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    Last Updated: 01/09/2026

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    MediFind found 15 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Madison, WI. Of these, 13 are Experienced and 2 are Advanced.

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    15 providers found
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Robert Dempsey is a Neurosurgery provider in Madison, Wisconsin. Dr. Dempsey is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Radiation Induced Meningioma, Meningioma, Dysembryoplastic Neuroepithelial Tumors (DNET), Carotid Artery Surgery, and Awake Craniotomy. Dr. Dempsey is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Hematology Oncology | Hematology | Oncology

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jane Churpek is a Hematologist Oncology specialist and a Hematologist in Madison, Wisconsin. Dr. Churpek is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Myelodysplastic Syndrome (MDS), Li-Fraumeni Syndrome, Acute Myeloid Leukemia (AML), Leukemia, and Bone Marrow Aspiration. Dr. Churpek is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Hospital

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English

      Susanne Seeger is a Neurologist in Madison, Wisconsin. Dr. Seeger is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Migraine, Encephalitis, Rasmussen Encephalitis, and Anti-NMDA Receptor Encephalitis.

      Learn about our expert tiers
      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      750 University Row, 
      Madison, WI 
       (3.5 miles away)
      Languages Spoken:
      English

      James Hinshaw is a Radiologist in Madison, Wisconsin. Dr. Hinshaw is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are WT1-Related Wilms Tumor Syndromes, Visceromegaly, Ascites, Cardiac Ablation, and Lithotripsy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | Neurology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurosurgery | Neurology

      University Of Wisconsin Medical Foundation Inc

      202 S Park St, 
      Madison, WI 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Azam Ahmed is a Neurosurgery specialist and a Neurologist in Madison, Wisconsin. Dr. Ahmed is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Pituitary Tumor, Brain Aneurysm, Subarachnoid Hemorrhage, Stent Placement, and Awake Craniotomy. Dr. Ahmed is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English

      Meghan Lubner is a Radiologist in Madison, Wisconsin. Dr. Lubner is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Renal Cell Carcinoma (RCC), Ascites, Liver Cancer, Cardiac Ablation, and Nephrectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English

      Bermans Iskandar is a Neurosurgery provider in Madison, Wisconsin. Dr. Iskandar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Hydrocephalus, Chiari Malformation Type 1, Chiari Malformation, Posterior Fossa Decompression, and Craniectomy.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Oncology | Pediatric Neurology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Neurology | Oncology | Pediatric Neurology

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ankush Bhatia is a Neurologist and an Oncologist in Madison, Wisconsin. Dr. Bhatia is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Brain Tumor, Glioma, Astrocytoma, and Glioblastoma. Dr. Bhatia is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
       (1.6 miles away)
      Languages Spoken:
      English, Turkish
      Accepting New Patients

      Mustafa Baskaya is a Neurosurgery provider in Madison, Wisconsin. Dr. Baskaya is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Cerebral Arteriovenous Malformation, Meningioma, Arteriovenous Malformation, Cerebral Artery Bypass Surgery, and Awake Craniotomy. Dr. Baskaya is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Neurology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology | Neurology

      University Of Wisconsin Medical Foundation Inc

      2880 University Ave, 
      Madison, WI 
       (1.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Yanjun Chen is an Ophthalmologist and a Neurologist in Madison, Wisconsin. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Papilledema, Optic Neuritis, Meningioma, and Multiple Sclerosis (MS). Dr. Chen is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      2880 University Ave, 
      Madison, WI 
       (1.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michael Altaweel is an Ophthalmologist in Madison, Wisconsin. Dr. Altaweel is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Age-Related Macular Degeneration (ARMD), Retinal Detachment, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal. Dr. Altaweel is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      2356 W Lawn Ave, 
      Madison, WI 
       (4.3 miles away)
      Languages Spoken:
      English

      Lori Mankowski-Gettle is a Radiologist in Madison, Wisconsin. Dr. Mankowski-Gettle is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her top areas of expertise are Ascites, Visceromegaly, Gas Bloat Syndrome, and Non-Alcoholic Fatty Liver Disease.

      Advanced in Von Hippel-Lindau (VHL) Syndrome
      Advanced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      100 N Nine Mound Rd, 
      Verona, WI 
       (9.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Edwin Abel is an Urologist in Verona, Wisconsin. Dr. Abel is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Renal Cell Carcinoma (RCC), Chromophobe Renal Cell Carcinoma, Ureterocele, Nephrectomy, and Reconstructive Urology Surgery. Dr. Abel is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology
      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Ophthalmology

      University Of Wisconsin Medical Foundation Inc

      2349 Deming Way, 
      Middleton, WI 
       (6.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Travis Rumery is an Ophthalmologist in Middleton, Wisconsin. Dr. Rumery is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Cataract, Glaucoma, Nearsightedness, and Phacomatosis Pigmentovascularis. Dr. Rumery is currently accepting new patients.

      Experienced in Von Hippel-Lindau (VHL) Syndrome
      Experienced in Von Hippel-Lindau (VHL) Syndrome

      University Of Wisconsin Medical Foundation Inc

      4131 Meridian Dr, 
      Windsor, WI 
       (9.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Nathaniel Brooks is a Neurosurgery provider in Windsor, Wisconsin. Dr. Brooks is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His top areas of expertise are Scoliosis, Epidural Abscess, Spinal Stenosis, Laminectomy, and Microdiscectomy. Dr. Brooks is currently accepting new patients.

      Showing 1-15 of 15

      Last Updated: 01/09/2026

      What is the definition of Von Hippel-Lindau (VHL) Syndrome?

      Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

      When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Madison, WI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Madison, WI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Madison, WI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Madison, WI?

      Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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