The 20 Best Koolen De Vries Syndrome Doctors Near Me in westfield, IN

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 22 doctor with experience in Koolen De Vries Syndrome near westfield, IN. Of these, 21 are Experienced and 1 are Advanced.

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22 providers found
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Iu Health Dermatology-Carmel

    11590 N Meridian St Ste 450, 
    Carmel, IN 
     (6.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Anita Haggstrom is a Pediatrics provider practicing medicine in Carmel, Indiana. Dr. Haggstrom is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Vascular Birthmark, Aplasia Cutis Congenita, Stork Bite, Congenital Athymia, and Tissue Biopsy. Dr. Haggstrom is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Gastroenterology
    Referral may be required

    Riverview Health Physicians Gastroenterology

    17600 Shamrock Blvd, 
    Westfield, IN 
     (0.3 miles away)
    Languages Spoken:
    English, Hindi, Telugu
    Accepting New Patients
    Offers Telehealth

    Sashidhar Sagi is a Gastroenterologist practicing medicine in Westfield, Indiana. Dr. Sagi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Crohn's Disease, Viral Gastroenteritis, Colitis, Colonoscopy, and Endoscopy. Dr. Sagi is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    11725 Illinois St Ste 265, 
    Carmel, IN 
     (6.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Paul Bustion is a Psychiatrist practicing medicine in Carmel, Indiana. Dr. Bustion is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Hereditary Ataxia, Conversion Disorder, Undifferentiated Connective Tissue Disease (UCTD), and Rathke Cleft Cyst. Dr. Bustion is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    11725 Illinois St Ste 265, 
    Carmel, IN 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Riley Snook is a Neurologist practicing medicine in Carmel, Indiana. Dr. Snook is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Chronic Inflammatory Demyelinating Polyneuropathy, Encephalitis, Rasmussen Encephalitis, and Anti-NMDA Receptor Encephalitis. Dr. Snook is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Indiana University Health North Hospital

    11700 N Meridian St, 
    Carmel, IN 
     (6.0 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Robert Bielski is an Orthopedics provider practicing medicine in Carmel, Indiana. Dr. Bielski is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Clubfoot, Claw Foot, Legg-Calve-Perthes Disease (LCPD), Osteotomy, and Tenotomy. Dr. Bielski is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Referral may be required

    Indiana University Health North Hospital

    11700 N Meridian St, 
    Carmel, IN 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Nadia Krupp is a Pediatric Pulmonologist practicing medicine in Carmel, Indiana. Dr. Krupp is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Asthma, Subglottic Stenosis, Stridor, Cystic Fibrosis, and Myringotomy. Dr. Krupp is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Indiana University Health North Hospital

    11700 N Meridian St, 
    Carmel, IN 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Richelle Baker is a Pediatrics provider practicing medicine in Carmel, Indiana. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Cerebral Hypoxia, Coach Syndrome, Lissencephaly 2, Agyria Pachygyria Polymicrogyria, and Gastrostomy. Dr. Baker is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Experienced in Koolen De Vries Syndrome
    Pediatric Gastroenterology
    Referral may be required

    Indiana University Health North Hospital

    11700 N Meridian St, 
    Carmel, IN 
     (6.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Chaowapong Jarasvaraparn is a Pediatric Gastroenterologist practicing medicine in Carmel, Indiana. Dr. Jarasvaraparn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Biliary Atresia, Wilson Disease, Gilbert Syndrome, Non-Alcoholic Fatty Liver Disease, and Liver Transplant. Dr. Jarasvaraparn is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    11590 N Meridian St Ste 300, 
    Carmel, IN 
     (6.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Susan Conrad is a Neurologist practicing medicine in Carmel, Indiana. Dr. Conrad is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Partial Familial Epilepsy. Dr. Conrad is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    11645 Illinois St, 
    Carmel, IN 
     (6.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Anna Roshal is an Oncologist practicing medicine in Carmel, Indiana. Dr. Roshal is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 60 other conditions, according to our data. Her clinical expertise encompasses Gastroesophageal Junction Cancer, Familial Colorectal Cancer, Paget Disease of the Breast, and Inflammatory Breast Cancer. Dr. Roshal is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Office

    10300 N Illinois St Ste 2010, 
    Carmel, IN 
     (7.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Derek Sprunger is an Ophthalmologist practicing medicine in Carmel, Indiana. Dr. Sprunger is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Strabismus, Amblyopia, Brown Syndrome, and Esotropia. Dr. Sprunger is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    MDVIP - Zionsville, IN

    1650 W Oak St Ste 103, 
    Zionsville, IN 
     (9.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Shull is a primary care provider, practicing in Family Medicine in Zionsville, Indiana. Dr. Shull is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Sinusitis, Empyema, Cerebral Palsy, and Autism Spectrum Disorder. Dr. Shull is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Radiology Of Indiana P C.

    9998 Crosspoint Blvd, 
    Indianapolis, IN 
     (9.2 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Stefan Hoff is a Radiologist practicing medicine in Indianapolis, Indiana. He has been practicing medicine for over 17 years. Dr. Hoff is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Gallbladder Disease, Visceromegaly, Non-Alcoholic Fatty Liver Disease, and Thyroid Nodule. Dr. Hoff is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Interventional Radiology
    Experienced in Koolen De Vries Syndrome
    Interventional Radiology
    Referral may be required

    Radiology Of Indiana P C.

    9998 Crosspoint Blvd, 
    Indianapolis, IN 
     (9.2 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Raja Ramaswamy is an Interventional Radiologist practicing medicine in Indianapolis, Indiana. He has been practicing medicine for over 17 years. Dr. Ramaswamy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Ascites, Relapsed Refractory Multiple Myeloma (RRMM), SVC Obstruction, Thrombectomy, and Gastrostomy. Dr. Ramaswamy is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Experienced in Koolen De Vries Syndrome
    Physician Assistant
    Referral may be required

    Pediatric Plastic Surgery

    8402 Harcourt Rd, 
    Indianapolis, IN 
     (9.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Megan Railing is a Physician Assistant practicing medicine in Indianapolis, Indiana. Railing, PA is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Jacobsen Syndrome, 15q11.2 Microdeletion, Distal 18q Deletion Syndrome, and Triple X Syndrome. Railing, PA is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Referral may be required

    Peyton Manning Children's - Fishers Pediatric Specialty Care

    13914 Southeastern Pkwy, Ste 305, 
    Fishers, IN 
     (11.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Ravindhra Elluru is a Pediatric Otolaryngologist practicing medicine in Fishers, Indiana. Dr. Elluru is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Enlarged Adenoids, Van Der Woude Syndrome, Tonsillitis, Myringotomy, and Adenoidectomy. Dr. Elluru is board certified in The American Board Of Otolaryngology Head And Neck Surgery - Otolaryngology. Dr. Elluru is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Experienced in Koolen De Vries Syndrome
    Nurse Practitioner
    Referral may be required

    Peyton Manning Children's Hospital At Ascension St. Vincent Cardiology

    8333 Naab Rd Ste 320, 
    Indianapolis,, IN 
     (10.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Scheffel Scheffel is a Nurse Practitioner practicing medicine in Indianapolis,, Indiana. Scheffel, NP is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses White Sponge Nevus, Microtia, Koolen De Vries Syndrome, and Sleepwalking (Somnambulism). Scheffel, NP is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    6626 E 75th St Ste 500, 
    Indianapolis, IN 
     (10.6 miles away)
    Languages Spoken:
    English

    Susan Caldecott-Johnson is a Pediatrics provider practicing medicine in Indianapolis, Indiana. Dr. Caldecott-Johnson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Neurogenic Bowel, Coach Syndrome, Bilateral Perisylvian Polymicrogyria, and Orofaciodigital Syndrome 6.

    Experienced in Koolen De Vries Syndrome
    Internal Medicine
    Experienced in Koolen De Vries Syndrome
    Internal Medicine

    Iu Health Kidney Health-Fishers

    13100 E 136th St Ste 1200, 
    Fishers, IN 
     (11.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sean Keller is a primary care provider, practicing in Internal Medicine in Fishers, Indiana. Dr. Keller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses High Cholesterol, Cirrhosis, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Keller is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Community Physicians Of Indiana Inc

    9669 E 146th St Ste 330, 
    Noblesville, IN 
     (11.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Preetha Sinha is an Orthopedics provider practicing medicine in Noblesville, Indiana. Dr. Sinha is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Clubfoot, Beukes Familial Hip Dysplasia, Arthrogryposis Multiplex Congenita, and Achard Syndrome. Dr. Sinha is currently accepting new patients.

    Showing 1-20 of 22

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near westfield, IN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near westfield, IN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near westfield, IN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near westfield, IN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near westfield, IN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near westfield, IN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near westfield, IN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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