The 20 Best Von Hippel-Lindau (VHL) Syndrome Doctors Near Me in Washington, DC

Find the Top Von Hippel-Lindau (VHL) Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 22 doctor with experience in Von Hippel-Lindau (VHL) Syndrome near Washington, DC. Of these, 10 are Experienced, 4 are Advanced, 4 are Distinguished and 4 are Elite.

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22 providers found
    Elite in Von Hippel-Lindau (VHL) Syndrome

    Dr. Mark W. Ball
    Urology | Plastic Surgery
    Elite in Von Hippel-Lindau (VHL) Syndrome

    Dr. Mark W. Ball
    Urology | Plastic Surgery
    Referral may be required
    10 Center Drive Rm 2-5942, 
    Bethesda, MD 
     (6.1 miles away)
    240-858-3700
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Mark Ball is a Urologist and a Plastic Surgeon practicing medicine in Bethesda, Maryland. Dr. Ball is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Prostatectomy. Dr. Ball is board certified in American Board Of Urology. Dr. Ball is currently accepting new patients.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Rm 3D20, 
    Bethesda, MD 
     (6.1 miles away)
    301-496-2921
    Languages Spoken:
    English

    Prashant Chittiboina is a Neurosurgery provider practicing medicine in Bethesda, Maryland. Dr. Chittiboina is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Cushing's disease, Hemangioblastoma, Von Hippel-Lindau (VHL) Syndrome, Pituitary Tumor, and Laminectomy.

    Elite in Von Hippel-Lindau (VHL) Syndrome
    Elite in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Nih Clinical Center

    9000 Rockville Pike Bldg 10, 
    Bethesda, MD 
     (6.1 miles away)
    301-496-6353
    Languages Spoken:
    English

    William Linehan is a Urologist practicing medicine in Bethesda, Maryland. Dr. Linehan is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Renal Oncocytoma, Nephrectomy, and Hormone Replacement Therapy (HRT).

    Learn about our expert tiers
    Elite in Von Hippel-Lindau (VHL) Syndrome

    Dr. Emily Y. Chew
    Ophthalmology
    Elite in Von Hippel-Lindau (VHL) Syndrome

    Dr. Emily Y. Chew
    Ophthalmology
    Referral may be required

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
     (7.5 miles away)
    301-496-6583
    Languages Spoken:
    English

    Emily Chew is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Chew is rated as an Elite provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Varun D. Sharma
    Internal Medicine
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Varun D. Sharma
    Internal Medicine

    MedStar Health: General Internal Medicine And Medicine-Pediatrics At MedStar Georgetown University Hospital

    2233 Wisconsin Ave NW Ste 300, 
    Washington, DC 
     (2.3 miles away)
    202-741-1250
    Experience:
    18+ years
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Varun Sharma is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. He has been practicing medicine for over 18 years. Dr. Sharma is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Linear Nevus Sebaceous Syndrome, Cowden Syndrome, Hypothalamic Hamartomas, and Phacomatosis Pigmentokeratotica.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    National Care Institute, 
    Bethesda, MD 
     (6.1 miles away)
    301-496-6353
    Languages Spoken:
    English
    See accepted insurances

    Sandeep Gurram is a Urologist practicing medicine in Bethesda, Maryland. Dr. Gurram is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Prostate Cancer, Renal Cell Carcinoma (RCC), Nephrectomy, and Prostatectomy.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Bldg 10, 
    Bethesda, MD 
     (6.1 miles away)
    301-435-5061
    Languages Spoken:
    English

    Catherine Cukras is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Cukras is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Geographic Atrophy, and Retinopathy Pigmentary Mental Retardation.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome

    Dr. Karel Pacak
    Endocrinology
    Distinguished in Von Hippel-Lindau (VHL) Syndrome

    Dr. Karel Pacak
    Endocrinology
    Referral required

    Dept Of Transfusion Medicine/Nih Clinical Center

    10 Center Dr, 
    Bethesda, MD 
     (7.5 miles away)
    301-402-4594
    Languages Spoken:
    English
    Accepting New Patients

    Karel Pacak is an Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Pacak is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Pheochromocytoma, Neuroendocrine Tumor, Somatostatinoma, Hepato-Pancreato-Biliary Surgery, and Thymectomy. Dr. Pacak is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    2300 I St NW, 
    Washington, DC 
     (0.9 miles away)
    202-715-4000
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Salil Sharma is a Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Sharma is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Ureterocele, Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Neuroendocrine Tumor, and Lung Nodules. Dr. Sharma is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    MedStar Washington Hospital Center

    110 Irving St NW, 
    Washington, DC 
     (1.9 miles away)
    202-877-6429
    Languages Spoken:
    English
    See accepted insurances
    Accepting New Patients

    Raymond Tu is a Radiologist practicing medicine in Washington, Washington, D.c.. Dr. Tu is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Herniated Disk, CAPOS Syndrome, Pleurisy, and Pleural Effusion. Dr. Tu is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Laleh Amiri-Kordestani
    Internal Medicine
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Laleh Amiri-Kordestani
    Internal Medicine

    MedStar Washington Hospital Center

    110 Irving St NW, 
    Washington, DC 
     (1.9 miles away)
    202-877-7227
    Languages Spoken:
    English

    Laleh Amiri-Kordestani is a primary care provider, practicing in Internal Medicine in Washington, Washington, D.c.. Dr. Amiri-Kordestani is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Breast Cancer, Renal Cell Carcinoma (RCC), Myocarditis, Frequent or Urgent Urination, and Nephrectomy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    MedStar Washington Hospital Center

    110 Irving St NW, 
    Washington, DC 
     (1.9 miles away)
    202-877-7227
    Languages Spoken:
    English

    Naima Jacobs-El is an Ophthalmologist practicing medicine in Washington, Washington, D.c.. Dr. Jacobs-El is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. Her clinical expertise encompasses Uveitis, Age-Related Macular Degeneration (ARMD), Von Hippel-Lindau (VHL) Syndrome, Late-Onset Retinal Degeneration, and Vitrectomy.

    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Distinguished in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    UM Capital Region Medical Center

    901 Harry S Truman Drive North, 
    Upper Marlboro, MD 
     (14.3 miles away)
    240-677-1000
    Languages Spoken:
    English, French, Thai
    See accepted insurances
    Accepting New Patients

    Alisa Thavikulwat is an Ophthalmologist practicing medicine in Upper Marlboro, Maryland. Dr. Thavikulwat is rated as a Distinguished provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Geographic Atrophy, Von Hippel-Lindau (VHL) Syndrome, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, and Cataract Removal. Dr. Thavikulwat is board certified in American Board Of Ophthalmology - Ophthalmology, 2020. Dr. Thavikulwat is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    B3b69f Molecular Imaging Program, 
    Bethesda, MD 
     (6.1 miles away)
    301-402-8409
    Languages Spoken:
    English
    Accepting New Patients

    Peter Choyke is a Radiologist practicing medicine in Bethesda, Maryland. Dr. Choyke is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Smoldering Multiple Myeloma, Desmoid Tumor, Von Hippel-Lindau (VHL) Syndrome, Prostatectomy, and Endoscopy. Dr. Choyke is currently accepting new patients.

    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Advanced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Office

    10 Center Dr Rm 15940-W, 
    Bethesda, MD 
     (6.1 miles away)
    240-328-8003
    Languages Spoken:
    English

    Alexis Rompre-Brodeur is a Urologist practicing medicine in Bethesda, Maryland. Dr. Rompre-Brodeur is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Von Hippel-Lindau (VHL) Syndrome, Renal Cell Carcinoma (RCC), Ureterocele, Prostate Cancer, and Nephrectomy.

    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Tiarnan D. Keenan
    Ophthalmology
    Advanced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Tiarnan D. Keenan
    Ophthalmology
    Referral may be required
    9000 Rockville Pike, 
    Bethesda, MD 
     (7.4 miles away)
    301-451-6330
    Languages Spoken:
    English

    Tiarnan Keenan is an Ophthalmologist practicing medicine in Bethesda, Maryland. Dr. Keenan is rated as an Advanced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Geographic Atrophy, Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Von Hippel-Lindau (VHL) Syndrome, and Cataract Removal.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    31 Center Dr Rm 3a11, 
    Bethesda, MD 
     (6.1 miles away)
    240-760-6400
    Languages Spoken:
    English

    Braden Millan is a Urologist practicing medicine in Bethesda, Maryland. Dr. Millan is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Von Hippel-Lindau (VHL) Syndrome, Prostate Cancer, Nephrectomy, and Lithotripsy.

    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Lee S. Weinstein
    Endocrinology
    Experienced in Von Hippel-Lindau (VHL) Syndrome

    Dr. Lee S. Weinstein
    Endocrinology
    Referral required

    Molecular Medicine And Neuroscience

    10 Center Dr Bldg 10, 
    Bethesda, MD 
     (6.1 miles away)
    301-402-2923
    Languages Spoken:
    English
    Accepting New Patients

    Lee Weinstein is an Endocrinologist practicing medicine in Bethesda, Maryland. Dr. Weinstein is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Multiple Endocrine Neoplasia, Multiple Endocrine Neoplasia Type 1, Albright's Hereditary Osteodystrophy, Parathyroidectomy, and Thymectomy. Dr. Weinstein is currently accepting new patients.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required

    Suburban Hospital

    8600 Old Georgetown Rd, 
    Bethesda, MD 
     (7.4 miles away)
    301-896-3990
    Languages Spoken:
    English
    See accepted insurances

    Bradley Webster is a Urologist practicing medicine in Bethesda, Maryland. Dr. Webster is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Cowden Syndrome, Renal Oncocytoma, and Von Hippel-Lindau (VHL) Syndrome.

    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Experienced in Von Hippel-Lindau (VHL) Syndrome
    Referral may be required
    9000 Rockville Pike, 
    Bethesda, MD 
     (7.4 miles away)
    240-858-3700
    Languages Spoken:
    English

    Keith Lawson is a Urologist practicing medicine in Bethesda, Maryland. Dr. Lawson is rated as an Experienced provider by MediFind in the treatment of Von Hippel-Lindau (VHL) Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Renal Cell Carcinoma (RCC), Von Hippel-Lindau (VHL) Syndrome, and Nephrectomy.

    Showing 1-20 of 22

    Last Updated: 09/26/2026

    What is the definition of Von Hippel-Lindau (VHL) Syndrome?

    Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of von Hippel-Lindau syndrome can occur throughout life.

    When should I see a Von Hippel-Lindau (VHL) Syndrome doctor near Washington, DC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Von Hippel-Lindau (VHL) Syndrome doctor near Washington, DC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Von Hippel-Lindau (VHL) Syndrome doctor near Washington, DC?

    You can find a Von Hippel-Lindau (VHL) Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    Von Hippel-Lindau (VHL) Syndrome doctor near Boston, MA
    Von Hippel-Lindau (VHL) Syndrome doctor near Dallas, TX
    Von Hippel-Lindau (VHL) Syndrome doctor near San Jose, CA

    How does MediFind rank Von Hippel-Lindau (VHL) Syndrome doctors near Washington, DC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Von Hippel-Lindau (VHL) Syndrome doctors near Washington, DC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Von Hippel-Lindau (VHL) Syndrome doctor near Washington, DC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Von Hippel-Lindau (VHL) Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Von Hippel-Lindau (VHL) Syndrome doctor near Washington, DC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Von Hippel-Lindau (VHL) Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Von Hippel-Lindau (VHL) Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Von Hippel-Lindau (VHL) Syndrome doctors near Washington, DC?

    Look for the filter feature on the left side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Von Hippel-Lindau (VHL) Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Von Hippel-Lindau (VHL) Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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