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    Last Updated: 01/09/2026

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    MediFind found 41 doctor with experience in Neurofibromatosis Type 1 (NF1).

    Location
    LocationClose
    41 providers found
      Eric Raabe
      Elite in Neurofibromatosis Type 1 (NF1)
      Oncology | Pediatrics
      Elite in Neurofibromatosis Type 1 (NF1)
      Oncology | Pediatrics

      Johns Hopkins Children's Center

      Baltimore, MD 
      Languages Spoken:
      English, French

      Eric Raabe, M.D., Ph.D., is an associate professor of oncology and pathology at Johns Hopkins School of Medicine. Dr. Raabe majored in neural science at Brown University and received his M.D. and Ph.D. from the University of Cincinnati College of Medicine. He completed his pediatric internship and residency at Children’s Hospital of Philadelphia. After spending a year working in Africa as part of the Baylor International Pediatric AIDS Initiative, Dr. Raabe joined Johns Hopkins as a pediatric oncology fellow. Working in the laboratory of Charles Eberhart in Neuropathology, Dr. Raabe established a neural stem cell system to create genetically accurate models of pediatric brain tumors. In collaboration with patients and families, he has also developed multiple pediatric brain tumor cell lines that are some of the key models used for pre-clinical testing. Dr. Raabe sees patients in the pediatric oncology outpatient clinic at Johns Hopkins, with a focus on pediatric brain tumors. Dr. Raabe is also the point person in oncology for retinoblastoma care. He continues his research in the new Smith Building of the Wilmer Eye Institute in the Neuropathology Division, in collaboration with Charles Eberhart. Dr. Raabe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Rhabdoid Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Glioma, and Pediatric Low-Grade Glioma (pLGG).

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      9135 Southwest Barnes Road, Suite 461, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      University Of Utah Pediatric Genetic & Metabolism Clinic

      81 North Mario Capecchi Drive, 
      Salt Lake City, UT 
      Experience:
      41+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Viskochil is a Medical Genetics provider in Salt Lake City, Utah. Dr. Viskochil has been practicing medicine for over 41 years and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Dr. Viskochil is currently accepting new patients.

      Learn about our expert tiers
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      The Regents Of The University Of California

      150 Medical Plz, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Phioanh Nghiemphu is a Neurologist in Los Angeles, California. Dr. Nghiemphu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Glioblastoma, Astrocytoma, and Brain Tumor.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tobias Walbert is a Neurologist in Detroit, Michigan. Dr. Walbert is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Regents Of The University Of Claifornia Univ Neursciences

      101 The City Dr S, 
      Orange, CA 
      Languages Spoken:
      English

      Daniela Bota is a Neurologist in Orange, California. Dr. Bota is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      James Tonsgard is a Pediatrics specialist and a Neurologist in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and RASopathies.

      Christine Pratilas
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Oncology

      Johns Hopkins Children's Center

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Christine Pratilas is a pediatric medical oncologist at the Sidney Kimmel Comprehensive Cancer Center and Associate Professor of Oncology, Pediatrics & Cellular and Molecular Medicine at the Johns Hopkins University School of Medicine. She joined the Hopkins pediatric sarcoma team in 2014. Dr. Pratilas received her undergraduate degree in Biology from Drew University in New Jersey and her medical degree from UMDNJ - Robert Wood Johnson Medical School (now Rutgers University), where she also completed her internship and residency from 1999 to 2002. From 2002 to 2005 she was a fellow in hematology and oncology in the Memorial Sloan Kettering Cancer Center (MSKCC) Department of Pediatrics, and in the Department of Pediatric Hematology and Oncology at New York Weill Cornell Medical Center. She was a postdoctoral research fellow in Dr. Neal Rosen’s Molecular Oncogenesis Laboratory at MSKCC. From 2006 to 2014 she was attending in Pediatric Oncology at MSKCC, specializing in developmental therapeutics & sarcoma. She has been the director of the pediatric sarcoma program at Hopkins since 2018. Dr. Pratilas focuses her research on cancer-associated pathways and signal transduction, which involves figuring out how a cell’s internal molecular pathways work, and how those pathways can be molecularly controlled. This knowledge is the basis for developing promising new molecularly targeted cancer therapies, which is the focus of Dr. Pratilas’s research. Among her important scientific contributions is advancing our understanding of how certain proteins that can be mutated in cancer, known as RAF kinases (specifically BRAF), affect a cancer cell’s behavior. The research in Dr. Pratilas' laboratory is focused on RAS signal transduction pathways, concentrating on pediatric sarcomas such as rhabdomyosarcoma and malignant peripheral nerve sheath tumors, in order to develop novel therapeutics for children with these tumors. Dr. Pratilas is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Adult Soft Tissue Sarcoma, and Osteotomy.

      Stacie L. Stapleton
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Palliative Medicine | Pediatric Hematology Oncology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Palliative Medicine | Pediatric Hematology Oncology

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      Saint Petersburg, FL 
      Languages Spoken:
      English

      Dr. Stapleton is the division chief of oncology and director of pediatric neuro-oncology at Johns Hopkins All Children’s Hospital. Dr. Stapleton joined the hospital in 2007. She has formal training in pediatric neuro-oncology. She received the Armstrong Award for Quality and Patient Safety for Johns Hopkins All Children's in the 2024 Johns Hopkins Medicine Clinical Awards. Dr. Stapleton is on the Pediatric Palliative Care Team at Johns Hopkins All Children’s, and she specializes in symptom control and end of life care. She has been awarded numerous grants for phase I studies for patients with brain and spinal cord tumors as well as clinical research in pediatric palliative care. Dr. Stapleton’s research experience includes investigator-initiated and multi-center research projects. Dr. Stapleton is an associate professor of pediatrics at the University of South Florida and an assistant professor in the department of pediatrics at Johns Hopkins University. Dr. Stapleton completed her medical training at St. Louis University School of Medicine, residency training at Lackland Air Force Base in Texas and fellowship training at Baylor College of Medicine/Texas Children’s Hospital. Dr. Stapleton also served 13 years in the United States Air Force. Dr. Stapleton is a member of the American Board of Pediatrics, the Children’s Oncology Group, the Society of Neuro-Oncology, American Society of Pediatric Hematology/Oncology, and America Academy of Hospice and Palliative Medicine. Dr. Stapleton is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Medulloblastoma, Embryonal Tumor with Multilayered Rosettes, Glioma, Histiocytosis, and Bone Marrow Aspiration.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Brian Weiss is a Pediatric Hematologist Oncology provider in Indianapolis, Indiana. Dr. Weiss is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neuroblastoma, Embryonal Tumor with Multilayered Rosettes, Neurofibromatosis, Bone Marrow Transplant, and Bone Marrow Aspiration.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English

      Nicholas Foreman is a Pediatric Hematologist Oncology provider in Aurora, Colorado. Dr. Foreman is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Medulloblastoma, Ganglioglioma, Glioma, and Rhabdoid Tumor.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      5323 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Laura Klesse is a Pediatric Hematologist Oncology provider in Dallas, Texas. Dr. Klesse is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Acute Lymphoblastic Leukemia (ALL).

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      4500 San Pablo Rd S, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Dusica Babovic is a Medical Genetics provider in Jacksonville, Florida. Dr. Babovic is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Kathryn Nevel is a Neurologist in Indianapolis, Indiana. Dr. Nevel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Oligodendroglioma, Atypical Teratoid Rhabdoid Tumor (ATRT), Glioma, and Gliosarcoma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Cynthia Campen is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Campen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Medulloblastoma, and Optic Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      225 E Chicago Ave # 30, 
      Chicago, IL 
      Languages Spoken:
      English

      Miriam Bornhorst is a Pediatric Hematologist Oncology provider in Chicago, Illinois. Dr. Bornhorst is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      740 Adair Ave, 
      Zanesville, OH 
      Languages Spoken:
      English

      Ryan Roberts is a Pediatric Hematologist Oncology provider in Zanesville, Ohio. Dr. Roberts is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Osteosarcoma, Adult Soft Tissue Sarcoma, Ewing Sarcoma, and Rhabdomyosarcoma.

      Showing 1-20 of 41

      Last Updated: 01/09/2026

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near me?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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