The 20 Best Danon Disease Doctors Near Me

Find the Top Danon Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1365 doctor with experience in Danon Disease. Of these, 1124 are Experienced, 198 are Advanced, 33 are Distinguished and 10 are Elite.

Location
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1,365 providers found
    Elite in Danon Disease
    Advanced Heart Failure and Transplant Cardiology | Cardiology
    Elite in Danon Disease
    Advanced Heart Failure and Transplant Cardiology | Cardiology

    Regents Of The University Of California

    200 W Arbor Dr, 
    San Diego, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Eric Adler is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist practicing medicine in San Diego, California. Dr. Adler is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Cardiomyopathy, Heart Failure, Heart Transplant, and Gastrostomy.

    Elite in Danon Disease
    Elite in Danon Disease

    Office

    9434 Medical Center Dr, 
    La Jolla, CA 
    Languages Spoken:
    English

    Barry Greenberg is a Cardiologist practicing medicine in La Jolla, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Heart Transplant, and Cardiac Ablation.

    Elite in Danon Disease
    Elite in Danon Disease

    University Of Colorado Hospital

    12605 E 16th Ave, 
    Aurora,, CO 
    Languages Spoken:
    English

    Luisa Mestroni is a Cardiologist practicing medicine in Aurora,, Colorado. Dr. Mestroni is rated as an Elite provider by MediFind in the treatment of Danon Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy (DCM), Cardiomyopathy, Familial Dilated Cardiomyopathy, Heart Transplant, and Transcatheter Aortic Valve Replacement (TAVR).

    Learn about our expert tiers
    Elite in Danon Disease
    Elite in Danon Disease
    Nara-shi, JP 

    Kazuma Sugie practices practicing medicine in Nara-shi, Japan. Mr. Sugie is rated as an Elite expert by MediFind in the treatment of Danon Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Myositis, Inclusion Body Myositis, Cytoplasmic Body Myopathy, and Thrombectomy.

    Elite in Danon Disease
    Medical Genetics
    Elite in Danon Disease
    Medical Genetics

    University Physicians Incorporated

    12605 E 16th Ave, Uchealth Anschutz Medical Campus, 
    Aurora, CO 
    Languages Spoken:
    English
    Offers Telehealth

    Matthew Taylor is a Medical Genetics provider practicing medicine in Aurora, Colorado. Dr. Taylor is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Gaucher Disease Type 1, Gaucher Disease, and Fabry Disease.

    Elite in Danon Disease
    Cardiology | Advanced Heart Failure and Transplant Cardiology
    Elite in Danon Disease
    Cardiology | Advanced Heart Failure and Transplant Cardiology

    Regents Of The University Of California

    200 W Arbor Dr, 
    San Diego, CA 
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Quan Bui is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist practicing medicine in San Diego, California. He has been practicing medicine for over 10 years. Dr. Bui is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Cardiomyopathy, Heart Failure, Restrictive Cardiomyopathy (RCM), and Heart Transplant.

    Elite in Danon Disease
    Elite in Danon Disease
    Tokyo, JP 

    Ichizo Nishino practices practicing medicine in Tokyo, Japan. Nishino is rated as an Elite expert by MediFind in the treatment of Danon Disease. They are also highly rated in 60 other conditions, according to our data. Their clinical expertise encompasses Necrotizing Myopathy (NM), Danon Disease, Myositis, Inclusion Body Myositis, and Thrombectomy.

    Elite in Danon Disease
    Hematology | Oncology
    Elite in Danon Disease
    Hematology | Oncology

    Mount Sinai

    1 Gustave L Levy Pl, 
    New York, NY 
    Languages Spoken:
    English

    Jonathan Schwartz is a Hematologist and an Oncologist practicing medicine in New York, New York. Dr. Schwartz is rated as an Elite provider by MediFind in the treatment of Danon Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Fanconi Anemia, Congenital Aplastic Anemia, Danon Disease, Leukocyte Adhesion Deficiency Type 1, and Splenectomy.

    Elite in Danon Disease
    Elite in Danon Disease
    Prague, PR, CZ 

    Filip Majer practices practicing medicine in Prague, Czech Republic. Mr. Majer is rated as an Elite expert by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Brachydactyly Type B, Retinopathy Pigmentary Mental Retardation, and Cardiomyopathy.

    Elite in Danon Disease
    Elite in Danon Disease
    Udine, IT 

    Daniela Miani practices practicing medicine in Udine, Italy. Ms. Miani is rated as an Elite expert by MediFind in the treatment of Danon Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Danon Disease, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Failure, and Heart Transplant.

    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology
    Experienced in Danon Disease
    Advanced Heart Failure and Transplant Cardiology

    Tendick Center For Advanced Heart Failure Therapies

    2900 W Oklahoma Ave 4th Fl Galleria, 
    Milwaukee, WI 
    Languages Spoken:
    English, Hindi, Urdu

    Nasir Sulemanjee is an Advanced Heart Failure and Transplant Cardiologist practicing medicine in Milwaukee, Wisconsin. Dr. Sulemanjee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Pulmonary Veno-Occlusive Disease, Pulmonary Hypertension, Arrhythmogenic Right Ventricular Cardiomyopathy, and Heart Transplant. Dr. Sulemanjee is board certified in American Board Of Internal Medicine, Advanced Heart Failure And Transplant Cardiology.

    Distinguished in Danon Disease
    Distinguished in Danon Disease

    LVH Cardiology-1250 Cedar Crest

    1250 S Cedar Crest Blvd, Suite 300, 
    Allentown, PA 
    Languages Spoken:
    English

    Cheri Fadlon is a Cardiologist practicing medicine in Allentown, Pennsylvania. Dr. Fadlon is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Heart Failure with Preserved Ejection Fraction (HFpEF), Danon Disease, Pompe Disease, and Ectopic Heartbeat. Dr. Fadlon is board certified in American Board Of Internal Medicine - Cardiovascular Disease and American Board Of Internal Medicine - Internal Medicine.

    Advanced in Danon Disease
    Family Medicine
    Advanced in Danon Disease
    Family Medicine

    Atrium Health Primary Care One Health Family Medicine Reese Blvd.

    13620 Reese Blvd., E., Suite 125, 
    Huntersville, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mei-tsi Lawing is a primary care provider, practicing in Family Medicine in Huntersville, North Carolina. Dr. Lawing is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Pompe Disease, Danon Disease, Transient Global Amnesia, and Type 2 Diabetes (T2D). Dr. Lawing is currently accepting new patients.

    Experienced in Danon Disease
    Experienced in Danon Disease

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery. Dr. Lee is board certified in American Board Of Psychiatry & Neurology.

    Distinguished in Danon Disease
    Cardiology
    Distinguished in Danon Disease
    Cardiology

    University Of California San Diego Jacobs Medical Center

    9300 Campus Point Dr, 
    La Jolla, CA 
    Languages Spoken:
    English

    Andrew Kahn is a Cardiologist practicing medicine in La Jolla, California. Dr. Kahn is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Coronary Artery Aneurysm, Kawasaki Disease, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

    Distinguished in Danon Disease
    Interventional Cardiology
    Distinguished in Danon Disease
    Interventional Cardiology

    Nevada Heart Institute

    1500 E 2nd St Ste 400, 
    Reno, NV 
    Languages Spoken:
    English

    Bradley Nelson is an Interventional Cardiologist practicing medicine in Reno, Nevada. Dr. Nelson is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Phosphoglycerate Mutase Deficiency, Heart Attack, and Cardiomyopathy.

    Distinguished in Danon Disease
    Medical Genetics | Pediatrics
    Distinguished in Danon Disease
    Medical Genetics | Pediatrics

    UC Davis Medical Center MIND Institute

    2825 50th St, 
    Sacramento, CA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Madelena Martin is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Sacramento, California. Dr. Martin is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Danon Disease, Pompe Disease, Phenylketonuria (PKU), and Fabry Disease. Dr. Martin is board certified in Medical Genetics And Genomics Clin Biochemical Genetic and Medical Genetics And Genomics Clin Genetics & Genomic. Dr. Martin is currently accepting new patients.

    Distinguished in Danon Disease
    Cardiology
    Distinguished in Danon Disease
    Cardiology

    UC San Diego

    200 W Arbor Dr, 
    San Diego, CA 
    Experience:
    10+ years
    Languages Spoken:
    English

    Gary Ma is a Cardiologist practicing medicine in San Diego, California. He has been practicing medicine for over 10 years. Dr. Ma is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Danon Disease, Aortic Valve Stenosis, and Cardiomyopathy.

    Distinguished in Danon Disease
    Distinguished in Danon Disease

    St. Mary's Neurology Associates

    99 Campus Ave Ste 402, 
    Lewiston, ME 
    Languages Spoken:
    English

    Carl Robinson is a Neurologist practicing medicine in Lewiston, Maine. Dr. Robinson is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Migraine, Pompe Disease, Danon Disease, and Peripheral Neuropathy.

    Distinguished in Danon Disease
    Hematology | Oncology
    Distinguished in Danon Disease
    Hematology | Oncology
    1999 Marcus Avenue, Suite 306, 
    New Hyde Park, NY 
    Languages Spoken:
    English

    Richard Forte is a Hematologist and an Oncologist practicing medicine in New Hyde Park, New York. Dr. Forte is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Danon Disease, Monoclonal Gammopathy of Undetermined Significance (MGUS), Schnitzler Syndrome, and Multiple Myeloma.

    Showing 1-20 of 1,365

    Last Updated: 04/28/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near me?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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