The 20 Best Koolen De Vries Syndrome Doctors Near Me in pinecrest, FL

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 27 doctor with experience in Koolen De Vries Syndrome near pinecrest, FL. Of these, 26 are Experienced and 1 are Advanced.

Location
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27 providers found
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Office

    9655 S Dixie Hwy Ste 102, 
    Pinecrest, FL 
     (0.7 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Zenia Aguilera is an Ophthalmologist practicing medicine in Pinecrest, Florida. Dr. Aguilera is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Amblyopia, Strabismus, Astigmatism, and Epicanthal Folds. Dr. Aguilera is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Baptist Health Medical Group Physicians LLC

    8900 N Kendall Dr, 
    Miami, FL 
     (2.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Arelis Martir-Negron is a Medical Genetics provider practicing medicine in Miami, Florida. Dr. Martir-Negron is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Birt-Hogg-Dube Syndrome, Vici Syndrome, Hardikar Syndrome, and Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism. Dr. Martir-Negron is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Holistic Medicine
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Holistic Medicine
    Referral may be required
    7031 Sw 62nd Ave, 
    South Miami, FL 
     (3.1 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Hyrum Judd is an Orthopedics specialist and a Holistic Medicine provider practicing medicine in South Miami, Florida. Mr. Judd is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Clubfoot, Syndactyly Type 1, Proximal Symphalangism, and Beukes Familial Hip Dysplasia. Mr. Judd is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Office

    8720 N Kendall Dr Ste 211, 
    Miami, FL 
     (3.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nelson Sanchez is a Pediatric Neurologist practicing medicine in Miami, Florida. Dr. Sanchez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Developmental Dysphasia Familial, and Epilepsy. Dr. Sanchez is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Kidz Medical Services Inc

    5955 Ponce De Leon Blvd, 
    Coral Gables, FL 
     (3.5 miles away)
    Languages Spoken:
    English, Arabic, Spanish
    Accepting New Patients
    Offers Telehealth

    Guillermo De Angulo is an Oncologist practicing medicine in Coral Gables, Florida. Dr. De Angulo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Febrile Neutropenia, Neuroblastoma, and Hereditary Neuroblastoma. Dr. De Angulo is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Hematology | Oncology
    Advanced in Koolen De Vries Syndrome
    Hematology | Oncology
    Referral may be required

    KIDZ Pediatric Hematology & Oncology

    3100 SW 62nd Ave Ste 121, 
    Miami, FL 
     (5.2 miles away)
    Languages Spoken:
    English, Arabic, Spanish
    Accepting New Patients
    Offers Telehealth

    Ziad Khatib is a Hematologist and an Oncologist practicing medicine in Miami, Florida. Dr. Khatib is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Medulloblastoma, Ependymoma, Glioma, Neuroepithelioma, and Bone Marrow Aspiration. Dr. Khatib is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    3200 SW 60th Ct Ste 104, 
    Miami, FL 
     (5.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Nassau is a Pediatrics provider practicing medicine in Miami, Florida. Dr. Nassau is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Undescended Testicle, Hypospadias, Duplication of Urethra, Low Testosterone, and Orchiectomy. Dr. Nassau is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Kidz Medical Services

    3200 SW 60th Ct Ste 203, 
    Miami, FL 
     (5.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Maria Franco is a Pediatric Pulmonologist practicing medicine in Miami, Florida. Dr. Franco is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cystic Fibrosis, Asthma, Koolen De Vries Syndrome, and Secondary Immunodeficiency (SID). Dr. Franco is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Office

    3200 SW 60th Ct Ste 204, 
    Miami, FL 
     (5.5 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Jesse Reeves-Garcia is a Pediatric Gastroenterologist practicing medicine in Miami, Florida. Dr. Reeves-Garcia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Lactose Intolerance, Rotor Syndrome, Diarrhea, and Gilbert Syndrome. Dr. Reeves-Garcia is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Kidz Medical Services

    3200 SW 60th Ct Ste 203, 
    Miami, FL 
     (5.5 miles away)
    Languages Spoken:
    English, Italian, Spanish
    Accepting New Patients
    Offers Telehealth

    Alicia Della-Volpe is a Pediatric Pulmonologist practicing medicine in Miami, Florida. Dr. Della-Volpe is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Asthma, Cystic Fibrosis, Laryngomalacia, and Tabes Dorsalis. Dr. Della-Volpe is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Nicklaus Children's Hospital, Miami FL

    3100 SW 62nd Ave, 
    Miami, FL 
     (5.5 miles away)
    Languages Spoken:
    English

    Danny Luna is a Nurse Practitioner practicing medicine in Miami, Florida. Luna, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Nicklaus Children's Hospital

    3100 SW 62nd Ave, 
    Miami, FL 
     (5.5 miles away)
    Languages Spoken:
    English

    Jun Sasaki is a Pediatric Cardiologist practicing medicine in Miami, Florida. Dr. Sasaki is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Congenital Mitral Stenosis, Dextrocardia, Double Outlet Right Ventricle, and Mitral Atresia.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Miami Childrens Hospital Pharmacy

    6125 SW 31st St, 
    Miami, FL 
     (5.6 miles away)
    Languages Spoken:
    English

    Gabriel Chamyan is a Pediatrics provider practicing medicine in Miami, Florida. Dr. Chamyan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Meckel's Diverticulum, PIK3CA-Related Overgrowth Spectrum, Celiac Disease, and Autism Spectrum Disorder.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Pediatrix Medical Group

    3659 S Miami Ave Ste 3002, 
    Miami, FL 
     (6.2 miles away)
    Languages Spoken:
    English, French, Spanish
    Accepting New Patients
    Offers Telehealth

    Madeleen Mas is a Pediatric Cardiologist practicing medicine in Miami, Florida. Dr. Mas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 38 other conditions, according to our data. Her clinical expertise encompasses Pulmonary Supravalvular Stenosis, Pulmonary Valve Stenosis, Patent Ductus Arteriosus, and Ventricular Septal Defects. Dr. Mas is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Saltzman Tanis Pittell Levin And Jacobson LLC

    13734 SW 56th St, 
    Miami, FL 
     (7.8 miles away)
    Languages Spoken:
    English, Farsi, Spanish
    Accepting New Patients
    Offers Telehealth

    Iran Niroomand-Rad is a Pediatrics provider practicing medicine in Miami, Florida. Dr. Niroomand-Rad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Developmental Dysphasia Familial, Obesity in Children, Autism Spectrum Disorder, and Delayed Growth. Dr. Niroomand-Rad is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Referral may be required

    Belkys Bravo MD PA

    1920 Coral Way, 
    Coral Gables, FL 
     (7.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Belkys Bravo is a Pediatrics provider practicing medicine in Coral Gables, Florida. Dr. Bravo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Herpangina, Developmental Dysphasia Familial, and Delayed Growth. Dr. Bravo is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    628 NW 22nd Ave, 
    Miami, FL 
     (9.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Francisco Martinez is a Pediatrics provider practicing medicine in Miami, Florida. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Viral Gastroenteritis, Obesity in Children, and Scarlet Fever. Dr. Martinez is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Office

    2200 NW 107th Ave, 
    Miami, FL 
     (9.9 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Antonio Rodriguez is a Pediatric Pulmonologist practicing medicine in Miami, Florida. Dr. Rodriguez is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Asthma, Duchenne Muscular Dystrophy, Koolen De Vries Syndrome, and Laryngomalacia. Dr. Rodriguez is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Otolaryngology
    Referral may be required
    1120 Northwest 14th Street, Floor 5, 
    Miami, FL 
     (10.4 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Simon Angeli is an Otolaryngologist practicing medicine in Miami, Florida. Dr. Angeli is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Cholesteatoma, Meniere Disease, Ruptured Eardrum, Glomus Tympanum Tumor, and Mastoidectomy. Dr. Angeli is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    1601 Northwest 12th Avenue, 
    Miami, FL 
     (10.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Jennifer Walton is a Pediatrics provider practicing medicine in Miami, Florida. Dr. Walton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Williams Syndrome, Koolen De Vries Syndrome, CHARGE Syndrome, and Early Infantile Epileptic Encephalopathy. Dr. Walton is currently accepting new patients.

    Showing 1-20 of 27

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near pinecrest, FL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near pinecrest, FL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near pinecrest, FL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near pinecrest, FL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near pinecrest, FL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near pinecrest, FL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near pinecrest, FL?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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