The 20 Best Koolen De Vries Syndrome Doctors Near Me in Carmel, IN

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors near Carmel, IN

Last Updated: 02/22/2026

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MediFind found 142 doctor with experience in Koolen De Vries Syndrome near Carmel, IN. Of these, 122 are Experienced and 20 are Advanced.

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142 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Iu Health Dermatology-Carmel

    11590 N Meridian St Ste 450, 
    Carmel, IN 
     (3.2 miles away)
    Languages Spoken:
    English

    Jenna Streicher is a Pediatrics provider in Carmel, Indiana. Dr. Streicher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hemangioma, Familial Multiple Nevi Flammei, Stork Bite, and Vascular Birthmark.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    11645 Illinois St, 
    Carmel, IN 
     (2.6 miles away)
    Languages Spoken:
    English

    Anna Roshal is an Oncologist in Carmel, Indiana. Dr. Roshal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Gastroesophageal Junction Cancer, Familial Colorectal Cancer, Paget Disease of the Breast, and Inflammatory Breast Cancer.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Office

    11590 N Meridian St Ste 300, 
    Carmel, IN 
     (3.2 miles away)
    Languages Spoken:
    English

    Bittu Majmudar is a Pediatric Neurologist in Carmel, Indiana. Dr. Majmudar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Bilateral Perisylvian Polymicrogyria, Joubert Syndrome, Hydranencephaly, and Polymicrogyria.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    11590 N Meridian St Ste 300, 
    Carmel, IN 
     (3.2 miles away)
    Languages Spoken:
    English

    Susan Conrad is a Neurologist in Carmel, Indiana. Dr. Conrad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Memory Loss, and Partial Familial Epilepsy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Office

    11590 N Meridian St Ste 300, 
    Carmel, IN 
     (3.2 miles away)
    Languages Spoken:
    English

    Sarah Delima is a Pediatric Neurologist in Carmel, Indiana. Dr. Delima is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Cerebellar Agenesis, Hydranencephaly, and Lissencephaly 2.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology

    Office

    11725 Illinois St Ste 240, 
    Carmel, IN 
     (3.2 miles away)
    Languages Spoken:
    English

    Steven Steiner is a Pediatric Gastroenterologist in Carmel, Indiana. Dr. Steiner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Crohn's Disease, Viral Gastroenteritis, Ulcerative Colitis, Colitis, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology

    Office

    11590 N Meridian St Ste 300, 
    Carmel, IN 
     (3.2 miles away)
    Languages Spoken:
    English

    Ashley Moeller is a Pediatric Neurologist in Carmel, Indiana. Dr. Moeller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Progressive Myoclonic Epilepsy, Lafora Disease, and Unverricht-Lundborg Syndrome.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology

    Office

    10300 N Illinois St Ste 2010, 
    Carmel, IN 
     (3.7 miles away)
    Languages Spoken:
    English

    Derek Sprunger is an Ophthalmologist in Carmel, Indiana. Dr. Sprunger is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Amblyopia, Brown Syndrome, and Esotropia.

    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Gastroenterology

    Riverview Health Physicians Gastroenterology

    17600 Shamrock Blvd, 
    Westfield, IN 
     (4.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Sashidhar Sagi is a Gastroenterologist in Westfield, Indiana. Dr. Sagi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Crohn's Disease, Viral Gastroenteritis, Colitis, Colonoscopy, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Radiology
    Experienced in Koolen De Vries Syndrome
    Radiology

    Radiology Of Indiana P C.

    9998 Crosspoint Blvd, 
    Indianapolis, IN 
     (5.8 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Stefan Hoff is a Radiologist in Indianapolis, Indiana. Dr. Hoff has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Gallbladder Disease, Visceromegaly, Non-Alcoholic Fatty Liver Disease, and Thyroid Nodule.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    Iu Health Dermatology-Downtown Indianapolis

    550 University Blvd Ste 3240, 
    Indianapolis, IN 
     (13.6 miles away)
    Languages Spoken:
    English

    Anita Haggstrom is a Pediatrics provider in Indianapolis, Indiana. Dr. Haggstrom is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hemangioma, Vascular Birthmark, Aplasia Cutis Congenita, PHACE Syndrome, and Tissue Biopsy.

    Experienced in Koolen De Vries Syndrome
    Interventional Radiology
    Experienced in Koolen De Vries Syndrome
    Interventional Radiology

    Radiology Of Indiana P C.

    9998 Crosspoint Blvd, 
    Indianapolis, IN 
     (5.8 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Raja Ramaswamy is an Interventional Radiologist in Indianapolis, Indiana. Dr. Ramaswamy has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ascites, Relapsed Refractory Multiple Myeloma (RRMM), SVC Obstruction, Thrombectomy, and Bone Marrow Aspiration.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant

    Pediatric Plastic Surgery

    8402 Harcourt Rd, 
    Indianapolis, IN 
     (6.3 miles away)
    Languages Spoken:
    English

    Megan Railing is a Physician Assistant in Indianapolis, Indiana. Ms. Railing is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Distal 18q Deletion Syndrome, Jacobsen Syndrome, 15q11.2 Microdeletion, and Triple X Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Office

    6626 E 75th St Ste 500, 
    Indianapolis, IN 
     (6.3 miles away)
    Languages Spoken:
    English

    Susan Caldecott is a Pediatrics provider in Indianapolis, Indiana. Dr. Caldecott is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Myotonia Congenita.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology

    Peyton Manning Children's Hospital-Indianapolis Pediatric Ear, Nose And Throat

    8402 Harcourt Rd Ste 400, 
    Indianapolis, IN 
     (6.4 miles away)
    Languages Spoken:
    English

    Ravindhra Elluru is a Pediatric Otolaryngologist in Indianapolis, Indiana. Dr. Elluru is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Otitis, Enlarged Adenoids, Van Der Woude Syndrome, Myringotomy, and Adenoidectomy.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    MDVIP - Zionsville, IN

    1650 W Oak St Ste 103, 
    Zionsville, IN 
     (8.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Shull is a primary care provider, practicing in Family Medicine in Zionsville, Indiana. Dr. Shull is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Sinusitis, Empyema, Cerebral Palsy, and Autism Spectrum Disorder.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Iu Health Kidney Health-Fishers

    13100 E 136th St Ste 1200, 
    Fishers, IN 
     (9.1 miles away)
    Languages Spoken:
    English

    Sean Keller is a primary care provider, practicing in Internal Medicine in Fishers, Indiana. Dr. Keller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are High Cholesterol, Cirrhosis, Familial Hypertension, and Hypertension.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Iu Health Kidney Health-Fishers

    13100 E 136th St Ste 1200, 
    Fishers, IN 
     (9.1 miles away)
    Languages Spoken:
    English

    Elizabeth Partain is a primary care provider, practicing in Internal Medicine in Fishers, Indiana. Dr. Partain is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Acne, Insomnia, and Hypothyroidism.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant

    Orthoindy Northwest

    8450 Northwest Blvd, 
    Indianapolis, IN 
     (9.3 miles away)
    Languages Spoken:
    English

    Amy Caskey is a Physician Assistant in Indianapolis, Indiana. Ms. Caskey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Lissencephaly 2, VLDLR-Associated Cerebellar Hypoplasia, Orofaciodigital Syndrome 6, and Coach Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    IU Health Methodist Hospital

    1701 Senate Blvd, 
    Indianapolis, IN 
     (13.3 miles away)
    Languages Spoken:
    English

    Boaz Karmazyn is a Pediatric Radiologist in Indianapolis, Indiana. Dr. Karmazyn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cortical Dysplasia, Neurogenic Bladder, Corpus Callosum Dysgenesis Hypopituitarism, Subcortical Band Heterotopia, and Orchiectomy.

    Showing 1-20 of 142

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Carmel, IN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Carmel, IN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Carmel, IN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Carmel, IN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Carmel, IN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Carmel, IN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Carmel, IN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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