MediFind found 10 doctor with experience in Koolen De Vries Syndrome near Rochester, NY. Of these, 10 are Experienced.
University Of Rochester
Jane Liesveld is a Hematologist and an Oncologist in Rochester, New York. Dr. Liesveld is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Acute Myeloid Leukemia (AML), Myelodysplastic Syndrome (MDS), Leukemia, Bone Marrow Transplant, and Bone Marrow Aspiration.
Laura Vernon is a Pediatric Neurologist in Rochester, New York. Dr. Vernon is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Aicardi Syndrome, Corpus Callosum Agenesis, Focal or Multifocal Malformations in Neuronal Migration, and Periventricular Heterotopia.
Sawgrass Surgery Center
Robert Kornfield is a Gastroenterologist in Rochester, New York. Dr. Kornfield is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Gastroesophageal Reflux Disease (GERD), Trichohepatoenteric Syndrome, Diarrhea, and Nonalcoholic Steatohepatitis (NASH). Dr. Kornfield is currently accepting new patients.
Pediatric Cardiology
Matthew Egan is a Pediatric Cardiologist and a Pediatrics provider in Rochester, New York. Dr. Egan is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Heart Murmurs.
University Of Rochester Pediatric Ophthalmology Services
Alex Levin is an Ophthalmologist in Rochester, New York. Dr. Levin has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Strabismus, Brown Syndrome, Familial Exudative Vitreoretinopathy, Cataract Removal, and Vitrectomy.
Pulmonary Disease Clinical Group
Robert Kottmann is a Pulmonary Medicine specialist and an Intensive Care Medicine provider in Rochester, New York. Dr. Kottmann is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acute Interstitial Pneumonia, Pulmonary Fibrosis, Interstitial Lung Disease, Idiopathic Pulmonary Fibrosis, and Gastrostomy.
Stephanie Wong is a Pediatric Otolaryngologist in Rochester, New York. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Stridor, Laryngomalacia, Laryngeal Cleft, and Larynx Atresia. Dr. Wong is currently accepting new patients.
Monica Vielkind is a Pediatric Pulmonologist and a Pediatrics provider in Rochester, New York. Dr. Vielkind is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Laryngomalacia, Tracheal Agenesis, Congenital Unilateral Pulmonary Hypoplasia, and Gastroesophageal Reflux in Infants.
University Of Rochester
Alexander Paciorkowski is a Pediatric Neurologist and a Pediatrics provider in Rochester, New York. Mr. Paciorkowski is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Spinocerebellar Ataxia Type 11, Spinocerebellar Ataxia Type 1, Spinocerebellar Ataxia Type 31, and Spinocerebellar Ataxia Type 17.
David Weber is a Pediatric Endocrinologist in Rochester, New York. Dr. Weber is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are X-Linked Hypophosphatemia, Juvenile Primary Osteoporosis, Zellweger Syndrome, and Osteomalacia.
Last Updated: 10/30/2025
