The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Orange, CA

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 9 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Orange, CA. Of these, 9 are Experienced.

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9 providers found
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Neurosurgery
    Referral may be required

    UCI Health Neurosurgery Services

    101 The City Drive South, Building 30, 
    Orange, CA 
     (2.0 miles away)
    Languages Spoken:
    English, Hokkien, Taiwanese
    Offers Telehealth

    Frank Hsu is a Neurosurgery provider practicing medicine in Orange, California. Dr. Hsu is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Normal Pressure Hydrocephalus, Meningioma, Deep Brain Stimulation, and Awake Craniotomy. Dr. Hsu is board certified in American Board Of Neurological Surgery - Neurological Surgery.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    UCI Health Neurosurgery Services

    101 The City Drive South, Building 30, 
    Orange, CA 
     (2.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jefferson Chen is a Neurosurgery provider practicing medicine in Orange, California. Dr. Chen is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Chronic Subdural Hematoma, Subdural Hematoma, Hydrocephalus, Awake Craniotomy, and Gastrostomy. Dr. Chen is board certified in American Board Of Neurological Surgery - Neurological Surgery. Dr. Chen is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Referral may be required

    UC Irvine Medical Center - Primary Care & Internal Medicine

    101 The City Drive South, Building 29, 
    Orange, CA 
     (2.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Erin Newman is a primary care provider, practicing in Pediatrics and Internal Medicine in Orange, California. Dr. Newman is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Heart Failure, Pulmonary Edema, Bell's Palsy, and Facial Paralysis. Dr. Newman is board certified in American Board Of Pediatrics - Pediatrics and American Board Of Internal Medicine - Internal Medicine.

    Learn about our expert tiers
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Pediatrics | Internal Medicine
    Referral may be required

    UC Irvine Medical Center - Primary Care & Internal Medicine

    101 The City Drive South, Building 29, 
    Orange, CA 
     (2.0 miles away)
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Emilie Chow is a primary care provider, practicing in Pediatrics and Internal Medicine in Orange, California. Dr. Chow is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Pudendal Neuralgia, Wallerian Degeneration, Giant Axonal Neuropathy, and Femoral Nerve Dysfunction. Dr. Chow is board certified in American Board Of Pediatrics - Pediatrics, American Board Of Preventive Medicine - Clinical Informatics, and American Board Of Internal Medicine - Internal Medicine.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Urology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Oncology | Urology
    Referral may be required

    UCI Health Center For Urological Care

    101 The City Drive South, Building 29, 
    Orange, CA 
     (2.0 miles away)
    Languages Spoken:
    English, Farsi, Hebrew, Spanish
    Offers Telehealth

    Michael Daneshvar is an Oncologist and a Urologist practicing medicine in Orange, California. Dr. Daneshvar is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Muscle Invasive Bladder Cancer, Bladder Cancer, Prostate Cancer, Prostatectomy, and Reconstructive Urology Surgery. Dr. Daneshvar is board certified in American Board Of Urology - Urology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    101 East Valencia Mesa Drive, 
    Fullerton, CA 
     (8.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Erick Westbroek is a Neurosurgery provider practicing medicine in Fullerton, California. Dr. Westbroek is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Spinal Stenosis, Arteriovenous Malformation, Lordosis, Osteotomy, and Laminectomy. Dr. Westbroek is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required

    UCI Health Gavin Herbert Eye Institute - Irvine

    850 Health Sciences Road, 
    Irvine, CA 
     (10.1 miles away)
    Languages Spoken:
    English, Spanish

    Mitul Mehta is an Ophthalmologist practicing medicine in Irvine, California. Dr. Mehta is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Diabetic Retinopathy, Retinal Detachment, and Vitrectomy. Dr. Mehta is board certified in American Board Of Ophthalmology - Ophthalmology.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Ophthalmology
    Referral may be required
    Irvine, CA 
     (11.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Zackery Oakey is an Ophthalmologist practicing medicine in Irvine, California. Dr. Oakey is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Diabetic Retinopathy, Retinal Detachment, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy. Dr. Oakey is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Internal Medicine

    Bergman Medical Group

    15111 Whittier Blvd Ste 102, 
    Whittier, CA 
     (13.4 miles away)
    Languages Spoken:
    English

    Steven Do is a primary care provider, practicing in Internal Medicine in Whittier, California. Dr. Do is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Sepsis, Purpura, Gardner-Diamond Syndrome, Gastrostomy, and Endoscopy.

    Showing 1-9 of 9

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Orange, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Orange, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Orange, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Orange, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Orange, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Orange, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Orange, CA?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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