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    Last Updated: 10/30/2025

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    MediFind found 93 doctor with experience in Koolen De Vries Syndrome near Minneapolis, MN. Of these, 80 are Experienced and 13 are Advanced.

    Location
    LocationClose
    93 providers found
      Bradley Miller
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology

      M Health Fairview Pediatric Specialty Clinic - Journey

      2450 Riverside Ave, Floor 9, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Bradley Miller is a Pediatric Endocrinologist in Minneapolis, MN. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Hypopituitarism, Adrenoleukodystrophy (ALD), and Hormone Replacement Therapy (HRT).

      Daniel K. Ries
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Allina Health System

      2925 Chicago Ave, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Ries is a Nephrologist in Minneapolis, Minnesota. Dr. Ries is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and IgA Nephropathy. Dr. Ries is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics | Cardiology

      Fairview Express Care

      909 Fulton St Se, 
      Minneapolis, MN 
       (2.0 miles away)
      Languages Spoken:
      English

      Jamie Lohr is a Pediatric Cardiologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lohr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Sjogren-Larsson Syndrome.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      701 Park Ave # S5, 
      Minneapolis, MN 
       (0.4 miles away)
      Languages Spoken:
      English

      Ruth Szajner is a Geriatrics provider in Minneapolis, Minnesota. Dr. Szajner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Schizoaffective Disorder, Mcleod Neuroacanthocytosis Syndrome, Huntington Disease, and Vascular Dementia.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      701 Park Ave, 
      Minneapolis, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Krishnan Subrahmanian is a Pediatrics provider in Minneapolis, Minnesota. Dr. Subrahmanian is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Developmental Dysphasia Familial, Autism Spectrum Disorder, Delayed Growth, and Koolen De Vries Syndrome. Dr. Subrahmanian is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology | Pediatrics

      Hennepin Healthcare System Inc

      701 Park Ave, 
      Minneapolis, MN 
       (0.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Donald Chadwick is a Pediatric Neurologist and a Neurologist in Minneapolis, Minnesota. Dr. Chadwick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tension Headache, Generalized Tonic-Clonic Seizure, Seizures, and Absence Seizure. Dr. Chadwick is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      2530 Chicago Ave Ste 500, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Beissel is a Pediatric Cardiologist and a Cardiologist in Minneapolis, Minnesota. Dr. Beissel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ventricular Septal Defects, Congenital Heart Disease (CHD), Bicuspid Aortic Valve, Vascular Ring, and Patent Foramen Ovale Repair. Dr. Beissel is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      2525 Chicago Ave S, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      Amy Lebedoff is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lebedoff is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Head Circumference, and Marshall-Smith Syndrome.

      Experienced in Koolen De Vries Syndrome
      Otolaryngology | Pediatric Otolaryngology
      Experienced in Koolen De Vries Syndrome
      Otolaryngology | Pediatric Otolaryngology
      2525 Chicago Ave S, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Abby Meyer is an Otolaryngologist and a Pediatric Otolaryngologist in Minneapolis, Minnesota. Dr. Meyer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hearing Loss, Infant Hearing Loss, Branchial Cleft Cyst, Enlarged Adenoids, and Myringotomy. Dr. Meyer is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Physiatry | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Physiatry | Pediatrics
      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Susan Quigley is a Physiatrist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Quigley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Beukes Familial Hip Dysplasia, Cerebral Palsy, Koolen De Vries Syndrome, and CHARGE Syndrome. Dr. Quigley is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Radiology | Pediatric Radiology
      Experienced in Koolen De Vries Syndrome
      Radiology | Pediatric Radiology
      2525 Chicago Ave, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English

      John Nicotra is a Radiologist and a Pediatric Radiologist in Minneapolis, Minnesota. Dr. Nicotra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Appendicitis, Ureterocele, Short Stature (Growth Disorders), and Cerebellum Agenesis Hydrocephaly.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      2525 Chicago Ave, Suite 390, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Patricia Hickey is a Pediatrics provider in Minneapolis, Minnesota. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microcephaly, Wildervanck Syndrome, Early Infantile Epileptic Encephalopathy, and Microcephaly Deafness Syndrome. Dr. Hickey is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics

      Children's Respiratory And Critical Care Specialists PA

      2530 Chicago Ave, Suite 400, 
      Minneapolis, MN 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Shreve is a Pediatric Pulmonologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Shreve is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spinal Muscular Atrophy Type 2, Duchenne Muscular Dystrophy, Multiple Epiphyseal Dysplasia, and Asthma. Dr. Shreve is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Christopher Foley is a Cardiologist in Minneapolis, Minnesota. Dr. Foley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Deep Vein Thrombosis, Cor Pulmonale, Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), and Carotid Artery Surgery. Dr. Foley is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Matthias Zinn is a Pediatric Neurologist and a Neurologist in Minneapolis, Minnesota. Dr. Zinn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Zika Virus Disease, Microcephaly with Spastic Quadriplegia, Microcephaly, and Seizures.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Anjali Aggarwal is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Aggarwal has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cardiomyopathic Lentiginosis, Cardiofaciocutaneous Syndrome, Noonan Syndrome, and RASopathies. Dr. Aggarwal is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Nephrology | Pediatrics | Nephrology
      Experienced in Koolen De Vries Syndrome
      Pediatric Nephrology | Pediatrics | Nephrology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English, Hindi, Kanarese, Telugu
      Accepting New Patients

      Shanthi Balani is a Pediatric Nephrologist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Balani has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hypophosphatemia, Feingold Syndrome, Cystinosis, Congenital Nephrotic Syndrome, and Kidney Transplant. Dr. Balani is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Neuroradiology | Radiology
      Experienced in Koolen De Vries Syndrome
      Neuroradiology | Radiology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English

      Mark Folkertsma is a Neuroradiologist and a Radiologist in Minneapolis, Minnesota. Dr. Folkertsma is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Optic Glioma, Stroke, Prolactinoma, and Relapsing Multiple Sclerosis (RMS).

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      2450 Riverside Ave, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kathleen Sadak is a Pediatrics provider in Minneapolis, Minnesota. Dr. Sadak is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Delayed Growth, Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Short Stature (Growth Disorders). Dr. Sadak is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome
      420 Delaware St. Se, Mmc 297, 
      Minneapolis, MN 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tyler Shirel is a Physiatrist in Minneapolis, Minnesota. Dr. Shirel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Koolen De Vries Syndrome, and CHARGE Syndrome. Dr. Shirel is currently accepting new patients.

      Showing 1-20 of 93

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Minneapolis, MN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Minneapolis, MN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Minneapolis, MN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Minneapolis, MN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Minneapolis, MN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Minneapolis, MN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Minneapolis, MN?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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