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    Last Updated: 01/09/2026

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    MediFind found 254 doctor with experience in Koolen De Vries Syndrome near Stanford, CA. Of these, 200 are Experienced, 53 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    254 providers found
      Distinguished in Koolen De Vries Syndrome
      Cardiology
      Distinguished in Koolen De Vries Syndrome
      Cardiology

      Stanford Hospital And Clinics

      300 Pasteur Dr, 
      Stanford, CA 
       (0.8 miles away)
      Languages Spoken:
      English

      Joshua Spin is a Cardiologist in Stanford, California. Dr. Spin is rated as a Distinguished provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Abdominal Aortic Aneurysm (AAA), Thoracic Aortic Aneurysm, Inappropriate Sinus Tachycardia (IST), Familial Ventricular Tachycardia, and Pacemaker Implantation.

      Experienced in Koolen De Vries Syndrome
      Urology | General Surgery
      Experienced in Koolen De Vries Syndrome
      Urology | General Surgery

      Stanford Health Care

      300 Pasteur Dr, 
      Stanford, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Benjamin Chung is an Urologist and a General Surgeon in Stanford, California. Dr. Chung is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ureterocele, WT1-Related Wilms Tumor Syndromes, Chromophobe Renal Cell Carcinoma, Reconstructive Urology Surgery, and Nephrectomy.

      Experienced in Koolen De Vries Syndrome
      Oncology | Medical Genetics
      Experienced in Koolen De Vries Syndrome
      Oncology | Medical Genetics
      300 Pasteur Dr, 
      Stanford, CA 
       (0.8 miles away)
      Languages Spoken:
      English

      James Ford is an Oncologist and a Medical Genetics provider in Stanford, California. Dr. Ford is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pancreatic Cancer, Breast Cancer, Familial Adenomatous Polyposis, and Stomach Cancer.

      Learn about our expert tiers
      Elif Selamet
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Betty Irene Moore Children's Heart Center

      725 Welch Rd Ste 120, 
      Palo Alto, CA 
       (3.5 miles away)
      Languages Spoken:
      English

      Elif Selamet is a Pediatric Cardiologist in Palo Alto, California. Dr. Selamet is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Marfan Syndrome, Kawasaki Disease, Tetralogy of Fallot, Coarctation of the Aorta, and Heart Transplant.

      Advanced in Koolen De Vries Syndrome
      Cardiology
      Advanced in Koolen De Vries Syndrome
      Cardiology

      Valvular Heart Disease Clinic

      300 Pasteur Dr Fl 3, 
      Stanford, CA 
       (0.5 miles away)
      Languages Spoken:
      English

      David Liang is a Cardiologist in Stanford, California. Dr. Liang is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Marfan Syndrome, Thoracic Aortic Aneurysm, Aortic Dissection, Aortic Valve Replacement, and Pacemaker Implantation.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto,, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Claudia Algaze is a Pediatric Cardiologist in Palo Alto,, California. Dr. Algaze is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Supravalvular Aortic Stenosis, Williams Syndrome, Congenital Contractural Arachnodactyly, and Polysyndactyly Cardiac Malformation.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto,, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Heather Giacone is a Pediatric Cardiologist in Palo Alto,, California. Dr. Giacone is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Williams Syndrome, Tetralogy of Fallot, Wolff-Parkinson-White Syndrome, Situs Inversus, and Pacemaker Implantation.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto,, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Charitha Reddy is a Pediatric Cardiologist in Palo Alto,, California. Dr. Reddy is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Tetralogy of Fallot, Double Inlet Left Ventricle, Double Outlet Right Ventricle, Pulmonary Artery Agenesis, and Pacemaker Implantation.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Mark Chubb is a Pediatric Cardiologist in Palo Alto, California. Dr. Chubb is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Williams Syndrome, Wolff-Parkinson-White Syndrome, Dextrocardia with Situs Inversus, and Pacemaker Implantation.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto,, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Kyong Jin is a Pediatric Cardiologist in Palo Alto,, California. Dr. Jin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Double Discordia, Coarctation of the Aorta, Hypoplastic Left Heart Syndrome (HLHS), Stent Placement, and Angioplasty.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Anne Dubin is a Pediatric Cardiologist in Palo Alto, California. Dr. Dubin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Wolff-Parkinson-White Syndrome, Congenital Heart Block, Congenital Heart Disease (CHD), Cardiac Ablation, and Heart Transplant.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto,, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      John Caton is a Pediatric Cardiologist in Palo Alto,, California. Dr. Caton is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Double Outlet Right Ventricle, Double Inlet Left Ventricle, Ventricular Septal Defects, and Thymectomy.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto,, CA 
       (1.0 miles away)
      Languages Spoken:
      English

      Deborah Ho is a Pediatric Cardiologist in Palo Alto,, California. Dr. Ho is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Double Discordia, Transposition of the Great Arteries, Partial Atrioventricular Canal, and Pulmonary Atresia.

      Advanced in Koolen De Vries Syndrome
      Advanced in Koolen De Vries Syndrome

      Stanford Hospital And Clinics

      965 High St, 
      Palo Alto,, CA 
       (1.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mirela Tuzovic is a Cardiologist in Palo Alto,, California. Dr. Tuzovic is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Contractural Arachnodactyly, Arachnodactyly, Marfan Syndrome, and Acrodermatitis Enteropathica.

      Advanced in Koolen De Vries Syndrome
      Neurology
      Advanced in Koolen De Vries Syndrome
      Neurology

      Stanford Medicine Children's Health Specialty Services-Menlo Park-Pediatric Stroke Care

      321 Middlefield Rd Ste 225, 
      Menlo Park, CA 
       (2.4 miles away)
      Languages Spoken:
      English

      Hyunmi Kim is a Neurologist in Menlo Park, California. Dr. Kim is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Absence Seizure, Seizures, Generalized Tonic-Clonic Seizure, and Epilepsy in Children.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Betty Irene Moore Children's Heart Center

      725 Welch Rd Ste 120, 
      Palo Alto, CA 
       (3.5 miles away)
      Languages Spoken:
      English

      Rajesh Punn is a Pediatric Cardiologist in Palo Alto, California. Dr. Punn is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Pulmonary Atresia, Double Discordia, Ventricular Septal Defects, and Heart Transplant.

      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Advanced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Betty Irene Moore Children's Heart Center

      725 Welch Rd Ste 120, 
      Palo Alto,, CA 
       (3.5 miles away)
      Languages Spoken:
      English

      Kara Motonaga is a Pediatric Cardiologist in Palo Alto,, California. Dr. Motonaga is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Wolff-Parkinson-White Syndrome, Congenital Heart Block, Congenital Heart Disease (CHD), Heart Transplant, and Cardiac Ablation.

      Experienced in Koolen De Vries Syndrome
      Interventional Cardiology
      Experienced in Koolen De Vries Syndrome
      Interventional Cardiology

      Stanford Hospital And Clinics

      300 Pasteur Dr, 
      Stanford, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Rahul P Sharma is an Interventional Cardiologist in Stanford, California. Dr. P Sharma is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Mitral Valve Regurgitation, Aortic Valve Stenosis, Rheumatic Fever, Heart Valve Repair, and Aortic Valve Replacement.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Office

      300 Pasteur Dr, 
      Stanford,, CA 
       (0.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Stanley Rockson is a Cardiologist in Stanford,, California. Dr. Rockson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lymphangiectasis, Meige Disease, Primary Intestinal Lymphangiectasia, and Idiopathic Edema.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      Lucile Packard Children's Hospital Stanford

      725 Welch Rd, 
      Palo Alto, CA 
       (1.0 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English

      Alisa Arunamata is a Pediatric Cardiologist in Palo Alto, California. Dr. Arunamata has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Tetralogy of Fallot, Double Discordia, Pulmonary Atresia, Thymectomy, and Heart Transplant.

      Showing 1-20 of 254

      Last Updated: 01/09/2026

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Stanford, CA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Stanford, CA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Stanford, CA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Stanford, CA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Stanford, CA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Stanford, CA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Stanford, CA?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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