The 20 Best Koolen De Vries Syndrome Doctors Near Me in minnetonka, MN

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 37 doctor with experience in Koolen De Vries Syndrome near minnetonka, MN. Of these, 36 are Experienced and 1 are Advanced.

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37 providers found
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Twin Cities Spine Center

    913 E 26th St, Suite 600, 
    Minneapolis, MN 
     (10.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Joseph Perra is an Orthopedics provider practicing medicine in Minneapolis, Minnesota. Dr. Perra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Kyphosis, Frontonasal Dysplasia Klippel Feil Syndrome, Spinal Fusion, and Microdiscectomy. Dr. Perra is board certified in American Board Of Orthopedic Surgeons.

    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics | Endocrinology
    Experienced in Koolen De Vries Syndrome
    Pediatric Endocrinology | Pediatrics | Endocrinology
    Referral required

    M Health Fairview Pediatric Specialty Clinic - Journey

    2450 Riverside Ave, Floor 9, 
    Minneapolis, MN 
     (11.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Bradley Miller is a Pediatric Endocrinologist and a Pediatrics provider practicing medicine in Minneapolis, MN. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Growth Hormone Deficiency (GHD), Pediatric Growth Hormone Deficiency, Hypopituitarism, Short Stature (Growth Disorders), and Hormone Replacement Therapy (HRT). Dr. Miller is board certified in American Board Of Pediatrics American Board Of Pediatrics - Pediatric Endocrinology.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Wayzata Childrens Clinic P.A.

    14001 Ridgedale Dr Ste 100, 
    Hopkins, MN 
     (2.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Rachel Bies is a Pediatrics provider practicing medicine in Hopkins, Minnesota. Dr. Bies is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Croup, Delayed Growth, Acrofacial Dysostosis Nager Type, and Acrodysostosis. Dr. Bies is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Park Nicollet Eye Care And Optical Store St. Louis Park

    3900 Park, 
    Nicollet, MN 
     (6.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    As a vitreoretinal surgeon, I see patients with a variety of retinal diseases. These include those treatable in clinic, such as diabetic retinopathy, macular degeneration, retinal vein occlusions and macular edema. They also include those that may require surgery, such as retinal detachments, epiretinal membranes, vitreous floaters, and macular holes. I have experience treating intraocular inflammation, retinal dystrophies and patients with intraocular tumors. I particularly enjoy using the advanced imaging technologies that have revolutionized retinal care in the past 15 years. We are now able to visualize structures and pathologies that were previously unknown to even exist – it is an exciting time to be a retina specialist! My general philosophy in clinic is to educate patients about their condition and arrive at a treatment plan together. Dr. Koozekanani is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Diabetic Retinopathy, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Cataract Removal. Dr. Koozekanani is board certified in American Board Of Ophthalmology,2009, Ophthalmology, American Board Of Ophthalmology, and Ophthalmology: American Board Of Ophthalmology, 2009. Dr. Koozekanani is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Experienced in Koolen De Vries Syndrome
    Ophthalmology
    Referral may be required

    Retina Consultants Of MN - Edina

    3601 West 76th Street, 
    Edina, MN 
     (7.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Polly Quiram is an Ophthalmologist practicing medicine in Edina, Minnesota. Dr. Quiram is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 60 other conditions, according to our data. Her clinical expertise encompasses Retinal Detachment, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinal Vein Occlusion, and Vitrectomy. Dr. Quiram is board certified in American Board Of Ophthalmology,2007 and Ophthalmology. Dr. Quiram is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Experienced in Koolen De Vries Syndrome
    Vascular Surgery
    Referral may be required

    M Health Fairview Vascular Clinic Edina

    6405 France Avenue South, Suite W340, 
    Edina, MN 
     (7.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Christopher Foley is a Vascular Surgeon practicing medicine in Edina, Minnesota. Dr. Foley is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Deep Vein Thrombosis, Thoracic Aortic Aneurysm, Abdominal Aortic Aneurysm (AAA), Arterial Insufficiency, and Carotid Artery Surgery. Dr. Foley is board certified in Internal Medicine: American Board Of Internal Medicine, 1997. Dr. Foley is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    North Memorial Health Care

    3300 Oakdale Ave N, 
    Robbinsdale, MN 
     (8.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Ries is a Nephrologist practicing medicine in Robbinsdale, Minnesota. Dr. Ries is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Chronic Kidney Disease, Acute Kidney Failure, and IgA Nephropathy. Dr. Ries is board certified in Internal Medicine:,1997, American Board Of Internal Medicine, and Nephrology. Dr. Ries is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    2805 Campus Dr Ste 235, 
    Minneapolis, MN 
     (5.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Matthew Segedy is a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Segedy is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, Croup, Stork Bite, and Vascular Birthmark. Dr. Segedy is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Office

    3955 Parklawn Ave Ste 200, 
    Minneapolis, MN 
     (7.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Lori Skallerud is a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Skallerud is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Delayed Growth, Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), and Familial Short Stature (FSS). Dr. Skallerud is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Experienced in Koolen De Vries Syndrome
    Pediatric Neurology
    Referral may be required

    Noran Neurology - Bloomington/Edina

    3601 Minnesota Dr Ste 200, 
    Minneapolis, MN 
     (7.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Steven Janousek is a Pediatric Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Janousek is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Microcephaly, and Epilepsy. Dr. Janousek is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Minneapolis Clinic Of Neurology

    4225 Golden Valley Rd, 
    Minneapolis, MN 
     (7.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Donald Chadwick-Ii is a Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Chadwick-Ii is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Tension Headache, Generalized Tonic-Clonic Seizure, Seizures, and Absence Seizure. Dr. Chadwick-Ii is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    M Health Fairview Discovery Pediatric Specialty Clinic

    2512 South 7th Street, Floor 3, 
    Minneapolis, MN 
     (11.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Cynthia Nicholson is a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Nicholson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Stork Bite, Vascular Birthmark, Aplasia Cutis Congenita, and Chondrodysplasia Punctata with Steroid Sulfatase Deficiency. Dr. Nicholson is board certified in Pediatric Dermatology: American Board Of Dermatology, 2021 and Dermatology: American Board Of Dermatology, 2020. Dr. Nicholson is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Hospital Medicine | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Hospital Medicine | Pediatrics
    Referral may be required

    Allina Health System

    800 E 28th St, Suite H2100, 
    Minneapolis, MN 
     (10.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Peter Melchert is a Hospital Medicine specialist and a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Melchert is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Multiple Epiphyseal Dysplasia, RASopathies, Early Infantile Epileptic Encephalopathy, and Wildervanck Syndrome. Dr. Melchert is board certified in Pediatrics, 2002, American Board Of Internal Medicine, Internal Medicine, and American Board Of Pediatrics,2003. Dr. Melchert is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Children's Specialty Clinic - Genetics

    2525 Chicago Avenue, 
    Minneapolis, MN 
     (10.1 miles away)
    Languages Spoken:
    English, Filipino
    Accepting New Patients

    Noelle Fabie is a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Fabie is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Micrognathia, Culler Jones Syndrome, Oculodentodigital Dysplasia Dominant, and Townes-Brocks Syndrome. Dr. Fabie is board certified in Pediatrics, Clinical Genetics (MD), American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics. Dr. Fabie is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Children's Specialty Clinic - Genetics

    2525 Chicago Avenue, 
    Minneapolis, MN 
     (10.1 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Marcelo Vargas is a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Vargas is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Chromosome 13q Deletion, Cat Eye Syndrome, Branchio-Oculo-Facial Syndrome (BOFS), and Chromosome 2 Uniparental Disomy. Dr. Vargas is board certified in Pediatrics, 2011, Clinical Biochemical Genetics, American Board Of Medical Genetics And Genomics,2024, Clinical Genetics (MD), American Board Of Pediatrics, and 2015. Dr. Vargas is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Referral may be required

    Children's Specialty Clinic - Genetics

    2525 Chicago Avenue, 
    Minneapolis, MN 
     (10.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Amy Lebedoff is a Medical Genetics provider practicing medicine in Minneapolis, Minnesota. Dr. Lebedoff is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Increased Head Circumference, and Cantu Syndrome. Dr. Lebedoff is board certified in Pediatrics, American Board Of Medical Genetics And Genomics,2021, Clinical Genetics (MD), 2018, and American Board Of Pediatrics. Dr. Lebedoff is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Radiology
    Referral may be required

    Children's Health Care

    2525 Chicago Ave, 
    Minneapolis, MN 
     (10.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    John Nicotra is a Pediatric Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Nicotra is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Sheehan Syndrome. Dr. Nicotra is board certified in 1995, Pediatric Radiology, American Board Of Radiology,1998, and Diagnostic Radiology. Dr. Nicotra is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Referral may be required

    Children's Heart Clinic

    2530 Chicago Avenue, Suite 500, 
    Minneapolis, MN 
     (10.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Beissel is a Pediatric Cardiologist practicing medicine in Minneapolis, Minnesota. Dr. Beissel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Ventricular Septal Defects, Congenital Heart Disease (CHD), Bicuspid Aortic Valve, Vascular Ring, and Patent Foramen Ovale Repair. Dr. Beissel is board certified in Pediatrics, 2012, American Board Of Pediatrics,2016, and Pediatric Cardiology. Dr. Beissel is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Referral may be required

    Children's Specialty Clinic - ENT & Facial Plastic Surgery

    2530 Chicago Avenue, Suite 450, 
    Minneapolis, MN 
     (10.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Abby Meyer is a Pediatric Otolaryngologist practicing medicine in Minneapolis, Minnesota. Dr. Meyer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Enlarged Adenoids, Vascular Birthmark, Choanal Atresia, Microtia, and Myringotomy. Dr. Meyer is board certified in Pediatric Otolaryngology, Otolaryngology:,2011, and American Board Of Otolaryngology - Head And Neck Surgery. Dr. Meyer is currently accepting new patients.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome
    Referral may be required

    Children's Hospital And Clinics - Pediatrics

    2530 Chicago Avenue, Suite 390, 
    Minneapolis, MN 
     (10.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Patricia Hickey is a Pediatrics provider practicing medicine in Minneapolis, Minnesota. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her clinical expertise encompasses Microcephaly, PIK3CA-Related Overgrowth Spectrum, Koolen De Vries Syndrome, and Early Infantile Epileptic Encephalopathy. Dr. Hickey is board certified in Pediatrics and American Board Of Pediatrics,2015. Dr. Hickey is currently accepting new patients.

    Showing 1-20 of 37

    Last Updated: 09/26/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near minnetonka, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near minnetonka, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near minnetonka, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near minnetonka, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near minnetonka, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near minnetonka, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near minnetonka, MN?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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