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    Last Updated: 08/17/2025

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    MediFind found 1356 doctor with experience in Danon Disease. Of these, 1115 are Experienced, 202 are Advanced, 31 are Distinguished and 8 are Elite.

    Location
    LocationClose
    1,356 providers found
      Barry H. Greenberg
      Elite in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Elite in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Languages Spoken:
      English

      Barry Greenberg is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in San Diego, California. Dr. Greenberg is rated as an Elite provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Heart Failure, Danon Disease, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Transplant, and Cardiac Ablation.

      Elite in Danon Disease
      Elite in Danon Disease
      Kashihara-shi, JP 

      Kazuma Sugie practices in Kashihara-shi, Japan. Mr. Sugie is rated as an Elite expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Myositis, Inclusion Body Myositis, Cytoplasmic Body Myopathy, and Thrombectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Danon Disease
      Elite in Danon Disease

      University Physicians Incorporated

      12605 E 16th Ave, Uchealth Anschutz Medical, 
      Aurora, CO 
      Languages Spoken:
      English, German, Italian
      Accepting New Patients

      Luisa Mestroni is a Cardiologist in Aurora, Colorado. Dr. Mestroni is rated as an Elite provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, Cardiomyopathy, Heart Transplant, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Mestroni is currently accepting new patients.

      Learn about our expert tiers
      Elite in Danon Disease
      Cardiology | Advanced Heart Failure and Transplant Cardiology
      Elite in Danon Disease
      Cardiology | Advanced Heart Failure and Transplant Cardiology

      Regents Of The University Of California

      200 W Arbor Dr, 
      San Diego, CA 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Quan M. Bui, MD, is a board-certified cardiologist specializing in advanced heart failure, mechanical circulatory support, and heart transplantation. He has a particular interest and expertise in managing patients with genetic cardiomyopathies, including cardiac amyloidosis and hypertrophic cardiomyopathy. Dr. Bui is rated as an Elite provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Cardiomyopathy, Heart Failure, Restrictive Cardiomyopathy (RCM), and Heart Transplant.

      Elite in Danon Disease
      Elite in Danon Disease
      Kodaira, JP 

      Ichizo Nishino practices in Kodaira, Japan. Nishino is rated as an Elite expert by MediFind in the treatment of Danon Disease. Their top areas of expertise are Necrotizing Myopathy (NM), Danon Disease, Myositis, Inclusion Body Myositis, and Thrombectomy.

      Elite in Danon Disease
      Elite in Danon Disease
      Prague, PR, CZ 

      Filip Majer practices in Prague, Czech Republic. Mr. Majer is rated as an Elite expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Danon Disease, Brachydactyly Type B, Phosphoglycerate Mutase Deficiency, and Retinopathy Pigmentary Mental Retardation.

      Elite in Danon Disease
      Elite in Danon Disease
      Udine, IT 

      Daniela Miani practices in Udine, Italy. Ms. Miani is rated as an Elite expert by MediFind in the treatment of Danon Disease. Her top areas of expertise are Danon Disease, Cardiomyopathy, Dilated Cardiomyopathy (DCM), Heart Failure, and Heart Transplant.

      Elite in Danon Disease
      Elite in Danon Disease
      Prague, PR, CZ 

      Milos Kubanek practices in Prague, Czech Republic. Mr. Kubanek is rated as an Elite expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Dilated Cardiomyopathy (DCM), Familial Dilated Cardiomyopathy, Cardiomyopathy, Heart Transplant, and Lung Transplant.

      Distinguished in Danon Disease
      Distinguished in Danon Disease

      UCI Health ALS & Neuromuscular Center

      200 South Manchester Avenue, Suite 110, 
      Orange, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Tahseen Mozaffar is a Neurologist in Orange, California. Dr. Mozaffar is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Inclusion Body Myositis, Pompe Disease, Myositis, Limb-Girdle Muscular Dystrophy, and Thymectomy. Dr. Mozaffar is currently accepting new patients.

      Advanced in Danon Disease
      Family Medicine
      Advanced in Danon Disease
      Family Medicine

      Atrium Health Primary Care One Health Family Medicine Reese Blvd.

      13620 Reese Blvd., E., Suite 125, 
      Huntersville, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mei-tsi Lawing is a primary care provider, practicing in Family Medicine in Huntersville, North Carolina. Dr. Lawing is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Pompe Disease, Danon Disease, Transient Global Amnesia, and Type 2 Diabetes (T2D). Dr. Lawing is currently accepting new patients.

      Advanced in Danon Disease
      Medical Genetics | Pediatrics
      Advanced in Danon Disease
      Medical Genetics | Pediatrics

      Florida Hospital Medical Group Inc

      601 E Rollins St, 
      Orlando, FL 
      Languages Spoken:
      English, Japanese
      Accepting New Patients

      Mari Mori is a Medical Genetics specialist and a Pediatrics provider in Orlando, Florida. Dr. Mori is rated as an Advanced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Glycogen Storage Disease Type 7, FG Syndrome, Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), and Von Gierke Disease. Dr. Mori is currently accepting new patients.

      Maryjane A. Farr
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Danon Disease
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      University Of Texas Southwestern Medical Center At Dallas

      5939 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Dallas, Texas. Dr. Farr is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

      Bernard Poiesz
      Distinguished in Danon Disease
      Hematology | Oncology
      Distinguished in Danon Disease
      Hematology | Oncology

      Department Of Medicine Medical Serv Grp At Suny Hlth Sci Ctr Syr In

      4900 Broad Rd, 
      Syracuse, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Bernard Poiesz is a Hematologist and an Oncologist in Syracuse, New York. Dr. Poiesz is rated as a Distinguished provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Porphyria Cutanea Tarda, Danon Disease, Cutaneous T-Cell Lymphoma (CTCL), Small Lymphocytic Lymphoma (SLL), and Bone Marrow Aspiration.

      Iacopo A. Olivotto
      Distinguished in Danon Disease
      Distinguished in Danon Disease
      Florence, IT 

      Iacopo Olivotto practices in Florence, Italy. Olivotto is rated as a Distinguished expert by MediFind in the treatment of Danon Disease. Their top areas of expertise are Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Fabry Disease, Heart Transplant, and Mastectomy.

      Pablo Pavia-Garcia
      Distinguished in Danon Disease
      Distinguished in Danon Disease
      Madrid, MD, ES 

      Pablo Pavia-Garcia practices in Madrid, Spain. Mr. Pavia-Garcia is rated as a Distinguished expert by MediFind in the treatment of Danon Disease. His top areas of expertise are Transthyretin Amyloid Cardiomyopathy, Cardiomyopathy, Transthyretin Amyloidosis, Heart Transplant, and Pacemaker Implantation.

      Experienced in Danon Disease
      Experienced in Danon Disease

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology
      Experienced in Danon Disease
      Cardiac Electrophysiology | Cardiology

      University Of Maryland St Joseph Medical Group LLC

      7505 Osler Dr, Suite 103, 
      Towson, MD 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Vikas Kalra is a Cardiac Electrophysiologist and a Cardiologist in Towson, Maryland. Dr. Kalra is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Atrial Fibrillation, Familial Ventricular Tachycardia, Ventricular Tachycardia, Pacemaker Implantation, and Cardiac Ablation. Dr. Kalra is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Robert Sokolic is a Hematologist Oncology specialist and a Hematologist in Providence, Rhode Island. Dr. Sokolic is rated as an Experienced provider by MediFind in the treatment of Danon Disease. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Adenosine Deaminase Deficiency, Chronic B-Cell Leukemia (CBCL), Sickle Cell Disease, and Bone Marrow Transplant.

      Experienced in Danon Disease
      Internal Medicine
      Experienced in Danon Disease
      Internal Medicine

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Monica Edwards is a primary care provider, practicing in Internal Medicine in Maywood, Illinois. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Lung Metastases, End-Stage Renal Disease (ESRD), Type 2 Diabetes (T2D), Pancreatectomy, and Bone Marrow Aspiration. Dr. Edwards is currently accepting new patients.

      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology
      Experienced in Danon Disease
      Hematology Oncology | Hematology | Oncology

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Maitri Kalra is a Hematologist Oncology specialist and a Hematologist in Baltimore, Maryland. Dr. Kalra has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Danon Disease. Her top areas of expertise are Breast Cancer, Paget Disease of the Breast, Inflammatory Breast Cancer, and Angiosarcoma. Dr. Kalra is currently accepting new patients.

      Showing 1-20 of 1,356

      Last Updated: 08/17/2025

      What is the definition of Danon Disease?

      Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

      When should I see a Danon Disease doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Danon Disease doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Danon Disease doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Danon Disease doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Danon Disease doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

      Why is it important to get a second opinion from a different Danon Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Danon Disease doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Danon Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Danon Disease doctors near me?

      Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Danon Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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