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    Last Updated: 01/09/2026

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    MediFind found 17 doctor with experience in Koolen De Vries Syndrome near Tampa, FL. Of these, 17 are Experienced.

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    LocationClose
    17 providers found
      Valerie M. Panzarino
      Experienced in Koolen De Vries Syndrome
      Pediatric Nephrology
      Experienced in Koolen De Vries Syndrome
      Pediatric Nephrology

      University Of South Florida Nephrology Dept

      Tampa, FL 
       (2.4 miles away)
      Languages Spoken:
      English

      Dr. Panzarino specializes in pediatric nephrology in the Johns Hopkins All Children's Department of Pediatric Medicine. She is division chief and is an associate professor of pediatrics in the University of South Florida (USF) Morsani College of Medicine. Her clinical interests include pediatric hypertension, cystic kidney disease, congenital renal anomalies, nephritis, dialysis and transplantation. Dr. Panzarino earned her medical degree from USF. She completed her residency in pediatrics through USF, and a fellowship in pediatric nephrology at the University of Minnesota Department of Pediatrics. Dr. Panzarino is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are End-Stage Renal Disease (ESRD), Wildervanck Syndrome, Koolen De Vries Syndrome, Reconstructive Urology Surgery, and Nephrectomy.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      St Josephs Diagnostic Center LLC

      3003 W Dr Martin Luther King Jr Blvd, 
      Tampa, FL 
       (2.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Frances Arrillaga is a Pediatric Cardiologist in Tampa, Florida. Dr. Arrillaga is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Pulmonary Valve Stenosis.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology

      St Josephs Diagnostic Center LLC

      3003 W Dr Martin Luther King Jr Blvd, 
      Tampa, FL 
       (2.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jeremy Ringewald is a Pediatric Cardiologist in Tampa, Florida. Dr. Ringewald is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pulmonary Valve Stenosis, Tetralogy of Fallot, Pulmonary Supravalvular Stenosis, and Double Inlet Left Ventricle.

      Learn about our expert tiers
      Karina Irizarry
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology

      JH All Children's Gastroenterology

      5205 East Fletcher Avenue, 
      Temple Terrace, FL 
       (7.1 miles away)
      Languages Spoken:
      English, Spanish

      Dr. Irizarry is a pediatric gastroenterologist at Johns Hopkins All Children’s. She sees patients in the gastroenterology office in Temple Terrace and the Outpatient Care Center in Brandon. Her clinical interests include inflammatory bowel disease and eosinophilic esophagitis. She earned her medical degree from Ponce School of Medicine in Ponce, Puerto Rico. She completed a pediatric residency at the University of South Florida in Tampa. She then completed a fellowship in pediatric gastroenterology, hepatology and nutrition at the University of Colorado School of Medicine in Denver. Dr. Irizarry is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Morning Sickness, Trichohepatoenteric Syndrome, Diarrhea, and Gilbert Syndrome.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      912 Channelside Dr Ste 2102, 
      Tampa, FL 
       (0.2 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Maribeth Allen is a Nurse Practitioner in Tampa, Florida. Ms. Allen is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top area of expertise is Koolen De Vries Syndrome. Ms. Allen is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Hospital Medicine | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Hospital Medicine | Pediatrics
      2 Tampa General Cir, 
      Tampa, FL 
       (1.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Luis Seguias is a Hospital Medicine specialist and a Pediatrics provider in Tampa, Florida. Dr. Seguias is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Wolf-Hirschhorn Syndrome, Trisomy 13, Cri-Du-Chat Syndrome, and Delayed Growth. Dr. Seguias is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Oral and Maxillofacial Surgery
      Experienced in Koolen De Vries Syndrome
      Oral and Maxillofacial Surgery
      4200 N Armenia Ave Ste 3, 
      Tampa, FL 
       (2.2 miles away)
      Languages Spoken:
      English, Arabic, Greek, Russian, Spanish, Ukrainian
      Accepting New Patients

      Pat Ricalde is an Oral and Maxillofacial Surgeon in Tampa, Florida. Dr. Ricalde is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Osteochondroma, Oral Cancer, Acrofacial Dysostosis Weyers Type, and Acrofacial Dysostosis Nager Type. Dr. Ricalde is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology
      4507 N Armenia Ave, 
      Tampa, FL 
       (2.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sergio Jacinto is a Pediatric Neurologist in Tampa, Florida. Dr. Jacinto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Auditory Processing Disorder, Microcephaly, Autism Spectrum Disorder, and Transient Tic Disorder. Dr. Jacinto is currently accepting new patients in some locations.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      H Lee Moffitt Cancer Ctr And Res Inst Life Time Cancer Scrn Ctr Inc

      12902 Usf Magnolia Dr, 
      Tampa, FL 
       (8.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Philippe Spiess is an Urologist in Tampa, Florida. Dr. Spiess is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Penile Cancer, Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Cystectomy. Dr. Spiess is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Plastic Surgery
      Experienced in Koolen De Vries Syndrome
      Plastic Surgery

      H Lee Moffitt Cancer Ctr And Res Inst Life Time Cancer Scrn Ctr Inc

      12902 Usf Magnolia Dr, 
      Tampa, FL 
       (8.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rogerio Neves is a Plastic Surgeon in Tampa, Florida. Dr. Neves is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Melanoma, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Head and Neck Squamous Cell Carcinoma (HNSCC). Dr. Neves is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner

      H Lee Moffitt Cancer Ctr And Res Inst Life Time Cancer Scrn Ctr Inc

      12902 Usf Magnolia Dr, 
      Tampa, FL 
       (8.1 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English
      Offers Telehealth

      Christina Freamon is a Nurse Practitioner in Tampa, Florida. Ms. Freamon has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, Upper Tract Urothelial Carcinoma (UTUC), and Koolen De Vries Syndrome.

      Experienced in Koolen De Vries Syndrome
      Hematology Oncology | Oncology
      Experienced in Koolen De Vries Syndrome
      Hematology Oncology | Oncology

      H Lee Moffitt Cancer Ctr And Res Inst Life Time Cancer Scrn Ctr Inc

      12902 Usf Magnolia Dr, 
      Tampa, FL 
       (8.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mauricio Silva-Almeida is a Hematologist Oncology specialist and an Oncologist in Tampa, Florida. Dr. Silva-Almeida is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Mesenchymoma, Undifferentiated Pleomorphic Sarcoma, Bone Tumor, and Rhabdomyosarcoma Embryonal. Dr. Silva-Almeida is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Internal Medicine | Hospital Medicine
      Experienced in Koolen De Vries Syndrome
      Internal Medicine | Hospital Medicine

      H Lee Moffitt Cancer Ctr And Res Inst Life Time Cancer Scrn Ctr Inc

      12902 Usf Magnolia Dr, 
      Tampa, FL 
       (8.1 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Elizabeth Haynes is a Hospital Medicine provider in Tampa, Florida. Dr. Haynes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are BRCA Positive Breast Cancer, HER2 Negative Breast Cancer, Saddle Pulmonary Embolism, and Venous Thromboembolism (VTE). Dr. Haynes is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      University Medical Service Association Inc

      13101 Bruce B Downs Blvd, Suite 105, 
      Tampa, FL 
       (8.2 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Christopher Griffith is a Medical Genetics provider in Tampa, Florida. Dr. Griffith is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Megalencephalic Leukoencephalopathy with Subcortical Cysts, Multiple Sulfatase Deficiency, Fabry Disease, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome). Dr. Griffith is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner

      University Medical Service Association Inc

      13101 Bruce B Downs Blvd, Suite 105, 
      Tampa, FL 
       (8.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kara Morgan is a Nurse Practitioner in Tampa, Florida. Ms. Morgan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Triple X Syndrome, Koolen De Vries Syndrome, and Symphalangism Distal. Ms. Morgan is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Hospital Medicine | Geriatrics
      Experienced in Koolen De Vries Syndrome
      Hospital Medicine | Geriatrics

      Inpatient Consultants Of Florida, Inc

      3030 W Bearss Ave, 
      Tampa, FL 
       (9.5 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Felix Carrillo is a Hospital Medicine specialist and a Geriatrics provider in Tampa, Florida. Dr. Carrillo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Urinary Tract Infection (UTI), Necrosis, Pneumonia, and Low Blood Pressure. Dr. Carrillo is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Gastroenterology

      Baycare Medical Group, Inc.

      10141 Big Bend Rd, Suite 206, 
      Riverview, FL 
       (13.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jaime Baquero is a Gastroenterologist in Riverview, Florida. Dr. Baquero is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lower Esophageal Ring, Benign Esophageal Stricture, Gastroesophageal Reflux Disease (GERD), Endoscopy, and Colonoscopy.

      Showing 1-17 of 17

      Last Updated: 01/09/2026

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Tampa, FL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Tampa, FL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Tampa, FL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Tampa, FL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Tampa, FL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Tampa, FL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Tampa, FL?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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