The 20 Best Koolen De Vries Syndrome Doctors Near Me in Tennessee, US

Find the Top Koolen De Vries Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 87 doctor with experience in Koolen De Vries Syndrome near Tennessee, US. Of these, 81 are Experienced and 6 are Advanced.

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87 providers found
    Advanced in Koolen De Vries Syndrome
    Advanced in Koolen De Vries Syndrome

    ETSU Physicians & Associates- Pediatrics

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English

    . Dr. Russi is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 125 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Ehlers-Danlos Syndrome (EDS), Chromosome 8p Deletion, and Chromosome 6q Duplication. Dr. Russi is board certified in American Board Of Pediatrics and American Board Of Medical Genetics.

    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery
    Experienced in Koolen De Vries Syndrome
    Pediatric Surgery

    ETSU Physicians & Associates- Pediatric Surgery

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Infantile Pyloric Stenosis, Pilonidal Sinus Disease, Retroperitoneal Inflammation, and Undescended Testicle. Dr. Taylor is board certified in American Board Of Surgery.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    ETSU Physicians & Associates- Pediatrics

    325 N State Of Franklin Rd, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Gage is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Obesity in Children, Familial Chronic Mucocutaneous Candidiasis, Delayed Growth, and Autism Spectrum Disorder. Dr. Gage is board certified in American Board Of Pediatrics.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    FirstChoice Pediatrics

    301 Med Tech Pkwy, Ste 160, 
    Johnson City, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Farmer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Otitis Media with Effusion, Obesity in Children, Croup, and Autism Spectrum Disorder. Dr. Farmer is board certified in American Board Of Pediatrics.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Etch Pediatric Cardiology

    2018 Clinch Ave # 2, 
    Knoxville,, TN 
    Languages Spoken:
    English
    Offers Telehealth

    David Hurst is a Pediatric Cardiologist practicing medicine in Knoxville,, Tennessee. Dr. Hurst is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Etch Pediatric Cardiology

    2018 Clinch Ave # 2, 
    Knoxville,, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Liske is a Pediatric Cardiologist practicing medicine in Knoxville,, Tennessee. Dr. Liske is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ebstein's Anomaly, DiGeorge Syndrome, and Bicuspid Aortic Valve.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's Hospital At Erlanger Cardiology

    900 E 3rd St, 
    Chattanooga,, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Wesley Davis is a Pediatric Cardiologist practicing medicine in Chattanooga,, Tennessee. Dr. Davis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, X-Linked Cardiac Valvular Dysplasia, and Cardiac Diverticulum.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Etch Pediatric Cardiology

    2018 Clinch Ave # 2, 
    Knoxville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Sumeet Sharma is a Pediatric Cardiologist practicing medicine in Knoxville, Tennessee. Dr. Sharma is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Bicuspid Aortic Valve.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's Hospital At Erlanger Cardiology

    900 E 3rd St, 
    Chattanooga,, TN 
    Languages Spoken:
    English
    Offers Telehealth

    James Raulston is a Pediatric Cardiologist practicing medicine in Chattanooga,, Tennessee. Dr. Raulston is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Patent Ductus Arteriosus, Heart Murmurs, Ventricular Septal Defects, and DiGeorge Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Nashville Plastic And Reconstructive Surgery PLC.

    2201 Murphy Ave Ste 407, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Casilda Hermo is a Pediatric Cardiologist practicing medicine in Nashville, Tennessee. Dr. Hermo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Heart Murmurs.

    Experienced in Koolen De Vries Syndrome
    Endocrinology
    Experienced in Koolen De Vries Syndrome
    Endocrinology

    Children's Hospital At Erlanger Endocrinology

    900 E 3rd St, 
    Chattanooga, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Pamela Clark is an Endocrinologist practicing medicine in Chattanooga, Tennessee. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Abdominal Obesity Metabolic Syndrome, Type B Insulin Resistance Syndrome, Cytochrome C Oxidase Deficiency, and Mitochondrial Complex V Deficiency.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    River Valley Health

    1923 Sulphur Springs Road, 
    Morristown, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Katherine Silva is a Pediatrics provider practicing medicine in Morristown, Tennessee. Dr. Silva is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Obesity in Children, Developmental Dysphasia Familial, Delayed Growth, and Viral Gastroenteritis.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology

    Children's Hospital At Erlanger Cardiology

    900 E 3rd St, 
    Chattanooga, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Brandon Morrical is a Pediatric Cardiologist practicing medicine in Chattanooga, Tennessee. Dr. Morrical is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Patent Ductus Arteriosus, Ventricular Septal Defects, Heart Murmurs, Atrial Septal Defect (ASD), and Stent Placement.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    51 N Dunlap St, 
    Memphis, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Brittany Simpson is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Memphis, Tennessee. Dr. Simpson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 105 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Acro-Pectoro-Renal Field Defect, and Acropectoral Syndrome.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    2018 Clinch Avenue, South Tower 2nd Floor, 
    Knoxville, TN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jared Hamm is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Knoxville, Tennessee. Dr. Hamm is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 182 other conditions, according to our data. His clinical expertise encompasses Ectodermal Dysplasias, Clouston Syndrome, Zlotogora-Ogur Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome. Dr. Hamm is currently accepting new patients.

    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Advanced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    910 Blackford St, 
    Chattanooga, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Cathy Stevens is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Chattanooga, Tennessee. Dr. Stevens is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 162 other conditions, according to our data. Her clinical expertise encompasses Chromosome 6q Deletion, Microcephaly, Miller-Dieker Syndrome, and Smith-Magenis Syndrome.

    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology
    Advanced in Koolen De Vries Syndrome
    Pediatric Neurology

    Etch Pediatric Neurology

    2100 Clinch Ave Ste 210, 
    Knoxville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Anna Kosentka is a Pediatric Neurologist practicing medicine in Knoxville, Tennessee. Dr. Kosentka is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and Generalized Tonic-Clonic Seizure.

    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology
    Advanced in Koolen De Vries Syndrome
    Pediatric Endocrinology

    Etch Pediatric Endocrinology

    2018 Clinch Ave # 2, 
    Knoxville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Marielisa Rincon is a Pediatric Endocrinologist practicing medicine in Knoxville, Tennessee. Dr. Rincon is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Short Stature (Growth Disorders), Idiopathic Short Stature (ISS), Familial Short Stature (FSS), and Sheehan Syndrome.

    Experienced in Koolen De Vries Syndrome
    Nephrology
    Experienced in Koolen De Vries Syndrome
    Nephrology

    Bucks County Oncoplastic Institute LLC

    511 Union St Ste 1800, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    Ari Mosenkis is a Nephrologist practicing medicine in Nashville, Tennessee. Dr. Mosenkis is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Nephrosclerosis, Acute Kidney Failure, Feingold Syndrome, and Renovascular Hypertension.

    Experienced in Koolen De Vries Syndrome
    Family Medicine | Sports Medicine
    Experienced in Koolen De Vries Syndrome
    Family Medicine | Sports Medicine

    CHI Memorial Primary Care And Sports Medicine Associates - Hixson

    2051 Hamill Rd, Suite 306, 
    Hixson, TN 
    Languages Spoken:
    English
    Accepting New Patients

    Owen Speer is a Sports Medicine specialist and a Family Medicine provider practicing medicine in Hixson, Tennessee. Dr. Speer is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His clinical expertise encompasses Tendinitis, Bursitis, Seasonal Affective Disorder (SAD), and Vitamin D Deficiency. Dr. Speer is board certified in American Board Of Family Medicine. Dr. Speer is currently accepting new patients.

    Showing 1-20 of 87

    Last Updated: 04/28/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor in Tennessee, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor in Tennessee, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors in Tennessee, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors in Tennessee, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor in Tennessee, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor in Tennessee, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors in Tennessee, US?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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