The 20 Best Koolen De Vries Syndrome Doctors Near Me in Tampa, FL

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 19 doctor with experience in Koolen De Vries Syndrome near Tampa, FL. Of these, 19 are Experienced.

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19 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology

    University Of South Florida Nephrology Dept

    Tampa, FL 
     (2.4 miles away)
    Languages Spoken:
    English

    Dr. Panzarino specializes in pediatric nephrology in the Johns Hopkins All Children's Department of Pediatric Medicine. She is division chief and is an associate professor of pediatrics in the University of South Florida (USF) Morsani College of Medicine. Her clinical interests include pediatric hypertension, cystic kidney disease, congenital renal anomalies, nephritis, dialysis and transplantation. Dr. Panzarino earned her medical degree from USF. She completed her residency in pediatrics through USF, and a fellowship in pediatric nephrology at the University of Minnesota Department of Pediatrics. Dr. Panzarino is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses End-Stage Renal Disease (ESRD), Koolen De Vries Syndrome, Wildervanck Syndrome, Reconstructive Urology Surgery, and Nephrectomy. Dr. Panzarino is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    St Josephs Diagnostic Center LLC

    3003 W Dr Martin Luther King Jr Blvd, 
    Tampa, FL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Frances Arrillaga is a Pediatric Cardiologist practicing medicine in Tampa, Florida. Dr. Arrillaga is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Pulmonary Supravalvular Stenosis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    St Josephs Diagnostic Center LLC

    3003 W Dr Martin Luther King Jr Blvd, 
    Tampa, FL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jeremy Ringewald is a Pediatric Cardiologist practicing medicine in Tampa, Florida. Dr. Ringewald is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Pulmonary Valve Stenosis, Tetralogy of Fallot, Pulmonary Supravalvular Stenosis, and Double Inlet Left Ventricle.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    JH All Children's Gastroenterology

    5205 East Fletcher Avenue, 
    Temple Terrace, FL 
     (7.1 miles away)
    Languages Spoken:
    English, Spanish

    Dr. Irizarry is a pediatric gastroenterologist at Johns Hopkins All Children’s. She sees patients in the gastroenterology office in Temple Terrace and the Outpatient Care Center in Brandon. Her clinical interests include inflammatory bowel disease and eosinophilic esophagitis. She earned her medical degree from Ponce School of Medicine in Ponce, Puerto Rico. She completed a pediatric residency at the University of South Florida in Tampa. She then completed a fellowship in pediatric gastroenterology, hepatology and nutrition at the University of Colorado School of Medicine in Denver. Dr. Irizarry is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Morning Sickness, Trichohepatoenteric Syndrome, Diarrhea, and Gilbert Syndrome. Dr. Irizarry is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Univ. Medical Service Association Inc.

    2 Tampa General Cir, 
    Tampa, FL 
     (1.0 miles away)
    Languages Spoken:
    English

    Luis Seguias is a Pediatrics provider practicing medicine in Tampa, Florida. Dr. Seguias is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Wolf-Hirschhorn Syndrome, Trisomy 13, Cri-Du-Chat Syndrome, and Delayed Growth.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Univ. Medical Service Association Inc.

    2 Tampa General Cir, 
    Tampa, FL 
     (1.0 miles away)
    Languages Spoken:
    English

    Nathan Brinn is a primary care provider, practicing in Internal Medicine in Tampa, Florida. Dr. Brinn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Attention Deficit Hyperactivity Disorder (ADHD), Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery

    Florida Craniofacial Institute

    4200 N Armenia Ave Ste 3, 
    Tampa, FL 
     (2.2 miles away)
    Languages Spoken:
    English

    Pat Ricalde is an Oral and Maxillofacial Surgeon practicing medicine in Tampa, Florida. Dr. Ricalde is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Osteochondroma, Oral Cancer, Acrodysostosis, and Acrofacial Dysostosis Weyers Type.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Sergio J. Jacinto M.D. P.A.

    4507 N Armenia Ave, 
    Tampa, FL 
     (2.7 miles away)
    Languages Spoken:
    English

    Sergio Jacinto is a Pediatric Neurologist practicing medicine in Tampa, Florida. Dr. Jacinto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Auditory Processing Disorder, Microcephaly, Autism Spectrum Disorder, and Transient Tic Disorder.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    St. Joseph's Hospital

    3001 W Dr Martin Luther King Jr Blvd, 
    Tampa, FL 
     (2.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Pooja Desai is a Pediatrics provider practicing medicine in Tampa, Florida. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Hemi 3 Syndrome, Megalencephaly-Capillary Malformation Syndrome, Cantu Syndrome, and Perlman Syndrome.

    Experienced in Koolen De Vries Syndrome
    Plastic Surgery
    Experienced in Koolen De Vries Syndrome
    Plastic Surgery

    Moffitt McKinley Campus

    10920 McKinley Dr, 
    Tampa, FL 
     (7.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Rogerio Neves is a Plastic Surgeon practicing medicine in Tampa, Florida. Dr. Neves is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Melanoma, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Head and Neck Squamous Cell Carcinoma (HNSCC).

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Moffitt McKinley Campus

    10920 McKinley Dr, 
    Tampa, FL 
     (7.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Elizabeth Haynes is an Internal Medicine provider practicing medicine in Tampa, Florida. Dr. Haynes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses BRCA Positive Breast Cancer, HER2 Negative Breast Cancer, Saddle Pulmonary Embolism, and Venous Thromboembolism (VTE).

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
     (8.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Philippe Spiess is an Oncologist practicing medicine in Tampa, Florida. Dr. Spiess is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Penile Cancer, Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Spiess is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
     (8.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mauricio Fernando is an Oncologist practicing medicine in Tampa, Florida. Dr. Fernando is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Mesenchymoma, Undifferentiated Pleomorphic Sarcoma, Bone Tumor, and Fibrosarcoma. Dr. Fernando is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Urology Of Virginia PLLC

    12902 Magnolia Dr, 
    Tampa, FL 
     (8.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Christina Freamon is a Nurse Practitioner practicing medicine in Tampa, Florida. Ms. Freamon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, Upper Tract Urothelial Carcinoma (UTUC), and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    Chapters Health Home Connect Inc.

    12470 Telecom Dr Ste 300W, 
    Temple Terrace, FL 
     (8.3 miles away)
    Languages Spoken:
    English

    Maribeth Allen is a Nurse Practitioner practicing medicine in Temple Terrace, Florida. Ms. Allen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    13330 Usf Laurel Dr, 
    Tampa, FL 
     (8.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Lewis Glass is a Dermatologist practicing medicine in Tampa, Florida. Dr. Glass is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Mycosis Fungoides, Cutaneous T-Cell Lymphoma (CTCL), Actinic Keratosis, and Warts. Dr. Glass is board certified in American Board Of Dermatology.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner

    University Medical Service Association Inc

    4202 E Fowler Ave, 
    Tampa, FL 
     (8.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kara Morgan is a Nurse Practitioner practicing medicine in Tampa, Florida. Ms. Morgan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Triple X Syndrome, Koolen De Vries Syndrome, and Symphalangism Distal. Ms. Morgan is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Gastroenterology

    BayCare Medical Group Inc

    10141 Big Bend Rd Ste 206, 
    Riverview, FL 
     (9.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jaime Baquero is a Gastroenterologist practicing medicine in Riverview, Florida. Dr. Baquero is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Lower Esophageal Ring, Benign Esophageal Stricture, Gastroesophageal Reflux Disease (GERD), Endoscopy, and Colonoscopy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    AdventHealth Medical Group Pediatric Orthopedic Surgery At Tampa

    3100 E Fletcher Ave Ste 126, 
    Tampa, FL 
     (9.2 miles away)
    Languages Spoken:
    English

    Cheryl Lawing is a Pediatric Orthopedics provider practicing medicine in Tampa, Florida. Dr. Lawing is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Knock Knees, Scoliosis, Clubfoot, Spastic Diplegia Infantile Type, and Osteotomy.

    Showing 1-19 of 19

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Tampa, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Tampa, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Tampa, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Tampa, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Tampa, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Tampa, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Tampa, FL?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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