The 20 Best PHACE Syndrome Doctors Near Me in Portland, OR

Find the Top PHACE Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 5 doctor with experience in PHACE Syndrome near Portland, OR. Of these, 4 are Experienced and 1 are Advanced.

Location
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5 providers found
    Advanced in PHACE Syndrome
    Pediatrics
    Advanced in PHACE Syndrome
    Pediatrics

    OHSU Hospital

    3181 SW Sam Jackson Park Rd, 
    Portland, OR 
     (1.3 miles away)
    Languages Spoken:
    English

    Alfons Krol is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Krol is rated as an Advanced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses PHACE Syndrome, Nijmegen Breakage Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Experienced in PHACE Syndrome
    Pediatrics
    Experienced in PHACE Syndrome
    Pediatrics

    University Andrology Lab LLC

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English

    Alison Small is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Small is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Necrotizing Granuloma, Vascular Birthmark, Aplasia Cutis Congenita, and Urticaria Pigmentosa.

    Experienced in PHACE Syndrome
    Pediatrics
    Experienced in PHACE Syndrome
    Pediatrics

    Office

    3303 S Bond Ave Ste 16, 
    Portland, OR 
     (1.8 miles away)
    Languages Spoken:
    English

    Tracy Funk is a Pediatrics provider practicing medicine in Portland, Oregon. Dr. Funk is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Necrotizing Granuloma, Pachyonychia Congenita, Aplasia Cutis Congenita, and Clouston Syndrome.

    Learn about our expert tiers
    Experienced in PHACE Syndrome
    Experienced in PHACE Syndrome
    9155 Southwest Barnes Road, Suite 440, 
    Portland, OR 
     (4.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Vivek Deshmukh is a Neurosurgery provider practicing medicine in Portland, Oregon. Dr. Deshmukh is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Stroke, Spinal Tumor, Extracranial-Intracranial Bypass Surgery, and Cerebral Artery Bypass Surgery. Dr. Deshmukh is currently accepting new patients.

    Experienced in PHACE Syndrome
    Neurosurgery
    Experienced in PHACE Syndrome
    Neurosurgery

    Oregon Health & Science University

    3303 S Bond Ave, 
    Portland, OR 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Aclan Dogan is a Neurosurgery provider practicing medicine in Portland, Oregon. Dr. Dogan is rated as an Experienced provider by MediFind in the treatment of PHACE Syndrome. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Brain Aneurysm, Subarachnoid Hemorrhage, Meningioma, Awake Craniotomy, and Thrombectomy.

    Showing 1-5 of 5

    Last Updated: 04/28/2026

    What is the definition of PHACE Syndrome?

    PHACE syndrome is the association of a large hemangioma, usually on the face or neck, in combination with one or more other birth defects. People with PHACE syndrome may have posterior fossa brain malformations, hemangioma, arterial lesions (blood vessel abnormalities in the head or neck), cardiac (heart) abnormalities/aortic coarctation, and eye abnormalities. Symptoms and symptom severity may vary from person to person. The cause of the condition is currently unknown.

    When should I see a PHACE Syndrome doctor near Portland, OR?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a PHACE Syndrome doctor near Portland, OR?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank PHACE Syndrome doctors near Portland, OR?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by PHACE Syndrome doctors near Portland, OR?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a PHACE Syndrome doctor near Portland, OR?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the PHACE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different PHACE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a PHACE Syndrome doctor near Portland, OR?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my PHACE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my PHACE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female PHACE Syndrome doctors near Portland, OR?

    Look for the filter feature on the left side of the PHACE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a PHACE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the PHACE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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