoma, Awake Craniotomy, and Endoscopic Transnasal Transsphenoidal Surgery.

      Learn about our expert tiers
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Kalpana Muthusamy is an Endocrinologist in Rochester, Minnesota. Dr. Muthusamy is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Hyperparathyroidism, Type 1 Diabetes (T1D), and Hormone Replacement Therapy (HRT).

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      1702 Miller Trunk Hwy, Suite 206, 
      Duluth, MN 
      Experience:
      17+ years
      Languages Spoken:
      English, Creole, Creoles And Pidgins, French, Spanish
      Accepting New Patients

      Elisabeth Aponte is an Ophthalmologist in Duluth, Minnesota. Dr. Aponte has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Glaucoma, Ocular Hypertension (OHT), Hypothalamic Hamartomas, and Phacomatosis Pigmentovascularis. Dr. Aponte is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Neurosurgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Neurosurgery

      The Duluth Clinic Ltd

      1101 9th St N, 
      Virginia, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Peter Van Patten is an Ophthalmologist and a Neurosurgery provider in Virginia, Minnesota. Dr. Van Patten is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Cataract, Glaucoma, Ocular Hypertension (OHT), and Optic Nerve Atrophy. Dr. Van Patten is currently accepting new patients.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Vitreo Retinal Surgery PLLC

      3601 W 76th St, Suite 300, 
      Minneapolis, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Polly Quiram is an Ophthalmologist in Minneapolis, Minnesota. Dr. Quiram is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Retinal Detachment, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Vein Occlusion, and Vitrectomy. Dr. Quiram is currently accepting new patients.

      Dana Erickson
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Dana Erickson is an Endocrinologist in Rochester, Minnesota. Dr. Erickson is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Pituitary Tumor, Hypothalamic Tumor, Prolactinoma, Hormone Replacement Therapy (HRT), and Thyroidectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine

      St Josephs Medical Center

      2024 S 6th St, 
      Brainerd, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kristi Gebhardt is a primary care provider, practicing in Internal Medicine in Brainerd, Minnesota. Dr. Gebhardt is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Emphysema, Bullae, Seasonal Affective Disorder (SAD), and Heart Failure with Preserved Ejection Fraction (HFpEF). Dr. Gebhardt is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Hospital Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Hospital Medicine

      The Duluth Clinic Ltd

      400 E 3rd St, 
      Duluth, MN 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Brian Moran is a Neurologist and a Hospital Medicine provider in Duluth, Minnesota. Dr. Moran has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Partial Seizure, Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE), Seizures, and Memory Loss. Dr. Moran is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Psychiatry | Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Psychiatry | Neurosurgery

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bryan Neth is a Neurologist and a Psychiatrist in Rochester, Minnesota. Dr. Neth is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Gliomatosis Cerebri, Alzheimer's Disease, Brain Tumor, and Thrombectomy. Dr. Neth is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | Orthopedics
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | Orthopedics

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ian Parney is a Neurosurgery specialist and an Orthopedics provider in Rochester, Minnesota. Dr. Parney is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, Awake Craniotomy, and Gamma Knife Radiosurgery. Dr. Parney is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Link is a Neurosurgery provider in Rochester, Minnesota. Dr. Link is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Acoustic Neuroma, Schwannoma, Neuroendocrine Tumor, Gamma Knife Radiosurgery, and Microvascular Decompression. Dr. Link is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Allen Aksamit is a Neurologist in Rochester, Minnesota. Dr. Aksamit is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurosarcoidosis, Encephalitis, Progressive Multifocal Leukoencephalopathy, and Creutzfeldt-Jakob Disease. Dr. Aksamit is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      Rochester, MN 
      Languages Spoken:
      English

      Nila Akhtar is a Radiologist in Rochester, Minnesota. Dr. Akhtar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Fibrosing Mediastinitis, Spontaneous Coronary Artery Dissection (SCAD), Pulmonary Fibrosis, and Von Hippel-Lindau (VHL) Syndrome.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      400 E 3rd St, 
      Duluth, MN 
      Languages Spoken:
      English

      Thomas Shuey is an Ophthalmologist in Duluth, Minnesota. Dr. Shuey is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Strabismus, Esotropia, Blocked Tear Duct, and Ptosis.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine
      208 Centertown Plaza, 
      Stewartville, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Craig Thauwald is a primary care provider, practicing in Family Medicine in Stewartville, Minnesota. Dr. Thauwald is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Maturity Onset Diabetes of the Young, Phacomatosis Pigmentovascularis, Linear Nevus Sebaceous Syndrome, and Cowden Syndrome. Dr. Thauwald is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology

      Douglas County Hospital

      111 17th Ave E, 
      Alexandria, MN 
      Languages Spoken:
      English, Filipino
      Accepting New Patients

      Marion Raflores is a Hematologist Oncology specialist and a Hematologist in Alexandria, Minnesota. Dr. Raflores is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Desmoplastic Small Round Cell Tumor, Relapsed Refractory Multiple Myeloma (RRMM), Paget Disease of the Breast, Familial Colorectal Cancer, and Bone Marrow Aspiration. Dr. Raflores is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Lucinda Gruber is an Endocrinologist in Rochester, Minnesota. Dr. Gruber is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Secondary Adrenal Insufficiency, Pheochromocytoma, Neuroendocrine Tumor, and Prolactinoma.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Diane Donegan is an Endocrinologist in Rochester, Minnesota. Dr. Donegan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Pituitary Tumor, Prolactinoma, Addison's Disease, Hypothalamic Tumor, and Hormone Replacement Therapy (HRT).

      Showing 1-20 of 58

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Minnesota, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Minnesota, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Minnesota, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Minnesota, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Minnesota, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Minnesota, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Minnesota, US?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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