The 20 Best Koolen De Vries Syndrome Doctors Near Me in glenview, IL

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 54 doctor with experience in Koolen De Vries Syndrome near glenview, IL. Of these, 48 are Experienced and 6 are Advanced.

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54 providers found
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics | General Surgery
    Experienced in Koolen De Vries Syndrome
    Orthopedics | Pediatrics | General Surgery
    Referral may be required

    Endeavor Health Medical Group

    2180 Pfingsten Rd., Suite 3100, 
    Glenview, IL 
     (2.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    David Roberts is an Orthopedics specialist and a Pediatrics provider practicing medicine in Glenview, Illinois. Dr. Roberts is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Knock Knees, Scoliosis, Kohler Disease, and Beukes Familial Hip Dysplasia. Dr. Roberts is board certified in American Board Of Orthopedic Surgery. Dr. Roberts is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    Office

    1131 Techny Rd, 
    Northbrook, IL 
     (2.6 miles away)
    Languages Spoken:
    English, Arabic, Arabic - Jordanian, Polish, Spanish
    Accepting New Patients
    Offers Telehealth

    Safwan Halabi is a Pediatric Radiologist practicing medicine in Northbrook, Illinois. Dr. Halabi is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Short Stature (Growth Disorders), Chondrodysplasia, Grebe Type, Multicentric Carpotarsal Osteolysis Syndrome, and Osteopoikilosis. Dr. Halabi is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Advocate Lutheran General Hospital

    1775 Dempster St, 
    Park Ridge, IL 
     (3.0 miles away)
    Languages Spoken:
    English, Italian
    Accepting New Patients

    Joseph Camarda is a Pediatric Cardiologist practicing medicine in Park Ridge, Illinois. Dr. Camarda is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Marfan Syndrome, Arachnodactyly, X-Linked Cardiac Valvular Dysplasia, and Cardiac Diverticulum. Dr. Camarda is board certified in The American Board Of Pediatrics - Pediatrics and The American Board Of Pediatrics - Pediatric Cardiology. Dr. Camarda is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral required

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (3.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Leslie Finkel is a Pediatric Neurologist practicing medicine in Wilmette, Illinois. Dr. Finkel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, Spasmus Nutans, and Juvenile Myoclonic Epilepsy. Dr. Finkel is board certified in American Board Of Psychiatry And Neurology. Dr. Finkel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology | Neurology | Pediatrics
    Referral may be required

    Chicagoland Childrens Health Alliance

    3232 Lake Ave., Suite 330, 
    Wilmette, IL 
     (3.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Takijah Heard is a Pediatric Neurologist and a Neurologist practicing medicine in Wilmette, Illinois. Dr. Heard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Seizures, Partial Familial Epilepsy, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Shapiro Syndrome. Dr. Heard is board certified in American Board Of Psychiatry And Neurology. Dr. Heard is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Endocrinology
    Referral may be required

    Endeavor Health Medical Group

    9977 Woods Dr., Suite 300, 
    Skokie, IL 
     (3.4 miles away)
    Languages Spoken:
    English, Filipino, Spanish
    Accepting New Patients

    Stephanie Drobac is a Pediatric Endocrinologist and an Endocrinologist practicing medicine in Skokie, Illinois. Dr. Drobac is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Idiopathic Short Stature (ISS), Familial Short Stature (FSS), Short Stature (Growth Disorders), and Precocious Puberty. Dr. Drobac is board certified in American Board Of Pediatrics. Dr. Drobac is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Ophthalmology | Pediatrics
    Referral may be required

    Endeavor Health Medical Group

    9650 Gross Point Rd., Suite 1900, 
    Skokie, IL 
     (4.4 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Peter Rabiah is an Ophthalmologist and a Pediatrics provider practicing medicine in Skokie, Illinois. Dr. Rabiah is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Congenital Toxoplasmosis, Esotropia, Strabismus, and Amblyopia. Dr. Rabiah is board certified in American Board Of Ophthalmology. Dr. Rabiah is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Referral may be required

    Endeavor Health Clinical Operations-Glenview Psc

    1435 Waukegan Rd, 
    Glenview, IL 
     (1.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Susie Ohr is a Pediatrics provider practicing medicine in Glenview, Illinois. Dr. Ohr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Delayed Growth, Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Short Stature (Growth Disorders). Dr. Ohr is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    2601 Compass Rd Ste 120, 
    Glenview, IL 
     (1.3 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Leslie Dion is a Pediatrics provider practicing medicine in Glenview, Illinois. Dr. Dion is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Delayed Growth, Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Short Stature (Growth Disorders). Dr. Dion is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Office

    1131 Techny Rd, 
    Northbrook, IL 
     (2.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Steven Lestrud is a Pediatric Pulmonologist practicing medicine in Northbrook, Illinois. Dr. Lestrud is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Congenital Unilateral Pulmonary Hypoplasia, Congenital Central Hypoventilation Syndrome, Asthma, and Pulmonary Hypertension. Dr. Lestrud is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    General Surgery
    Experienced in Koolen De Vries Syndrome
    General Surgery
    Referral may be required

    Office

    1131 Techny Rd, 
    Northbrook, IL 
     (2.6 miles away)
    Languages Spoken:
    English

    Jonathan Ida is a General Surgeon practicing medicine in Northbrook, Illinois. Dr. Ida is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses CHARGE Syndrome, Koolen De Vries Syndrome, Subglottic Stenosis, Adenoidectomy, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Office

    1131 Techny Rd, 
    Northbrook,, IL 
     (2.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Amy Lay is a Pediatric Cardiologist practicing medicine in Northbrook,, Illinois. Dr. Lay is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 37 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Ventricular Septal Defects, Cardiac Diverticulum, and X-Linked Cardiac Valvular Dysplasia. Dr. Lay is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Office

    1131 Techny Rd, 
    Northbrook,, IL 
     (2.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Justin Jin is a Pediatric Cardiologist practicing medicine in Northbrook,, Illinois. Dr. Jin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Dextrocardia, Dextrocardia with Situs Inversus, Heterotaxy Syndrome, and Situs Inversus. Dr. Jin is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    900 Skokie Blvd Ste 175, 
    Northbrook, IL 
     (3.5 miles away)
    Languages Spoken:
    English

    Susan Keeshin is a Physiatrist practicing medicine in Northbrook, Illinois. Dr. Keeshin is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Hemiplegia, Foot Drop, Poliomyelitis, and Post Polio Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Park Ridge Pediatrics PC

    101 S Washington Ave Ste 122, 
    Park Ridge, IL 
     (4.7 miles away)
    Languages Spoken:
    English

    Susan Crawford is a Pediatrics provider practicing medicine in Park Ridge, Illinois. Dr. Crawford is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Croup, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Herpangina, and Delayed Growth.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Cardiology | Neuromusculoskeletal Medicine
    Referral required

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
     (7.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Peter Hulick is a Medical Genetics specialist and a Cardiologist practicing medicine in Evanston, Illinois. Dr. Hulick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Retinopathy Pigmentary Mental Retardation, BRCA Positive Breast Cancer, and HER2 Negative Breast Cancer. Dr. Hulick is board certified in American Board Of Internal Medicine and American Board Of Medical Genetics.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Oncology
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Oncology
    Referral required

    Endeavor Health Medical Group

    1000 Central St., Suite 610, 
    Evanston, IL 
     (7.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Allison Depersia is a Medical Genetics specialist and an Oncologist practicing medicine in Evanston, Illinois. Dr. Depersia is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and DICER1 Syndrome. Dr. Depersia is board certified in American Board Of Internal Medicine. Dr. Depersia is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Radiology | Pediatric Radiology
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Radiology, 
    Evanston, IL 
     (7.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Christopher Kay is a Radiologist and a Pediatric Radiologist practicing medicine in Evanston, Illinois. Dr. Kay is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 68 other conditions, according to our data. His clinical expertise encompasses Pleurisy, Pleural Effusion, Tenosynovitis, and Knock Knees. Dr. Kay is board certified in American Board Of Radiology. Dr. Kay is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Department Of Pathology, 
    Evanston, IL 
     (7.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Karen Kaul is a Medical Genetics provider practicing medicine in Evanston, Illinois. Dr. Kaul is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 64 other conditions, according to our data. Her clinical expertise encompasses Vitamin D Deficiency, Menopause, Heart Failure with Preserved Ejection Fraction (HFpEF), and Febrile Neutropenia. Dr. Kaul is board certified in American Board Of Pathology. Dr. Kaul is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Experienced in Koolen De Vries Syndrome
    Thoracic Surgery | General Surgery
    Referral may be required

    Endeavor Health Medical Group

    2650 Ridge Ave., Kellogg Cancer Center, 
    Evanston, IL 
     (7.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Seth Krantz is a Thoracic Surgeon and a General Surgeon practicing medicine in Evanston, Illinois. Dr. Krantz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Lung Cancer, Lung Nodules, Pleuropulmonary Blastoma, Endoscopy, and Gastrostomy. Dr. Krantz is board certified in American Board Of Surgery and American Board Of Thoracic Surgery. Dr. Krantz is currently accepting new patients.

    Showing 1-20 of 54

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near glenview, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near glenview, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near glenview, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near glenview, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near glenview, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near glenview, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near glenview, IL?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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