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    Last Updated: 01/09/2026

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    MediFind found 30 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Rochester, MN. Of these, 27 are Experienced and 3 are Advanced.

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    LocationClose
    30 providers found
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Irina Bancos is an Endocrinologist in Rochester, Minnesota. Dr. Bancos is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Adrenal Gland Adenoma, Adrenal Cancer, Cushing's syndrome, Hormone Replacement Therapy (HRT), and Endoscopy.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Hirokazu Takami is a Neurosurgery provider in Rochester, Minnesota. Dr. Takami is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Brain Tumor, Hemangioblastoma, Ependymoma, Awake Craniotomy, and Endoscopic Transnasal Transsphenoidal Surgery.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Endocrinology

      Olmsted Medical Center-Se Clinic

      210 9th St SE, 
      Rochester, MN 
       (0.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kalpana Muthusamy is an Endocrinologist in Rochester, Minnesota. Dr. Muthusamy is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Postmenopausal Osteoporosis, Osteoporosis, Hyperparathyroidism, Type 1 Diabetes (T1D), and Hormone Replacement Therapy (HRT).

      Learn about our expert tiers
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Psychiatry | Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Psychiatry | Neurosurgery

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Bryan Neth is a Neurologist and a Psychiatrist in Rochester, Minnesota. Dr. Neth is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Gliomatosis Cerebri, Alzheimer's Disease, Brain Tumor, and Thrombectomy. Dr. Neth is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michael Link is a Neurosurgery provider in Rochester, Minnesota. Dr. Link is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Acoustic Neuroma, Schwannoma, Neuroendocrine Tumor, Gamma Knife Radiosurgery, and Microvascular Decompression. Dr. Link is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Allen Aksamit is a Neurologist in Rochester, Minnesota. Dr. Aksamit is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neurosarcoidosis, Encephalitis, Progressive Multifocal Leukoencephalopathy, and Creutzfeldt-Jakob Disease. Dr. Aksamit is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ugur Sener is a Neurologist in Rochester, Minnesota. Dr. Sener is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Astrocytoma, Brain Tumor, Glioblastoma, and Glioma.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Fredric Meyer is a Neurosurgery provider in Rochester, Minnesota. Dr. Meyer is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Brain Tumor, Carotid Artery Surgery, and Awake Craniotomy. Dr. Meyer is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Medical Genetics | Neurology | Pediatric Neurology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Medical Genetics | Neurology | Pediatric Neurology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, Cowden Syndrome, Lhermitte-Duclos Disease, and Bannayan-Riley-Ruvalcaba Syndrome.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic Health System-Southwest Wisconsin Region, Inc.

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alan Stolpen is a Radiologist in Rochester, Minnesota. Dr. Stolpen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Fibrolamellar Carcinoma, Neuroendocrine Tumor, Cholangiocarcinoma (Bile Duct Cancer), and Ureterocele. Dr. Stolpen is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Hirotaka Hasegawa is a Neurosurgery provider in Rochester, Minnesota. Dr. Hasegawa is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Meningioma, Gamma Knife Radiosurgery, and Endoscopy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Samir Nath is a Neurologist in Rochester, Minnesota. Dr. Nath is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), and Hemangioblastoma.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Peter Kalina is a Radiologist in Rochester, Minnesota. Dr. Kalina is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Radiation Induced Meningioma, Meningioma, Pediatric Low-Grade Glioma (pLGG), and Hydrocephalus.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Neuromusculoskeletal Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Neuromusculoskeletal Medicine

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Daniel Lachance is a Neurologist and a Neuromusculoskeletal Medicine provider in Rochester, Minnesota. Dr. Lachance is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Glioma, Gliomatosis Cerebri, Brain Tumor, and Astrocytoma.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Gary Miller is a Radiologist in Rochester, Minnesota. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Radiation Induced Meningioma, Meningioma, Brain Aneurysm, and Pediatric Low-Grade Glioma (pLGG).

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Julie Guerin is a Radiologist in Rochester, Minnesota. Dr. Guerin is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Radiation Induced Meningioma, Meningioma, Klippel-Trenaunay Syndrome, and Cerebrospinal Fluid Leak.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English, Hindi, Malayan, Urdu
      Accepting New Patients

      Jithinraj Edakkanambeth-Varayil is a primary care provider, practicing in Family Medicine in Rochester, Minnesota. Dr. Edakkanambeth-Varayil is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Phacomatosis Pigmentovascularis, Cowden Syndrome, Tieche-Jadassohn Nevus, and Peutz-Jeghers Syndrome. Dr. Edakkanambeth-Varayil is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Lauren Dalvin is an Ophthalmologist in Rochester, Minnesota. Dr. Dalvin is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Melanoma of the Eye, Uveal Melanoma, Retinoblastoma, Vitrectomy, and Tissue Biopsy. Dr. Dalvin is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mason Webb is a Hematologist Oncology specialist and a Hematologist in Rochester, Minnesota. Dr. Webb is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hemangiopericytoma, Gliomatosis Cerebri, Brain Tumor, and Pineocytoma. Dr. Webb is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Radiology | Urology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Radiology | Urology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
       (0.4 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English

      Tomas Marek is a Radiologist and a Urologist in Rochester, Minnesota. Dr. Marek has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Familial Multiple Lipomatosis, Desmoid Tumor, Multiple Symmetric Lipomatosis, Nerve Decompression, and Gamma Knife Radiosurgery.

      Showing 1-20 of 30

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Rochester, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Rochester, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Rochester, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Rochester, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Rochester, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Rochester, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Rochester, MN?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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