Gerald V. Raymond
Experienced in Aase Syndrome

Dr. Gerald V. Raymond

Pediatrics | Medical Genetics
Johns Hopkins Medicine
Rubenstein Child Health Building
Baltimore, MD 
Clinical Trials:Currently Recruiting for 1 Trial

Experienced in Aase Syndrome
Johns Hopkins Medicine
Rubenstein Child Health Building
Baltimore, MD 
OverviewInsuranceLocationsClinical ResearchSimilar Doctors

Overview

Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine.

Dr. Raymond is rated as an Experienced provider by MediFind in the treatment of Aase Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Zellweger Syndrome, and Leukodystrophy.

His clinical research consists of co-authoring 60 peer reviewed articles and participating in 2 clinical trials. MediFind looks at clinical research from the past 15 years.

Residency
Massachusetts General Hospital, Neurology, 1989
Specialties
Pediatrics
Medical Genetics
Licenses
Pediatrics in PA
Board Certifications
American Board Of Medical Genetics And Genomics
American Board Of Psychiatry And Neurology
Fellowships
Massachusetts General Hospital, Genetics, 1993
Universite Catholique De Louvaine Ucl 5020, Neuropathology, 1990
Hospital Affiliations
The Johns Hopkins Hospital
Kennedy Krieger Institute
Languages Spoken
English
Gender
Male

Insurance

Accepted insurance can change. Please verify directly with the provider.

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Accepted insurance plans:

Aetna
  • EPO
  • HMO
  • POS
  • PPO
Anthem
  • EPO
  • HMO
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  • PPO
CareFirst
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  • POS
  • PPO
Cigna
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  • HMO
  • PPO
First Health
  • INSURANCE PLAN
  • MEDICARE PDP
  • PPO
Geisinger
  • HMO
  • POS
  • PPO
Health Care Services Corporation
  • HMO
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE MAPD
  • MEDICARE PDP
  • MEDICARE SNP
  • OTHER COMMERCIAL
  • OTHER MEDICARE
  • OTHER MEDICARE PART D
  • PPO
HealthPartners
  • POS
  • PPO
Humana
  • HMO
  • INDEMNITY
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Johns Hopkins Healthcare
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Medicaid
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  • STATE MEDICAID
UnitedHealthcare
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Walgreens
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Wellcare
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  • OTHER MEDICARE PART D
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Locations

Rubenstein Child Health Building
Rubenstein BLDG Lower Level, Baltimore, MD 21287
Call: 443-287-9494

Additional Areas of Focus

Dr. Raymond has provided the following conditions as areas of focus. Please note that we may not have enough data to validate their experience in some of these conditions.

Neurofibromatosis Type 1 (NF1)

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Providers who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.


2 Clinical Trials

MT2013-31: Allogeneic Hematopoietic Cell Transplantation for Inherited Metabolic Disorders and Severe Osteopetrosis Following Conditioning With Busulfan (Therapeutic Drug Monitoring), Fludarabine +/- ATG
MT2013-31: Allogeneic Hematopoietic Cell Transplantation for Inherited Metabolic Disorders and Severe Osteopetrosis Following Conditioning With Busulfan (Therapeutic Drug Monitoring), Fludarabine +/- ATG
Enrollment Status: Recruiting
Publish Date: August 03, 2025
Intervention Type: Drug, Biological
Study Drugs: Fludarabine, Busulfan, Anti-Thymocyte Globulin, Thiotepa, Rituximab, Alemtuzumab, N-Acetylcysteine, Celecoxib, Vitamin E, Alpha Lipoic Acid
Study Phase: Phase 2
An Open-Label, Multi-Center, Study With a Concurrent Untreated Control Arm to Evaluate the Efficacy and Safety of Eteplirsen in Duchenne Muscular Dystrophy
An Open-Label, Multi-Center, Study With a Concurrent Untreated Control Arm to Evaluate the Efficacy and Safety of Eteplirsen in Duchenne Muscular Dystrophy
Enrollment Status: Completed
Publish Date: January 25, 2021
Intervention Type: Drug
Study Phase: Phase 3
View 1 Less Clinical Trial

60 Total Publications

Maternal cobalamin deficiency causing infantile seizures and developmental regression.
Maternal cobalamin deficiency causing infantile seizures and developmental regression.
Journal: BMJ case reports
Published: November 12, 2025
View All 60 Publications
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Pediatrics | Medical Genetics
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Pediatrics | Medical Genetics

Rubenstein Child Health Building

200 North Wolfe Street, Rubenstein BLDG Lower Level, Rubenstein BLDG Lower Level, 
Baltimore, MD 
 (1.1 miles away)
443-287-9494
Languages Spoken:
English
See accepted insurances

Dr. Harry “Hal” Dietz is a professor of pediatrics, an associate professor of medicine and an assistant professor of neurological surgery at the Johns Hopkins University School of Medicine. He is the Victor A. McKusick Professor of Genetics and also serves as the director of the William S. Smilow Center for Marfan Syndrome Research. Recognized as the world’s leading authority on Marfan syndrome, Dr. Dietz conducted genomic mapping and research on therapeutic agents for deficiencies in the genetic protein fibrillin, which is linked to Marfan syndrome. His research contributions have made diagnosis of the condition patient-specific and accurate. He has received more than 50 national and international awards and honors, including the Antoine Marfan Award from the National Marfan Foundation and the Art of Listening Award from the American Heart Association. Dr. Dietz is an ad hoc reviewer for 19 different organizations, including the American Journal of Cardiology, the Archives of Pediatric and Adolescent Medicine, and the Journal of Clinical Investigation. Over more than two decades, Dr. Dietz has mentored 75 predoctoral and postdoctoral researchers. He has authored 282 original publications in peer-reviewed journals, 25 textbook chapters, and 239 abstracts, and has also delivered more than 440 lectures on Marfan syndrome and related genetic disorders. Dr. Dietz completed his B.S. at Duke University and received his M.D. from the SUNY Upstate School of Medicine. He completed a pediatric residency and a cardiology fellowship at Johns Hopkins University before joining the faculty in 1992. Dr. Dietz is rated as an Advanced provider by MediFind in the treatment of Aase Syndrome. His top areas of expertise are Caudal Duplication, Neu Laxova Syndrome, Early Infantile Epileptic Encephalopathy, and Cardiomyopathy Hypogonadism Metabolic Anomalies.

Advanced in Aase Syndrome
Dr. Jacqueline R. Harris
Pediatrics
Advanced in Aase Syndrome
Dr. Jacqueline R. Harris
Pediatrics

Kennedy Krieger Institute

707 North Broadway, Neurology And Developmental Med, Neurology And Developmental Med, 
Baltimore, MD 
 (1.6 miles away)
443-923-2746
Languages Spoken:
English, Spanish
See accepted insurances

Dr. Jaqueline Weissman is an assistant professor in the Department of Neurology, Kennedy Krieger Institute, Department of Pediatrics Johns Hopkins Hospital and Institute of Genomic Medicine at Johns Hopkins Hospital. She is also director of the Center for Tuberous Sclerosis and Related Disorder at Kennedy Krieger Institute. She focuses on genetic and epigenetic causes of neurodevelopmental disorders - particularly intellectual disability - and how specific genetic and epigenetic changes lead to specific neuroanatomic, neurophysiologic and cognitive phenotypes. She is also interested in developing specific cognitive profiles in genetic syndromes as potential outcome measures for trials and to help localize deficits. Currently most of her research is centered around Kabuki Syndrome. Dr. Weissman received her B.A. with. Dr. Harris is rated as an Advanced provider by MediFind in the treatment of Aase Syndrome. Her top areas of expertise are Borjeson-Forssman-Lehmann Syndrome, Coffin-Lowry Syndrome, Galactosialidosis, and Odontotrichomelic Syndrome.

Advanced in Aase Syndrome
Dr. Thomas C. Markello
Medical Genetics
Advanced in Aase Syndrome
Dr. Thomas C. Markello
Medical Genetics
111 Michigan Ave Nw, 
Washington, DC 
 (34.0 miles away)
202-884-2187
Languages Spoken:
English

Thomas Markello is a Medical Genetics provider in Washington, Washington, D.c.. Dr. Markello is rated as a Distinguished provider by MediFind in the treatment of Aase Syndrome. His top areas of expertise are Albinism, Oculocutaneous Albinism Type 2, Oculocutaneous Albinism, and Oculocutaneous Albinism Type 1.

VIEW MORE AASE SYNDROME DOCTORS

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Dr. Raymond's expertise for a condition
ConditionClose
  • Elite
  • Adrenoleukodystrophy (ALD)
    Dr. Raymond is
    Elite
    . Learn about Adrenoleukodystrophy (ALD).
    See more Adrenoleukodystrophy (ALD) experts
  • CACH Syndrome
    Dr. Raymond is
    Elite
    . Learn about CACH Syndrome.
    See more CACH Syndrome experts
  • Distinguished
  • Jacobsen Syndrome
    Dr. Raymond is
    Distinguished
    . Learn about Jacobsen Syndrome.
    See more Jacobsen Syndrome experts
  • Leukodystrophy
    Dr. Raymond is
    Distinguished
    . Learn about Leukodystrophy.
    See more Leukodystrophy experts
  • Metachromatic Leukodystrophy
    Dr. Raymond is
    Distinguished
    . Learn about Metachromatic Leukodystrophy.
    See more Metachromatic Leukodystrophy experts
  • Zellweger Syndrome
    Dr. Raymond is
    Distinguished
    . Learn about Zellweger Syndrome.
    See more Zellweger Syndrome experts
  • Advanced
  • Alexander Disease
    Dr. Raymond is
    Advanced
    . Learn about Alexander Disease.
    See more Alexander Disease experts
  • Canavan Disease
    Dr. Raymond is
    Advanced
    . Learn about Canavan Disease.
    See more Canavan Disease experts
  • Danon Disease
    Dr. Raymond is
    Advanced
    . Learn about Danon Disease.
    See more Danon Disease experts
  • Farber Lipogranulomatosis
    Dr. Raymond is
    Advanced
    . Learn about Farber Lipogranulomatosis.
    See more Farber Lipogranulomatosis experts
  • Gaucher Disease
    Dr. Raymond is
    Advanced
    . Learn about Gaucher Disease.
    See more Gaucher Disease experts
  • Gaucher Disease Type 1
    Dr. Raymond is
    Advanced
    . Learn about Gaucher Disease Type 1.
    See more Gaucher Disease Type 1 experts
View All 18 Advanced Conditions
  • Experienced
  • 2q37 Deletion Syndrome
    Dr. Raymond is
    Experienced
    . Learn about 2q37 Deletion Syndrome.
    See more 2q37 Deletion Syndrome experts
  • 47 XYY Syndrome
    Dr. Raymond is
    Experienced
    . Learn about 47 XYY Syndrome.
    See more 47 XYY Syndrome experts
  • Aase Syndrome
    Dr. Raymond is
    Experienced
    . Learn about Aase Syndrome.
    See more Aase Syndrome experts
  • Abruzzo-Erickson Syndrome
    Dr. Raymond is
    Experienced
    . Learn about Abruzzo-Erickson Syndrome.
    See more Abruzzo-Erickson Syndrome experts
  • Acrodermatitis Enteropathica
    Dr. Raymond is
    Experienced
    . Learn about Acrodermatitis Enteropathica.
    See more Acrodermatitis Enteropathica experts
  • Acrorenal Mandibular Syndrome
    Dr. Raymond is
    Experienced
    . Learn about Acrorenal Mandibular Syndrome.
    See more Acrorenal Mandibular Syndrome experts
View All 112 Experienced Conditions
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