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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Seattle, WA. Of these, 15 are Experienced and 2 are Advanced.

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    17 providers found
      Janet J. Chieh
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      Virginia Mason Medical Center

      1100 Ninth Avenue, 
      Seattle, WA 
       (0.3 miles away)
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Janet Chieh, MD, is a board-certified ophthalmologist and vitreoretinal surgeon who specializes in medical and surgical diseases of the retina and vitreous, including age-related macular degeneration, diabetic retinopathy and retinal detachments.Dr. Chieh loves to interact with her patients. She finds it most gratifying when she can restore a person's sight and independence and thereby improve their quality of life.Dr. Chieh is a member of the American Academy of Ophthalmology; American Society of Retinal Specialists; Washington Academy of Eye Physicians and Surgeons; Chinese American Ophthalmological Society; and Association for Research in Vision and Ophthalmology. She was named a 2019 Top Doctor bySeattleandSeattle Metmagazines.Away from work, Dr. Chieh enjoys spending time with friends, traveling, hiking and skiing. Dr. Chieh is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Choroid Plexus Carcinoma, and Retinal Artery Occlusion.

      Robert W. Ryan
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | Radiology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | Radiology

      Virginia Mason Medical Center

      1100 Ninth Avenue, 
      Seattle, WA 
       (0.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Robert Ryan, MD, specializes in endovascular neurosurgery, vascular neurosurgery, cranial neurosurgery and general neurosurgery. Dr. Ryan strives to learn about his patients so he can develop a plan of care that meets each individual's needs and goals.Away from work, Dr. Ryan enjoys spending time with family, sports, food and wine.Watch a Video:Dr. Ryan discusses stroke treatments with Seattle Seahawks linebacker Bobby Wagner inMicrosoft's Outside In - Bobby Wagner FAST54.Dr. Ryan and stroke patient Michael Martinez onKing 5’s New Day Northwest share Bobby Wagner’s FAST54 Stroke Education platformand the importance of a fast reaction to identifying a stroke.Procedures and Conditions TreatedBrain aneurysmBrain AVMBrain tumorsCarotid stenosisAcute strokeTrigeminal neuralgiaSpinal vascular malformationsDural arteriovenous fistulaIntracranial stenosisSubdural hematomaBrain, head and neck embolization. Dr. Ryan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Brain Aneurysm, Meningioma, Brain Tumor, Awake Craniotomy, and Transmyocardial Revascularization.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Oncology | Hematology
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Oncology | Hematology

      The Association Of University Physicians

      825 Eastlake Ave E, 
      Seattle, WA 
       (1.4 miles away)
      Languages Spoken:
      English, Castilian, Farsi, German, Hindi, Punjabi, Spanish, Urdu
      Accepting New Patients
      Offers Telehealth

      Mehrdad Jafari-Boroujerdi is a Hematologist Oncology specialist and an Oncologist in Seattle, Washington. Dr. Jafari-Boroujerdi is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Colorectal Cancer, Familial Colorectal Cancer, Chronic Lymphocytic Leukemia (CLL), and Lymphofollicular Hyperplasia. Dr. Jafari-Boroujerdi is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Family Medicine

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English, German, Hindi, Urdu
      Accepting New Patients
      Offers Telehealth

      Maureen Koval is a primary care provider, practicing in Family Medicine in Seattle, Washington. Dr. Koval is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Hypothalamic Hamartomas, Sturge-Weber Syndrome, Phacomatosis Pigmentovascularis, and Tieche-Jadassohn Nevus. Dr. Koval is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Virginia Mason Medical Center

      1100 9th Ave, 
      Seattle, WA 
       (0.3 miles away)
      Languages Spoken:
      English, Filipino, Hindi, Mandarin
      Accepting New Patients
      Offers Telehealth

      Wendy Hsu is a Radiologist in Seattle, Washington. Dr. Hsu is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Lung Nodules, Visceromegaly, Non-Alcoholic Fatty Liver Disease, and WT1-Related Wilms Tumor Syndromes. Dr. Hsu is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Virginia Mason Medical Center, Department Of Neurosurgery, 1100 Ninth Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rakesh Kumar is a Neurosurgery provider in Seattle, Washington. Dr. Kumar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neuroendocrine Tumor, Bone Tumor, Hypothalamic Hamartomas, Endoscopy, and Mastoidectomy. Dr. Kumar is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      The Association Of University Physicians

      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English, Italian
      Accepting New Patients
      Offers Telehealth

      Andrew Stacey is an Ophthalmologist in Seattle, Washington. Dr. Stacey is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Retinoblastoma, Melanoma of the Eye, Choroid Plexus Carcinoma, Tissue Biopsy, and Vitrectomy. Dr. Stacey is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      The Association Of University Physicians

      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English, Castilian, Filipino, Hindi, Mandarin, Spanish, Vietnamese
      Accepting New Patients
      Offers Telehealth

      Lisa Olmos-De is an Ophthalmologist in Seattle, Washington. Dr. Olmos-De is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Diabetic Retinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy. Dr. Olmos-De is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Radiology | Neuroradiology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Radiology | Neuroradiology

      The Association Of University Physicians

      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Experience:
      37+ years
      Languages Spoken:
      English
      Offers Telehealth

      Dean Shibata is a Radiologist and a Neuroradiologist in Seattle, Washington. Dr. Shibata has been practicing medicine for over 37 years and is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Stroke, Meningioma, Normal Pressure Hydrocephalus, and Brain Aneurysm.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      325 9th Ave, 
      Seattle, WA 
       (0.4 miles away)
      Languages Spoken:
      English, Bengali, Italian, Spanish
      Accepting New Patients
      Offers Telehealth

      Debarshi Mustafi is an Ophthalmologist in Seattle, Washington. Dr. Mustafi is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, Tuberculous Uveitis, and Vitrectomy. Dr. Mustafi is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      Swedish Health Services

      500 17th Ave, 
      Seattle, WA 
       (1.1 miles away)
      Languages Spoken:
      English

      Mariam Ishaque is a Neurosurgery provider in Seattle, Washington. Dr. Ishaque is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Schwannoma, Acoustic Neuroma, Hemangioblastoma, Thalamotomy, and Craniectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      Kaiser Permanente Capitol Hill Campus South Specialty Center

      125 16th Avenue East, 
      Seattle, WA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Martin Rutkowski is a Neurosurgery provider in Seattle, Washington. Dr. Rutkowski is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hypothalamic Tumor, Pituitary Tumor, Brain Tumor, Endoscopic Transnasal Transsphenoidal Surgery, and Thrombectomy. Dr. Rutkowski is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Manuel Ferreira is a Neurosurgery provider in Seattle, Washington. Dr. Ferreira is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Meningioma, Pituitary Tumor, Prolactinoma, Turbinectomy, and Awake Craniotomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
       (3.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Sung Park is a Radiologist in Seattle, Washington. Dr. Park is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Adrenal Cancer, Renal Cell Carcinoma (RCC), Venous Thromboembolism (VTE), Prostatectomy, and Lithotripsy. Dr. Park is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      The Association Of University Physicians

      4245 Roosevelt Way Ne, 
      Seattle, WA 
       (3.7 miles away)
      Languages Spoken:
      English, French, Mandarin, Spanish
      Accepting New Patients
      Offers Telehealth

      Genevieve Pagalilauan is a primary care provider, practicing in Internal Medicine in Seattle, Washington. Dr. Pagalilauan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Phacomatosis Pigmentovascularis, Von Hippel-Lindau (VHL) Syndrome, Peutz-Jeghers Syndrome, and Cowden Syndrome. Dr. Pagalilauan is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Internal Medicine
      1909 214th Street Southeast, Suite 211, 
      Bothell, WA 
       (14.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      James Lee is a primary care provider, practicing in Internal Medicine in Bothell, Washington. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Bronchiolitis Obliterans, Chronic Kidney Disease, Hypothalamic Hamartomas, Von Hippel-Lindau (VHL) Syndrome, and Lung Transplant.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      The Association Of University Physicians

      24360 Van Ry Blvd, Suite 111, 
      Mountlake Terrace, WA 
       (11.9 miles away)
      Languages Spoken:
      English, German, Hindi, Portuguese, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Antonio Westphalen is a Radiologist in Mountlake Terrace, Washington. Dr. Westphalen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Neuroendocrine Tumor, Jaundice, Melanoma of the Eye, and Muscle Invasive Bladder Cancer. Dr. Westphalen is currently accepting new patients.

      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Seattle, WA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Seattle, WA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Seattle, WA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Seattle, WA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Seattle, WA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Seattle, WA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Seattle, WA?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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