The 20 Best RASopathies Doctors Near Me in Baltimore, MD

Find the Top RASopathies Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 42 doctor with experience in RASopathies near Baltimore, MD. Of these, 37 are Experienced, 3 are Advanced and 2 are Distinguished.

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42 providers found
    Distinguished in RASopathies
    Distinguished in RASopathies

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English

    Dr. Jaishri Blakeley is the Marjorie Bloomberg Tiven Professor of Neurofibromatosis in Neurology, Oncology, and Neurosurgery at Johns Hopkins School of Medicine, director of the Johns Hopkins Comprehensive Neurofibromatosis Center and director of the Neurofibromatosis Therapeutic Acceleration Program (NTAP). She is an active clinician-scientist specializing in the care of people with NF1, NF2, LZTR1, SMARC1 schwannomatoses, and primary brain tumors. Her research expertise in the development of clinical trials for nervous system tumors and specifically, early clinical-translational studies including tumor pharmacokinetic and pharmacodynamic investigations, imaging biomarkers for rare nervous system tumors, and incorporation of patient-focused, functional endpoints into efficacy studies. She has been the national or international leader of 7 clinical trials focused on therapies for glioblastoma, NF1 and NF2. In 2012 she cofounded the NTAP to dramatically shift the landscape of NF1 via necessary, efficient, and expert discovery, translational and clinical research. NTAP focuses on therapeutics, fosters collaboration, facilitates open and timely sharing of results, and streamlines the research process to accelerate therapies for plexiform and cutaneous neurofibromas. Through NTAP, Dr. Blakeley has supported and collaborated with more than 80 laboratories and research teams across the globe enabling meaningful therapeutic development for NF1-associated neoplasms and supporting the development of an exceptional community of clinician scientists focused on NF1 via the Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research. Her research and programmatic efforts are all in the service of improving outcomes for the patients with NF1, NF2, schwannomatosis, and primary brain cancer for whom she is honored to provide care. Dr. Blakeley is rated as a Distinguished provider by MediFind in the treatment of RASopathies. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, Schwannomatosis, Neurofibromatosis Type 2 (NF2), Neurofibromatosis Type 1 (NF1), and Laminectomy. Dr. Blakeley is board certified in American Board Of Psychiatry And Neurology.

    Distinguished in RASopathies
    Nurse Practitioner
    Distinguished in RASopathies
    Nurse Practitioner

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English

    Nurse practitioner Shannon Langmead specializes in neurofibromatosis and is the clinic coordinator of the Johns Hopkins Comprehensive Neurofibromatosis (NF) Center. She evaluates and manages patients with NF1, NF2 and Schwannomatosis. Her special interests include pain management and developing social support networks for patients who have NF. Shannon earned bachelor’s degrees in Spanish and nursing from Saint Francis University in Pennsylvania and Villa Julie College in Maryland, and completed her master’s degree in nursing at The Johns Hopkins University School of Nursing. She has worked as a bedside nurse in neurology and neurosurgery at The Johns Hopkins Hospital and as a part-time clinical faculty member for The Johns Hopkins University School of Nursing. Ms. Langmead is rated as a Distinguished provider by MediFind in the treatment of RASopathies. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis, RASopathies, Neurofibromatosis Type 1 (NF1), and Legius Syndrome. Ms. Langmead is board certified in American Nurses Credentialing Center.

    Advanced in RASopathies
    General Surgery | Neurosurgery
    Advanced in RASopathies
    General Surgery | Neurosurgery

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 5, Floor 5, 
    Baltimore, MD 
     (0.1 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Allan Belzberg is a neurosurgeon specializing in surgery of the peripheral nervous system. As Director of Peripheral Nerve Surgery at Johns Hopkins in Baltimore, he treats tumors including schwannoma, neurofibroma and nerve sheath tumor. Dr. Belzberg performs surgical repair of nerve damage caused by trauma as well as neurosurgery on carpal tunnel, peroneal nerve and other peripheral nerve conditions. Dr. Belzberg also directs the Brachial Plexus and Peripheral Nerve Clinic at the Kennedy Krieger Institute and co-directs the Neurosurgery Pain Research Institute at Johns Hopkins Hospital. Dr. Belzberg currently sees patients at the Johns Hopkins Outpatient Center located in Baltimore on Wednesdays and the Green Spring Station location on Fridays. Dr. Belzberg is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Thoracic Outlet Syndrome, Rhizotomy, and Laminectomy. Dr. Belzberg is board certified in American Board Of Neurological Surgery.

    Are you looking for a specific type of RASopathies?

    Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

    Learn about our expert tiers
    Experienced in RASopathies
    Medical Genetics | Neonatology
    Experienced in RASopathies
    Medical Genetics | Neonatology

    Gynecology And Obstetrics - Nelson/Harvey Building

    1800 Orleans Street, Nelson BLDG, 2 Floor Ste 2-150, Nelson BLDG, 2 Floor Ste 2-150, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English

    Dr. Angie Jelin is the assistant director of prenatal genetics at the Prenatal Diagnostic Center in the Division of Maternal-Fetal Medicine and an assistant professor in the Johns Hopkins Medicine Department of Gynecology and Obstetrics. Her areas of clinical expertise include prenatal genetic counseling, fetal imaging, chorionic villus sampling and amniocentesis, with a focus on fetal complications in pregnancy. Dr. Jelin earned her medical degree from Harvard Medical School. She did her residency in obstetrics and gynecology at the University of California, San Francisco, and then remained there to complete a maternal-fetal medicine and genetics fellowship. In 2015, Dr. Jelin joined the Johns Hopkins faculty, at which time she also received a Building Interdisciplinary Research Careers in Women’s Health grant to study fetal genetic disorders. Dr. Jelin’s research involves fetal imaging and genetic diagnoses, including whole exome sequencing. Dr. Jelin is a member of the American College of Obstetricians and Gynecologists, the Society of Maternal-Fetal Medicine and the International Society of Prenatal Diagnosis. She currently serves on the IRB committee of the American Board of Obstetrics and Gynecology. Dr. Jelin has published many articles in obstetrics and maternal-fetal medicine journals. Dr. Jelin is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Polyhydramnios, Bilateral Renal Agenesis Dominant Type, Lung Agenesis, and Atresia of Small Intestine. Dr. Jelin is board certified in American Board Of Medical Genetics And Genomics and American Board Of Obstetrics And Gynecology.

    Experienced in RASopathies
    Pediatrics | Medical Genetics
    Experienced in RASopathies
    Pediatrics | Medical Genetics

    Rubenstein Child Health Building

    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English, French

    Ambroise Wonkam is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Baltimore, Maryland. Dr. Wonkam is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Anemia, Fragile X Syndrome, Pyle Disease, and Micrognathia.

    Experienced in RASopathies
    Pediatric Orthopedics | Orthopedics
    Experienced in RASopathies
    Pediatric Orthopedics | Orthopedics

    Johns Hopkins Outpatient Center

    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English, Hindi, Malayalam

    Dr. Ranjit Abraham Varghese is an assistant professor of orthopaedic surgery at the Johns Hopkins University School of Medicine. He is a specialist in pediatric orthopaedics. He focuses on the treatment of cerebral palsy, neuromuscular disorders, andpediatric hip and foot disorders. Dr. Varghese earned his medical degree from Kasturba Medical College of Manipal University in Mangalore India, where he also did his residency. He later earned a master’s degree in health science and clinical epidemiology at the University of British Columbia, Canada. He completed fellowships in pediatric orthopaedics at the University of British Columbia and the University of Minnesota. He also completed a combined orthopedics oncology fellowship at Harvard Medical School, Massachusetts General Hospital, Beth Israel Deaconess Medical Center and Boston Children’s Hospital. He serves as medical director of the Ortho-Cerebral Palsy Program at the Kennedy Krieger Institute. His research interests include cerebral palsy, hip disorders and outcome evaluations. Dr. Varghese is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Spastic Diplegia Infantile Type, Slipped Capital Femoral Epiphysis, Wildervanck Syndrome, and CHARGE Syndrome.

    Experienced in RASopathies
    Plastic Surgery
    Experienced in RASopathies
    Plastic Surgery

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 8, Floor 8, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English

    Chad Gordon is a Plastic Surgeon practicing medicine in Baltimore, Maryland. Dr. Gordon is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis, Legius Syndrome, Neurofibromatosis Type 1 (NF1), Osteotomy, and Bone Graft. Dr. Gordon is board certified in American Board Of Plastic Surgery.

    Experienced in RASopathies
    Otolaryngology
    Experienced in RASopathies
    Otolaryngology

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 6, Floor 6, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English

    Laryngologist Simon Best specializes in voice and airway disorders, including the comprehensive care of professional voice-users and performers. He treats patients diagnosed with recurrent respiratory papillomatosis (RRP), vocal cord paralysis, laryngeal cancer, precancerous vocal cord dysplasia, benign laryngeal lesions (polyps, cysts, nodules), and laryngeal and tracheal stenosis. He has expertise in the operative management of vocal cord disorders, including Blue Light laser surgery and office-based management of vocal cord papilloma, dysplasia and vocal cord paralysis. Dr. Best earned a medical degree from the Yale School of Medicine and completed residency training in Otolaryngology–Head and Neck Surgery at the Johns Hopkins University School of Medicine. He undertook fellowship training in laryngology at Massachusetts General Hospital. Dr. Best has a particular clinical and research interest in recurrent respiratory papillomatosis and sees patients from across the country for specialized care for this disorder. He offers operative and office-based laser for papilloma, utilizing the Blue Light laser, which allows for precise excision of papilloma while preserving underlying vocal function. Dr. Best is also a pioneer in the adjuvant use of bevacizumab for RRP, helping many patients break the cycle of repeated surgeries. The Best Laboratory studies RRP and the development of novel immunotherapies to target the underlying viral infection. This research is conducted in collaboration with the head and neck cancer and cervical cancer research groups at Johns Hopkins, which also study human papillomavirus-related diseases. In addition, Johns Hopkins is a site for ongoing clinical trials in DNA immunotherapy, the goal of which is to eliminate the causative viral infection that leads to RRP. Dr. Best is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Laryngeal Nerve Damage, Recurrent Respiratory Papillomatosis, Vocal Cord Dysfunction, Laryngectomy, and Gastrostomy. Dr. Best is board certified in Head And Neck Surgery.

    Experienced in RASopathies
    Medical Genetics
    Experienced in RASopathies
    Medical Genetics

    Rubenstein Child Health Building

    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English, Spanish

    Dr. Hilary Vernon is a Professor of Genetic Medicine and pediatrics at the Johns Hopkins University School of Medicine. She is also an attending physician at Kennedy Krieger Institute. Hilary Vernon has expertise in treating inborn errors of metabolism and mitochondrial disorders. She is the director of the Mitochondrial Care Center at The Johns Hopkins Hospital and the Barth Syndrome Interdisciplinary Clinic at the Kennedy Krieger Institute. Her research interests include understanding intermediary metabolism in Barth syndrome and in disorders of branch chain amino acid metabolism. Dr. Vernon also co-directs the Department of Genetic Medicine Clinical Trials Unit, and is the principal investigator on multiple clinical trials for rare diseases. Dr. Vernon received her medical degree and doctorate from Rutgers University, New Brunswick, New Jersey. She completed residencies in genetics and pediatrics at The Johns Hopkins University, and a fellowship in clinical laboratory biochemical genetics at The Johns Hopkins University. Dr. Vernon was recognized with the 2010 Francis F. Schwentker Award for Excellence in Research at Johns Hopkins University and the 2011 James B. Sidbury Jr. Fellowship in Biochemical Genetics at Johns Hopkins University. Dr. Vernon is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Methylmalonic Acidemia, Propionic Acidemia, Infantile Neutropenia, and Progressive External Ophthalmoplegia. Dr. Vernon is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Experienced in RASopathies
    Pediatrics | Internal Medicine
    Experienced in RASopathies
    Pediatrics | Internal Medicine

    Johns Hopkins Outpatient Center

    601 North Caroline Street, Floor 7, Floor 7, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dr. Sara Mixter is Assistant Professor of Medicine and Pediatrics at the Johns Hopkins University School of Medicine. Her areas of clinical expertise are internal medicine, pediatrics, and primary care for adults with developmental disabilities and other complex childhood-onset conditions. She is the director of the Hopkins PACT (Pediatric-informed Adult Care and Transition) Clinic. Dr. Mixter is also the medical director of the Pediatric Complex Care Collaborative (PC3) for the Johns Hopkins Children’s Center. Dr. Mixter received her A.B. from Harvard College. She earned her M.D. from Harvard Medical School and M.P.H. from the Harvard School of Public Health. She completed her residency at Johns Hopkins as part of the inaugural group of trainees in the Urban Health Combined Internal Medicine-Pediatrics Residency Program. Her research interests include transitions of care for adolescents with special healthcare needs and education for residents and medical students, especially in primary care and complex care. Dr. Mixter has served as the Assistant Chief of Service for the Longcope firm of the Osler Medical Housestaff Training Program (2015-16), as well as Assistant Program Director for Ambulatory Education (2014-15). Dr. Mixter is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebral Palsy, Gastroparesis, Orbital Cellulitis, and Sickle Cell Disease. Dr. Mixter is board certified in American Board Of Pediatrics and American Board Of Internal Medicine.

    Experienced in RASopathies
    Neuroradiology
    Experienced in RASopathies
    Neuroradiology

    The Johns Hopkins Hospital

    Baltimore, MD 
     (1.0 miles away)
    Languages Spoken:
    English

    Dr. David M. Yousem is the associate dean for professional development in the Johns Hopkins Medicine Department of Radiology and Radiological Science. He specializes in neuroimaging. Dr. Yousem received his B.S. and M.D. degrees at the University of Michigan. He completed a radiology residency at Johns Hopkins and a two-year fellowship in neuroradiology at the University of Pennsylvania. He received his M.B.A. at Johns Hopkins University in 2003. Dr. Yousem's expertise spans the full gamut of neuroradiology techniques including computed tomography (CT), magnetic resonance imaging (MRI), angiography, myelography, CT guided aspirations and biopsies, functional MRI, diffusion and perfusion imaging, MR/CT angiography, and 3-D reconstructions. He is a noted authority on disorders of the brain, spine, head and neck, olfaction, cranial neuropathies and neurodegeneration. Dr. Yousem has authored or edited four books—Neuroradiology: THE REQUISITES, Head and Neck Case Review, and Radiology Business Practice: How to Succeed, and Non-Interpretive Skills Case Review, all published by Mosby/Elsevier—and has edited four journal issues. He has published over 250 peer reviewed articles over 50 chapters in books and has lectured on five continents. Dr. Yousem has an RSNA Educator Award sponsored on line course containing over 30 lectures on the Business of Medicine available to the public at https://webcast.jhu.edu/Mediasite/Catalog/Full/2facf598655b40ecaf3e7ee71698b86421. This is currently used by residency programs across the country to fulfill ACGME requirements for business of radiology content. He served as President of the American Society of Neuroradiology in 2008-2009 and as the Secretary of Treasurer of the World Federation of Neuroradiological Societies from 2011 to present. He sits on many of national radiological societies committees. Dr. Yousem has completed two marathons (best time: 3 hours, 54 minutes), a half Ironman, and a full Ironman (2.5-mile swim followed by 112-mile bike ride and then a 26-mile run) competition. Videos David M. Yousem e-Radiology Learning - Neuroradiology Pearls and Pitfalls (1 of 4) e-Radiology Learning - Neuroradiology Pearls and Pitfalls (2 of 4) e-Radiology Learning - Neuroradiology Pearls and Pitfalls (3 of 4) e-Radiology Learning - Neuroradiology Pearls and Pitfalls (4 of 4). Dr. Yousem is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Hydrocephalus, Normal Pressure Hydrocephalus, Subarachnoid Hemorrhage, Fractured Spine, and Embolectomy. Dr. Yousem is board certified in American Board Of Radiology.

    Experienced in RASopathies
    Psychiatry | Child and Adolescent Psychiatry
    Experienced in RASopathies
    Psychiatry | Child and Adolescent Psychiatry

    Kennedy Krieger Associates

    707 N Broadway, 
    Baltimore, MD 
     (1.0 miles away)
    Languages Spoken:
    English, Spanish

    Marco Grados is a Psychiatrist and a Child and Adolescent Psychiatrist practicing medicine in Baltimore, Maryland. Dr. Grados is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Tourette Syndrome, Obsessive-Compulsive Disorder (OCD), Attention Deficit Hyperactivity Disorder (ADHD), and Anorexia. Dr. Grados is board certified in American Board Of Psychiatry And Neurology.

    Experienced in RASopathies
    Neuroradiology
    Experienced in RASopathies
    Neuroradiology

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
     (1.1 miles away)
    Languages Spoken:
    English, Gujarati , Hindi, Marathi

    Dr. Sachin K. Gujar is an Assistant Professor and Magnetic Resonance Section Chief in Johns Hopkins Department of Radiology and Radiological Sciences. His area of clinical expertise is Neuroradiology. He earned his M.B.B.S. (medical degree) from Byramjee Jeejeebhoy Medical College in Pune, India. After completing a radiology residency (M.D.) at the same college, he completed a two-year neuroradiology fellowship at the University of Michigan, and subsequently was on faculty at University of Michigan for over 5 years. Dr. Gujar has been a member of the Johns Hopkins Neuroradiology faculty since 2008. Dr. Gujar’s areas of clinical interest include all aspects of adult neuroradiology, including head and neck radiology, spine and spinal cord disorders, and cerebrovascular diseases, with particular interest in brain tumor imaging, physiologic imaging, and Functional MRI. He has published numerous articles on various topics in Neuroradiology. Dr. Gujar is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Normal Pressure Hydrocephalus, Hydrocephalus, Cerebral Arteriovenous Malformation, Stroke, and Microvascular Decompression. Dr. Gujar is board certified in American Board Of Radiology.

    Experienced in RASopathies
    Experienced in RASopathies

    The Johns Hopkins Hospital

    1800 Orleans Street, 
    Baltimore, MD 
     (1.1 miles away)
    Languages Spoken:
    English, Hindi

    Dr. Ahlawat earned a Bachelor of Arts with magna cum laude at New York University. She completed both her Medical Degree as well as residency training in diagnostic radiology at Rutgers University’s Robert Wood Johnson Medical School in New Brunswick, NJ. Dr. Ahlawat completed her Pediatric Radiology Fellowship at the Children’s National Medical Center in Washington, DC and went on to Johns Hopkins University in Baltimore, MD to do a Fellowship in musculoskeletal radiology. After completion of her fellowship, Dr. Ahlawat joined as faculty in the Diagnostic Division of the department of Radiology at the Johns Hopkins University. Currently, she is an Assistant Professor in the Johns Hopkins University Department of Radiology and Radiological Science. Dr. Ahlawat’s expertise is Diagnostic Radiology with additional training in pediatric and musculoskeletal radiology. Dr. Ahlawat specializes in high resolution magnetic resonance (MR) imaging of peripheral nerves, specifically detection and characterization of peripheral nerve injury; MR imaging of peripheral nerve tumors and peripheral nerve tumor syndromes; whole body MR imaging in the setting of peripheral nerve tumor syndromes; and advanced MR techniques such as quantitative diffusion weighted imaging and apparent diffusion coefficient mapping in characterization of bone and soft tissue tumors. Dr. Shivani Ahlawat also serves as the Director of the Musculoskeletal Fellowship Program. Dr. Ahlawat is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Schwannomatosis, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Undifferentiated Pleomorphic Sarcoma. Dr. Ahlawat is board certified in American Board Of Radiology.

    Experienced in RASopathies
    Plastic Surgery
    Experienced in RASopathies
    Plastic Surgery

    Johns Hopkins Bayview Medical Center

    4940 Eastern Avenue, Bayview Medical Offices, Level 01 (G), Clinic 6, Bayview Medical Offices, Level 01 (G), Clinic 6, 
    Baltimore, MD 
     (3.8 miles away)
    Languages Spoken:
    English, Japanese

    Dr. Fisher is an associate professor of plastic surgery in the Johns Hopkins Department of Plastic Surgery. His areas of clinical expertise include burn surgery, burn reconstruction, craniofacial surgery, and reconstructive microsurgery. He serves as the Director of the Johns Hopkins Bayview Adult Burn Center. Committed to acute and reconstructive burn care of the highest quality, Dr. Fisher completed extensive training at multiple leading centers. These included a Burn Fellowship at the Shriners Hospital for Burns in Galveston, a Plastic Surgery Residency at Duke University, a Craniofacial Fellowship at the Hospital for Sick Children in Toronto, and a research fellowship at Harvard. Throughout his career Dr. Fisher has brought the full breadth and depth of his training to care for patients with the most complex injuries and deformities. From 2014 to 2022 he was on the faculty of the University of Iowa where he served in the burn unit, led the craniofacial team, and served the hand trauma team. Recognizing that complex injuries need coordinated care, he developed the Complex Face Group at Iowa to coordinate multiple specialty collaboration. Burns cause disfigurement, disability, and death particularly among the poor in the US and across the globe. Dr. Fisher’s research interests include improving prevention wherever burns happen, improving acute and reconstructive outcomes, and strengthening healthcare systems in the US and abroad in the face of burn and other disasters. His research interests also include wound healing and scar for burns and trauma. He has been a national and international leader in burn care. He founded and chaired the American Burn Association Committee on Reconstruction. He also founded and continues to lead the ABA series of burn reconstruction courses. He is frequently invited to speak internationally and serves actively in burn-related humanitarian agencies. Throughout his career, Dr. Fisher has emphasized the importance of a holistic approach seeking the restoration of not only physical health, but emotional recovery, social connection, and work reintegration of his patients. Dr. Fisher is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Melanoma, Neurofibromatosis, Neurofibromatosis Type 1 (NF1), and Rhinophyma. Dr. Fisher is board certified in American Board Of Plastic Surgery.

    Experienced in RASopathies
    Pediatric Neurology
    Experienced in RASopathies
    Pediatric Neurology

    Kennedy Krieger Institute

    Baltimore, MD 
     (2.6 miles away)
    Languages Spoken:
    English

    Heather Riordan is a Pediatric Neurologist practicing medicine in Baltimore, Maryland. Dr. Riordan is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Focal Dystonia, Transient Tic Disorder, Spastic Diplegia Infantile Type, and Rhizotomy. Dr. Riordan is board certified in American Board Of Psychiatry And Neurology.

    Experienced in RASopathies
    Experienced in RASopathies

    Kennedy Krieger Institute

    801 North Broadway, Neurology And Developmental Med, Neurology And Developmental Med, 
    Baltimore, MD 
     (2.6 miles away)
    Languages Spoken:
    English

    Dr. Alexander Hoon is an associate professor of pediatrics at the Johns Hopkins University School of Medicine. He also serves as the director of the Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine and medical director of the Carter Center for Holoprosencephaly and Related Disorders at Kennedy Krieger Institute. Dr. Hoon received a bachelor of science from Davidson College in 1974, and a medical degree from the University of Pittsburgh in 1978. After a pediatric residency at Kosair-Children's Hospital in Louisville, he completed a neonatology fellowship at British Columbia Children's Hospital and a one-year fellowship in medical genetics at the Affiliated Hospitals in Vancouver, Canada. In 1988, he came to Baltimore where he completed a fellowship in neurodevelopmental disabilities at Kennedy Krieger Institute, and obtained a master's of public health at Johns Hopkins School of Hygiene and Public Health. He joined the Kennedy Krieger faculty in 1990. Using his training in neonatology, genetics, neurodevelopmental disabilities and public health and working with collaborative research teams, Dr. Hoon addresses questions of cause and treatment in cerebral palsy. His current research uses advanced neuroimaging techniques, including diffusion tensor imaging (DTI), in the Kennedy Krieger Institute Kirby Research Center for Functional Brain Imaging, to more precisely characterize brain injury. Dr. Hoon is a member of the American Academy of Pediatrics, the American Society of Human Genetics, the American Academy for Cerebral Palsy and Developmental Medicine, the Society for Developmental Pediatrics and the Kennedy Fellows Association. He was awarded the 2001 Kennedy Krieger Institute William J. Hersey Prize for exceptional commitment to children with disabilities. Dr. Hoon is rated as an Experienced provider by MediFind in the treatment of RASopathies. His clinical expertise encompasses Cardiofaciocutaneous Syndrome, RASopathies, Rubella, and Neonatal Sepsis. Dr. Hoon is board certified in American Board Of Psychiatry And Neurology and American Board Of Pediatrics.

    Experienced in RASopathies
    Pediatric Endocrinology
    Experienced in RASopathies
    Pediatric Endocrinology

    Rubenstein Child Health Building

    200 North Wolfe Street, Building 1, Building 1, 
    Baltimore, MD 
     (0.1 miles away)
    Languages Spoken:
    English

    Dr. Janet L. Crane is an Associate Professor of Pediatrics at the Johns Hopkins University School of Medicine. Dr. Crane is the Director of the Pediatric Bone Health Program, which focuses on the care of children with rare metabolic bone diseases and osteoporosis/skeletal fragility syndromes. Dr. Crane received her bachelor’s degree in nutritional science from the University of Missouri. She completed her medical degree at the University of Maryland-Baltimore, residency in pediatrics at Children's Mercy Hospital and Clinics in Kansas City, Missouri and fellowship in pediatric endocrinology at Johns Hopkins University in 2013. Dr. Crane is a faculty member of the Center for Musculoskeletal Research. Her research is focused on bone modeling and remodeling factors that result in proper bone growth and strength. The goal of her studies is to identify diagnostic markers and therapeutic targets to enhance bone strength in children who have recurrent fractures. Dr. Crane also participates in industry sponosored clinical studies to investigate the safety and efficacy of medications for metabolic bone disease and skeletal fragility. Dr. Crane is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her clinical expertise encompasses Osteogenesis Imperfecta, Juvenile Primary Osteoporosis, Short Stature (Growth Disorders), and Fibrous Dysplasia. Dr. Crane is board certified in American Board Of Pediatrics.

    Advanced in RASopathies
    Plastic Surgery
    Advanced in RASopathies
    Plastic Surgery

    Johns Hopkins Univ.

    601 N Caroline St, 
    Baltimore, MD 
     (0.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Michele Manahan is a Plastic Surgeon practicing medicine in Baltimore, Maryland. Dr. Manahan is rated as an Advanced provider by MediFind in the treatment of RASopathies. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Legius Syndrome, RASopathies, Neurofibromatosis, Breast Enlargement In Males, and Lymphadenectomy.

    Experienced in RASopathies
    Experienced in RASopathies

    University Of Maryland Medical System

    110 S Paca St, 
    Baltimore, MD 
     (0.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Haroon Ahmad is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Ahmad is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Oligodendroglioma, Glioma, Astrocytoma, and Glioblastoma.

    Showing 1-20 of 42

    Last Updated: 04/28/2026

    What is the definition of RASopathies?

    RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

    When should I see a RASopathies doctor near Baltimore, MD?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a RASopathies doctor near Baltimore, MD?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank RASopathies doctors near Baltimore, MD?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by RASopathies doctors near Baltimore, MD?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a RASopathies doctor near Baltimore, MD?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

    Why is it important to get a second opinion from a different RASopathies doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a RASopathies doctor near Baltimore, MD?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my RASopathies doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female RASopathies doctors near Baltimore, MD?

    Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a RASopathies doctor that offers video calls?

    Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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