The 20 Best RASopathies Doctors Near Me in Michigan, US

Find the Top RASopathies Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 384 doctor with experience in RASopathies near Michigan, US. Of these, 351 are Experienced, 32 are Advanced and 1 are Distinguished.

Location
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384 providers found
    Advanced in RASopathies
    Advanced in RASopathies

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of RASopathies. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Legius Syndrome, Esotropia, and RASopathies. Dr. Conley is board certified in American Board Of Ophthalmology.

    Advanced in RASopathies
    Pediatric Cardiology
    Advanced in RASopathies
    Pediatric Cardiology

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Languages Spoken:
    English

    Dr. Meisner is a board-certified pediatric cardiologist and physician scientist. His clinical focus is on cardiovascular genetics, and he provides the pediatric cardiology services in the multidisciplinary hypertrophic cardiomyopathy, muscular dystrophy, cardiovascular genetics and aortopathy, and RASopathy clinics. He also sees general cardiology and molecular and biochemical cardiology patients in his individual clinics. His translational research laboratory utilizes induced pluripotent stem cell cardiomyocyte and innovative mouse models to understand the pathophysiology and clinical course that leads to cardiomyopathy in children and young adults. Dr. Meisner is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses CHARGE Syndrome, Noonan Syndrome, Cardiomyopathic Lentiginosis, and Cardiofaciocutaneous Syndrome. Dr. Meisner is board certified in Pediatric Cardiology and Pediatrics.

    Advanced in RASopathies
    Advanced in RASopathies

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Fletcher is rated as an Advanced provider by MediFind in the treatment of RASopathies. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Astigmatism. Dr. Fletcher is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Are you looking for a specific type of RASopathies?

    Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

    Learn about our expert tiers
    Advanced in RASopathies
    Pediatric Neurology
    Advanced in RASopathies
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Advanced in RASopathies
    Pediatric Cardiology | Pediatrics
    Advanced in RASopathies
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Jimmy Lu is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Lu is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 129 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Double Discordia, Transposition of the Great Arteries, and Heart Transplant. Dr. Lu is board certified in Pediatric Cardiology.

    Advanced in RASopathies
    Pediatric Cardiology | Pediatrics
    Advanced in RASopathies
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Dr. Dorfman was born and raised in southeast Michigan, and returned home in 2007 after training and working as faculty at Children’s Hospital Boston and Harvard Medical School. He is co-director of congenital and pediatric cardiovascular magnetic resonance imaging and attends in the echocardiography laboratory, as well as seeing patients in a general pediatric cardiology clinic. Dr. Dorfman is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Double Discordia, Transposition of the Great Arteries, and Hypoplastic Left Heart Syndrome (HLHS). Dr. Dorfman is board certified in Pediatric Cardiology.

    Advanced in RASopathies
    Advanced in RASopathies

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of RASopathies. She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in RASopathies
    Pediatric Otolaryngology
    Advanced in RASopathies
    Pediatric Otolaryngology

    Corewell Health Ear, Nose And Throat - 4069 Lake Dr SE

    4069 Lake Drive Southeast, Suite 315, 
    Grand Rapids, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Chad Afman is a Pediatric Otolaryngologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Afman is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Laryngomalacia, Enlarged Adenoids, Tracheobronchomalacia, and Acquired Tracheomalacia. Dr. Afman is board certified in American Board Of Otolaryngology - Head And Neck Surgery. Dr. Afman is currently accepting new patients.

    Advanced in RASopathies
    Pediatric Cardiology | Pediatrics
    Advanced in RASopathies
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Dr. Pasquali is the Janette Ferrantino Professor of Pediatrics and the Interim Associate Chief Clinical Officer for C.S. Mott Children’s Hospital at the University of Michigan. She has previously served as the Service Chief for the Division of Pediatric Cardiology and the Director of Research and Quality within the Congenital Heart Center. Dr. Pasquali received her undergraduate degree from University of Michigan and medical degree from Duke University School of Medicine. She completed pediatric residency and pediatric cardiology fellowship training at the Children’s Hospital of Philadelphia. She has a Masters of Health Sciences degree in Clinical Research, and has completed executive leadership training through the ELAM program.Dr. Pasquali’s work has focused on optimizing pediatric care and outcomes both locally and across the country through research, quality, and policy efforts. She has authored more than 200 publications in this area and her research has been continuously funded by the NIH throughout her career. She is the Co-PI for her center’s participation as one of 9 core sites in NHLBI-funded Pediatric Heart Network, and was a co-founder of Cardiac Networks United which has fostered collaboration spanning more than two thirds of the nation’s congenital heart programs to support novel research and quality efforts that have improved care and outcomes across children’s hospitals. She recently led an initiative that brought together 15 professional societies and 20+ institutions to develop the first multi-disciplinary consensus guidelines for congenital heart surgery in the US. Dr. Pasquali is the immediate past chair of the American Heart Association Scientific Sessions for the Young Hearts Council, and is an active mentor, recently launching a national early career exchange program across congenital heart centers.Dr. Pasquali has received numerous awards including the Outstanding Research Award in Pediatric Cardiology from the American Heart Association, and Richard E. Clark Award from the Society of Thoracic Surgeons. Dr. Pasquali is rated as an Advanced provider by MediFind in the treatment of RASopathies. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Hypoplastic Left Heart Syndrome (HLHS), Coarctation of the Aorta, Tetralogy of Fallot, Heart Transplant, and Aortic Valve Replacement. Dr. Pasquali is board certified in Pediatric Cardiology.

    Experienced in RASopathies
    Medical Genetics
    Experienced in RASopathies
    Medical Genetics
    25 Michigan St Ne, Suite 2000, 
    Grand Rapids, MI 
    Languages Spoken:
    English
    Accepting New Patients

    Laurie Seaver is a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. Dr. Seaver is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses 1p36 Deletion Syndrome, Hypotonia, Smith-Magenis Syndrome, and Potocki-Lupski Syndrome. Dr. Seaver is currently accepting new patients.

    Distinguished in RASopathies
    Hematology | Oncology
    Distinguished in RASopathies
    Hematology | Oncology

    Office

    1500 E Medical Center Dr Spc 5718, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Gina Ney is a Hematologist and an Oncologist practicing medicine in Ann Arbor, Michigan. Dr. Ney is rated as a Distinguished provider by MediFind in the treatment of RASopathies. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses RASopathies, Rhabdomyosarcoma, Neurofibromatosis, and Legius Syndrome.

    Advanced in RASopathies
    Radiology | Pediatric Radiology
    Advanced in RASopathies
    Radiology | Pediatric Radiology

    U Of M Radiology

    1500 E Medical Center Dr, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    David Bloom is a Radiologist and a Pediatric Radiologist practicing medicine in Ann Arbor, Michigan. Dr. Bloom is rated as an Advanced provider by MediFind in the treatment of RASopathies. He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Neurogenic Bladder, PIK3CA-Related Overgrowth Spectrum, Atresia of Small Intestine, and Parkes Weber Syndrome. Dr. Bloom is board certified in Diagnostic Radiology and Pediatric Radiology.

    Experienced in RASopathies
    Pediatrics | Surgical Oncology
    Experienced in RASopathies
    Pediatrics | Surgical Oncology

    Corewell Health Orthopedic Oncology - Lemmen-Holton

    145 Michigan Street Northeast, Suite 5500, 
    Grand Rapids, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Matthew Steensma is a Pediatrics specialist and a Surgical Oncologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 24 years. Dr. Steensma is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Fibrosarcoma, Malignant Peripheral Nerve Sheath Tumor, Neurofibromatosis, Adult Soft Tissue Sarcoma, and Hip Replacement. Dr. Steensma is board certified in American Board Of Orthopaedic Surgery. Dr. Steensma is currently accepting new patients.

    Experienced in RASopathies
    Pediatric Cardiology | Pediatrics
    Experienced in RASopathies
    Pediatric Cardiology | Pediatrics

    C. S. Mott Children's Hospital

    1540 E Hospital Dr, Floor 11 Reception C, 
    Ann Arbor, MI 
    Languages Spoken:
    English

    Thor Thorsson is a Pediatrics specialist and a Pediatric Cardiologist practicing medicine in Ann Arbor, Michigan. Dr. Thorsson is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 107 other conditions, according to our data. His clinical expertise encompasses Tetralogy of Fallot, Hypoplastic Left Heart Syndrome (HLHS), Mitral Atresia, and Isthmian Coarctation. Dr. Thorsson is board certified in Pediatric Cardiology.

    Experienced in RASopathies
    Pediatric Cardiology | Pediatrics
    Experienced in RASopathies
    Pediatric Cardiology | Pediatrics

    Brighton Center For Specialty Care

    7500 Challis Rd, Entrance 1, Level 2, 
    Brighton, MI 
    Languages Spoken:
    English

    Mark W.Russell, M.D. is a board certified Pediatric Cardiologist with a busy clinical practice and research program. Dr. Russell provides the Pediatric Cardiology services for the Hypertrophic Cardiomypathy Program and the Multidisciplinary Muscular Dystrophy Clinic. He directs clinical research studies examining the effect of genetic factors on post-operative outcomes and is the site principal investigator for a multicenter, clinical trial evaluating a new potential treatment for protein-losing enteropathy. He is the director of a biorepository for a multicenter clinical trial sponsored by the Pediatric Heart Network and is a member of the Heart Network's panel that oversees the acquisition and study of biologic samples from patients with congenital heart defects. In addition, he directs a busy laboratory that examines the effects of the extracellular environment on the differentiation of immature cells into cardiac myocytes. Dr. Russell is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 105 other conditions, according to our data. His clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Cardiomyopathy, Congenital Heart Disease (CHD), Hypoplastic Left Heart Syndrome (HLHS), and Patent Foramen Ovale Repair. Dr. Russell is board certified in Pediatric Cardiology.

    Experienced in RASopathies
    Pediatric Cardiology
    Experienced in RASopathies
    Pediatric Cardiology

    Helen DeVos Children's Hospital Fetal And Pediatric Cardiology Clinic

    1105 Sixth Street, 
    Traverse City, MI 
    Experience:
    13+ years
    Languages Spoken:
    English
    Accepting New Patients

    Sarah Fahnhorst is a Pediatric Cardiologist practicing medicine in Traverse City, Michigan. She has been practicing medicine for over 13 years. Dr. Fahnhorst is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Double Discordia, Tetralogy of Fallot, Bicuspid Aortic Valve, and Ebstein's Anomaly. Dr. Fahnhorst is board certified in American Board Of Internal Medicine, Adult Congenital Heart Disease - 2023 , American Board Of Pediatrics, Pediatric Cardiology - 2022 , and American Board Of Pediatrics, Pediatrics - 2018. Dr. Fahnhorst is currently accepting new patients.

    Experienced in RASopathies
    Experienced in RASopathies

    Pediatric Ophthalmology PC - Cascade Road

    5050 Cascade Road Southeast, 
    Grand Rapids, MI 
    Experience:
    46+ years
    Languages Spoken:
    English
    Accepting New Patients

    Patrick Droste is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 46 years. Dr. Droste is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Brown Syndrome. Dr. Droste is board certified in American Board Of Ophthalmology. Dr. Droste is currently accepting new patients.

    Experienced in RASopathies
    Ophthalmology
    Experienced in RASopathies
    Ophthalmology

    Children's Eye Care PC

    7001 Orchard Lake Road, Suite 200, 
    West Bloomfield, MI 
    Experience:
    26+ years
    Languages Spoken:
    English, Hebrew, Spanish
    Accepting New Patients

    Leemor Rotberg is an Ophthalmologist practicing medicine in West Bloomfield, Michigan. She has been practicing medicine for over 26 years. Dr. Rotberg is rated as an Experienced provider by MediFind in the treatment of RASopathies. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Brown Syndrome, Amblyopia, and Esotropia. Dr. Rotberg is board certified in American Board Of Ophthalmology. Dr. Rotberg is currently accepting new patients.

    Experienced in RASopathies
    Experienced in RASopathies

    Michigan Institute For Neurological Disorders (MIND)

    25100 Kelly Road, 
    Roseville, MI 
    Experience:
    46+ years
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Edward Dabrowski is a Physiatrist practicing medicine in Roseville, Michigan. He has been practicing medicine for over 46 years. Dr. Dabrowski is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is board certified in American Board Of Physical Medicine And Rehabilitation. Dr. Dabrowski is currently accepting new patients.

    Experienced in RASopathies
    Neuroradiology | Radiology
    Experienced in RASopathies
    Neuroradiology | Radiology

    Corewell Health William Beaumont University Hospital - Diagnostic Radiology

    3601 West 13 Mile Road, 
    Royal Oak, MI 
    Experience:
    55+ years
    Languages Spoken:
    English
    Accepting New Patients

    Samir Noujaim is a Radiologist and a Neuroradiologist practicing medicine in Royal Oak, Michigan. He has been practicing medicine for over 55 years. Dr. Noujaim is rated as an Experienced provider by MediFind in the treatment of RASopathies. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Sciatica, Stroke, Scoliosis, and Relapsed Refractory Multiple Myeloma (RRMM). Dr. Noujaim is board certified in American Board Of Radiology and American Board Of Radiology. Dr. Noujaim is currently accepting new patients.

    Showing 1-20 of 384

    Last Updated: 04/28/2026

    What is the definition of RASopathies?

    RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

    When should I see a RASopathies doctor in Michigan, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a RASopathies doctor in Michigan, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank RASopathies doctors in Michigan, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by RASopathies doctors in Michigan, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a RASopathies doctor in Michigan, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

    Why is it important to get a second opinion from a different RASopathies doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a RASopathies doctor in Michigan, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my RASopathies doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female RASopathies doctors in Michigan, US?

    Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a RASopathies doctor that offers video calls?

    Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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