The 20 Best Koolen De Vries Syndrome Doctors Near Me in Alpharetta, GA

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 23 doctor with experience in Koolen De Vries Syndrome near Alpharetta, GA. Of these, 21 are Experienced and 2 are Advanced.

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23 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Alpharetta

    3300 Old Milton Pkwy, 
    Alpharetta,, GA 
     (1.5 miles away)
    Languages Spoken:
    English

    William Border is a Cardiologist practicing medicine in Alpharetta,, Georgia. Dr. Border is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Interrupted Aortic Arch, Hypoplastic Left Heart Syndrome (HLHS), Congenital Heart Disease (CHD), and Tricuspid Atresia.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    3300 Old Milton Pkwy Ste 100, 
    Alpharetta, GA 
     (1.6 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English

    Glen Iannucci is a Pediatric Cardiologist practicing medicine in Alpharetta, Georgia. He has been practicing medicine for over 19 years. Dr. Iannucci is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 125 other conditions, according to our data. His clinical expertise encompasses Marfan Syndrome, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Heart Murmurs. Dr. Iannucci is board certified in American Board Of Pediatrics, 2014.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Alpharetta

    3300 Old Milton Pkwy, 
    Alpharetta, GA 
     (1.5 miles away)
    Languages Spoken:
    English

    Heather Jordan is a Pediatric Cardiologist practicing medicine in Alpharetta, Georgia. Dr. Jordan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Emory Johns Creek Hospital

    6325 Hospital Parkway, 
    Johns Creek, GA 
     (6.7 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English

    Laura Hayes is a Pediatric Radiologist practicing medicine in Johns Creek, Georgia. She has been practicing medicine for over 25 years. Dr. Hayes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Scoliosis, Increased Head Circumference, Short Stature (Growth Disorders), Sheehan Syndrome, and Posterior Fossa Decompression. Dr. Hayes is board certified in American Board Of Radiology, 2009.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's Healthcare Of Atlanta Cardiology - Atlanta

    2970 Brandywine Road, Suite 125, 
    Atlanta, GA 
     (12.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Denver Sallee is a Pediatric Cardiologist practicing medicine in Atlanta, Georgia. Dr. Sallee is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Perrault Syndrome, Mixed Gonadal Dysgenesis, Turner Syndrome, and Bicuspid Aortic Valve. Dr. Sallee is board certified in American Board Of Pediatrics - Pediatric Cardiology. Dr. Sallee is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's Healthcare Of Atlanta Cardiology - Atlanta

    2970 Brandywine Road, Suite 125, 
    Atlanta, GA 
     (12.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Paulette Kropf is a Pediatric Cardiologist practicing medicine in Atlanta, Georgia. Dr. Kropf is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Patent Ductus Arteriosus, Heart Murmurs, Pulmonary Supravalvular Stenosis, and Pulmonary Valve Stenosis. Dr. Kropf is board certified in American Board Of Pediatrics and American Board Of Pediatrics - Pediatric Cardiology. Dr. Kropf is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's Healthcare Of Atlanta Cardiology - Atlanta

    2970 Brandywine Road, Suite 125, 
    Atlanta, GA 
     (12.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Shannon Jones is a Pediatric Cardiologist practicing medicine in Atlanta, Georgia. Dr. Jones is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Pulmonary Atresia, Mitral Atresia, and Hypoplastic Left Heart Syndrome (HLHS). Dr. Jones is board certified in American Board Of Pediatrics. Dr. Jones is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Experienced in Koolen De Vries Syndrome
    Pediatric Orthopedics

    Center For Orthopaedic And Sports Medicine

    1211 Johnson Ferry Rd, 
    Marietta, GA 
     (9.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Justin Kunes is a Pediatric Orthopedics provider practicing medicine in Marietta, Georgia. Dr. Kunes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Hypoplasia of the Tibia with Polydactyly, Polydactyly, Syndactyly, and Proximal Symphalangism.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Independent Neuropsychology Consultants LLC

    5887 Glenridge Dr Ste 140, 
    Atlanta, GA 
     (11.2 miles away)
    Languages Spoken:
    English

    J Robert is a Pediatric Neurologist practicing medicine in Atlanta, Georgia. Dr. Robert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Dravet Syndrome, Lennox-Gastaut Syndrome (LGS), Unverricht-Lundborg Syndrome, and Lafora Disease.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Children's Medical Group P.C.

    6918 Mcginnis Ferry Road, Suite 200, 
    Suwanee, GA 
     (11.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Louis Hempel is a Pediatrics provider practicing medicine in Suwanee, Georgia. Dr. Hempel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Croup, Viral Gastroenteritis, Jaundice, and Asthma in Children.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Children's Healthcare Of Atlanta At Scottish Rite

    1001 Johnson Ferry Rd, 
    Atlanta, GA 
     (12.1 miles away)
    Languages Spoken:
    English

    Lori Pandya is a Pediatrics provider practicing medicine in Atlanta, Georgia. Dr. Pandya is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Cerebral Hypoxia, Respiratory Syncytial Virus (RSV) Infection, and Wolf-Hirschhorn Syndrome.

    Advanced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Advanced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Jeffery Lewis is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Lewis is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses HNRNPH2-Related Disorder, Celiac Disease, Encopresis, and Bowel Incontinence.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Children's Healthcare Of Atlanta At Scottish Rite

    1001 Johnson Ferry Rd, 
    Atlanta, GA 
     (12.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Tyler Shirel is a Physiatrist practicing medicine in Atlanta, Georgia. Dr. Shirel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, CHARGE Syndrome, and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Jeffrey Blumenthal is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Blumenthal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses HNRNPH2-Related Disorder, Colitis, Celiac Disease, and Viral Gastroenteritis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Jay Hochman is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Hochman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses HNRNPH2-Related Disorder, Encopresis, Bowel Incontinence, and Fecal Impaction.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Steven Liu is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Liu is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Malnutrition, Colitis, Viral Gastroenteritis, Shoulder Arthroscopy, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Tatyana Hofmekler is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Hofmekler is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Chronic Idiopathic Constipation (CIC), Encopresis, Bowel Incontinence, and Celiac Disease.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Larry Lewis is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Lewis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Irritable Bowel Syndrome (IBS), Colitis, Viral Gastroenteritis, and Encopresis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    The Childrens Center For Digestive Health Care LLC

    993 Johnson Ferry Rd Ste D440, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Seth Marcus is a Pediatric Gastroenterologist practicing medicine in Atlanta, Georgia. Dr. Marcus is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Eosinophilic Esophagitis, Encopresis, Esophagitis, and Bowel Incontinence.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    9930 Johnson Fry Rd, 
    Atlanta, GA 
     (14.1 miles away)
    Languages Spoken:
    English

    Jordan Weitzner is a Pediatrics provider practicing medicine in Atlanta, Georgia. Dr. Weitzner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses HNRNPH2-Related Disorder, Celiac Disease, Eosinophilic Esophagitis, and Encopresis.

    Showing 1-20 of 23

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Alpharetta, GA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Alpharetta, GA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Alpharetta, GA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Alpharetta, GA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Alpharetta, GA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Alpharetta, GA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Alpharetta, GA?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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