The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Washington, US

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 22 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Washington, US. Of these, 20 are Experienced and 2 are Advanced.

Location
LocationClose
22 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients
    Offers Telehealth

    Janet Chieh, MD, is a board-certified ophthalmologist and vitreoretinal surgeon who specializes in medical and surgical diseases of the retina and vitreous, including age-related macular degeneration, diabetic retinopathy and retinal detachments.Dr. Chieh loves to interact with her patients. She finds it most gratifying when she can restore a person's sight and independence and thereby improve their quality of life.Dr. Chieh is a member of the American Academy of Ophthalmology; American Society of Retinal Specialists; Washington Academy of Eye Physicians and Surgeons; Chinese American Ophthalmological Society; and Association for Research in Vision and Ophthalmology. She was named a 2019 Top Doctor bySeattleandSeattle Metmagazines.Away from work, Dr. Chieh enjoys spending time with friends, traveling, hiking and skiing. Dr. Chieh is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Choroid Plexus Carcinoma, and Retinal Artery Occlusion. Dr. Chieh is board certified in American Board Of Ophthalmology. Dr. Chieh is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery | Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery | Radiology

    Virginia Mason Medical Center

    1100 Ninth Avenue, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Ryan, MD, specializes in endovascular neurosurgery, vascular neurosurgery, cranial neurosurgery and general neurosurgery. Dr. Ryan strives to learn about his patients so he can develop a plan of care that meets each individual's needs and goals.Away from work, Dr. Ryan enjoys spending time with family, sports, food and wine.Watch a Video:Dr. Ryan discusses stroke treatments with Seattle Seahawks linebacker Bobby Wagner inMicrosoft's Outside In - Bobby Wagner FAST54.Dr. Ryan and stroke patient Michael Martinez onKing 5’s New Day Northwest share Bobby Wagner’s FAST54 Stroke Education platformand the importance of a fast reaction to identifying a stroke.Procedures and Conditions TreatedBrain aneurysmBrain AVMBrain tumorsCarotid stenosisAcute strokeTrigeminal neuralgiaSpinal vascular malformationsDural arteriovenous fistulaIntracranial stenosisSubdural hematomaBrain, head and neck embolization. Dr. Ryan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Meningioma, Brain Tumor, Awake Craniotomy, and Stent Placement. Dr. Ryan is board certified in Royal College Of Physicians And Surgeons Of Canada - Neurosurgery. Dr. Ryan is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neuroradiology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Dean Shibata is a Neuroradiologist practicing medicine in Seattle, Washington. Dr. Shibata is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Stroke, Meningioma, Normal Pressure Hydrocephalus, and Brain Aneurysm.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Virginia Mason Medical Center

    1100 9th Ave, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Wendy Hsu is a Radiologist practicing medicine in Seattle, Washington. Dr. Hsu is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Lung Nodules, Visceromegaly, WT1-Related Wilms Tumor Syndromes, and Ascites.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Antonio Westphalen is a Radiologist practicing medicine in Seattle, Washington. Dr. Westphalen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Neuroendocrine Tumor, Jaundice, Melanoma of the Eye, and Muscle Invasive Bladder Cancer.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Hematology Oncology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology | Hematology Oncology
    7360 West Deschutes Avenue, 
    Kennewick, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ying Zhuo is a Hematologist and a Hematologist Oncology provider practicing medicine in Kennewick, Washington. Dr. Zhuo is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 65 other conditions, according to our data. Her clinical expertise encompasses WT1-Related Wilms Tumor Syndromes, Chromophobe Renal Cell Carcinoma, Familial Wilms Tumor 2, and Paget Disease of the Breast. Dr. Zhuo is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Radiology

    Gme Office University Of Washington

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Sung Park is a Radiologist practicing medicine in Seattle, Washington. Dr. Park is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Adrenal Cancer, Renal Cell Carcinoma (RCC), Scaphoid Non-Union, Prostatectomy, and Lithotripsy.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Rachel Loschiavo PA-C

    825 Eastlake Ave E, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Mehrdad Jafari is an Oncologist practicing medicine in Seattle, Washington. Dr. Jafari is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Colorectal Cancer, Familial Colorectal Cancer, Chronic Lymphocytic Leukemia (CLL), and Lymphofollicular Hyperplasia.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    The Doctors Clinic A Professional Corporation

    945 Hildebrand Ln NE Ste 100, 
    Bainbridge Island, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Maureen Koval is a primary care provider, practicing in Family Medicine in Bainbridge Island, Washington. Dr. Koval is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Phacomatosis Pigmentovascularis, Phacomatosis Pigmentokeratotica, Hypothalamic Hamartomas, and Tieche-Jadassohn Nevus.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Pacific Medical Centers 65+ Health Center - Canyon Park

    1909 214th Street Southeast, Suite 211, 
    Bothell, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Living the best life with great care is our goal for older adults. Dr. Lee's medical interests include healthy habits, hypertension, diabetes, heart disease and palliative care with dignity. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Chronic Kidney Disease, Sturge-Weber Syndrome, Von Hippel-Lindau (VHL) Syndrome, and Linear Nevus Sebaceous Syndrome. Dr. Lee is board certified in American Board Of Internal Medicine.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Sea Mar CHC MT. Vernon Pharmacy

    1400 N Laventure Rd, 
    Mount Vernon, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Ben Winkes is a primary care provider, practicing in Family Medicine in Mount Vernon, Washington. Dr. Winkes is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Sturge-Weber Syndrome, Hypothalamic Hamartomas, and Linear Nevus Sebaceous Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Family Medicine

    Sea Mar. Community Health Centers

    4455 Cordata Pkwy, 
    Bellingham, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Kelly Walker is a primary care provider, practicing in Family Medicine in Bellingham, Washington. Dr. Walker is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Linear Nevus Sebaceous Syndrome, Hypothalamic Hamartomas, Phacomatosis Pigmentokeratotica, and Peutz-Jeghers Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    Alvord Brain Tumor Center At UW Medical Center - Montlake

    1959 NE Pacific St, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Manuel Ferreira is a Neurosurgery provider practicing medicine in Seattle, Washington. Dr. Ferreira is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Meningioma, Pituitary Tumor, Prolactinoma, Turbinectomy, and Awake Craniotomy. Dr. Ferreira is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Public Hospital Dist. No 1 Skagit

    1400 E Kincaid St, 
    Mount Vernon, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Patti Brettell is a Neurologist practicing medicine in Mount Vernon, Washington. Dr. Brettell is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Movement Disorders, and Parkinson's Disease.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Kaiser Permanente Capitol Hill Campus South Specialty Center

    125 16th Avenue East, 
    Seattle, WA 
    Languages Spoken:
    English
    Accepting New Patients

    Martin Rutkowski is a Neurosurgery provider practicing medicine in Seattle, Washington. Dr. Rutkowski is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Hypothalamic Tumor, Pituitary Tumor, Brain Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Thrombectomy. Dr. Rutkowski is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Stacey is an Ophthalmologist practicing medicine in Seattle, Washington. Dr. Stacey is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Retinoblastoma, Melanoma of the Eye, Choroid Plexus Carcinoma, Tissue Biopsy, and Vitrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Uw Medicine/Harborview Medical Center

    325 9th Ave, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Lisa Olmos is an Ophthalmologist practicing medicine in Seattle, Washington. Dr. Olmos is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Diabetic Retinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    UwMc-Roosevelt

    4245 Roosevelt Way NE, 
    Seattle, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Genevieve Pagalilauan is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Pagalilauan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Phacomatosis Pigmentokeratotica, Peutz-Jeghers Syndrome, Tieche-Jadassohn Nevus, and Von Hippel-Lindau (VHL) Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Yakima Valley Farm Workers Clinic-Toppenish

    510 W 1st Ave, 
    Toppenish, WA 
    Languages Spoken:
    English
    Offers Telehealth

    Aaron Anderson is a primary care provider, practicing in Internal Medicine in Toppenish, Washington. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Swedish Cancer Institute-Issaquah

    751 NE Blakely Dr Ste 1090, 
    Issaquah, WA 
    Languages Spoken:
    English

    Simone Dekker is an Internal Medicine provider practicing medicine in Issaquah, Washington. Dr. Dekker is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Traumatic Brain Injury, Acute Lymphoblastic Leukemia (ALL), Hemangioblastoma, Laminectomy, and Mastoidectomy.

    Showing 1-20 of 22

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor in Washington, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor in Washington, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors in Washington, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors in Washington, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor in Washington, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor in Washington, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors in Washington, US?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Von Hippel-Lindau (VHL) Syndrome Doctors by city