MediFind found 117 doctor with experience in Koolen De Vries Syndrome near Minnesota, US. Of these, 103 are Experienced and 14 are Advanced.
Gillette Childrens Specialty Healthcare
Tenner Guillaume is an Orthopedics provider in Saint Paul, Minnesota. Dr. Guillaume is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Kyphosis, CHARGE Syndrome, Spinal Fusion, and Gastrostomy.
Supreet Deshpande is a Physiatrist in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Spasticity, Moebius Syndrome, and CHARGE Syndrome. Dr. Deshpande is currently accepting new patients.
Walter Truong is an Orthopedics provider in St. Paul, Minnesota. Dr. Truong is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Osteogenesis Imperfecta, Wildervanck Syndrome, Osteotomy, and Spinal Fusion. Dr. Truong is currently accepting new patients.
Noran Neurological Clinic, P.A.
Timothy Feyma is a Pediatric Neurologist and a Neurologist in Bloomington, Minnesota. Dr. Feyma is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression. Dr. Feyma is currently accepting new patients.
Danielle Harding is a Physician Assistant in Saint Paul, Minnesota. Ms. Harding is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cri-Du-Chat Syndrome, Trisomy 14 Mosaicism, Mosaic Trisomy 7, and Trisomy 3 Mosaicism. Ms. Harding is currently accepting new patients.
Mayo Clinic
Pavel Pichurin is a Medical Genetics specialist and a Pediatrics provider in Rochester, Minnesota. Dr. Pichurin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebellar Hypoplasia, Cowden Syndrome, Phacomatosis Pigmentovascularis, and Hypothalamic Hamartomas.
Angela Sinner-Begnaud is a Physiatrist in Saint Paul, Minnesota. Dr. Sinner-Begnaud is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Alternating Hemiplegia of Childhood. Dr. Sinner-Begnaud is currently accepting new patients.
Midwest Radiology PA
Anne Weisensee is a Radiologist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Weisensee is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scoliosis, Knock Knees, Legg-Calve-Perthes Disease (LCPD), and Ascites. Dr. Weisensee is currently accepting new patients.
Gillette Childrens Specialty Healthcare
Lee Schuh is a Physiatrist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Schuh is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Hydrocele, Moebius Syndrome, and Spastic Diplegia Infantile Type. Dr. Schuh is currently accepting new patients.
Amy Authement is a Physiatrist in Saint Paul, Minnesota. Dr. Authement is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Osteogenesis Imperfecta, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Authement is currently accepting new patients.
Deana Thomasson is a Nurse Practitioner in Saint Paul, Minnesota. Ms. Thomasson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Neurogenic Bowel, and RASopathies. Ms. Thomasson is currently accepting new patients.
Gillette Childrens Specialty Healthcare
Ruth Barta is a Plastic Surgeon in Saint Paul, Minnesota. Dr. Barta is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cleft Lip and Palate, Velopharyngeal Insufficiency, Lambdoid Synostosis, Myringotomy, and Septoplasty. Dr. Barta is currently accepting new patients.
Nicole Doonan is a Pediatric Neurologist and a Neurologist in Saint Paul, Minnesota. Dr. Doonan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, VLDLR-Associated Cerebellar Hypoplasia, and Polymicrogyria. Dr. Doonan is currently accepting new patients.
Lauren Yauch is a Pediatric Endocrinologist in Saint Paul, Minnesota. Dr. Yauch is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Osteogenesis Imperfecta, Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS).
M Health Fairview Pediatric Specialty Clinic - Journey
Bradley Miller is a Pediatric Endocrinologist in Minneapolis, MN. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Hypopituitarism, Adrenoleukodystrophy (ALD), and Hormone Replacement Therapy (HRT).
Fairview Express Care
Jamie Lohr is a Pediatric Cardiologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lohr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Sjogren-Larsson Syndrome.
Allina Health System
Daniel Ries is a Nephrologist in Minneapolis, Minnesota. Dr. Ries is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and IgA Nephropathy. Dr. Ries is currently accepting new patients.
Kevin Sheridan is an Endocrinologist and a Pediatrics provider in Saint Paul, Minnesota. Dr. Sheridan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Osteogenesis Imperfecta, Neurohypophyseal Diabetes Insipidus, Diabetes Insipidus (DI), and Desbuquois Syndrome. Dr. Sheridan is currently accepting new patients.
Lifecare Medical Center
Robert Anderson is a primary care provider, practicing in Family Medicine in Roseau, Minnesota. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Type 2 Diabetes (T2D), Maturity Onset Diabetes of the Young, Woodhouse-Sakati Syndrome, and Grix Blankenship Peterson Syndrome. Dr. Anderson is currently accepting new patients.
Gillette Childrens Specialty Healthcare
Tori Bahr is a primary care provider, practicing in Pediatrics and Internal Medicine in Saint Paul, Minnesota. Dr. Bahr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Tetrasomy 9p, and Chromosome 6 Uniparental Disomy. Dr. Bahr is currently accepting new patients.
Last Updated: 10/30/2025


