The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Madison, WI

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 17 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Madison, WI. Of these, 14 are Experienced and 3 are Advanced.

Location
LocationClose
17 providers found
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    James Hinshaw is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Hinshaw is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses WT1-Related Wilms Tumor Syndromes, Visceromegaly, Ascites, Cardiac Ablation, and Lithotripsy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Perry Pickhardt is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Pickhardt is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Appendicitis, Ascites, Ureterocele, Colonoscopy, and Endoscopy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Meghan Lubner is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Lubner is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Renal Cell Carcinoma (RCC), Ascites, Splenomegaly, Cardiac Ablation, and Nephrectomy.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Lori Mankowski is a Radiologist practicing medicine in Madison, Wisconsin. Dr. Mankowski is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Ascites, Visceromegaly, Gas Bloat Syndrome, and Non-Alcoholic Fatty Liver Disease.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Susanne Seeger is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Seeger is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Migraine, Encephalitis, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Edwin Abel is a Urologist practicing medicine in Madison, Wisconsin. Dr. Abel is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Chromophobe Renal Cell Carcinoma, Ureterocele, Nephrectomy, and Reconstructive Urology Surgery.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    UW Health Remote Dispensing Services

    2880 University Ave, 
    Madison, WI 
     (1.9 miles away)
    Languages Spoken:
    English

    Justin Gottlieb is an Ophthalmologist practicing medicine in Madison, Wisconsin. Dr. Gottlieb is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Diabetic Retinopathy, Retinal Detachment, and Vitrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Azam Ahmed is a Neurosurgery provider practicing medicine in Madison, Wisconsin. Dr. Ahmed is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 37 other conditions, according to our data. His clinical expertise encompasses Pituitary Tumor, Brain Aneurysm, Subarachnoid Hemorrhage, Stent Placement, and Awake Craniotomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Robert Dempsey is a Neurosurgery provider practicing medicine in Madison, Wisconsin. Dr. Dempsey is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Radiation Induced Meningioma, Meningioma, Dysembryoplastic Neuroepithelial Tumors (DNET), Carotid Artery Surgery, and Awake Craniotomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nathaniel Brooks is a Neurosurgery provider practicing medicine in Madison, Wisconsin. Dr. Brooks is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Epidural Abscess, Spinal Stenosis, Laminectomy, and Microdiscectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Hematology

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Jane Churpek is a Hematologist practicing medicine in Madison, Wisconsin. Dr. Churpek is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Myelodysplastic Syndrome (MDS), Mesothelioma, Li-Fraumeni Syndrome, Leukemia, and Bone Marrow Aspiration.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Bermans Iskandar is a Neurosurgery provider practicing medicine in Madison, Wisconsin. Dr. Iskandar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Chiari Malformation Type 1, Chiari Malformation, Posterior Fossa Decompression, and Craniectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ankush Bhatia is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Bhatia is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Brain Tumor, Glioma, Astrocytoma, and Glioblastoma.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English

    Mustafa Baskaya is a Neurosurgery provider practicing medicine in Madison, Wisconsin. Dr. Baskaya is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Meningioma, Cerebral Arteriovenous Malformation, Arteriovenous Malformation, Cerebral Artery Bypass Surgery, and Awake Craniotomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    UW Health Remote Dispensing Services

    2880 University Ave, 
    Madison, WI 
     (1.9 miles away)
    Languages Spoken:
    English

    Anna Momont is an Ophthalmologist practicing medicine in Madison, Wisconsin. Dr. Momont is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Cataract, Pigment-Dispersion Syndrome, and Vitrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurology

    UW Health Remote Dispensing Services

    2880 University Ave, 
    Madison, WI 
     (1.9 miles away)
    Languages Spoken:
    English

    Yanjun Chen is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Papilledema, Optic Neuritis, Meningioma, and Multiple Sclerosis (MS).

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology

    Uw Health Deming Way Eye Clinic-Optical

    2349 Deming Way Ste 200, 
    Middleton, WI 
     (7.8 miles away)
    Languages Spoken:
    English

    Travis Rumery is an Ophthalmologist practicing medicine in Middleton, Wisconsin. Dr. Rumery is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cataract, Glaucoma, Nearsightedness, and Hypothalamic Hamartomas.

    Showing 1-17 of 17

    Last Updated: 04/28/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Madison, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Madison, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Madison, WI?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More Von Hippel-Lindau (VHL) Syndrome Doctors by city

    15 miles has been selected.