Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy.

Pasquale Striano practices in Genoa, Italy. Mr. Striano is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, and Seizures.

Roger Packer is a Neurologist and a Pediatrics provider in Washington, Washington, D.c.. Dr. Packer is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Brain Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Medulloblastoma, and Gliomatosis Cerebri.

Silverio Perrotta practices in Naples, Italy. Mr. Perrotta is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Congenital Hemolytic Anemia, Beta Thalassemia, Thalassemia, Anemia, and Splenectomy.

Yoshihiro Nishida practices in Nagoya, Japan. Mr. Nishida is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Desmoid Tumor, Fibromatosis, Adult Soft Tissue Sarcoma, Osteotomy, and Pancreaticoduodenectomy.

Maryam Fouladi is a Pediatric Hematologist Oncology provider in Mansfield, Ohio. Dr. Fouladi is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Medulloblastoma, and Brain Stem Cancer.

Pierre Wolkenstein practices in Creteil, France. Mr. Wolkenstein is rated as an Elite expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Scalded Skin Syndrome, Erythema Multiforme, and Kidney Transplant.

Ira Dunkel is a Pediatric Hematologist Oncology provider in New York, New York. Dr. Dunkel is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Retinoblastoma, Diffuse Midline Glioma H3 K27M-Mutant, Glioma, and Brain Stem Cancer.

Dr. Cohen is Director of Pediatric Neuro-Oncology and Clinical Director of the Division of Pediatric Oncology at the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins. He received his undergraduate degree at Brown University and earned his MD at the Upstate Medical University, in Syracuse, NY. He did his general Pediatric Residency and Chief Residency at the University of Colorado and completed his Pediatric Hematology/Oncology Fellowship at Johns Hopkins. He has served on the faculty since 1994. His research centers on clinical trials of novel therapeutics for children with brain tumors. Dr. Cohen is co-chair of the High-Grade Glioma committee for the Children's Oncology Group and in that capacity has a particular research interest in the development of therapeutics for the treatment of infiltrating gliomas. He serves on the scientific advisory board for a number of organizations including St. Baldricks and the Childhood Brain Tumor Foundation. He is on the editorial board for PDQ with responsibility for authorship of the pediatric CNS brain tumor summaries. The Pediatric Neuro-Oncology program conducts a broad range of research centered primarily around the development and testing of novel therapeutics for children with brain tumors. The multidisciplinary nature of this work translates into continual collaboration with specialists in pediatric neurosurgery, radiation oncology, neuropathology, neuroradiology, neurology, neuro-ophthalmology, neuropsychology, and other related disciplines. Dr. Cohen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Brain Stem Cancer, Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration.

Mariko Sato is a Pediatric Hematologist Oncology provider in Orange, California. Dr. Sato is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Medulloblastoma, Hepatoblastoma, Embryonal Tumor with Multilayered Rosettes, and Bone Marrow Aspiration.

Kevin Kim is a Hematologist and an Oncologist in San Francisco, California. Dr. Kim is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Melanoma, Metastatic Uveal Melanoma, Melanoma of the Eye, and Uveal Melanoma.

Dr. Stapleton is the division chief of oncology and director of pediatric neuro-oncology at Johns Hopkins All Children’s Hospital. Dr. Stapleton joined the hospital in 2007. She has formal training in pediatric neuro-oncology. She received the Armstrong Award for Quality and Patient Safety for Johns Hopkins All Children's in the 2024 Johns Hopkins Medicine Clinical Awards. Dr. Stapleton is on the Pediatric Palliative Care Team at Johns Hopkins All Children’s, and she specializes in symptom control and end of life care. She has been awarded numerous grants for phase I studies for patients with brain and spinal cord tumors as well as clinical research in pediatric palliative care. Dr. Stapleton’s research experience includes investigator-initiated and multi-center research projects. Dr. Stapleton is an associate professor of pediatrics at the University of South Florida and an assistant professor in the department of pediatrics at Johns Hopkins University. Dr. Stapleton completed her medical training at St. Louis University School of Medicine, residency training at Lackland Air Force Base in Texas and fellowship training at Baylor College of Medicine/Texas Children’s Hospital. Dr. Stapleton also served 13 years in the United States Air Force. Dr. Stapleton is a member of the American Board of Pediatrics, the Children’s Oncology Group, the Society of Neuro-Oncology, American Society of Pediatric Hematology/Oncology, and America Academy of Hospice and Palliative Medicine. Dr. Stapleton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Glioma, Histiocytosis, and Bone Marrow Aspiration.

David Enterline is a Neuroradiologist in Durham, North Carolina. Dr. Enterline is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), Stroke, Relapsing Multiple Sclerosis (RMS), Vertebroplasty, and Bone Graft.

Stuart Cramer is a Pediatric Hematologist Oncology provider in Columbia, South Carolina. Dr. Cramer is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Hepatoblastoma, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Aspiration. Dr. Cramer is currently accepting new patients.

Aniket Saha is a Pediatric Hematologist Oncology provider in Greenville, South Carolina. Dr. Saha is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Hepatoblastoma, Histiocytosis, Reticulohistiocytoma, Langerhans Cell Histiocytosis, and Bone Marrow Aspiration. Dr. Saha is currently accepting new patients.

Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

Darren Hargrave practices in London, United Kingdom. Mr. Hargrave is rated as a Distinguished expert by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Gliomatosis Cerebri, Brain Tumor, and Diffuse Midline Glioma H3 K27M-Mutant.

Bruce Korf is a Medical Genetics specialist and a Pediatrics provider in Birmingham, Alabama. Dr. Korf is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and RASopathies.

Sarah Leary is a Pediatric Hematologist Oncology provider in Seattle, Washington. Dr. Leary is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Medulloblastoma, Glioma, Embryonal Tumor with Multilayered Rosettes, Diffuse Midline Glioma H3 K27M-Mutant, and Bone Marrow Aspiration.

Brian Weiss is a Pediatric Hematologist Oncology provider in Indianapolis, Indiana. Dr. Weiss is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Neurofibromatosis, Bone Marrow Transplant, and Bone Marrow Aspiration.