The 20 Best Koolen De Vries Syndrome Doctors Near Me in Evanston, IL

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 206 doctor with experience in Koolen De Vries Syndrome near Evanston, IL. Of these, 179 are Experienced and 27 are Advanced.

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206 providers found
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Oncology
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Oncology

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Allison DePersia, MD, a medical oncologist at Endeavor Health, specializes in inherited cancer syndromes with a focus on cancer risk assessment, screening and prevention. She supports individuals with increased cancer risk by reviewing family history, genetic testing and other key factors to build personalized screening plans. Dr. DePersia integrates evolving research and innovative screening methods, including emerging blood-based technologies, to help identify cancer earlier when it is more treatable. Her clinical approach emphasizes proactive care grounded in evidence-based practice. Dr. Depersia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses BRCA Positive Breast Cancer, HER2 Negative Breast Cancer, DICER1 Syndrome, and Breast Cancer. Dr. Depersia is board certified in American Board Of Internal Medicine.

    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English

    Christopher Kay is a Radiologist and a Pediatric Radiologist practicing medicine in Evanston, Illinois. Dr. Kay is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 68 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Tenosynovitis, and Knock Knees. Dr. Kay is board certified in American Board Of Radiology.

    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery

    Endeavor Health Medical Group

    2650 Ridge Ave., Kellogg Cancer Center, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Seth Krantz, MD, a thoracic surgeon at Endeavor Health, specializes in minimally invasive surgery for lung and esophageal cancers, including robotic-assisted techniques. As chief of thoracic surgery, he is committed to personalized care, from diagnosis through recovery, and is actively involved in research exploring genetic risk factors for cancer. Dr. Krantz is particularly focused on improving early detection and expanding lung cancer screening using genetic insights to better identify patients at risk. Dr. Krantz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Lung Nodules, Pleuropulmonary Blastoma, Endoscopy, and Gastrostomy. Dr. Krantz is board certified in American Board Of Surgery and American Board Of Thoracic Surgery.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Neonatology
    Experienced in Koolen De Vries Syndrome
    Neonatology

    Endeavor Health Medical Group

    2650 Ridge Ave., Suite 1420, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English

    Erin Tran, MD, a maternal fetal medicine specialist at Endeavor Health, provides expert care for high-risk pregnancies. Her work focuses on supporting patients and families through complex situations with empathy, clarity and evidence-based guidance. Dr. Tran values the long-term relationships formed with her patients and often provides care across multiple pregnancies. She also serves as the program director for Endeavor Health’s maternal fetal medicine fellowship, helping train the next generation of specialists. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Premature Infant, Gestational Diabetes, Placenta Previa, and ABO Incompatibility. Dr. Tran is board certified in American Board Of Obstetrics And Gynecology.

    Experienced in Koolen De Vries Syndrome
    Oncology | Otolaryngology | Dentistry
    Experienced in Koolen De Vries Syndrome
    Oncology | Otolaryngology | Dentistry

    Endeavor Health Medical Group

    2650 Ridge Ave., Kellogg Cancer Center, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Bruce Brockstein, MD, a medical oncologist at Endeavor Health, specializes in treating head and neck cancers, soft tissue and bone sarcomas, and melanoma. He also serves as medical director of the Kellogg Cancer Centers at Evanston, Highland Park and Swedish Hospitals, and as division head of hematology and oncology. With nearly 30 years of experience, Dr. Brockstein is committed to patient-centered care and expanding access to comprehensive cancer services within the health system. Dr. Brockstein is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Gastrointestinal Stromal Tumor, Undifferentiated Pleomorphic Sarcoma, Adult Soft Tissue Sarcoma, and Mesenchymoma. Dr. Brockstein is board certified in American Board Of Internal Medicine.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics

    Endeavor Health Medical Group

    9650 Gross Point Rd., Suite 1900, 
    Skokie, IL 
     (2.7 miles away)
    Languages Spoken:
    English

    Peter K. Rabiah, MD, an ophthalmologist at Endeavor Health, specializes in pediatric ophthalmology and uveitis, as well as the treatment of adult strabismus. He cares for patients with conditions such as tear duct abnormalities, retinopathy of prematurity and inflammatory eye diseases. Dr. Rabiah performs procedures including strabismus surgery and comprehensive eye care for both children and adults. Dr. Rabiah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Congenital Toxoplasmosis, Esotropia, Strabismus, and Amblyopia. Dr. Rabiah is board certified in American Board Of Ophthalmology.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine | Hospital Medicine | Dentistry
    Experienced in Koolen De Vries Syndrome
    Internal Medicine | Hospital Medicine | Dentistry

    Endeavor Health Medical Group

    9650 Gross Point Rd., Suite 4900, 
    Skokie, IL 
     (2.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alfonso Tafur, MD, a cardiologist and director of vascular medicine services at Endeavor Health, specializes in managing blood clot disorders and vascular disease. He provides personalized, continuing care while leading research to improve treatment options for complex conditions. Dr. Tafur listens closely to understand each patient’s experience and works to guide them through every phase of their healthcare journey with compassion and precision. Dr. Tafur is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Venous Thromboembolism (VTE), Deep Vein Thrombosis, Pulmonary Embolism, Hepato-Pancreato-Biliary Surgery, and Knee Replacement. Dr. Tafur is board certified in American Board Of Internal Medicine.

    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics | General Surgery
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics | General Surgery

    Endeavor Health Medical Group

    9650 Gross Point Rd., Suite 2900, 
    Skokie, IL 
     (2.7 miles away)
    Languages Spoken:
    English, Spanish

    David Roberts, MD, a pediatric orthopaedic surgeon at Endeavor Health, cares for children from infancy through adolescence with a wide range of musculoskeletal conditions. His expertise includes scoliosis, limb deformities, fractures and sports injuries. Dr. Roberts emphasizes shared decision-making with families to create individualized care plans that align with each child’s needs and goals. He is particularly focused on innovations such as 3D navigation and advanced postoperative pain management for scoliosis surgery, as well as non-surgical treatments like physical therapy, bracing and casting to help children heal and thrive. Dr. Roberts is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Knock Knees, Scoliosis, Kohler Disease, Transcatheter Aortic Valve Replacement (TAVR), and Osteotomy. Dr. Roberts is board certified in American Board Of Orthopedic Surgery.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology | Pediatrics

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (4.0 miles away)
    Languages Spoken:
    English

    Scott Bolton is a Pediatric Gastroenterologist and a Pediatrics provider practicing medicine in Wilmette, Illinois. Dr. Bolton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Eosinophilic Esophagitis, Esophagitis, Eosinophilic Enteropathy, Gastritis, and Endoscopy. Dr. Bolton is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (4.0 miles away)
    Languages Spoken:
    English

    Leslie S. Finkel, MD, a pediatric neurologist at Endeavor Health, has over a decade of experience diagnosing and treating neurological conditions in children. She provides care for a range of concerns, including seizures, developmental delays and neuromuscular disorders, working with families to support each child’s neurological health. Dr. Finkel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Migraine, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Migraine with Brainstem Aura, and Seizures. Dr. Finkel is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology | Pediatrics

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (4.0 miles away)
    Languages Spoken:
    English

    Takijah Heard, MD, a pediatric neurologist and epileptologist at Endeavor Health, provides specialized care for children with seizures and developmental delays. Drawing on training from the University of Chicago and Harvard hospitals, she partners with families to ensure each child receives the support and education they need to reach their fullest potential. Dr. Heard brings compassion and clinical expertise to every step of the care journey, from diagnosis through long-term treatment. Dr. Heard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Generalized Tonic-Clonic Seizure, and Epilepsy Juvenile Absence. Dr. Heard is board certified in American Board Of Psychiatry And Neurology.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English

    Carolyn Donaldson is a Radiologist practicing medicine in Evanston, Illinois. Dr. Donaldson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Gallbladder Disease, Visceromegaly, Angiomyoma, and Uterine Fibroids.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Peter Hulick, MD, a clinical geneticist and chair of personalized medicine at Endeavor Health, helps patients understand how genomic information can inform care and improve health outcomes. With a career rooted in genetics since high school, he works to integrate genomic data into everyday decision-making for patients and clinicians. Dr. Hulick focuses on risk assessment, early detection and treatment guidance by combining science, patient context and team collaboration. He also leads efforts to make genomic care more accessible across the health system. Dr. Hulick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Retinopathy Pigmentary Mental Retardation, Li-Fraumeni Syndrome, and BRCA Positive Breast Cancer. Dr. Hulick is board certified in American Board Of Internal Medicine and American Board Of Medical Genetics.

    Advanced in Koolen De Vries Syndrome
    Nurse Practitioner
    Advanced in Koolen De Vries Syndrome
    Nurse Practitioner
    3722 Touhy Ave, 
    Skokie, IL 
     (3.6 miles away)
    Languages Spoken:
    English

    Elizabeth Cappella is a Nurse Practitioner practicing medicine in Skokie, Illinois. Ms. Cappella is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Endocrinology

    Endeavor Health Medical Group

    9977 Woods Dr., Suite 300, 
    Skokie, IL 
     (3.8 miles away)
    Languages Spoken:
    English

    Stephanie Drobac, MD, a pediatric endocrinologist at Endeavor Health, specializes in hormone-related conditions affecting children and adolescents. She treats a variety of endocrine disorders including diabetes, adrenal and thyroid conditions, and growth concerns. Dr. Drobac partners with families to support healthy development and long-term wellbeing. Dr. Drobac is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Precocious Puberty. Dr. Drobac is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Hospital Medicine
    Experienced in Koolen De Vries Syndrome
    Hospital Medicine

    Advocate Medical Group Behavioral Health

    1875 Dempster St, Ste 470, 
    Park Ridge, IL 
     (8.3 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Geoffrey Levin is a Hospital Medicine provider practicing medicine in Park Ridge, Illinois. Dr. Levin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Major Depression, Seasonal Affective Disorder (SAD), Bipolar Disorder (BPD), and Generalized Anxiety Disorder (GAD). Dr. Levin is board certified in American Board Of Psychiatry & Neurology, Psychiatry.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology

    Advocate Children's Medical Group Pulmonology

    Park Ridge, IL 
     (8.6 miles away)
    Languages Spoken:
    English

    Kimberly Watts is a Pediatric Pulmonologist practicing medicine in Park Ridge, Illinois. Dr. Watts is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy Type 2, Tracheoesophageal Fistula, Secondary Immunodeficiency (SID), and Cystic Fibrosis. Dr. Watts is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    1000 Central St, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Deborah Feingold-Fisher is a Nurse Practitioner practicing medicine in Evanston, Illinois. Ms. Feingold-Fisher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome. Ms. Feingold-Fisher is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English

    Brian Bordini is a Pediatric Endocrinologist practicing medicine in Evanston, Illinois. Dr. Bordini is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Precocious Puberty.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Chicagoland Children's Health Alliance-Wilmette

    3232 Lake Ave Ste 330, 
    Wilmette, IL 
     (2.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jonathan Cordova is a Pediatric Gastroenterologist practicing medicine in Wilmette, Illinois. Dr. Cordova is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Celiac Disease, Eosinophilic Esophagitis, Malnutrition, and Crohn's Disease.

    Showing 1-20 of 206

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Evanston, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Evanston, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Evanston, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Evanston, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Evanston, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Evanston, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Evanston, IL?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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