The 20 Best Koolen De Vries Syndrome Doctors Near Me in odessa, FL

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 16 doctor with experience in Koolen De Vries Syndrome near odessa, FL. Of these, 16 are Experienced.

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16 providers found
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    AdventHealth Medical Group Pediatric Orthopedic Surgery At Tampa

    3100 E Fletcher Ave Ste 126, 
    Tampa, FL 
     (9.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Cheryl Lawing is a Pediatric Orthopedics provider practicing medicine in Tampa, Florida. Dr. Lawing is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Knock Knees, Clubfoot, Arthrogryposis Multiplex Congenita, Multiple Synostoses Syndrome 1, and Osteotomy. Dr. Lawing is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hematology | Pediatric Hematology Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Pediatric Hematology Oncology
    Referral may be required

    Johns Hopkins All Children's Outpatient Care, Tampa

    12220 Bruce B Downs Boulevard, 
    Tampa, FL 
     (11.1 miles away)
    Languages Spoken:
    English, Greek
    Accepting New Patients
    Offers Telehealth

    Adrianna Vlachos is a Hematologist and a Pediatric Hematologist Oncology provider practicing medicine in Tampa, Florida. Dr. Vlachos is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, and Transient Erythroblastopenia of Childhood. Dr. Vlachos is board certified in American Board Of Pediatrics. Dr. Vlachos is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Jhach

    5205 E Fletcher Ave, 
    Tampa, FL 
     (12.4 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Karina Irizarry is a Pediatric Gastroenterologist practicing medicine in Tampa, Florida. Dr. Irizarry is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Diarrhea, Gilbert Syndrome, Bowel Incontinence, and Gastroesophageal Reflux Disease (GERD). Dr. Irizarry is board certified in AB Pediatrics (Pediatric Gastroenterology) and American Board Of Pediatrics. Dr. Irizarry is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Referral may be required

    Stern Drake Isbell And Associates PA

    4516 N Armenia Ave, 
    Tampa, FL 
     (14.1 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Diana Marin is a Radiologist and a Pediatric Radiologist practicing medicine in Tampa, Florida. Dr. Marin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Familial Short Stature (FSS), Idiopathic Short Stature (ISS), Short Stature (Growth Disorders), and Scoliosis. Dr. Marin is board certified in AB Radiology - Radiology, American Board Of Radiology, and AB Pediatrics (Pediatric Radiology). Dr. Marin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Neurology
    Referral may be required

    Sergio J Jacinto, MD, PA

    4507 N Armenia Ave, 
    Tampa, FL 
     (14.2 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Sergio Jacinto is a Pediatrics specialist and a Neurologist practicing medicine in Tampa, Florida. Dr. Jacinto is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Auditory Processing Disorder, Tension Headache, Zika Virus Disease, and Microcephaly. Dr. Jacinto is board certified in AB Psychiatry & Neurology - W/ Spec Qual In Child Neurology. Dr. Jacinto is currently accepting new patients in some locations.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    BMG Pediatric Cardiology & Congenital Heart At St. Joseph's Hospital MAB

    3003 W Dr Martin Luther King Jr Blvd, Fl 3, 
    Tampa, FL 
     (14.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jeremy Ringewald is a Pediatric Cardiologist practicing medicine in Tampa, Florida. Dr. Ringewald is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Pulmonary Valve Stenosis, Tetralogy of Fallot, Pulmonary Supravalvular Stenosis, and Double Inlet Left Ventricle. Dr. Ringewald is board certified in Pediatric Cardiology and AB Pediatrics (Pediatric Cardiology). Dr. Ringewald is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Experienced in Koolen De Vries Syndrome
    Pediatric Nephrology
    Referral may be required

    USF Physicians Group - Nephrology

    3003 W Dr Martin Luther King Jr Blvd, Fl 3, 
    Tampa, FL 
     (14.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Valerie Panzarino is a Pediatric Nephrologist practicing medicine in Tampa, Florida. Dr. Panzarino is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Renal Tubular Acidosis, Nephrotic Syndrome, Posterior Urethral Valves, Reconstructive Urology Surgery, and Kidney Transplant. Dr. Panzarino is board certified in AB Pediatrics (Pediatric Nephrology) and American Board Of Pediatrics. Dr. Panzarino is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Hematology | Oncology | Pediatrics
    Referral may be required

    SJCH Pediatric Hematology & Oncology

    3001 W Dr Martin Luther King Jr Blvd, Fl 1, 
    Tampa, FL 
     (14.3 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Pooja Desai is a Hematologist and an Oncologist practicing medicine in Tampa, Florida. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Hemi 3 Syndrome, Perlman Syndrome, Cantu Syndrome, and Simpson-Golabi-Behmel Syndrome. Dr. Desai is board certified in AB Pediatrics - Pediatrics. Dr. Desai is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    St. Luke's Cataract & Laser Institute, P.A.

    43309 US Highway 19 N, 
    Tarpon Springs, FL 
     (11.1 miles away)
    Languages Spoken:
    English, French
    Accepting New Patients

    Brian Phillpotts is an Ophthalmologist practicing medicine in Tarpon Springs, Florida. Dr. Phillpotts is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Age-Related Macular Degeneration (ARMD), Late-Onset Retinal Degeneration, Retinal Artery Occlusion, and Retinal Vein Occlusion. Dr. Phillpotts is board certified in American Board Of Ophthalmology and American Board Of Ophthalmology. Dr. Phillpotts is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Urology Of Virginia PLLC

    12902 Magnolia Dr, 
    Tampa, FL 
     (11.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Christina Freamon is a Nurse Practitioner practicing medicine in Tampa, Florida. Freamon, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Non-Muscle Invasive Bladder Cancer, Muscle Invasive Bladder Cancer, Upper Tract Urothelial Carcinoma (UTUC), and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
     (11.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Philippe Spiess is an Oncologist practicing medicine in Tampa, Florida. Dr. Spiess is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Penile Cancer, Muscle Invasive Bladder Cancer, Bladder Cancer, Nephrectomy, and Penectomy. Dr. Spiess is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Moffitt Cancer Center, Magnolia Campus

    12902 Usf Magnolia Dr, 
    Tampa, FL 
     (11.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mauricio Fernando-Silva is an Oncologist practicing medicine in Tampa, Florida. Dr. Fernando-Silva is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Undifferentiated Pleomorphic Sarcoma, Mesenchymoma, Bone Tumor, and Fibrosarcoma. Dr. Fernando-Silva is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    University Medical Service Association Inc

    4202 E Fowler Ave, 
    Tampa, FL 
     (11.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Kara Morgan is a Nurse Practitioner practicing medicine in Tampa, Florida. Morgan, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Triple X Syndrome, Koolen De Vries Syndrome, and Symphalangism Distal. Morgan, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Experienced in Koolen De Vries Syndrome
    Oral and Maxillofacial Surgery
    Referral may be required

    AdventHealth Lab

    7171 N Dale Mabry Hwy, 
    Tampa, FL 
     (11.9 miles away)
    Languages Spoken:
    English, Arabic, Greek, Russian, Spanish, Ukrainian
    Accepting New Patients

    Pat Ricalde is an Oral and Maxillofacial Surgeon practicing medicine in Tampa, Florida. Dr. Ricalde is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Osteochondroma, Oral Cancer, Acrofacial Dysostosis Weyers Type, and Acrofacial Dysostosis Nager Type. Dr. Ricalde is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Moffitt McKinley Campus

    10920 McKinley Dr, 
    Tampa, FL 
     (12.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Elizabeth Haynes is a primary care provider, practicing in Internal Medicine in Tampa, Florida. Dr. Haynes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Pulmonary Embolism, Deep Vein Thrombosis, DICER1 Syndrome, and BRCA Positive Breast Cancer. Dr. Haynes is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Plastic Surgery
    Experienced in Koolen De Vries Syndrome
    Plastic Surgery
    Referral may be required

    Moffitt McKinley Hospital

    10901 McKinley Dr, 
    Tampa, FL 
     (12.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rogerio Neves is a Plastic Surgeon practicing medicine in Tampa, Florida. Dr. Neves is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Melanoma, Squamous Cell Skin Carcinoma, Basal Cell Skin Cancer, and Head and Neck Squamous Cell Carcinoma (HNSCC). Dr. Neves is currently accepting new patients.

    Showing 1-16 of 16

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near odessa, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near odessa, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near odessa, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near odessa, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near odessa, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near odessa, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near odessa, FL?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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