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    Last Updated: 10/30/2025

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    MediFind found 41 doctor with experience in Neurofibromatosis Type 1 (NF1).

    Location
    LocationClose
    41 providers found
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      The Regents Of The University Of California

      150 Medical Plz, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Phioanh Nghiemphu is a Neurologist in Los Angeles, California. Dr. Nghiemphu is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioma, Glioblastoma, Astrocytoma, and Brain Tumor.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tobias Walbert is a Neurologist in Detroit, Michigan. Dr. Walbert is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Angela Hirbe is an Oncologist in Saint Louis, Missouri. Dr. Hirbe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Fibrosarcoma, Neurofibromatosis Type 1 (NF1), and Adult Soft Tissue Sarcoma.

      Learn about our expert tiers
      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)

      Regents Of The University Of Claifornia Univ Neursciences

      101 The City Dr S, 
      Orange, CA 
      Languages Spoken:
      English

      Daniela Bota is a Neurologist in Orange, California. Dr. Bota is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Glioblastoma, Astrocytoma, Glioma, and Brain Tumor.

      Elite in Neurofibromatosis Type 1 (NF1)
      Elite in Neurofibromatosis Type 1 (NF1)
      9135 Southwest Barnes Road, Suite 461, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Prakash Ambady is a Neurologist in Portland, Oregon. Dr. Ambady is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Astrocytoma, Glioblastoma, Glioma, and Brain Tumor. Dr. Ambady is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Elite in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      University Of Utah Pediatric Genetic & Metabolism Clinic

      81 North Mario Capecchi Drive, 
      Salt Lake City, UT 
      Experience:
      40+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Viskochil is a Medical Genetics provider in Salt Lake City, Utah. Dr. Viskochil has been practicing medicine for over 40 years and is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome). Dr. Viskochil is currently accepting new patients.

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Johns Hopkins University

      1800 Orleans St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Eric Raabe is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Raabe is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Rhabdoid Tumor, Diffuse Midline Glioma H3 K27M-Mutant, Glioma, and Pediatric Low-Grade Glioma (pLGG).

      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology
      Elite in Neurofibromatosis Type 1 (NF1)
      Pediatrics | Neurology

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      James Tonsgard is a Pediatrics specialist and a Neurologist in Chicago, Illinois. Dr. Tonsgard is rated as an Elite provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Neurofibromatosis Type 2 (NF2), and Schwannomatosis.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      8906 Bradmoor Dr, 
      Bethesda, MD 
      Languages Spoken:
      English

      Brigitte Widemann is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Widemann is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, Adult Soft Tissue Sarcoma, and Thyroidectomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Christine Pratilas is a Pediatric Hematologist Oncology provider in Baltimore, Maryland. Dr. Pratilas is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Adult Soft Tissue Sarcoma, and Osteotomy.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English

      Nicholas Foreman is a Pediatric Hematologist Oncology provider in Aurora, Colorado. Dr. Foreman is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Medulloblastoma, Ganglioglioma, Glioma, and Rhabdoid Tumor.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Fairview Express Care

      2450 Riverside Ave, 
      Minneapolis, MN 
      Languages Spoken:
      English

      Christopher Moertel is a Pediatric Hematologist Oncology provider in Minneapolis, Minnesota. Dr. Moertel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Malignant Peripheral Nerve Sheath Tumor, and RASopathies.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      University Of Texas Southwestern Medical Center At Dallas

      5323 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Laura Klesse is a Pediatric Hematologist Oncology provider in Dallas, Texas. Dr. Klesse is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Medical Genetics

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English

      Dusica Babovic is a Medical Genetics provider in Rochester, Minnesota. Dr. Babovic is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Legius Syndrome, and Hereditary Multiple Osteochondromas.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Distinguished in Neurofibromatosis Type 1 (NF1)

      Indiana Clinic-Neurology, LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Kathryn Nevel is a Neurologist in Indianapolis, Indiana. Dr. Nevel is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Oligodendroglioma, Atypical Teratoid Rhabdoid Tumor (ATRT), Glioma, and Gliosarcoma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Cynthia Campen is a Pediatric Neurologist and a Neurologist in Palo Alto, California. Dr. Campen is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Medulloblastoma, and Optic Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      225 E Chicago Ave # 30, 
      Chicago, IL 
      Languages Spoken:
      English

      Miriam Bornhorst is a Pediatric Hematologist Oncology provider in Chicago, Illinois. Dr. Bornhorst is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Optic Glioma, and Glioma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      740 Adair Ave, 
      Zanesville, OH 
      Languages Spoken:
      English

      Ryan Roberts is a Pediatric Hematologist Oncology provider in Zanesville, Ohio. Dr. Roberts is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Osteosarcoma, Adult Soft Tissue Sarcoma, Ewing Sarcoma, and Rhabdomyosarcoma.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology

      Kidz Medical Services Inc

      3100 Sw 62nd Ave, Suite 121 / North East Win, 
      Miami, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Ziad Khatib is a Pediatric Hematologist Oncology provider in Miami, Florida. Dr. Khatib is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Medulloblastoma, Glioma, Embryonal Tumor with Multilayered Rosettes, Neurofibromatosis Type 1 (NF1), and Bone Marrow Aspiration.

      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics
      Distinguished in Neurofibromatosis Type 1 (NF1)
      Pediatrics
      840 S Wood St, 
      Chicago, IL 
      Languages Spoken:
      English

      Punita Gupta is a Pediatrics provider in Chicago, Illinois. Dr. Gupta is rated as a Distinguished provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Gaucher Disease, and Gaucher Disease Type 1.

      Showing 1-20 of 41

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near me?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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