The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Diagnosis of PCD (clinical and test certified)
• Patient must undergo an ENT examination minimum once a year as part of their clinical follow-up
Locations
Other Locations
Switzerland
University of Bern
RECRUITING
Bern
Contact Information
Primary
Myrofora Goutaki, MD-PhD
myrofora.goutaki@unibe.ch
0041 316315973
Time Frame
Start Date: 2020-03-02
Estimated Completion Date: 2040-12
Participants
Target number of participants: 1000
Related Therapeutic Areas
Sponsors
Leads: University of Bern
Collaborators: Hospital Universitario La Fe, Centre Hospitalier Intercommunal Creteil, Amsterdam UMC, location VUmc, University of Cyprus, Marmara University, Bicetre Hospital, University Hospital Southampton NHS Foundation Trust, Universitaire Ziekenhuizen KU Leuven, Insel Gruppe AG, University Hospital Bern, Hacettepe University