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    Last Updated: 10/30/2025

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    MediFind found 375 doctor with experience in RASopathies near Michigan, US. Of these, 344 are Experienced and 31 are Advanced.

    Location
    LocationClose
    375 providers found
      Experienced in RASopathies
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in RASopathies
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine

      Spectrum Health Primary Care Partners

      4444 Kalamazoo Ave Se, 200 Corewell Health Medica, 
      Kentwood, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Susan Millard is a Pediatric Pulmonologist and a Pediatrics provider in Kentwood, Michigan. Dr. Millard is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Laryngomalacia, Cystic Fibrosis, Exocrine Pancreatic Insufficiency, and Vocal Cord Dysfunction. Dr. Millard is currently accepting new patients.

      Experienced in RASopathies
      Vascular Surgery
      Experienced in RASopathies
      Vascular Surgery

      Henry Ford Health System

      19401 Hubbard Dr, 
      Dearborn, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Nypaver is a Vascular Surgeon in Dearborn, Michigan. Dr. Nypaver is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Peripheral Artery Disease, Thoracic Aortic Aneurysm, Arterial Insufficiency, Carotid Artery Surgery, and Aneurysm Repair. Dr. Nypaver is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in RASopathies
      Medical Genetics | Pediatrics
      Experienced in RASopathies
      Medical Genetics | Pediatrics

      Spectrum Health Hospitals

      25 Michigan St Ne, Corewell Health Grand Rapi, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Laurie Seaver is a Medical Genetics specialist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Seaver is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Hypotonia, 1p36 Deletion Syndrome, Smith-Magenis Syndrome, and Potocki-Lupski Syndrome. Dr. Seaver is currently accepting new patients.

      Are you looking for a specific type of RASopathies?

      Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

      Learn about our expert tiers
      Experienced in RASopathies
      Pediatric Gastroenterology | Gastroenterology
      Experienced in RASopathies
      Pediatric Gastroenterology | Gastroenterology
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Cloney is a Pediatric Gastroenterologist and a Gastroenterologist in Grand Rapids, Michigan. Dr. Cloney is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Eosinophilic Esophagitis, Encopresis, Bowel Incontinence, and Esophagitis. Dr. Cloney is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      Cukrowski Eye Center, PC

      701 South Ballenger Hwy, 
      Flint, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Cukrowski is an Ophthalmologist in Flint, Michigan. Dr. Cukrowski is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Glaucoma, Dry Eye Syndrome, Interstitial Keratitis, and Kallikrein Hypertension. Dr. Cukrowski is currently accepting new patients.

      Experienced in RASopathies
      Experienced in RASopathies

      Southfield Pediatric Physicians PC

      Bingham Farms, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Blum is a Pediatrics provider in Bingham Farms, Michigan. Dr. Blum is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Obesity in Children, Respiratory Syncytial Virus (RSV) Infection, Asthma in Children, and Streptococcal Group A Infection. Dr. Blum is currently accepting new patients.

      Advanced in RASopathies
      Pediatric Hematology Oncology
      Advanced in RASopathies
      Pediatric Hematology Oncology
      1500 East Medical Center Drive, 7th Floor Cs Mott Childrens Hospital, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Gina Ney is a Pediatric Hematologist Oncology provider in Ann Arbor, Michigan. Dr. Ney is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are RASopathies, Rhabdomyosarcoma, Neurofibromatosis, and Legius Syndrome.

      Advanced in RASopathies
      Neurosurgery
      Advanced in RASopathies
      Neurosurgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Byron Thompson is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Thompson is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Aneurysm, Subarachnoid Hemorrhage, Acoustic Neuroma, Thrombectomy, and Gastrostomy.

      Advanced in RASopathies
      Ophthalmology | Pediatrics
      Advanced in RASopathies
      Ophthalmology | Pediatrics

      Spectrum Health Primary Care Partners

      4069 Lake Dr Se, 
      Grand Rapids, MI 
      Experience:
      16+ years
      Languages Spoken:
      English

      Julie Conley is an Ophthalmologist and a Pediatrics provider in Grand Rapids, Michigan. Dr. Conley has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Strabismus, Legius Syndrome, Esotropia, and RASopathies.

      Advanced in RASopathies
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in RASopathies
      Pediatric Neurology | Pediatrics | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Patricia Robertson is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Robertson is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Glioma, Diencephalic Syndrome, Brain Stem Cancer, and Brain Tumor.

      Advanced in RASopathies
      Advanced in RASopathies
      2525 Washington St, 
      Midland, MI 
      Languages Spoken:
      English

      John Vargas is a Radiologist in Midland, Michigan. Dr. Vargas is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Legius Syndrome, RASopathies, Neurofibromatosis, and Vitamin B12 Deficiency.

      Advanced in RASopathies
      Pediatric Cardiology | Pediatrics
      Advanced in RASopathies
      Pediatric Cardiology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, Mott Hospital, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Joshua Meisner is a Pediatric Cardiologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Meisner is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are CHARGE Syndrome, Cardiofaciocutaneous Syndrome, Noonan Syndrome, and Cardiomyopathic Lentiginosis. Dr. Meisner is currently accepting new patients.

      Advanced in RASopathies
      Medical Genetics | Obstetrics and Gynecology
      Advanced in RASopathies
      Medical Genetics | Obstetrics and Gynecology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English, French
      Accepting New Patients
      Offers Telehealth

      Jane Nicholson is a Medical Genetics specialist and an Obstetrics and Gynecologist in Ann Arbor, Michigan. Dr. Nicholson is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Female Genital Sores, Vitiligo, Legius Syndrome, Intrauterine Device Insertion, and Hormone Replacement Therapy (HRT). Dr. Nicholson is currently accepting new patients.

      Advanced in RASopathies
      Medical Genetics | Pediatrics
      Advanced in RASopathies
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Ames is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Ames is rated as an Advanced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Delayed Growth, Cardiomyopathic Lentiginosis, Noonan Syndrome, and Cardiofaciocutaneous Syndrome. Dr. Ames is currently accepting new patients.

      Advanced in RASopathies
      Ophthalmology
      Advanced in RASopathies
      Ophthalmology

      Grand Traverse Ophthalmology Clinic PC

      929 Business Park Dr, 
      Traverse City, MI 
      Languages Spoken:
      English

      Daniel Thuente is an Ophthalmologist in Traverse City, Michigan. Dr. Thuente is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Strabismus, Esotropia, Amblyopia, Brown Syndrome, and Trabeculectomy.

      Advanced in RASopathies
      Neurosurgery
      Advanced in RASopathies
      Neurosurgery

      Regents Of The University Of Michigan

      4260 Plymouth Rd, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Hugh Garton is a Neurosurgery provider in Ann Arbor, Michigan. Dr. Garton is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Chiari Malformation, Chiari Malformation Type 1, Chiari Malformation Type 2, Posterior Fossa Decompression, and Gamma Knife Radiosurgery.

      Advanced in RASopathies
      Radiology | Pediatric Radiology
      Advanced in RASopathies
      Radiology | Pediatric Radiology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      David Bloom is a Radiologist and a Pediatric Radiologist in Ann Arbor, Michigan. Dr. Bloom is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Atresia of Small Intestine, Chondrodystrophy, Acropectoral Syndrome, Endoscopy, and Osteotomy.

      Advanced in RASopathies
      Advanced in RASopathies

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tobias Walbert is a Neurologist in Detroit, Michigan. Dr. Walbert is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Glioma, Brain Tumor, Glioblastoma, and Astrocytoma.

      Advanced in RASopathies
      Advanced in RASopathies

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Arabic
      Accepting New Patients
      Offers Telehealth

      Hussam El-Kashlan is an Otolaryngologist in Ann Arbor, Michigan. Dr. El-Kashlan is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Glomus Tympanum Tumor, Glomus Jugulare Tumor, Infant Hearing Loss, and DFNB1. Dr. El-Kashlan is currently accepting new patients.

      Advanced in RASopathies
      Advanced in RASopathies

      Center For Physical Rehabilitation Inc

      5060 Cascade Rd, Suite A, 
      Grand Rapids, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Ehrhardt is a Neurologist in Grand Rapids, Michigan. Dr. Ehrhardt is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Migraine, Neuralgia, Trigeminal Neuralgia, and Epilepsy. Dr. Ehrhardt is currently accepting new patients.

      Showing 1-20 of 375

      Last Updated: 10/30/2025

      What is the definition of RASopathies?

      RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

      When should I see a RASopathies doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a RASopathies doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank RASopathies doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by RASopathies doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a RASopathies doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

      Why is it important to get a second opinion from a different RASopathies doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a RASopathies doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my RASopathies doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female RASopathies doctors in Michigan, US?

      Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a RASopathies doctor that offers video calls?

      Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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