The 20 Best Koolen De Vries Syndrome Doctors Near Me in evanston, IL

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 187 doctor with experience in Koolen De Vries Syndrome near evanston, IL. Of these, 167 are Experienced and 20 are Advanced.

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187 providers found
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine
    Referral required

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Peter Hulick is a Medical Genetics specialist and a Cardiologist practicing medicine in Evanston, Illinois. Dr. Hulick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Retinopathy Pigmentary Mental Retardation, BRCA Positive Breast Cancer, and HER2 Negative Breast Cancer. Dr. Hulick is board certified in American Board Of Internal Medicine and American Board Of Medical Genetics.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Oncology
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Oncology
    Referral required

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Allison Depersia is a Medical Genetics specialist and an Oncologist practicing medicine in Evanston, Illinois. Dr. Depersia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and DICER1 Syndrome. Dr. Depersia is board certified in American Board Of Internal Medicine. Dr. Depersia is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Kay is a Radiologist and a Pediatric Radiologist practicing medicine in Evanston, Illinois. Dr. Kay is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 68 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Tenosynovitis, and Knock Knees. Dr. Kay is board certified in American Board Of Radiology. Dr. Kay is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Pathology, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Karen Kaul is a Medical Genetics provider practicing medicine in Evanston, Illinois. Dr. Kaul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 64 other conditions, according to our data. Her clinical expertise encompasses Vitamin D Deficiency, Menopause, Heart Failure with Preserved Ejection Fraction (HFpEF), and Febrile Neutropenia. Dr. Kaul is board certified in American Board Of Pathology. Dr. Kaul is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Kellogg Cancer Center, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Seth Krantz is a Thoracic Surgeon and a General Surgeon practicing medicine in Evanston, Illinois. Dr. Krantz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Lung Nodules, Pleuropulmonary Blastoma, Endoscopy, and Gastrostomy. Dr. Krantz is board certified in American Board Of Surgery and American Board Of Thoracic Surgery. Dr. Krantz is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hematology | Otolaryngology | Oncology
    Experienced in Koolen De Vries Syndrome
    Hematology | Otolaryngology | Oncology
    Referral may be required

    Kellogg Cancer Center Evanston

    2650 Ridge Ave, Ste K100, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Bruce Brockstein, MD, a medical oncologist at Endeavor Health, specializes in treating head and neck cancers, soft tissue and bone sarcomas, and melanoma. He also serves as medical director of the Kellogg Cancer Centers at Evanston, Highland Park and Swedish Hospitals, and as division head of hematology and oncology. With nearly 30 years of experience, Dr. Brockstein is committed to patient-centered care and expanding access to comprehensive cancer services within the health system. Dr. Brockstein is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Gastrointestinal Stromal Tumor, Undifferentiated Pleomorphic Sarcoma, Adult Soft Tissue Sarcoma, and Mesenchymoma. Dr. Brockstein is board certified in American Board Of Internal Medicine. Dr. Brockstein is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neonatology
    Experienced in Koolen De Vries Syndrome
    Neonatology
    Referral may be required

    Endeavor Health Medical Group

    800 Austin St., Suite 210, 
    Evanston, IL 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Erin Tran is a Neonatologist practicing medicine in Evanston, Illinois. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Premature Infant, Gestational Diabetes, Placenta Previa, and ABO Incompatibility. Dr. Tran is board certified in American Board Of Obstetrics And Gynecology. Dr. Tran is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Referral may be required

    Endeavor Health Medical Group

    9650 Gross Point Rd., Suite 1900, 
    Skokie, IL 
     (2.7 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Peter Rabiah is an Ophthalmologist and a Pediatrics provider practicing medicine in Skokie, Illinois. Dr. Rabiah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Congenital Toxoplasmosis, Esotropia, Strabismus, and Amblyopia. Dr. Rabiah is board certified in American Board Of Ophthalmology. Dr. Rabiah is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Endocrinology
    Referral may be required

    Endeavor Health Medical Group

    9977 Woods Dr., Suite 300, 
    Skokie, IL 
     (3.8 miles away)
    Languages Spoken:
    English, Filipino, Spanish
    Accepting New Patients

    Stephanie Drobac is a Pediatric Endocrinologist and an Endocrinologist practicing medicine in Skokie, Illinois. Dr. Drobac is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Precocious Puberty. Dr. Drobac is board certified in American Board Of Pediatrics. Dr. Drobac is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral required

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (4.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Leslie Finkel is a Pediatric Neurologist practicing medicine in Wilmette, Illinois. Dr. Finkel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, Spasmus Nutans, and Juvenile Myoclonic Epilepsy. Dr. Finkel is board certified in American Board Of Psychiatry And Neurology. Dr. Finkel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology | Pediatrics
    Referral may be required

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (4.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Takijah Heard is a Pediatric Neurologist and a Neurologist practicing medicine in Wilmette, Illinois. Dr. Heard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Seizures, Partial Familial Epilepsy, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Shapiro Syndrome. Dr. Heard is board certified in American Board Of Psychiatry And Neurology. Dr. Heard is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    259 E Erie St Ste 1600, Lavin Family Pavilion, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Justin Boike is a Hepatologist practicing medicine in Chicago, Illinois. Dr. Boike is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Ascites, Hepatitis, Portal Hypertension, Liver Transplant, and Hepato-Pancreato-Biliary Surgery. Dr. Boike is board certified in American Board Of Internal Medicine - Gastroenterology (Certified). Dr. Boike is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required
    1000 Central St, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Deborah Feingold-Fisher is a Nurse Practitioner practicing medicine in Evanston, Illinois. Feingold-Fisher, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Koolen De Vries Syndrome. Feingold-Fisher, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English

    Mohamed Eldibany is a Hematologist practicing medicine in Evanston, Illinois. Dr. Eldibany is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 119 other conditions, according to our data. His clinical expertise encompasses Vitamin D Deficiency, Cyclic Neutropenia, Anemia, and Agranulocytosis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Jonathan Cordova is a Pediatric Gastroenterologist practicing medicine in Evanston, Illinois. Dr. Cordova is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Celiac Disease, Eosinophilic Esophagitis, Malnutrition, and Crohn's Disease. Dr. Cordova is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Carolyn Donaldson is a Radiologist practicing medicine in Evanston, Illinois. Dr. Donaldson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Gallbladder Disease, Visceromegaly, Angiomyoma, and Uterine Fibroids. Dr. Donaldson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Referral may be required

    Endeavor Health Evanston Hospital

    2650 Ridge Ave, 
    Evanston, IL 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Brian Bordini is a Pediatric Endocrinologist practicing medicine in Evanston, Illinois. Dr. Bordini is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Precocious Puberty. Dr. Bordini is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    3722 Touhy Ave, 
    Skokie, IL 
     (3.6 miles away)
    Languages Spoken:
    English

    Alexander Kula is a Pediatrics provider practicing medicine in Skokie, Illinois. Dr. Kula is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Wildervanck Syndrome, CHARGE Syndrome, Microcephaly Deafness Syndrome, and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Office

    259 E Erie St Ste 2450, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English

    Bahram Rahmani is an Ophthalmologist practicing medicine in Chicago, Illinois. Dr. Rahmani is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Microphthalmia, Strabismus, Microphthalmia with Linear Skin Defects Syndrome, Trabeculectomy, and Cataract Removal.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required
    675 N St Clair St Ste 19-100, Galter Pavilion, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lisa Wilsbacher is a Cardiologist practicing medicine in Chicago, Illinois. Dr. Wilsbacher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy (DCM), Cardiomyopathy, Familial Dilated Cardiomyopathy, Cardiac Ablation, and Pacemaker Implantation. Dr. Wilsbacher is board certified in American Board Of Internal Medicine - Cardiovascular Disease (Certified). Dr. Wilsbacher is currently accepting new patients.

    Showing 1-20 of 187

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near evanston, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near evanston, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near evanston, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near evanston, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near evanston, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near evanston, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near evanston, IL?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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