The 20 Best Koolen De Vries Syndrome Doctors Near Me in Saint Paul, MN

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 115 doctor with experience in Koolen De Vries Syndrome near Saint Paul, MN. Of these, 99 are Experienced and 16 are Advanced.

Location
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115 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Twin Cities Spine Center

    913 E 26th St, Suite 600, 
    Minneapolis, MN 
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joseph Perra is an Orthopedics provider practicing medicine in Minneapolis, Minnesota. He has been practicing medicine for over 25 years. Dr. Perra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Frontonasal Dysplasia Klippel Feil Syndrome, Spinal Fusion, and Microdiscectomy. Dr. Perra is board certified in American Board Of Orthopedic Surgeons. Dr. Perra is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics | Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics | Endocrinology
    Referral required

    M Health Fairview Pediatric Specialty Clinic - Journey

    2450 Riverside Ave, Floor 9, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Bradley Miller is a Pediatric Endocrinologist and a Pediatrics provider practicing medicine in Minneapolis, MN. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Hypopituitarism, Short Stature (Growth Disorders), and Hormone Replacement Therapy (HRT). Dr. Miller is board certified in American Board Of Pediatrics American Board Of Pediatrics - Pediatric Endocrinology.

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral may be required

    M Health Fairview Clinic Wyoming

    5200 Fairview Boulevard, 
    Wyoming, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ian Maher is a Dermatologist practicing medicine in Wyoming, Minnesota. Dr. Maher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Syringoma, Squamous Cell Skin Carcinoma, and Melanoma. Dr. Maher is board certified in Dermatology: American Board Of Dermatology, 2009. Dr. Maher is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Sanford Dermatology Clinic

    625 Demers Ave., 
    East Grand Forks, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Alyssa Hoverson is a Dermatologist practicing medicine in East Grand Forks, Minnesota. Dr. Hoverson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 79 other conditions, according to our data. Her clinical expertise encompasses Bowen's Disease, Telangiectasia, Spider Angioma, and Pustules. Dr. Hoverson is board certified in American Board Of Dermatology. Dr. Hoverson is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Plastic Surgery
    Advanced in Koolen De Vries Syndrome
    Plastic Surgery
    Referral may be required

    HealthPartners Specialty Center - Plastic And Hand Surgery

    401 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients

    Ruth Barta is a Plastic Surgeon practicing medicine in Saint Paul, Minnesota. Dr. Barta is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Cleft Lip and Palate, Velopharyngeal Insufficiency, Craniosynostosis, Myringotomy, and Septoplasty. Dr. Barta is board certified in American Board Of Plastic Surgery. Dr. Barta is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    M Health Fairview Discovery Pediatric Specialty Clinic

    2512 South 7th Street, Floor 3, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Cynthia Nicholson is a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Nicholson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Stork Bite, Vascular Birthmark, Aplasia Cutis Congenita, and Recessive Chondrodysplasia Punctata 1. Dr. Nicholson is board certified in Pediatric Dermatology: American Board Of Dermatology, 2021 and Dermatology: American Board Of Dermatology, 2020. Dr. Nicholson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    CentraCare - Willmar Clinic

    101 Willmar Ave SW, 
    Willmar, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Laurel Wessman is a Dermatologist practicing medicine in Willmar, Minnesota. Dr. Wessman is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Basal Cell Skin Cancer, Extramammary Paget Disease, Actinic Keratosis, and Squamous Cell Skin Carcinoma. Dr. Wessman is board certified in American Board Of Dermatology - Micrographic Dermatologic Surgery (MOHS) and American Board Of Dermatology - Dermatology. Dr. Wessman is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Gillette Children's-Burnsville Clinic

    305 E Nicollet Blvd, 
    Burnsville, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Tenner Guillaume is a Pediatric Orthopedics provider practicing medicine in Burnsville, Minnesota. Dr. Guillaume is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses CHARGE Syndrome, Wildervanck Syndrome, Koolen De Vries Syndrome, Spinal Fusion, and Gastrostomy. Dr. Guillaume is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required
    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English, Hindi, Kanarese, Marathi
    Accepting New Patients

    Supreet Deshpande is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spasticity, Moebius Syndrome, and Koolen De Vries Syndrome. Dr. Deshpande is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Walter Truong is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Truong is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses CHARGE Syndrome, Wildervanck Syndrome, Koolen De Vries Syndrome, Osteotomy, and Spinal Fusion. Dr. Truong is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Regions Hospital

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Tim Feyma is a Neurologist practicing medicine in Saint Paul, Minnesota. Dr. Feyma is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 122 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Rett Syndrome, Focal Dystonia, and Moebius Syndrome. Dr. Feyma is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    General Practice
    Advanced in Koolen De Vries Syndrome
    General Practice

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Danielle Harding is a primary care provider, practicing in General Practice in Saint Paul, Minnesota. Dr. Harding is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 90 other conditions, according to our data. Her clinical expertise encompasses Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, Cri-Du-Chat Syndrome, and Gastrostomy. Dr. Harding is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Referral may be required

    Mayo Clinic

    1216 2nd St Sw, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Pavel Pichurin is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Rochester, Minnesota. Dr. Pichurin is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 89 other conditions, according to our data. His clinical expertise encompasses Cerebellar Hypoplasia, Cowden Syndrome, Peutz-Jeghers Syndrome, and Phacomatosis Pigmentovascularis. Dr. Pichurin is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Angela Sinner-Begnaud is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Sinner-Begnaud is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Alternating Hemiplegia of Childhood, Neurogenic Bowel, Hereditary Spastic Paraparesis, and Koolen De Vries Syndrome. Dr. Sinner-Begnaud is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Amy Authement is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Authement is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Osteogenesis Imperfecta, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Authement is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Physiatry | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Physiatry | Pediatrics
    Referral may be required

    Gillette Childrens Specialty Healthcare

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Lee Schuh is a Physiatrist and a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Schuh is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Hydrocele, Moebius Syndrome, and Spastic Diplegia Infantile Type. Dr. Schuh is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    South Metro Human Services

    166 4th St E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Anne Weisensee is a Pediatric Radiologist practicing medicine in Saint Paul, Minnesota. Dr. Weisensee is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Absence of Tibia, Spondylocostal Dysostosis, Congenital Femoral Deficiency, and PIK3CA-Related Overgrowth Spectrum. Dr. Weisensee is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Gillette Children's-Phalen Clinic

    435 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Deana Thomasson is a Pediatrics provider practicing medicine in Saint Paul, Minnesota. Dr. Thomasson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses CHARGE Syndrome, Early Infantile Epileptic Encephalopathy, Microcephaly Deafness Syndrome, and Koolen De Vries Syndrome. Dr. Thomasson is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Miller is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Miller is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Wildervanck Syndrome, Koolen De Vries Syndrome, CHARGE Syndrome, and RASopathies. Dr. Miller is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Williams-Doonan is a Neurologist practicing medicine in Maple Grove, Minnesota. Dr. Williams-Doonan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 142 other conditions, according to our data. Her clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Polymicrogyria. Dr. Williams-Doonan is currently accepting new patients.

    Showing 1-20 of 115

    Last Updated: 09/19/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Saint Paul, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Saint Paul, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Saint Paul, MN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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