The 20 Best Koolen De Vries Syndrome Doctors Near Me in alameda, CA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 36 doctor with experience in Koolen De Vries Syndrome near alameda, CA. Of these, 32 are Experienced and 4 are Advanced.

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36 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Fetal Treatment Center

    1855 Fourth St., Second Floor, Room A-2432, 
    San Francisco, CA 
     (5.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Audrey Foster-Barber is a Pediatric Neurologist practicing medicine in San Francisco, California. Dr. Foster-Barber is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Early Infantile Epileptic Encephalopathy, Koolen De Vries Syndrome, Microcephaly, and Adrenoleukodystrophy (ALD). Dr. Foster-Barber is board certified in American Board Of Psychiatry And Neurology., Neurology With Special Qualification In Child Neurology. Dr. Foster-Barber is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Plastic Surgery
    Experienced in Koolen De Vries Syndrome
    Plastic Surgery
    Referral may be required

    Highland Hospital

    1411 E 31st St, 
    Oakland, CA 
     (3.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Allen is a Plastic Surgeon practicing medicine in Oakland, California. Dr. Allen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Breast Enlargement In Males, CHARGE Syndrome, Koolen De Vries Syndrome, and Hidradenitis Suppurativa. Dr. Allen is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral required

    Oakland Medical Center

    3701 Broadway, 4th Floor, 
    Oakland, CA 
     (3.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Deede Liu is a Dermatologist practicing medicine in Oakland, California. Dr. Liu is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Melanoma, Actinic Keratosis, Basal Cell Skin Cancer, and Extramammary Paget Disease. Dr. Liu is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Radiation Oncology At Oakland Medical Center

    3701 Broadway, 
    Oakland, CA 
     (3.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Bree Zimmerman is a Pediatrics provider practicing medicine in Oakland, California. Dr. Zimmerman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Sternal Cleft, Vascular Birthmark, Stork Bite, and Aplasia Cutis Congenita. Dr. Zimmerman is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral may be required

    Dermatologic Surgery And Laser Center

    1701 Divisadero St., 
    San Francisco, CA 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Siegrid Yu is a Dermatologist practicing medicine in San Francisco, California. Dr. Yu is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Merkel Cell Carcinoma, Basal Cell Skin Cancer, Squamous Cell Skin Carcinoma, and Head and Neck Squamous Cell Carcinoma (HNSCC). Dr. Yu is board certified in American Board Of Dermatology, Dermatology and American Board Of Dermatology, Micrographic Dermatologic Surgery. Dr. Yu is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Dermatology Clinic At Mount Zion

    1701 Divisadero St., Third And Fourth Floors, 
    San Francisco, CA 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Tiffany Scharschmidt is a Dermatologist practicing medicine in San Francisco, California. Dr. Scharschmidt is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Bullous Pemphigoid, Pemphigus, Pityriasis Rubra Pilaris, and Pemphigus Vulgaris. Dr. Scharschmidt is board certified in American Board Of Dermatology, Dermatology. Dr. Scharschmidt is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Referral may be required

    Stanford Medicine Children's Health-Pediatrics

    1359 Park Ave, 
    Alameda, CA 
     (2.5 miles away)
    Languages Spoken:
    English, Bengali, Hindi

    Sumit Sen is a Pediatrics provider practicing medicine in Alameda, California. Dr. Sen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Obesity in Children, Delayed Growth, Viral Gastroenteritis, and Vulvectomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    The Permanente Medical Group

    275 W MacArthur Blvd, 
    Oakland, CA 
     (3.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Bouton is an Orthopedics provider practicing medicine in Oakland, California. Dr. Bouton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Caudal Regression Syndrome, Spondylocarpotarsal Synostosis Syndrome, Kyphosis, and Spinal Fusion. Dr. Bouton is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Pulmonary Asthma & Sleep Medicine Center-Stanford Children's Health Specialty Services-Emeryville

    6121 Hollis St Ste 2, 
    Emeryville, CA 
     (4.0 miles away)
    Languages Spoken:
    English, Cantonese

    Eric Zee is a Pediatric Pulmonologist practicing medicine in Emeryville, California. Dr. Zee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Primary Ciliary Dyskinesia (PCD), Ciliary Dyskinesia-Bronchiectasis, Tracheoesophageal Fistula, and Laryngomalacia.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Bay Area Orthopaedic Sports & Spine Inc

    5915 Hollis St Ste B, 
    Emeryville, CA 
     (4.0 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Leslie Tim is a primary care provider, practicing in Internal Medicine in Emeryville, California. She has been practicing medicine for over 44 years. Dr. Tim is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Juvenile Primary Osteoporosis, Breast Cancer, High Cholesterol, and Multisystem Inflammatory Syndrome in Children (MIS-C).

    Experienced in Koolen De Vries Syndrome
    Interventional Radiology
    Experienced in Koolen De Vries Syndrome
    Interventional Radiology
    Referral may be required

    UCSF Benioff Children's Hospital Oakland

    747 52nd St, 
    Oakland, CA 
     (4.0 miles away)
    Languages Spoken:
    English

    Victoria Young is an Interventional Radiologist practicing medicine in Oakland, California. Dr. Young is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Simpson-Golabi-Behmel Syndrome, Megalencephaly-Capillary Malformation Syndrome, Hemi 3 Syndrome, and Marshall-Smith Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Childrens Hospital Medical Center Ambulatory Care Pharmacy

    744 52nd St, 
    Oakland, CA 
     (4.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Kittler is a Pediatrics provider practicing medicine in Oakland, California. Dr. Kittler is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Stork Bite, Vascular Birthmark, Folliculitis, and CHARGE Syndrome. Dr. Kittler is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Referral may be required

    Stanford Health Care

    5800 Hollis St, 
    Emeryville, CA 
     (4.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jason Lee is a Vascular Surgeon practicing medicine in Emeryville, California. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Thoracic Aortic Aneurysm, Fibromuscular Dysplasia (FMD), Abdominal Aortic Aneurysm (AAA), Aortic Dissection, and Carotid Artery Surgery.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    5400 Telegraph Ave, 
    Oakland, CA 
     (4.3 miles away)
    Languages Spoken:
    English

    Lydia Tinajero-Deck is a Pediatrics provider practicing medicine in Oakland, California. Dr. Tinajero-Deck is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obesity in Children, Autism Spectrum Disorder, Cantu Syndrome, and Perlman Syndrome.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral may be required

    Dermatologic Surgery And Laser Center

    1701 Divisadero St, 
    San Francisco, CA 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Roy Grekin is a Dermatologist practicing medicine in San Francisco, California. Dr. Grekin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, Melanoma, and Head and Neck Squamous Cell Carcinoma (HNSCC). Dr. Grekin is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Advanced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Retina And Vitreous Clinic

    490 Illinois St, 
    San Francisco, CA 
     (5.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jacque Duncan is an Ophthalmologist practicing medicine in San Francisco, California. Dr. Duncan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Usher Syndrome Type 2A, Usher Syndrome, Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, and Vitrectomy.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Congenital Heart Disease (Fontan) Liver Clinic

    1825 4th St, 
    San Francisco,, CA 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ian Harris is a Cardiologist practicing medicine in San Francisco,, California. Dr. Harris is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 85 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Tetralogy of Fallot, Familial Hypertrophic Cardiomyopathy, Fabry Disease, and Pacemaker Implantation. Dr. Harris is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Radiology | Neuroradiology
    Experienced in Koolen De Vries Syndrome
    Radiology | Neuroradiology
    Referral may be required

    Radiology At China Basin

    185 Berry St., Lobby 6, Suite 180 And 190, 
    San Francisco, CA 
     (6.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Javier Villanueva-Meyer is a Radiologist and a Neuroradiologist practicing medicine in San Francisco, California. Dr. Villanueva-Meyer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Meningioma, Gliomatosis Cerebri, Relapsing Multiple Sclerosis (RMS), Craniectomy, and Orchiectomy. Dr. Villanueva-Meyer is board certified in American Board Of Radiology, Diagnostic Radiology and American Board Of Radiology, Neuroradiology. Dr. Villanueva-Meyer is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Dermatology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Dermatology | Pediatrics
    Referral may be required

    Dermatology Clinic At Mount Zion

    1701 Divisadero St., Third And Fourth Floors, 
    San Francisco, CA 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kelly Cordoro is a Dermatologist and a Pediatrics provider practicing medicine in San Francisco, California. Dr. Cordoro is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Psoriasis, Localized Scleroderma, Guttate Psoriasis, and Stork Bite. Dr. Cordoro is board certified in American Board Of Dermatology, Pediatric Dermatology and American Board Of Dermatology, Dermatology. Dr. Cordoro is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Experienced in Koolen De Vries Syndrome
    Pulmonary Medicine
    Referral may be required

    Pulmonary Practice At Mount Zion

    2330 Post St., Suite 420, 
    San Francisco, CA 
     (8.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Robert Grant is a Pulmonary Medicine provider practicing medicine in San Francisco, California. Dr. Grant is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Bronchiectasis, Emphysema, Lung Metastases, and Bullae. Dr. Grant is board certified in American Board Of Internal Med/Pulmonary Disease, Pulmonary Disease and American Board Of Internal Medicine, Internal Medicine. Dr. Grant is currently accepting new patients.

    Showing 1-20 of 36

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near alameda, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near alameda, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near alameda, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near alameda, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near alameda, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near alameda, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near alameda, CA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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