The 20 Best Koolen De Vries Syndrome Doctors Near Me in Saint Paul, MN

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 118 doctor with experience in Koolen De Vries Syndrome near Saint Paul, MN. Of these, 102 are Experienced and 16 are Advanced.

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118 providers found
    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Experienced in Koolen De Vries Syndrome
    Orthopedics
    Referral may be required

    Twin Cities Spine Center

    913 E 26th St, Suite 600, 
    Minneapolis, MN 
    Experience:
    25+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Joseph H. Perra is a board-certified orthopedic spine surgeon at Twin Cities Spine Center specializing in cervical, thoracic, and lumbar spine conditions. He treats scoliosis, spinal deformity, herniated discs, spinal stenosis, trauma, tumors, and spinal infections. Dr. Perra offers advanced minimally invasive spine surgery and modern techniques designed to reduce pain and shorten recovery time. He sees patients in Minneapolis. Call (612) 775-6200 or visit tcspine.com to schedule a consultation. Dr. Perra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Frontonasal Dysplasia Klippel Feil Syndrome, Spinal Fusion, and Microdiscectomy. Dr. Perra is board certified in American Board Of Orthopedic Surgeons. Dr. Perra is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required

    Sanford Dermatology Clinic

    625 Demers Ave., 
    East Grand Forks, MN 
    Languages Spoken:
    English

    Dr. Alyssa Hoverson specializes in treating diseases of the skin, nails and hair. She treats conditions such as skin cancer, eczema and psoriasis. She performs excisions, laser treatments, sclerotherapy and Botox injections. She also offers the Mohs micrographic surgical procedure for the removal of skin cancer. Dr. Hoverson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 79 other conditions, according to our data. Her clinical expertise encompasses Bowen's Disease, Spider Angioma, Telangiectasia, and Pustules. Dr. Hoverson is board certified in American Board Of Dermatology.

    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Advanced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    South Metro Human Services

    166 4th St E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Anne Weisensee is a Pediatric Radiologist practicing medicine in Saint Paul, Minnesota. Dr. Weisensee is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Scoliosis, Knock Knees, Legg-Calve-Perthes Disease (LCPD), and Ascites.

    Learn about our expert tiers
    Advanced in Koolen De Vries Syndrome
    Endocrinology
    Advanced in Koolen De Vries Syndrome
    Endocrinology
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Lauren Yauch is an Endocrinologist practicing medicine in Saint Paul, Minnesota. Dr. Yauch is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Osteogenesis Imperfecta, Short Stature (Growth Disorders), Addison's Disease, and Idiopathic Short Stature (ISS).

    Experienced in Koolen De Vries Syndrome
    Dermatology
    Experienced in Koolen De Vries Syndrome
    Dermatology
    Referral may be required

    M Health Fairview Clinic Wyoming

    5200 Fairview Boulevard, 
    Wyoming, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ian Maher is a Dermatologist practicing medicine in Wyoming, Minnesota. Dr. Maher is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Basal Cell Skin Cancer, Syringoma, Squamous Cell Skin Carcinoma, and Melanoma. Dr. Maher is board certified in Dermatology: American Board Of Dermatology, 2009. Dr. Maher is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    General Surgery
    Experienced in Koolen De Vries Syndrome
    General Surgery
    Referral may be required

    M Health Fairview Pediatric Specialty Clinic Burnsville

    303 East Nicollet Boulevard, Suite 372, 
    Burnsville, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Robert Acton is a General Surgeon practicing medicine in Burnsville, Minnesota. Dr. Acton is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Pectus Excavatum, Pectus Carinatum, Umbilical Hernia, Gastrostomy, and Fasciotomy. Dr. Acton is board certified in Pediatric Surgery: American Board Of Surgery, 2004, Surgery (General Surgery): American Board Of Surgery, 2000, and Surgical Critical Care: American Board Of Surgery, 2000. Dr. Acton is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Referral required

    M Health Fairview Explorer Pediatric Specialty Clinic

    2450 Riverside Avenue, Floor 12, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Bradley Miller is a Pediatric Endocrinologist practicing medicine in Minneapolis, Minnesota. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Short Stature (Growth Disorders), Adrenal Insufficiency Pediatric, and Hormone Replacement Therapy (HRT). Dr. Miller is board certified in Pediatric Endocrinology: American Board Of Pediatrics, 2003.

    Experienced in Koolen De Vries Syndrome
    Cardiology | Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Cardiology | Pediatric Cardiology
    Referral may be required

    M Health Fairview Explorer Pediatric Specialty Clinic

    2450 Riverside Avenue, Building 12 EAST, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Jamie Lohr is a Cardiologist and a Pediatric Cardiologist practicing medicine in Minneapolis, Minnesota. Dr. Lohr is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Congenital Heart Disease (CHD), Robinow Syndrome, Oculofaciocardiodental Syndrome, and Mulibrey Nanism. Dr. Lohr is board certified in Adult Congenital Heart Disease: American Board Of Internal Medicine, 2015, Pediatric Cardiology: American Board Of Pediatrics, 1996, and Pediatrics: American Board Of Pediatrics, 1991. Dr. Lohr is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Neuroradiology | Radiology
    Experienced in Koolen De Vries Syndrome
    Neuroradiology | Radiology
    Referral may be required

    University Of Minnesota Medical Center-East Bank

    500 Harvard St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Mark Folkertsma is a Radiologist and a Neuroradiologist practicing medicine in Minneapolis, Minnesota. Dr. Folkertsma is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Optic Glioma, Stroke, Prolactinoma, and Relapsing Multiple Sclerosis (RMS). Dr. Folkertsma is board certified in Neuroradiology: American Board Of Radiology, 2022 and Diagnostic Radiology: American Board Of Radiology, 2019.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Referral required

    Gillette Children's Specialty Healthcare

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Kevin Sheridan is an Endocrinologist practicing medicine in Saint Paul, Minnesota. Dr. Sheridan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Osteogenesis Imperfecta, Diabetes Insipidus (DI), Neurohypophyseal Diabetes Insipidus, and Cartilage-Hair Hypoplasia.

    Advanced in Koolen De Vries Syndrome
    Plastic Surgery
    Advanced in Koolen De Vries Syndrome
    Plastic Surgery
    Referral may be required

    HealthPartners Specialty Center - Plastic And Hand Surgery

    401 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English, Mandarin
    Accepting New Patients

    I treat all aspects of plastic surgery, but have a special interest in pediatric plastic surgery. It is especially gratifying to improve a child's life. I am excited to be able to provide the latest techniques in cleft lip and palate care, congenital malformations and craniofacial reconstruction. I strive to provide my patients with the quality of care that I would give my own family members. I believe that good communication and understanding at every interaction along the way is as important to the final outcome as the surgery itself. Aside from patient care, I am an adjunct assistant professor at the University of Minnesota. I enjoy teaching and working with residents and students. I volunteer my time to surgical missions in third world countries for cleft lip and palate repair, burn reconstruction, hand deformities and other reconstructive procedures. In my spare time, I enjoy running, adventure racing and traveling. Dr. Barta is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Cleft Lip and Palate, Velopharyngeal Insufficiency, Craniosynostosis, Myringotomy, and Septoplasty. Dr. Barta is board certified in American Board Of Plastic Surgery. Dr. Barta is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    M Health Fairview Discovery Pediatric Specialty Clinic

    2512 South 7th Street, Floor 3, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Cynthia Nicholson is a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Nicholson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Familial Multiple Nevi Flammei, Stork Bite, Vascular Birthmark, and Molluscum Contagiosum. Dr. Nicholson is board certified in Pediatric Dermatology: American Board Of Dermatology, 2021 and Dermatology: American Board Of Dermatology, 2020. Dr. Nicholson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Angela Tridgell is an Endocrinologist practicing medicine in Saint Paul, Minnesota. Dr. Tridgell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Short Stature (Growth Disorders), Familial Short Stature (FSS), Idiopathic Short Stature (ISS), and Noonan Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    Childrens Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    John Nicotra is a Pediatric Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Nicotra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Appendicitis, Ureterocele, Short Stature (Growth Disorders), and Cerebellum Agenesis Hydrocephaly.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Sanford Health Of Northern Minnesota

    1300 Anne St NW, 
    Bemidji,, MN 
    Languages Spoken:
    English

    Jeffrey Watkins is a Cardiologist practicing medicine in Bemidji,, Minnesota. Dr. Watkins is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Angina, Coronary Heart Disease, Atherosclerosis, His Bundle Tachycardia, and Pacemaker Implantation.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Minneapolis Clinic Of Neurology

    4225 Golden Valley Rd, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Donald Chadwick is a Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Chadwick is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Tension Headache, Generalized Tonic-Clonic Seizure, Seizures, and Absence Seizure.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Tenner Guillaume is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Guillaume is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Wildervanck Syndrome, CHARGE Syndrome, Spinal Fusion, and Gastrostomy.

    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome
    Referral may be required
    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English, Hindi, Kanarese, Marathi
    Accepting New Patients

    Supreet Deshpande is a Physiatrist practicing medicine in Saint Paul, Minnesota. Dr. Deshpande is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spasticity, Moebius Syndrome, CHARGE Syndrome, and Rhizotomy. Dr. Deshpande is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Advanced in Koolen De Vries Syndrome
    Pediatric Orthopedics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Walter Truong is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Truong is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Osteogenesis Imperfecta, CHARGE Syndrome, Osteotomy, and Spinal Fusion.

    Advanced in Koolen De Vries Syndrome
    Neurology
    Advanced in Koolen De Vries Syndrome
    Neurology
    Referral may be required

    Bloomington/Edina Clinic

    3601 Minnesota Dr Ste 200, 
    Edina, MN 
    Languages Spoken:
    English

    Tim Feyma is a Neurologist practicing medicine in Edina, Minnesota. Dr. Feyma is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 123 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Cerebral Palsy, Focal Dystonia, Partial Familial Epilepsy, and Microvascular Decompression.

    Showing 1-20 of 118

    Last Updated: 06/30/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Saint Paul, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Saint Paul, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Saint Paul, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Saint Paul, MN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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