The 20 Best Koolen De Vries Syndrome Doctors Near Me in Minneapolis, MN

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 93 doctor with experience in Koolen De Vries Syndrome near Minneapolis, MN. Of these, 79 are Experienced and 14 are Advanced.

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93 providers found
    Joseph Perra
    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics

    Twin Cities Spine Center

    913 E 26th St, Suite 600, 
    Minneapolis, MN 
     (1.5 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joseph Perra is an Orthopedics provider in Minneapolis, Minnesota. Dr. Perra has been practicing medicine for over 25 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Scoliosis, Kyphosis, Frontonasal Dysplasia Klippel Feil Syndrome, Spinal Fusion, and Microdiscectomy. Dr. Perra is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English

    Jamie Lohr is a Pediatric Cardiologist in Minneapolis, Minnesota. Dr. Lohr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Cornelia De Lange Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Fairview Pharmacy Services

    2512 S 7th St Fl 3, 
    Minneapolis, MN 
     (1.3 miles away)
    Languages Spoken:
    English

    Cynthia Nicholson is a Pediatrics provider in Minneapolis, Minnesota. Dr. Nicholson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Vascular Birthmark, and Molluscum Contagiosum.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology

    Childrens Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    John Nicotra is a Pediatric Radiologist in Minneapolis, Minnesota. Dr. Nicotra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Appendicitis, Ureterocele, Short Stature (Growth Disorders), and Cerebellum Agenesis Hydrocephaly.

    Experienced in Koolen De Vries Syndrome
    Intensive Care Medicine
    Experienced in Koolen De Vries Syndrome
    Intensive Care Medicine

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English

    Robert Acton is an Intensive Care Medicine provider in Minneapolis, Minnesota. Dr. Acton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Pectus Excavatum, Pectus Carinatum, Umbilical Hernia, Gastrostomy, and Fasciotomy.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology

    University Of Minnesota Medical Center-East Bank

    500 Harvard St SE, 
    Minneapolis, MN 
     (1.7 miles away)
    Languages Spoken:
    English

    Mark Folkertsma is a Neuroradiologist in Minneapolis, Minnesota. Dr. Folkertsma is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Optic Glioma, Stroke, Prolactinoma, and Relapsing Multiple Sclerosis (RMS).

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Minneapolis Clinic Of Neurology

    4225 Golden Valley Rd, 
    Minneapolis, MN 
     (3.6 miles away)
    Languages Spoken:
    English

    Donald Chadwick is a Neurologist in Minneapolis, Minnesota. Dr. Chadwick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tension Headache, Generalized Tonic-Clonic Seizure, Seizures, and Absence Seizure.

    Bradley Miller
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    University Of Minnesota Medical Center Fairview Riverside

    2450 Riverside Ave, 
    Minneapolis, MN 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Bradley Miller is a Pediatric Endocrinologist in Minneapolis, Minnesota. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Short Stature (Growth Disorders), Adrenal Insufficiency Pediatric, and Hormone Replacement Therapy (HRT).

    Kevin Sheridan
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    Gillette Children's Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
     (8.4 miles away)
    Languages Spoken:
    English

    Kevin Sheridan is an Endocrinologist in Saint Paul, Minnesota. Dr. Sheridan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Osteogenesis Imperfecta, Neurohypophyseal Diabetes Insipidus, Diabetes Insipidus (DI), and Osteopathia Striata Cranial Sclerosis.

    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology

    South Metro Human Services

    166 4th St E, 
    Saint Paul, MN 
     (8.9 miles away)
    Languages Spoken:
    English

    Anne Weisensee is a Pediatric Radiologist in Saint Paul, Minnesota. Dr. Weisensee is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scoliosis, Knock Knees, Legg-Calve-Perthes Disease (LCPD), and Ascites.

    Experienced in Koolen De Vries Syndrome
    Family Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Ruth Szajner is a Family Medicine provider in Minneapolis, Minnesota. Dr. Szajner is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Schizoaffective Disorder, Huntington Disease, Mcleod Neuroacanthocytosis Syndrome, and Vascular Dementia.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    HCMC CSC Pharmacy

    715 S 8th St, 
    Minneapolis, MN 
     (0.5 miles away)
    Languages Spoken:
    English

    Krishnan Subrahmanian is a Pediatrics provider in Minneapolis, Minnesota. Dr. Subrahmanian is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Developmental Dysphasia Familial, Autism Spectrum Disorder, Delayed Growth, and Koolen De Vries Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology

    Childrens Respiratory & Critical Care Specialists P.A.

    2530 Chicago Ave Ste 400, 
    Minneapolis, MN 
     (1.1 miles away)
    Languages Spoken:
    English

    Michael Shreve is a Pediatric Pulmonologist in Minneapolis, Minnesota. Dr. Shreve is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spinal Muscular Atrophy Type 2, Duchenne Muscular Dystrophy, Multiple Epiphyseal Dysplasia, and Asthma.

    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology
    Experienced in Koolen De Vries Syndrome
    Obstetrics and Gynecology

    Children's-Minneapolis Gynecology Program

    2530 Chicago Ave Ste 390, 
    Minneapolis, MN 
     (1.1 miles away)
    Languages Spoken:
    English

    Katherine O'flynn is an Obstetrics and Gynecologist in Minneapolis, Minnesota. Dr. O'flynn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Pelvic Congestion Syndrome, Hydrocele, Menorrhagia, Painful Menstrual Periods, and Intrauterine Device Insertion.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    The Children's Heart Clinic

    2530 Chicago Ave Ste 500, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    Daniel Beissel is a Pediatric Cardiologist in Minneapolis, Minnesota. Dr. Beissel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ventricular Septal Defects, Congenital Heart Disease (CHD), Bicuspid Aortic Valve, Vascular Ring, and Patent Foramen Ovale Repair.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    2525 Chicago Ave S, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    Amy Lebedoff is a Medical Genetics specialist and a Pediatrics provider in Minneapolis, Minnesota. Dr. Lebedoff is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Head Circumference, and Hemi 3 Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Childrens Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    Susan Quigley is a Pediatrics provider in Minneapolis, Minnesota. Dr. Quigley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Beukes Familial Hip Dysplasia, Cerebral Palsy, Wildervanck Syndrome, and Microcephaly Deafness Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology

    Childrens Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    Abby Meyer is a Pediatric Otolaryngologist in Minneapolis, Minnesota. Dr. Meyer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hearing Loss, Infant Hearing Loss, Branchial Cleft Cyst, Enlarged Adenoids, and Myringotomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Childrens Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    Patricia Hickey is a Pediatrics provider in Minneapolis, Minnesota. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Microcephaly, PIK3CA-Related Overgrowth Spectrum, Early Infantile Epileptic Encephalopathy, and CHARGE Syndrome.

    Experienced in Koolen De Vries Syndrome
    Infectious Disease
    Experienced in Koolen De Vries Syndrome
    Infectious Disease

    MH Health Care Services PC

    2545 Chicago Ave, 
    Minneapolis, MN 
     (1.5 miles away)
    Languages Spoken:
    English

    Tamara Pozos is an Infectious Disease provider in Minneapolis, Minnesota. Dr. Pozos is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top area of expertise is Koolen De Vries Syndrome.

    Showing 1-20 of 93

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Minneapolis, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Minneapolis, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Minneapolis, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Minneapolis, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Minneapolis, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Minneapolis, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Minneapolis, MN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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