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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in Koolen De Vries Syndrome near Memphis, TN. Of these, 8 are Experienced and 2 are Advanced.

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    10 providers found
      Advanced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Advanced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      51 N Dunlap St, 
      Memphis, TN 
       (1.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Brittany Simpson is a Medical Genetics specialist and a Pediatrics provider in Memphis, Tennessee. Dr. Simpson is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia, and Rubinstein-Taybi Syndrome.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology | Pediatrics
      777 Washington Ave, P400, 
      Memphis, TN 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Alejandro Arevalo is a Pediatric Cardiologist and a Cardiologist in Memphis, Tennessee. Dr. Arevalo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve. Dr. Arevalo is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      Experienced in Koolen De Vries Syndrome
      Pediatric Endocrinology
      848 Adams Ave # L201, 
      Memphis, TN 
       (1.2 miles away)
      Languages Spoken:
      English

      Joan Han is a Pediatric Endocrinologist in Memphis, Tennessee. Dr. Han is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are WAGR Syndrome, Alstrom Syndrome, Obesity, and Bardet-Biedl Syndrome.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Pediatrics
      University Of Tennessee, 910 Madison Avenue Suite 1031, 
      Memphis, TN 
       (1.3 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Rana Khaznadar is a Pediatric Cardiologist and a Pediatrics provider in Memphis, Tennessee. Dr. Khaznadar is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Trisomy 18. Dr. Khaznadar is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Ophthalmology
      Experienced in Koolen De Vries Syndrome
      Ophthalmology
      930 Madison Ave, Suite 200, 
      Memphis, TN 
       (1.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Mary Hoehn is an Ophthalmologist in Memphis, Tennessee. Dr. Hoehn is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Strabismus, Optic Glioma, Brown Syndrome, Esotropia, and Cataract Removal.

      Experienced in Koolen De Vries Syndrome
      General Practice
      Experienced in Koolen De Vries Syndrome
      General Practice
      515 N Highland St, 
      Memphis, TN 
       (6.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Marshall is a primary care provider, practicing in General Practice in Memphis, Tennessee. Dr. Marshall is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Townes-Brocks Syndrome, Blepharocheilodontic Syndrome, WAGR Syndrome, and Vici Syndrome. Dr. Marshall is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Adolescent Medicine | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Adolescent Medicine | Pediatrics
      2574 Frayser Blvd, 
      Memphis, TN 
       (6.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rhonda Johnson is an Adolescent Medicine specialist and a Pediatrics provider in Memphis, Tennessee. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Obesity in Children, Painful Menstrual Periods, Autism Spectrum Disorder, and Delayed Growth. Dr. Johnson is currently accepting new patients.

      Advanced in Koolen De Vries Syndrome
      Hematology Oncology | Hematology | Oncology
      Advanced in Koolen De Vries Syndrome
      Hematology Oncology | Hematology | Oncology
      80 Humphreys Center Dr Ste 330, 
      Memphis, TN 
       (11.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Clyde Jones is a Hematologist Oncology specialist and a Hematologist in Memphis, Tennessee. Dr. Jones is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Paget Disease of the Breast, Protein S Deficiency, Hereditary Resistance to Anti-Vitamin K, Protein C Deficiency, and Bone Marrow Aspiration.

      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner
      Experienced in Koolen De Vries Syndrome
      Nurse Practitioner

      Gastroenterology Center Of The Midsouth PLLC

      1324 Wolf Park Dr, 
      Germantown, TN 
       (14.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Melissa Baines is a Nurse Practitioner in Germantown, Tennessee. Ms. Baines is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Non-Alcoholic Fatty Liver Disease, Nonalcoholic Steatohepatitis (NASH), Intestinal Cancer, and Koolen De Vries Syndrome.

      Experienced in Koolen De Vries Syndrome
      Orthopedics
      Experienced in Koolen De Vries Syndrome
      Orthopedics
      1400 S Germantown Rd, 
      Germantown, TN 
       (14.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Anna Rambo is an Orthopedics provider in Germantown, Tennessee. Dr. Rambo is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Scoliosis, Spondylocarpotarsal Synostosis Syndrome, Caudal Regression Syndrome, and Beukes Familial Hip Dysplasia. Dr. Rambo is currently accepting new patients.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Memphis, TN?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Memphis, TN?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Memphis, TN?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Memphis, TN?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Memphis, TN?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Memphis, TN?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Memphis, TN?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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