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Learn about our doctor expertise tiers.
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Elite
  • Global leaders in their field
  • Publish in medical journals frequently
  • Speak at conferences
  • Participate in clinical trials
  • Likely to work with cutting edge treatments
  • Likely to hold leadership positions in their organization
Distinguished
  • Leaders in their field
  • Strong research portfolio
  • Likely to work with cutting edge treatments
  • Likely to be a leader in their field regionally
Advanced
  • Likely to be excellent at diagnosing and treating conditions
  • Treat many patients and have extensive experience in their field
  • Less likely to publish, speak at conferences, or participate in clinical trials
Experienced
  • Primarily treat patients
  • May be specialists or primary care physicians
  • Have great experience in diagnosing and treating conditions
  • Less likely to set themselves apart from peers by publishing, speaking at conferences, or participating in clinical trials
  • Majority of doctors fall within this rating
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1040 doctors found
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Elite

Charles University And General University Hospital

Prague, PR, CZ 

Filip Majer practices. Majer is rated as an Elite doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 4 other conditions, according to our data. His top areas of expertise are Danon Disease, Pompe Disease, Brachydactyly Type B, and Mosaicism.

Elite

National Institute Of Neuroscience

Medical Genome Center
 
Tokyo, JP 

Ichizo Nishino practices. Nishino is rated as an Elite doctor by MediFind in the treatment of Danon Disease. They are also highly rated in 72 other conditions, according to our data. Their top areas of expertise are Inclusion Body Myopathy 2, Danon Disease, Cytoplasmic Body Myopathy, and Inclusion Body Myositis.

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Distinguished
Pediatrics

Private Diagnostic Clinic, PLLC

Chapel Hill, NC 27517

Priya Kishnani is a Pediatrics doctor. Dr. Kishnani has been practicing medicine for over 34 years and is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 61 other conditions, according to our data. Her top areas of expertise are Pompe Disease, Andersen Disease, Hypophosphatasia, and Glycogen Storage Disease Type 9. She is board certified in Pediatric Medicine. Dr. Kishnani is currently accepting new patients.

Distinguished

Charles University And General University Hospital

First Faculty Of Medicine, Charles University, General University Hospital
 
Prague, PR, CZ 

Jakub Sikora practices. Sikora is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His top areas of expertise are Danon Disease, Lipogranulomatosis, Neuronal Intranuclear Inclusion Disease, and Farber Lipogranulomatosis.

Distinguished

Nara Medical University

Nara-shi, JP 

Kazuma Sugie practices. Sugie is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His top areas of expertise are Danon Disease, Cytoplasmic Body Myopathy, Myositis, and Pompe Disease.

Distinguished

Charles University And University Hospital Motol

Prague, PR, CZ 

Tomas Kalina practices. Kalina is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His top areas of expertise are Acute Monoblastic Leukemia, Danon Disease, Acute Lymphoblastic Leukemia, and Leukemia.

Distinguished

Tel Aviv University

Leviev Heart Center, Sheba Medical Center, Tel Aviv University
 
Tel Aviv, TA, IL 

Michael Arad practices. Arad is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. They are also highly rated in 13 other conditions, according to our data. Their top areas of expertise are Danon Disease, Cardiomyopathy, Familial Ventricular Tachycardia, and Dilated Cardiomyopathy.

Distinguished

Fuwai Hospital

Beijing, CN 

Ji-qiang He practices. He is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. They are also highly rated in 2 other conditions, according to our data. Their top areas of expertise are Danon Disease, Pompe Disease, Post-Splenectomy Syndrome, and Cardiomyopathy.

Distinguished
Cardiology

University Physicians, Incorporated

12605 E 16th Ave
 
Aurora, CO 80045

Luisa Mestroni is a Cardiologist. Dr. Mestroni has been practicing medicine for over 41 years and is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 18 other conditions, according to our data. Her top areas of expertise are Cardiomyopathy, Dilated Cardiomyopathy, Danon Disease, and Arrhythmogenic Right Ventricular Cardiomyopathy. She is board certified in Cardiovascular Disease (Cardiology) and Internal Medicine. Dr. Mestroni is currently accepting new patients.

Distinguished

Institute For Clinical And Experimental Medicine

Prague, PR, CZ 

Milos Kubanek practices. Kubanek is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 5 other conditions, according to our data. His top areas of expertise are Danon Disease, Dilated Cardiomyopathy, Brachydactyly Type B, and Pompe Disease.

Distinguished

University Hospital S. Maria Della Misericordia

Udine, IT 

Daniela Miani practices. Miani is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her top areas of expertise are Danon Disease, Giant Cell Myocarditis, Pompe Disease, and Cardiomyopathy.

Distinguished

Charles University

Prague, PR, CZ 

Lenka Dvorakova practices. Dvorakova is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 7 other conditions, according to our data. Her top areas of expertise are Danon Disease, Ornithine Transcarbamylase Deficiency, Adrenoleukodystrophy, and Addison's Disease.

Distinguished

Charles University And General University Hospital

1st Faculty Of Medicine
 
Prague, PR, CZ 12808

Hana Vlaskova practices. Vlaskova is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 4 other conditions, according to our data. Her top areas of expertise are Danon Disease, Analgesic Nephropathy, Brachydactyly Type B, and Pompe Disease.

Distinguished
Hematology Oncology
Hematology
Oncology

New York University

New Hyde Park, NY 11042

Richard Forte is a Hematologist Oncology specialist and a Hematologist. Dr. Forte has been practicing medicine for over 31 years and is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 39 other conditions, according to our data. His top areas of expertise are Pompe Disease, Danon Disease, Multiple Sulfatase Deficiency, and Megalencephalic Leukoencephalopathy with Subcortical Cysts. He is board certified in Hematology/oncology. Dr. Forte is currently accepting new patients.

Distinguished

Peking Union Medical College Hospital

Beijing, CN 

Zhongwei Cheng practices. Cheng is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. They are also highly rated in 3 other conditions, according to our data. Their top areas of expertise are Danon Disease, Cardiac Amyloidosis, Wolff-Parkinson-White Syndrome, and Pompe Disease.

Distinguished

Biocor Instituto

Nova Lima, MG, BR 

Eduardo Sternick-Back practices. Sternick-Back is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 5 other conditions, according to our data. His top areas of expertise are Danon Disease, Wolff-Parkinson-White Syndrome, Ectopic Heartbeat, and Arrhythmias.

Distinguished

Charles University And General University Hospital

Prague, PR, CZ 12808

Lenka Piherova practices. Piherova is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 3 other conditions, according to our data. Her top areas of expertise are Danon Disease, Brachydactyly Type B, GAPO Syndrome, and Pompe Disease.

Distinguished

Institute For Clinical And Experimental Medicine

Prague, PR, CZ 14021

Alice Krebsova practices. Krebsova is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her top areas of expertise are Danon Disease, Brachydactyly Type B, Pompe Disease, and Mosaicism.

Distinguished
Pediatrics
Medical Genetics

Fairview Express Care

2450 Riverside Ave
 
Minneapolis, MN 55454

Chester Whitley is a Pediatrics specialist and a Medical Genetics doctor. Dr. Whitley has been practicing medicine for over 41 years and is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. He is also highly rated in 78 other conditions, according to our data. His top areas of expertise are Mucopolysaccharidosis Type 1, Mucopolysaccharidosis Type 2, Gangliosidosis, and Mucopolysaccharidosis Type 3A. He is board certified in Pediatric Medicine. Dr. Whitley is currently accepting new patients.

Distinguished

University Of Padova

Padova, IT 

Marina Fanin practices. Fanin is rated as a Distinguished doctor by MediFind in the treatment of Danon Disease. She is also highly rated in 10 other conditions, according to our data. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2B, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 2A, and Delta-Sarcoglycanopathy.

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What is the definition of Danon Disease?

Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles, (myopathy); and intellectual disability. Males with Danon disease usually develop the condition earlier than females and are more severely affected. Signs and symptoms begin in childhood or adolescence in most affected males and in early adulthood in most affected females. Affected males, on average, live to age 19, while affected females live to an average age of 34.

Cardiomyopathy is the most common symptom of Danon disease and occurs in all males with the condition. Most affected men have hypertrophic cardiomyopathy, which is a thickening of the heart muscle that may make it harder for the heart to pump blood. Other affected males have dilated cardiomyopathy, which is a condition that weakens and enlarges the heart, preventing it from pumping blood efficiently. Some affected men with hypertrophic cardiomyopathy later develop dilated cardiomyopathy. Either type of cardiomyopathy can lead to heart failure and premature death. Most women with Danon disease also develop cardiomyopathy; of the women who have this feature, about half have hypertrophic cardiomyopathy, and the other half have dilated cardiomyopathy.

Affected individuals can have other heart-related signs and symptoms, including a sensation of fluttering or pounding in the chest (palpitations), an abnormal heartbeat (arrhythmia), or chest pain. Many affected individuals have abnormalities of the electrical signals that control the heartbeat (conduction abnormalities). People with Danon disease are often affected by a specific conduction abnormality known as cardiac preexcitation. The type of cardiac preexcitation most often seen in people with Danon disease is called the Wolff-Parkinson-White syndrome pattern.

Skeletal myopathy occurs in most men with Danon disease and about half of affected women. The weakness typically occurs in the muscles of the upper arms, shoulders, neck, and upper thighs. Many males with Danon disease have elevated levels of an enzyme called creatine kinase in their blood, which often indicates muscle disease.

Most men with Danon disease, but only a small percentage of affected women, have intellectual disability. If present, the disability is usually mild.

There can be other signs and symptoms of the condition in addition to the three characteristic features. Several affected individuals have had gastrointestinal disease, breathing problems, or visual abnormalities.

Behind the Danon Disease List

MediFind is the industry authority on identifying the leading medical experts and latest research in order to help patients facing complex health challenges, including Danon Disease, make better health decisions. Leveraging our expertise in natural language processing and machine learning across thousands of diseases, we uncover physicians who are leading authorities on Danon Disease. MediFind identifies these experts using proprietary world-class models that assess over 2.5 million global doctors based on a range of variables, including research leadership, patient volume, peer standing, and connectedness to other experts. Learn more about our methodology by exploring how MediFind works.